Civic Intelligence

Stxbp1 Foundation

EIN 82-1439459 • 501(c)3 • Holly Springs, NC

Profile

To create awareness in the disorders associated with stxbp1 mutations. Fund and drive research discovery of a cure. Provide families with tools to help them understand the disease & how to get involved. Advocate to improve early detection. Foster activism to help change policies in favor of orphaned diseases. Improve the lives of our stxbp1 families.

PO Box 1148Holly Springs, NC 27540

www.stxbp1disorders.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

72nd percentile

0.22x

Higher debt load relative to assets than 72% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

75th percentile

0.23x

Higher debt load relative to revenue than 75% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Net Margin

52nd percentile

11%

Higher net margin than 52% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

33rd percentile

$0

Higher top officer pay than 33% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

NTEE G • $1M-$5M nonprofits • Source year 2024

Asset Growth

58th percentile

8.8%

Faster asset growth than 58% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

86th percentile

93%

Faster revenue growth than 86% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets72nd percentile

Assets

Up

$1,487,440

Up $119,821 (+8.8%) from 2023

Liabilities

Down

$322,060

Down $32,461 (-9.2%) from 2023

Net Assets

Up

$1,165,380

Up $152,282 (+15%) from 2023

Operations
Liabilities / Revenue75th percentileNet Margin52nd percentile

Revenue

Up

$1,420,429

Up $684,902 (+93%) from 2023

Expenses

Down

$1,268,147

Down $55,712 (-4.2%) from 2023

Net Income

Up

$152,282

Up $740,614 (+126%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth58th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$2.0M$1.5M$1.0M$500K$0Assets 2018: $59,170Liabilities 2018: $02018Assets 2019: $34,097Liabilities 2019: $0Net Assets 2019: $34,0972019Assets 2020: $318,455Liabilities 2020: $0Net Assets 2020: $318,4552020Assets 2021: $507,143Liabilities 2021: $227,387Net Assets 2021: $279,7562021Assets 2022: $1,701,392Liabilities 2022: $99,962Net Assets 2022: $1,601,4302022Assets 2023: $1,367,619Liabilities 2023: $354,521Net Assets 2023: $1,013,0982023Assets 2024: $1,487,440Liabilities 2024: $322,060Net Assets 2024: $1,165,3802024

Highlighted filing

2024

Assets$1,487,440
Liabilities$322,060
Net Assets$1,165,380
Open 2024 Filing

Operations Trend

Revenue Growth86th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2018: $61,460Expenses 2018: $10,776Net Income 2018: $50,6842018Revenue 2019: $105,987Expenses 2019: $131,060Net Income 2019: -$25,0732019Revenue 2020: $296,852Expenses 2020: $12,494Net Income 2020: $284,3582020Revenue 2021: $587,683Expenses 2021: $626,381Net Income 2021: -$38,6982021Revenue 2022: $1,830,890Expenses 2022: $509,216Net Income 2022: $1,321,6742022Revenue 2023: $735,527Expenses 2023: $1,323,859Net Income 2023: -$588,3322023Revenue 2024: $1,420,429Expenses 2024: $1,268,147Net Income 2024: $152,2822024

Highlighted filing

2024

Revenue$1,420,429
Expenses$1,268,147
Net Income$152,282
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$1,487,440
Liabilities
$322,060
Net assets
$1,165,380
Revenue
$1,420,429
Expenses
$1,268,147
Net income
$152,282
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.49$0.32$1.17$1.42$1.27$0.15
2023Detailed filing. Detailed filing data is available for this year.$1.37$0.35$1.01$0.74$1.32$0.59
2022Detailed filing. Detailed filing data is available for this year.$1.70$0.10$1.60$1.83$0.51$1.32
2021Detailed filing. Detailed filing data is available for this year.$0.51$0.23$0.28$0.59$0.63$0.04
2020Detailed filing. Detailed filing data is available for this year.$0.32$0.00$0.32$0.30$0.01$0.28
2019Detailed filing. Detailed filing data is available for this year.$0.03$0.00$0.03$0.11$0.13$0.03
2018Summary only. Only limited summary data is available for this year.$0.06$0.00$0.06$0.01$0.05
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 7, 2025
Return Version
2024v5.2
Gross Receipts
$1,422,416
Mission and Program Overview

Mission

To raise awareness and funds to promote research for stxbp1 disorders.

