Civic Intelligence

Med13L

EIN 82-2469441 • 501(c)3 • Barrington, NJ

Profile

Med13l provides support for research, advancement and raising awareness of the rare genetic disease, med13l. The objectives of med13l is to raise awareness in the local and national community about the rare genetic disease, med13l and to provide funding for research, development and advancement into fighting this disease. The ultimate goal is to find out more about what causes med13l and find a cure. In our endeavor to reach that goal, med13l strives to create a support system for families impacted by med13l all the while providing funding opportunities to healthcare professionals and researchers who are helping to find a cure to this rare genetic disease.

17 Timber DriveBarrington, NJ 08007

www.med13l.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

34th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

5th percentile

-85%

Higher net margin than 5% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

12th percentile

-22%

Faster asset growth than 12% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

3rd percentile

-69%

Faster revenue growth than 3% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Down

$579,971

Down $159,817 (-22%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$579,971

Down $159,817 (-22%) from 2023

Operations
Liabilities / Revenue34th percentileNet Margin5th percentile

Revenue

Down

$188,215

Down $420,725 (-69%) from 2023

Expenses

Up

$348,032

Up $146,829 (+73%) from 2023

Net Income

Down

-$159,817

Down $567,554 (-139%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth12th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2021: $49,724Liabilities 2021: $0Net Assets 2021: $49,7242021Assets 2022: $332,051Liabilities 2022: $0Net Assets 2022: $332,0512022Assets 2023: $739,788Liabilities 2023: $0Net Assets 2023: $739,7882023Assets 2024: $579,971Liabilities 2024: $0Net Assets 2024: $579,9712024

Highlighted filing

2024

Assets$579,971
Liabilities$0
Net Assets$579,971
Open 2024 Filing

Operations Trend

Revenue Growth3rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2021: $99,263Expenses 2021: $52,772Net Income 2021: $46,4912021Revenue 2022: $323,934Expenses 2022: $41,607Net Income 2022: $282,3272022Revenue 2023: $608,940Expenses 2023: $201,203Net Income 2023: $407,7372023Revenue 2024: $188,215Expenses 2024: $348,032Net Income 2024: -$159,8172024

Highlighted filing

2024

Revenue$188,215
Expenses$348,032
Net Income-$159,817
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$579,971
Liabilities
$0
Net assets
$579,971
Revenue
$188,215
Expenses
$348,032
Net income
-$159,817
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.80$0.00$5.80$1.88$3.48$1.60
2023Detailed filing. Detailed filing data is available for this year.$7.40$0.00$7.40$6.09$2.01$4.08
2022Detailed filing. Detailed filing data is available for this year.$3.32$0.00$3.32$3.24$0.42$2.82
2021Detailed filing. Detailed filing data is available for this year.$0.50$0.00$0.50$0.99$0.53$0.46
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 10, 2025
Return Version
2024v5.2
Gross Receipts
$197,437
Mission and Program Overview

Mission

Med13l provides support for research, advancement and raising awareness of the rare genetic disease, med13l. The objectives of med13l is to raise awareness in the local and national community about the rare genetic disease, med13l and to provide funding for research, development and advancement into fighting this disease. The ultimate goal is to find out more about what causes med13l and find a cure. In our endeavor to reach that goal, med13l strives to create a support system for families impacted by med13l all the while providing funding opportunities to healthcare professionals and researchers who are helping to find a cure to this rare genetic disease.

The mission of the corporation is to: (a) increase awareness within local, national and international communities about med 13l and provide accurate information to patients, families, and medical professionals; (b) raise and provide crucial funding for research, development, and advancements in understanding med13l; (c) deepen the understanding of the underlying causes ofmedl3l and discover effective treatments and cure, including by collaborating with scientists, researchers, and medical institutions to support studies aimed at understanding med13l better, identifying potential treatments, and improving the quality of life for affected individuals; ( d) develop educational materials, host awareness campaigns, and organize workshops or conferences to disseminate knowledge about med13l; (e) create a support network for individuals and families affected by medl3l;

