Civic Intelligence

Terrys Foundation for Muscular Dystrophy

990 • Fiscal year 2022 • EIN 82-2473513

Aug 01, 2021 to Jul 31, 2022 • Filed on Aug 07, 2023

Organization ProfileCURERAREDISEASE.ORG
4 Research DriveWoodbrdge, CT 06525

(607) 215-6401

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

72nd percentile

0.25x

Higher debt load relative to assets than 72% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

49th percentile

0.08x

Higher debt load relative to revenue than 49% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

17th percentile

-15%

Higher net margin than 17% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

60th percentile

$82,123

Higher top officer pay than 60% of similar nonprofits.

Top officer pay equals 2.9% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

2nd percentile

-43%

Faster asset growth than 2% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

59th percentile

13%

Faster revenue growth than 59% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets72nd percentile

Assets

Down

$839,519

Down $630,915 (-43%) from 2021

Net Assets

Down

$626,511

Down $533,843 (-46%) from 2021

Liabilities

Down

$213,008

Down $97,072 (-31%) from 2021

Revenue And Expenses
Liabilities / Revenue49th percentileNet Margin17th percentile

Revenue

Up

$2,797,783

Up $310,961 (+13%) from 2021

Expenses

Up

$3,210,905

Up $921,771 (+40%) from 2021

Net Income

Down

-$413,122

Down $610,810 (-309%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth2nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2018: $16,349Liabilities 2018: $0Net Assets 2018: $16,3492018Assets 2019: $300,026Liabilities 2019: $2,949Net Assets 2019: $297,0772019Assets 2020: $1,000,002Liabilities 2020: $135,008Net Assets 2020: $864,9942020Assets 2021: $1,470,434Liabilities 2021: $310,080Net Assets 2021: $1,160,3542021Assets 2022: $839,519Liabilities 2022: $213,008Net Assets 2022: $626,5112022Assets 2023: $3,277,567Liabilities 2023: $2,255,806Net Assets 2023: $1,021,7612023Assets 2024: $5,973,877Liabilities 2024: $2,517,905Net Assets 2024: $3,455,9722024

Highlighted filing

2022

Assets$839,519
Liabilities$213,008
Net Assets$626,511
Open 2022 Filing

Operations Trend

Revenue Growth59th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2018: $68,710Expenses 2018: $52,361Net Income 2018: $16,3492018Revenue 2019: $347,928Expenses 2019: $67,200Net Income 2019: $280,7282019Revenue 2020: $908,188Expenses 2020: $340,271Net Income 2020: $567,9172020Revenue 2021: $2,486,822Expenses 2021: $2,289,134Net Income 2021: $197,6882021Revenue 2022: $2,797,783Expenses 2022: $3,210,905Net Income 2022: -$413,1222022Revenue 2023: $2,300,944Expenses 2023: $1,957,670Net Income 2023: $343,2742023Revenue 2024: $4,438,510Expenses 2024: $2,003,149Net Income 2024: $2,435,3612024

Highlighted filing

2022

Revenue$2,797,783
Expenses$3,210,905
Net Income-$413,122
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Aug 1, 2021 to Jul 31, 2022
Signed
Aug 7, 2023
Return Version
2021v4.2
Gross Receipts
$2,913,791
Mission and Program Overview

