Civic Intelligence

Terrys Foundation for Muscular Dystrophy

990 • Fiscal year 2020 • EIN 82-2473513

Aug 01, 2019 to Jul 31, 2020 • Filed on Jun 15, 2021

Organization ProfileCURERAREDISEASE.ORG
1575 Tremont Street No 1107Boston, MA 02120

(607) 215-6401

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.14x

Higher debt load relative to assets than 55% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

52nd percentile

0.15x

Higher debt load relative to revenue than 52% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

93rd percentile

63%

Higher net margin than 93% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

37th percentile

$0

Higher top officer pay than 37% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

97th percentile

233%

Faster asset growth than 97% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

95th percentile

161%

Faster revenue growth than 95% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets55th percentile

Assets

Up

$1,000,002

Up $699,976 (+233%) from 2019

Net Assets

Up

$864,994

Up $567,917 (+191%) from 2019

Liabilities

Up

$135,008

Up $132,059 (+4478%) from 2019

Revenue And Expenses
Liabilities / Revenue52nd percentileNet Margin93rd percentile

Revenue

Up

$908,188

Up $560,260 (+161%) from 2019

Expenses

Up

$340,271

Up $273,071 (+406%) from 2019

Net Income

Up

$567,917

Up $287,189 (+102%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth97th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2018: $16,349Liabilities 2018: $0Net Assets 2018: $16,3492018Assets 2019: $300,026Liabilities 2019: $2,949Net Assets 2019: $297,0772019Assets 2020: $1,000,002Liabilities 2020: $135,008Net Assets 2020: $864,9942020Assets 2021: $1,470,434Liabilities 2021: $310,080Net Assets 2021: $1,160,3542021Assets 2022: $839,519Liabilities 2022: $213,008Net Assets 2022: $626,5112022Assets 2023: $3,277,567Liabilities 2023: $2,255,806Net Assets 2023: $1,021,7612023Assets 2024: $5,973,877Liabilities 2024: $2,517,905Net Assets 2024: $3,455,9722024

Highlighted filing

2020

Assets$1,000,002
Liabilities$135,008
Net Assets$864,994
Open 2020 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2018: $68,710Expenses 2018: $52,361Net Income 2018: $16,3492018Revenue 2019: $347,928Expenses 2019: $67,200Net Income 2019: $280,7282019Revenue 2020: $908,188Expenses 2020: $340,271Net Income 2020: $567,9172020Revenue 2021: $2,486,822Expenses 2021: $2,289,134Net Income 2021: $197,6882021Revenue 2022: $2,797,783Expenses 2022: $3,210,905Net Income 2022: -$413,1222022Revenue 2023: $2,300,944Expenses 2023: $1,957,670Net Income 2023: $343,2742023Revenue 2024: $4,438,510Expenses 2024: $2,003,149Net Income 2024: $2,435,3612024

Highlighted filing

2020

Revenue$908,188
Expenses$340,271
Net Income$567,917
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Aug 1, 2019 to Jul 31, 2020
Signed
Jun 15, 2021
Return Version
2019v5.2
Gross Receipts
$1,122,571
Mission and Program Overview

Mission

NONE

Cure rare disease is developing custom therapeutics that are as unique to the individuals they are meant to treat. Our mission is to offer effective, life-saving treatments developed through collaborations with world-renowned researchers and clinicians, and in partnership with our generous donors. Our customized therapeutics are designed specifically for the men and women who continue to fight for their right to live long, full, healthy lives despite having been diagnosed with a rare genetic disorder for which they've been told there is no treatment or cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$300,026$1,000,002▲ $699,976
Total Assets$300,026$1,000,002▲ $699,976
Liabilities
Unsecured Notes Loans Payable-$99,750-
Accounts Payable and Accrued Expenses$2,949$35,258▲ $32,309
Total Liabilities$2,949$135,008▲ $132,059
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$297,077$864,994▲ $567,917
Total Net Assets Fund Balance$297,077$864,994▲ $567,917
Total Liabilities and Net Assets / Fund Balance$300,026$1,000,002▲ $699,976
Compensation and Service Providers
Top Officer Pay37th percentile