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$690,431$462,992▼ $227,439
Cash and Non-Interest-Bearing Accounts$49,357$116,979▲ $67,622
Total Assets$739,788$579,971▼ $159,817
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$739,788$579,971▼ $159,817
Total Net Assets Fund Balance$739,788$579,971▼ $159,817
Total Liabilities and Net Assets / Fund Balance$739,788$579,971▼ $159,817
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Kathleen Barry BoychuckChair
Vanessa DiasVice Chair
Inon ShampanierTrustee as of Sept 2024
Kelly SextonTrustee Until Sept 2024
Kim SokoraiTrustee Until Sept 2024
Jennifer RobertsonSecretary
Nick SeaverTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$170,834
Program Service Revenue
$0
Investment Income
$26,603
Other Revenue
$-9,222
All Other Contributions
$129,949
Change in Net Assets
$-159,817
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$292,840
Total Fundraising Expense$46,168
Other Expenses$34,992
Professional Fundraising Fees$20,200
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$292,840--$292,840
Fees for Services Professional Fundraising--$20,200$20,200
Fees for Services Other-$600$15,185$15,785
Information Technology-$1,615$10,160$11,775
Travel-$2,543-$2,543
Fees for Services Accounting-$1,410-$1,410
Insurance-$1,405-$1,405
Advertising--$486$486
Office Expenses-$283-$283
Other Expenses-$305$137$137
Total Functional Expenses$292,840$9,024$46,168$348,032
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Transcripta Bio Inc (fka Rarebase Pbc)Palo Alto, CA501(c)(3)Biomarker Discovery Project and Drug Discovery Project Using Rarebase (now Transcripta Bio) Function Platform$164,650
Rowan University Foundation IncGlassboro, NJ-Understanding of the Role Mitochondrial Dysfunction Plays in the Pathoogy Associated With Med13l Syndrome Mutations$76,984
Vanderbilt University Medical CenterNashville, TN501(c)(3)Exploring the Impact of Disease Modifying Compounds in Med13l Patient Derive$46,000
Combined BrainBrentwood, TN501(c)(3)Strategic Research Plan and Biospecimen Collection$4,781
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$20,200
Fundraising Direct Expenses$9,222
Fundraising Gross Income$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Outing$40,885---
Total Events$40,885-$9,222$-9,222
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“990 is distributed to the board for review before filing.”

Form 990, Part VI, Section B, Line 12C

“Based on the conflicts of interest policy for the med13l foundation, inc., officers, directors (trustees), and key employees are required to disclose annually any interests that could give rise to conflicts. This requirement is outlined in article vii of the policy, which mandates that each trustee, officer, and committee member must annually sign a statement affirming the following: 1. They have received a copy of the conflicts of interest policy. 2. They have read and understood the policy. 3. They agree to comply with the policy. 4. They understand the charitable nature of the organization and the tax-exempt status requirements. A. The med13l foundation regularly monitors and enforces compliance with its conflicts of interest policy through annual disclosures and documented proceedings. Each trustee, officer, and committee member signs an annual statement affirming their understanding and compliance with the policy, which is tracked as part of the organization's records. Additionally, article v mandates that board and committee meeting minutes document any conflicts of interest, including the nature of the conflict, actions taken, and decisions made. This ensures ongoing transparency and accountability in handling potential conflicts throughout the year.”

Form 990, Part VI, Section C, Line 19

“UPON REQUEST”

Filing and Contact Details

Filer

Filer Name
The Med13l Foundation Inc
EIN
82-2469441
Phone
8565345470
Address
17 TIMBER DRIVE, BARRINGTON, NJ 08007

Signing Officer

Name
Kathleen Barry Boychuck
Title
Chair
Phone
8477207905
Signed
2025-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kathleen Barry Boychuck
Formed
2017
Legal Domicile
Nj
Voting Board Members
5
Independent Board Members
5
Employees
0
Volunteers
10

Preparer

Firm
Cantor Novak Beaver & Pike Pc
Address
630 ROUTE 70 WEST, CHERRY HILL, NJ 08002
Preparer
Daniel D Pike CPA
Phone
8562819010
Supplemental Narrative

Additional Explanations

PART I LINE 1 CONTINUATION OF ORGANIZATION'S MISSION STATEMENT

“(f) offer emotional support, connect patients and their families with resources, and provide a platform for sharing experiences and insights; and (g) engage in advocacy and efforts to promote policies and initiatives that benefit individuals with med13l.”