Mission

NONE

Our mission is to enable and finance the development of life-saving genetic medicines for ultra-rare patient populations previously deemed too rare to treat. To realize this, our unique ecosystems facilitates collaboration between world-renowned researchers and clinicians, policy experts and our generous donors. Together, we are fundamentally changing the ultra-rare disease experience and burden for millions of people around the world with our discoveries and methods - while bringing hope to patients waiting for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,145,099$486,312▼ $658,787
Savings and Temporary Cash Investments$228,793$211,746▼ $17,047
Land, Buildings, and Equipment, Net$1,529$103,078▲ $101,549
Accounts Receivable$0$22,588▲ $22,588
Prepaid Expenses and Deferred Charges$95,013$9,045▼ $85,968
Total Assets$1,470,434$839,519▼ $630,915
Other Assets Total$0$6,750▲ $6,750
Liabilities
Accounts Payable and Accrued Expenses$310,080$139,037▼ $171,043
Deferred Revenue$0$73,971▲ $73,971
Total Liabilities$310,080$213,008▼ $97,072
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,160,354$626,511▼ $533,843
Total Net Assets Fund Balance$1,160,354$626,511▼ $533,843
Total Liabilities and Net Assets / Fund Balance$1,470,434$839,519▼ $630,915

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$101,800-$101,800
Equipment$1,278$481$1,759
Compensation and Service Providers
Top Officer Pay60th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Richard HorganPresidentFT$74,845$7,278$82,123

Board Members and Trustees

NameTitle
Alexandra UrmanBoard Member
Cody TranbargerBoard Member
Greg KlassenBoard Member
Jessica CurranBoard Member
Karen MoralesBoard Member
Keven LinBoard Member
Kwesi AcquayBoard Member
Liz DuffyBoard Member
Mark SmithBoard Member
Melissa Hunter-ensorBoard Member
Sara ColeBoard Member
Stephanie HerzogBoard Member
Revenue and Support

Revenue Composition

Contributions and Grants
$2,645,017
Program Service Revenue
$0
Investment Income
$88,129
Other Revenue
$64,637
All Other Contributions
$1,995,454
Change in Net Assets
$-413,122

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,797,783
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-99,256
Total Revenue per Audited Statements
$2,698,527
Total Revenue per Form 990
$2,797,783
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,068,554
Salaries, Compensation, and Employee Benefits$138,601
Total Fundraising Expense$52,827
Professional Fundraising Fees$3,750
Grants and Similar Amounts Paid$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Advertising$121,408$12,120$45,644$179,172
Current Officers, Directors, Trustees, and Key Employees$84,419$4,443-$88,862
Fees for Services Management$37,534$37,534-$75,068
Fees for Services Legal-$69,796-$69,796
Other Salaries and Wages$33,653$2,538-$36,191
Fees for Services Other$5,829$25,892-$31,721
Office Expenses$14,421$11,066$2,838$28,325
Fees for Services Accounting-$14,781-$14,781
Payroll Taxes$13,054$494-$13,548
Insurance-$12,551-$12,551
Travel$8,535$6-$8,541
Occupancy$3,855$875-$4,730
Fees for Services Professional Fundraising--$3,750$3,750
Conferences and Meetings$2,000--$2,000
Other Expenses$1,190$1,496$595$1,496
Depreciation Depletion-$251-$251
All Other Expenses$154$88-$242
Total Functional Expenses$2,929,335$228,743$52,827$3,210,905

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,210,905
Total Expenses per Audited Statements$3,210,905
Total Expenses per Form 990$3,210,905
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$154,703
Fundraising Direct Expenses$92,831
Professional Fundraising Fees$3,750

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Tournament$804,266$154,703$35,481$119,222
Total Events$804,266$154,703$92,831$61,872
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 is distributed via email to all members of the governing body prior to filing.”

Form 990, Part VI, Section B, Line 12C

“When a volunteer or board member begins engaging with cure rare disease, they must sign the conflict of interest policy if there is an identified potential conflict of interest.”

Form 990, Part VI, Section C, Line 18

“All are available upon request.”

Form 990, Part VI, Section C, Line 19

“Upon request, will provide all public documents including form 990, governing documents and financial statements to any requesting party.”

