Liabilities / Assets
Score unavailable
Liabilities-to-assets requires both liabilities and assets on the latest valid filing.
Coffin-Siris Syndrome Foundation
EIN 82-2116961 • 501(c)3 • Kirkland, WA
Profile
Our mission is to support connect and inform the Coffin-Siris Syndrome community as well as promote and fund CSS-related research.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
No value available
Liabilities / Revenue
Score unavailable
Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.
Net Margin
75th percentile
Higher net margin than 75% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
72nd percentile
Faster asset growth than 72% of similar nonprofits.
Revenue Growth
29th percentile
Faster revenue growth than 29% of similar nonprofits.
Balance Sheet
Assets
Up$237,709
Up $31,549 (+15%) from 2024
Liabilities
-
No earlier filing loaded for comparison.
Net Assets
Up$237,709
Up $31,549 (+15%) from 2024
Revenue
Down$151,428
Down $54,598 (-27%) from 2024
Expenses
Up$119,879
Up $853 (+0.7%) from 2024
Net Income
Down$31,549
Down $55,451 (-64%) from 2024
Trend Graphs
Filings
Most recent year
2025 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $237,709
- Liabilities
- -
- Net assets
- $237,709
- Revenue
- $151,428
- Expenses
- $119,879
- Net income
- $31,549
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2025 to Dec 31, 2025
- Signed
- Mar 19, 2026
- Return Version
- 2025v4.0
- Gross Receipts
- $151,428
Mission and Program Overview
Mission
Our mission is to support connect and inform the Coffin-Siris Syndrome community as well as promote and fund CSS-related research.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| CSSF Annual Conference -Provides an annual forum for family to gather socialize take part in learning opportunities and hear from experts. In 2025 124 families including 94 people with CSS and a total of 380 individuals attended the CSSF Conference in Denver CO | $0 | $89,972 |
| CSS Registry Support - Provided financial support to Seattle Childrens Hospital where the global CSS registry is maintained | $14,000 | $0 |
| Community Support - Provide outreach and support to CSS families undergoing treatments or hardships. We sent 23 meals and care packages to families whose loved ones were sick or in the hospital. | $0 | $3,015 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Carissa Robinson | Chair | PT | $0 | - | - |
| Kristen McGraw | Treasurer | PT | $0 | - | - |
| Gaylen Mohre | Advocacy-Fundraising | PT | $0 | - | - |
| Becky Dubay | Community Development | PT | $0 | - | - |
| Katie Kneisel | New Diagnosis - Social Media | PT | $0 | - | - |
| Parrish Burgess | Conference | PT | $0 | - | - |
| Simon Gale | Operations - Secretary | PT | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Coffin-Siris Syndrome Foundation
- EIN
- 82-2116961
- Address
- 11611 106th Ave NE, Kirkland, WA 98034
Signing Officer
- Name
- Kristen McGraw
- Title
- Treasurer
- Phone
- 6098658598
- Signed
- 2026-03-19
- Discuss with paid preparer
- No
Supplemental Narrative
Additional Explanations
Part I, line 10
“| Activity:, Grantee Name:, Grantee Address:, Amount:, Relationship:| Research Grant, Samantha A Vergano MD FAAP FACM, "4800 Sand Point Way NE Seattle WA 98105", $14000.00, None|”
Part I, line 16
“| Other Expenses:, Amount:| CSSF Conference, $89972.00| Community Support - care packages, $3015.00| Adaptive Equipment Support -AAC devices and Boards, $1329.00| Administration - website taxes insurance zoom bank fees, $5881.00|”
Raw XML Appendix238 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | | Activity:, Grantee Name:, Grantee Address:, Amount:, Relationship:| Research Grant, Samantha A Vergano MD FAAP FACM, "4800 Sand Point Way NE Seattle WA 98105", $14000.00, None| |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | | Other Expenses:, Amount:| CSSF Conference, $89972.00| Community Support - care packages, $3015.00| Adaptive Equipment Support -AAC devices and Boards, $1329.00| Administration - website taxes insurance zoom bank fees, $5881.00| |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part I, line 10 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Part I, line 16 |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
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| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Kristen McGraw |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Treasurer |
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| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2026-03-19 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | Coffin-Siris Syndrome Foundation |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | COFF |
| ReturnHeader/Filer/EIN | 0 | 822116961 |
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| ReturnHeader/Filer/USAddress/CityNm | 0 | Kirkland |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | WA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 98034 |
| ReturnHeader/ReturnTs | 0 | 2026-03-18T08:42:40-04:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2025-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2025-12-31 |
| ReturnHeader/TaxYr | 0 | 2025 |
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