To create awareness in the disorders associated with stxbp1 mutations. Fund and drive research discovery of a cure. Provide families with tools to help them understand the disease & how to get involved. Advocate to improve early detection. Foster activism to help change policies in favor of orphaned diseases. Improve the lives of our stxbp1 families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,337,910$1,057,925▼ $279,985
Accounts Receivable$26,405$414,368▲ $387,963
Prepaid Expenses and Deferred Charges$3,304$15,147▲ $11,843
Total Assets$1,367,619$1,487,440▲ $119,821
Liabilities
Accounts Payable and Accrued Expenses$349,521$322,060▼ $27,461
Deferred Revenue$5,000$0▼ $5,000
Total Liabilities$354,521$322,060▼ $32,461
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,013,098$974,422▼ $38,676
Net Assets With Donor Restrictions-$190,958-
Total Net Assets Fund Balance$1,013,098$1,165,380▲ $152,282
Total Liabilities and Net Assets / Fund Balance$1,367,619$1,487,440▲ $119,821
Compensation and Service Providers
Top Officer Pay33rd percentile

Board Members and Trustees

NameTitle
Charlene Son RigbyPresident
Jacqueline SteinbergVice President & Scientifi
Melissa HiocoDirector, Community Engagement
Daniele GreinerDirector, Development
Russ NovyDirector, Marketing & Brand
Jared BarnumDirector, Technology
Cristina BrennanSecretary
Heather JonesTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
James GossScientific Consulting1521 NETWORK DRIVE, Canonsburg, PA 15317$165,000
Revenue and Support

Revenue Composition

Contributions and Grants
$1,370,768
Program Service Revenue
$0
Investment Income
$49,661
Other Revenue
$0
All Other Contributions
$1,264,115
Change in Net Assets
$152,282

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,420,429
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$25,987
Total Revenue per Audited Statements
$1,446,416
Total Revenue per Form 990
$1,420,429
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$828,992
Other Expenses$439,155
Total Fundraising Expense$5,879
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$828,992--$828,992
Fees for Services Other$209,420--$209,420
Conferences and Meetings$196,503--$196,503
Fees for Services Accounting-$10,687-$10,687
Advertising--$5,629$5,629
Information Technology-$2,848-$2,848
All Other Expenses-$704$250$954
Other Expenses$800$3,607-$800
Office Expenses$189$550-$739
Fees for Services Legal-$240-$240
Total Functional Expenses$1,235,904$26,364$5,879$1,268,147

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,294,134
Expenses per Audited Statements$1,268,147
Total Expenses per Form 990$1,268,147
Expenses Not Reported on Form 990$25,987
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL COLORADOAurora, CO501(c)(3)To Fund Natural History Study and Center of Excellence$343,881
Weill Cornell MedicineNew York, NY501(c)(3)To Fund Natural History Study$123,751
Baylor College of MedicineHouston, TX501(c)(3)To Fund Natural History Study$100,000
Stanford UniversityStanford, CA501(c)(3)To Fund Research$78,590
CHILDREN'S HOSPITAL OF PENNSYLVANIAPhiladelphia, PA501(c)(3)To Fund Research$60,000
University of PennsylvaniaPhiladelphia, PA501(c)(3)To Fund Research$57,446
NyuNew York, NY501(c)(3)To Fund Research$30,324
University of RichmondRichmond, VA501(c)(3)To Fund Research$25,000
Uplifting AthletesDoylestown, PA501(c)(3)To Fund Research$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$1,987
Fundraising Gross Income$1,987
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
5k Races$108,640$1,987-$1,987
Total Events$108,640$1,987$1,987$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is reviewed by the treasurer and president prior to submission to the irs.”

Form 990, Part VI, Section B, Line 12C

“Each director, principal officer and member of a committee with governing board delegated powers shall annually sign a statement which affirms such person has received a copy of the policy, read and understands the policy, agrees to comply, and understands that the corporation must engage primarily in activities which accomplish one or more of its tax-exempt purposes to maintain its federal tax exemption. To ensure the corporation operates in a manner consistent with charitable purposes and does not engage in activities that could jeopardize its tax-exempt status, periodic reviews shall be conducted.”

Form 990, Part VI, Section C, Line 19

“Yes, the organization's own website.”

Filing and Contact Details

Filer

Filer Name
Stxbp1 Foundation
EIN
82-1439459
Phone
5137206302
Address
PO BOX 1148, HOLLY SPRINGS, NC 27540

Signing Officer

Name
Heather Jones
Title
Treasurer
Phone
5137206302
Signed
2025-11-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Charlene Son Rigby
Formed
2017
Legal Domicile
Pa
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
30

Preparer

Firm
Rkl Llp
Address
102 PICKERING WAY STE 300, EXTON, PA 19341
Preparer
Stephanie E Kane CPA
Phone
4848742200
Supplemental Narrative

Additional Explanations

FORM 990, PART V, LINE 1C:

“The organization did not have any instances where backup withholding was required; however, if the situation would arise, the organization is aware of the reporting requirements and would handle that accordingly.”