Filing and Contact Details

Filer

Filer Name
Cure Rare Disease Inc
EIN
82-2473513
Phone
6072156401
Address
4 RESEARCH DRIVE, WOODBRDGE, CT 06525

Signing Officer

Name
Richard Horgan
Title
Executive Director
Phone
6072156401
Signed
2023-08-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Richard Horgan
Formed
2018
Legal Domicile
Ma
Voting Board Members
13
Independent Board Members
12
Employees
7
Volunteers
12

Preparer

Firm
Evergreen Alliance Professional Corp
Address
4332 CERRITOS AVE SUITE A105, LOS ALAMITOS, CA 90720
Phone
7143728110
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C - Review Process of Form 990

“The organization sends the form 990 to the finance committee for everyone to review.”

Financial Statement Notes

PART X, LINE 2:

“The organization has received tax-exempt status from the internal revenue service and california franchise tax board under section 501(c)(3) of the internal revenue code and under revenue and taxation code section 23701d, respectively. Four research, llc is a single-member limited liability company, wholly owned by the organization. Accordingly, all activity is reported under the organization's name and four research, llc assumes the same tax status as the organization. Since the organization is exempt from federal and state income tax liability, no provision is made for current or deferred income taxes. The organization uses the same accounting methods for tax and financial reporting. Management has considered its tax positions and believes that all of the positions taken in its federal and state exempt organization returns are more likely than not to be sustained upon examination. The organization's returns are subject to examination by federal and state taxing authorities, generally for three years and four years, respectively, after they are filed.”