Raw XML AppendixShowing 400 of 427 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0COORDINATE AND COLLABORATE WITH THE GLOBAL SCIENTIFIC COMMUNITY TO UNDERSTAND THE FUNCTION OF THE MED13L GENE IN ORDER TO DEVELOP EFFECTIVE TREATMENTS AND A CURE FOR MED13L SYNDROME. INCREASE MEDICAL COMMUNITY AND PUBLIC AWARENESS OF THE COMPLEXITY AND POTENTIAL SEVERITY OF MED13L SYNDROME. PROVIDE EDUCATIONAL AND EMOTIONAL SUPPORT FOR THOSE AFFECTED BY MED13L SYNDROME. RAISE MONEY TO FUND OUR GOALS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
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IRS990/Form990PartVIISectionAGrp/TitleTxt5TRUSTEE UNTIL SEPT 2024
IRS990/Form990PartVIISectionAGrp/TitleTxt6TRUSTEE UNTIL SEPT 2024
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IRS990/MissionDesc0MED13L PROVIDES SUPPORT FOR RESEARCH, ADVANCEMENT AND RAISING AWARENESS OF THE RARE GENETIC DISEASE, MED13L. THE OBJECTIVES OF MED13L IS TO RAISE AWARENESS IN THE LOCAL, NATIONAL AND INTERNATIONAL COMMUNITY ABOUT THE RARE GENETIC DISEASE, MED13L AND TO PROVIDE FUNDING FOR RESEARCH, DEVELOPMENT AND ADVANCEMENT INTO FIGHTING THIS DISEASE. THE ULTIMATE GOAL IS TO FIND OUT MORE ABOUT WHAT CAUSES MED13L AND FIND A CURE. IN OUR ENDEAVOR TO REACH THAT GOAL, MED13L STRIVES TO CREATE A SUPPORT SYSTEM FOR FAMILIES IMPACTED BY MED13L ALL THE WHILE PROVIDING FUNDING OPPORTUNITIES TO HEALTHCARE PROFESSIONALS AND RESEARCHERS WHO ARE HELPING TO FIND A CURE TO THIS RARE GENETIC DISEASE.
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0602092
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0323934
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt099263
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt01556
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01197679
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt026603
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt015732
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt042335
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt026603
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt015732
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt042335
IRS990ScheduleA/InvestmentIncomeCYPct00.03410
IRS990ScheduleA/InvestmentIncomePYPct00.01490
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.96590
IRS990ScheduleA/PublicSupportPY509Pct00.98510
IRS990ScheduleA/PublicSupportTotal509Amt01197679
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0170834
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0602092
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0323934
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt099263
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt01556
IRS990ScheduleA/Total509Grp/TotalAmt01197679
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0197437
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0617824
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0323934
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt099263
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt01556
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01240014
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleG/AgrmtProfFundraisingActyInd01
IRS990ScheduleG/EmailSolicitationsInd0X
IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt02024 DEVELOPMENT PLAN
IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd00
IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt00
IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt0-20200
IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1Txt0TURNKEY FOUNDATION
IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt020200
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt01220 KENNEDALE SUBLETT RD
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm0KENNEDALE
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd0TX
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd076060
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt040885
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt040885
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt09222
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GOLF OUTING
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt040885
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt040885
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-9222
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt09222
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt09222
IRS990ScheduleG/InPersonSolicitationsInd0X
IRS990ScheduleG/LicensedStatesCd0NJ
IRS990ScheduleG/MailSolicitationsInd0X
IRS990ScheduleG/SpecialFundraisingEventsInd0X
IRS990ScheduleG/TotalNetToOrganizationAmt0-20200
IRS990ScheduleG/TotalRetainedByContractorsAmt020200
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt04781
IRS990ScheduleI/RecipientTable/CashGrantAmt1164650
IRS990ScheduleI/RecipientTable/CashGrantAmt246000
IRS990ScheduleI/RecipientTable/CashGrantAmt376984
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501(C)(3)
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt30
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0STRATEGIC RESEARCH PLAN AND BIOSPECIMEN COLLECTION
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1BIOMARKER DISCOVERY PROJECT AND DRUG DISCOVERY PROJECT USING RAREBASE (NOW TRANSCRIPTA BIO) FUNCTION PLATFORM
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2EXPLORING THE IMPACT OF DISEASE MODIFYING COMPOUNDS IN MED13L PATIENT DERIVE