Board Members and Trustees

NameTitle
Melissa Hunter EnsorChairwoman
Carolina AlarcoBoard Member
Karen MoralesBoard Member
Kwesi AcquayBoard Member
Mark SmithBoard Member
Sara ColeBoard Member
Stephanie HerzogBoard Member
Richard HorganExecutive Director
Revenue and Support

Revenue Composition

Contributions and Grants
$505,279
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$402,909
All Other Contributions
$505,279
Change in Net Assets
$567,917
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$237,198
Salaries, Compensation, and Employee Benefits$103,073
Total Fundraising Expense$27,172
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$75,152$11,273$7,515$93,940
Other Expenses$21,251$3,188$2,125$26,564
Payroll Taxes$7,306$1,096$731$9,133
Fees for Services Accounting$3,000$450$300$3,750
Office Expenses$546$702$55$1,303
Travel$351$53$35$439
Total Functional Expenses$287,973$25,126$27,172$340,271
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$617,292
Fundraising Direct Expenses$214,383
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Return is distributed via email to all members of the governing body prior to filing”

Form 990, Part VI, Section C, Line 19

“The organization makes its financial statements and other organizing documents available upon request.”

Filing and Contact Details

Filer

Filer Name
Cure Rare Disease Inc
EIN
82-2473513
Phone
6072156401
Address
1575 TREMONT STREET NO 1107, BOSTON, MA 02120

Signing Officer

Name
Richard W Horgan
Title
Executive Director
Phone
6072156401
Signed
2021-06-15

Organization Details

Principal Officer
Richard W Horgan
Formed
2018
Legal Domicile
Ma
Voting Board Members
8
Independent Board Members
8
Employees
7
Volunteers
0

Preparer

Firm
Daniel Dennis & Company Llp
Address
990 WASHINGTON STREET STE 308A, DEDHAM, MA 02026
Preparer
Kristoffer Lane
Phone
6172629898
Raw XML Appendix339 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UnsecuredNotesLoansPayableGrp/EOYAmt099750
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt01575 TREMONT STREET 1107
IRS990/USAddress/CityNm0BOSTON
IRS990/USAddress/StateAbbreviationCd0MA
IRS990/USAddress/ZIPCd002120
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0CURERAREDISEASE.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/PersonNm0RICHARD W HORGAN
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0EXECUTIVE DIRECTOR
ReturnHeader/BusinessOfficerGrp/PhoneNum06072156401
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-06-15
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0CURE RARE DISEASE INC
ReturnHeader/Filer/BusinessNameControlTxt0CURE
ReturnHeader/Filer/EIN0822473513
ReturnHeader/Filer/PhoneNum06072156401
ReturnHeader/Filer/USAddress/AddressLine1Txt01575 TREMONT STREET NO 1107
ReturnHeader/Filer/USAddress/CityNm0BOSTON
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
ReturnHeader/Filer/USAddress/ZIPCd002120
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0042734675
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0DANIEL DENNIS & COMPANY LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0990 WASHINGTON STREET STE 308A
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0DEDHAM
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd002026
ReturnHeader/PreparerPersonGrp/PhoneNum06172629898
ReturnHeader/PreparerPersonGrp/PreparationDt02021-06-15
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0KRISTOFFER LANE
ReturnHeader/ReturnTs02021-06-15T12:54:32-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-08-01
ReturnHeader/TaxPeriodEndDt02020-07-31
ReturnHeader/TaxYr02019

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,000,002
Liabilities
$135,008
Net assets
$864,994
Revenue
$908,188
Expenses
$340,271
Net income
$567,917
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.97$2.52$3.46$4.44$2.00$2.44
2023Detailed filing. Detailed filing data is available for this year.$3.28$2.26$1.02$2.30$1.96$0.34
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.84$0.21$0.63$2.80$3.21$0.41
2021Detailed filing. Detailed filing data is available for this year.$1.47$0.31$1.16$2.49$2.29$0.20
2020Detailed filing. Detailed filing data is available for this year.$1.00$0.14$0.86$0.91$0.34$0.57
2019Summary only. Only limited summary data is available for this year.$0.30$0.00$0.30$0.35$0.07$0.28
2018Detailed filing. Detailed filing data is available for this year.$0.02$0.00$0.02$0.07$0.05$0.02