Raw XML AppendixShowing 400 of 500 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OF PEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01160354
IRS990/NetAssetsOrFundBalancesEOYAmt0626511
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt081897
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt081897
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt061872
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt061872
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-99256
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01160354
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0626511
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt0875
IRS990/OccupancyGrp/ProgramServicesAmt03855
IRS990/OccupancyGrp/TotalAmt04730
IRS990/OfficeExpensesGrp/FundraisingAmt02838
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt011066
IRS990/OfficeExpensesGrp/ProgramServicesAmt014421
IRS990/OfficeExpensesGrp/TotalAmt028325
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt06750
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0RESEARCH & DEVELOPMENT
IRS990/OtherExpensesGrp/Desc1BANK & MERCHANT FEES
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3RECRUITMENT & RETENTION
IRS990/OtherExpensesGrp/FundraisingAmt0595
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt034794
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt118
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21496
IRS990/OtherExpensesGrp/ProgramServicesAmt02603283
IRS990/OtherExpensesGrp/ProgramServicesAmt11190
IRS990/OtherExpensesGrp/TotalAmt02603283
IRS990/OtherExpensesGrp/TotalAmt134794
IRS990/OtherExpensesGrp/TotalAmt21803
IRS990/OtherExpensesGrp/TotalAmt31496
IRS990/OtherRevenueMiscGrp/BusinessCd0900009
IRS990/OtherRevenueMiscGrp/Desc0ADMINISTRATIVE ADJUSTM
IRS990/OtherRevenueMiscGrp/ExclusionAmt02765
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt02765
IRS990/OtherRevenueTotalAmt02765
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt02538
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt033653
IRS990/OtherSalariesAndWagesGrp/TotalAmt036191
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0494
IRS990/PayrollTaxesGrp/ProgramServicesAmt013054
IRS990/PayrollTaxesGrp/TotalAmt013548
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt095013
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt09045
IRS990/PrincipalOfficerNm0RICHARD HORGAN
IRS990/PriorPeriodAdjustmentsAmt0-21465
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01909649
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt05000
IRS990/PYInvestmentIncomeAmt04586
IRS990/PYOtherExpensesAmt02209497
IRS990/PYOtherRevenueAmt0572587
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0197688
IRS990/PYSalariesCompEmpBnftPaidAmt074637
IRS990/PYTotalExpensesAmt02289134
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02486822
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-413122
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0228793
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0211746
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02645017
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01909649
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01123922
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0335583
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt053366
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt06067537
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt06232
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt04856
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt011088
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.95700
IRS990ScheduleA/PublicSupportPY170Pct00.99870
IRS990ScheduleA/PublicSupportTotal170Amt05876270
IRS990ScheduleA/SubstantialContributorsTotAmt0191267
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt02645017
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01909649
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01123922
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0335583
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt053366
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt06067537
IRS990ScheduleA/TotalSupportAmt06140497
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt061872
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt061872
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BuildingsGrp/BookValueAmt0101800
IRS990ScheduleD/BuildingsGrp/OtherCostOrOtherBasisAmt0101800
IRS990ScheduleD/EquipmentGrp/BookValueAmt01278
IRS990ScheduleD/EquipmentGrp/DepreciationAmt0481
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt01759
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt03210905
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-99256
IRS990ScheduleD/RevenueNotReportedAmt0-99256
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt02797783
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION HAS RECEIVED TAX-EXEMPT STATUS FROM THE INTERNAL REVENUE SERVICE AND CALIFORNIA FRANCHISE TAX BOARD UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND UNDER REVENUE AND TAXATION CODE SECTION 23701D, RESPECTIVELY. FOUR RESEARCH, LLC IS A SINGLE-MEMBER LIMITED LIABILITY COMPANY, WHOLLY OWNED BY THE ORGANIZATION. ACCORDINGLY, ALL ACTIVITY IS REPORTED UNDER THE ORGANIZATION'S NAME AND FOUR RESEARCH, LLC ASSUMES THE SAME TAX STATUS AS THE ORGANIZATION. SINCE THE ORGANIZATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAX LIABILITY, NO PROVISION IS MADE FOR CURRENT OR DEFERRED INCOME TAXES. THE ORGANIZATION USES THE SAME ACCOUNTING METHODS FOR TAX AND FINANCIAL REPORTING. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ORGANIZATION'S RETURNS ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AND FOUR YEARS, RESPECTIVELY, AFTER THEY ARE FILED.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt0103078
IRS990ScheduleD/TotalExpensesPerForm990Amt03210905
IRS990ScheduleD/TotalRevenuePerForm990Amt02797783
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt02698527
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt03210905
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0649563
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0649563
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt092831
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF TOURNAMENT
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0804266
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0804266
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0154703
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0154703
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt061872
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt035481
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt035481
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt057350
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt057350
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990 IS DISTRIBUTED VIA EMAIL TO ALL MEMBERS OF THE GOVERNING BODY PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1WHEN A VOLUNTEER OR BOARD MEMBER BEGINS ENGAGING WITH CURE RARE DISEASE, THEY MUST SIGN THE CONFLICT OF INTEREST POLICY IF THERE IS AN IDENTIFIED POTENTIAL CONFLICT OF INTEREST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ALL ARE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3UPON REQUEST, WILL PROVIDE ALL PUBLIC DOCUMENTS INCLUDING FORM 990, GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS TO ANY REQUESTING PARTY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION SENDS THE FORM 990 TO THE FINANCE COMMITTEE FOR EVERYONE TO REVIEW.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION C, LINE 18

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$839,519
Liabilities
$213,008
Net assets
$626,511
Revenue
$2,797,783
Expenses
$3,210,905
Net income
-$413,122
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.97$2.52$3.46$4.44$2.00$2.44
2023Detailed filing. Detailed filing data is available for this year.$3.28$2.26$1.02$2.30$1.96$0.34
2022Detailed filing. Detailed filing data is available for this year.$0.84$0.21$0.63$2.80$3.21$0.41
2021Detailed filing. Detailed filing data is available for this year.$1.47$0.31$1.16$2.49$2.29$0.20
2020Detailed filing. Detailed filing data is available for this year.$1.00$0.14$0.86$0.91$0.34$0.57
2019Summary only. Only limited summary data is available for this year.$0.30$0.00$0.30$0.35$0.07$0.28
2018Detailed filing. Detailed filing data is available for this year.$0.02$0.00$0.02$0.07$0.05$0.02