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3UNDERSTANDING OF THE ROLE MITOCHONDRIAL DYSFUNCTION PLAYS IN THE PATHOOGY ASSOCIATED WITH MED13L SYNDROME MUTATIONS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0COMBINED BRAIN
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1TRANSCRIPTA BIO INC (FKA RAREBASE PBC)
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2VANDERBILT UNIVERSITY MEDICAL CENTER
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3ROWAN UNIVERSITY FOUNDATION INC
IRS990ScheduleI/RecipientTable/RecipientEIN0831825692
IRS990ScheduleI/RecipientTable/RecipientEIN1852134862
IRS990ScheduleI/RecipientTable/RecipientEIN2352528741
IRS990ScheduleI/RecipientTable/RecipientEIN3222482802
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01510 OLD HICKORY BLVD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt12882 GREER ROAD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt21211 MEDICAL CENTER DRIVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3201 MULLICA HILL ROAD
IRS990ScheduleI/RecipientTable/USAddress/CityNm0BRENTWOOD
IRS990ScheduleI/RecipientTable/USAddress/CityNm1PALO ALTO
IRS990ScheduleI/RecipientTable/USAddress/CityNm2NASHVILLE
IRS990ScheduleI/RecipientTable/USAddress/CityNm3GLASSBORO
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0TN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2TN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3NJ
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd037027
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd194303
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd237232
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd308028
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE MED13L FOUNDATION MANAGES GRANT FUNDS THROUGH FORMAL GRANT AGREEMENTS, ENSURING FUNDS ARE ALLOCATED ACCORDING TO ESTABLISHED TERMS. OVERSIGHT OF GRANT ACTIVITIES AND FUND USE IS PROVIDED BY THE FOUNDATION'S SCIENTIFIC ADVISORY BOARD, WHICH ENSURES THAT RESEARCH ALIGNS WITH THE FOUNDATION'S MISSION AND THAT GRANT OBJECTIVES ARE MET RESPONSIBLY.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0(F) OFFER EMOTIONAL SUPPORT, CONNECT PATIENTS AND THEIR FAMILIES WITH RESOURCES, AND PROVIDE A PLATFORM FOR SHARING EXPERIENCES AND INSIGHTS; AND (G) ENGAGE IN ADVOCACY AND EFFORTS TO PROMOTE POLICIES AND INITIATIVES THAT BENEFIT INDIVIDUALS WITH MED13L.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1990 IS DISTRIBUTED TO THE BOARD FOR REVIEW BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2BASED ON THE CONFLICTS OF INTEREST POLICY FOR THE MED13L FOUNDATION, INC., OFFICERS, DIRECTORS (TRUSTEES), AND KEY EMPLOYEES ARE REQUIRED TO DISCLOSE ANNUALLY ANY INTERESTS THAT COULD GIVE RISE TO CONFLICTS. THIS REQUIREMENT IS OUTLINED IN ARTICLE VII OF THE POLICY, WHICH MANDATES THAT EACH TRUSTEE, OFFICER, AND COMMITTEE MEMBER MUST ANNUALLY SIGN A STATEMENT AFFIRMING THE FOLLOWING: 1. THEY HAVE RECEIVED A COPY OF THE CONFLICTS OF INTEREST POLICY. 2. THEY HAVE READ AND UNDERSTOOD THE POLICY. 3. THEY AGREE TO COMPLY WITH THE POLICY. 4. THEY UNDERSTAND THE CHARITABLE NATURE OF THE ORGANIZATION AND THE TAX-EXEMPT STATUS REQUIREMENTS. A. THE MED13L FOUNDATION REGULARLY MONITORS AND ENFORCES COMPLIANCE WITH ITS CONFLICTS OF INTEREST POLICY THROUGH ANNUAL DISCLOSURES AND DOCUMENTED PROCEEDINGS. EACH TRUSTEE, OFFICER, AND COMMITTEE MEMBER SIGNS AN ANNUAL STATEMENT AFFIRMING THEIR UNDERSTANDING AND COMPLIANCE WITH THE POLICY, WHICH IS TRACKED AS PART OF THE ORGANIZATION'S RECORDS. ADDITIONALLY, ARTICLE V MANDATES THAT BOARD AND COMMITTEE MEETING MINUTES DOCUMENT ANY CONFLICTS OF INTEREST, INCLUDING THE NATURE OF THE CONFLICT, ACTIONS TAKEN, AND DECISIONS MADE. THIS ENSURES ONGOING TRANSPARENCY AND ACCOUNTABILITY IN HANDLING POTENTIAL CONFLICTS THROUGHOUT THE YEAR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3UPON REQUEST
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I LINE 1 CONTINUATION OF ORGANIZATION'S MISSION STATEMENT
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NJ
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0739788
IRS990/TotalAssetsEOYAmt0579971
IRS990/TotalAssetsGrp/BOYAmt0739788
IRS990/TotalAssetsGrp/EOYAmt0579971
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0170834
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt046168
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt09024
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0292840
IRS990/TotalFunctionalExpensesGrp/TotalAmt0348032
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0739788
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0579971
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0292840
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt017381
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0188215
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt010
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0739788
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0579971
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ManagementAndGeneralAmt02543
IRS990/TravelGrp/TotalAmt02543
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt017 TIMBER DRIVE
IRS990/USAddress/CityNm0BARRINGTON
IRS990/USAddress/StateAbbreviationCd0NJ
IRS990/USAddress/ZIPCd008007
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0WWW.MED13L.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02025-03-06 01:10:19Z

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