Form 990, Part IX, Line 11G

“Other research costs: program service expenses 202,545. Management and general expenses 0. Fundraising expenses 0. Total expenses 202,545. Other consulting : program service expenses 6,875. Management and general expenses 0. Fundraising expenses 0. Total expenses 6,875.”

Part XII, Line 2C

“Finance commitee; no change”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from federal and state income taxes under section 501(c)(3) of the internal revenue code and therefore has made no provision for income taxes in the accompanying financial statements. The organization has analyzed tax positions taken for filing with the internal revenue service and the state jurisdictions for which it has nexus. The organization believes that income tax filing positions will be sustained upon examination and does not anticipate any adjustments that would result in a material adverse effect on the organization's financial condition, results of operations or cash flows. Accordingly, the organization has not recorded any reserves, or related accruals for interest and penalties for uncertain income tax positions at december 31, 2024 and 2023. The organization is subject to routine audits by taxing jurisdictions; however, there are currently no audits for any tax periods in progress.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraiser expenses 1,987.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraiser expenses 1,987.”

Raw XML AppendixShowing 400 of 523 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR, COMMUNITY ENGAGEMENT
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IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01013098
IRS990/NetAssetsOrFundBalancesEOYAmt01165380
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01013098
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0974422
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0550
IRS990/OfficeExpensesGrp/ProgramServicesAmt0189
IRS990/OfficeExpensesGrp/TotalAmt0739
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc1BANK FEES
IRS990/OtherExpensesGrp/Desc2PROFESSIONAL ORGANIZATI
IRS990/OtherExpensesGrp/Desc3OTHER EXPENSES-PROGSERV
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03889
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt13839
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt23607
IRS990/OtherExpensesGrp/ProgramServicesAmt0800
IRS990/OtherExpensesGrp/TotalAmt03889
IRS990/OtherExpensesGrp/TotalAmt13839
IRS990/OtherExpensesGrp/TotalAmt23607
IRS990/OtherExpensesGrp/TotalAmt3800
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt03304
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt015147
IRS990/PrincipalOfficerNm0CHARLENE SON RIGBY
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0HOSTED IN PERSON STXBP1 SUMMIT+ TO UPDATE FAMILIES ON CURRENT RESEARCH AS WELL AS PROVIDE ADDITIONAL RESOURCES TO BE USED IN EVERYDAY LIFE
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0184400
IRS990/ProgSrvcAccomActy2Grp/GrantAmt07310
IRS990/ProgSrvcAccomActy3Grp/Desc0SUPPORTED A LONGITUDINAL MULTI SITE NATURAL HISTORY STUDY FOR PATIENTS
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0647663
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0418469
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0694492
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0385588
IRS990/PYInvestmentIncomeAmt041035
IRS990/PYOtherExpensesAmt0938271
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-588332
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt01323859
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0735527
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0152282
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01370768
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0518159
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01830890
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0587683
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0300412
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04607912
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt049661
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt041035
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt090696
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.91140
IRS990ScheduleA/PublicSupportPY170Pct00.85080
IRS990ScheduleA/PublicSupportTotal170Amt04282244
IRS990ScheduleA/SubstantialContributorsTotAmt0325668
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01370768
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0518159
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt01830890
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0587683
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0300412
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04607912
IRS990ScheduleA/TotalSupportAmt04698608
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt024000
IRS990ScheduleD/DonatedServicesUseFcltsAmt024000
IRS990ScheduleD/ExpensesNotReportedAmt025987
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01268147
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt01987
IRS990ScheduleD/OtherRevenueAmt01987
IRS990ScheduleD/RevenueNotReportedAmt025987
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt01420429
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND THEREFORE HAS MADE NO PROVISION FOR INCOME TAXES IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE ORGANIZATION HAS ANALYZED TAX POSITIONS TAKEN FOR FILING WITH THE INTERNAL REVENUE SERVICE AND THE STATE JURISDICTIONS FOR WHICH IT HAS NEXUS. THE ORGANIZATION BELIEVES THAT INCOME TAX FILING POSITIONS WILL BE SUSTAINED UPON EXAMINATION AND DOES NOT ANTICIPATE ANY ADJUSTMENTS THAT WOULD RESULT IN A MATERIAL ADVERSE EFFECT ON THE ORGANIZATION'S FINANCIAL CONDITION, RESULTS OF OPERATIONS OR CASH FLOWS. ACCORDINGLY, THE ORGANIZATION HAS NOT RECORDED ANY RESERVES, OR RELATED ACCRUALS FOR INTEREST AND PENALTIES FOR UNCERTAIN INCOME TAX POSITIONS AT DECEMBER 31, 2024 AND 2023. THE ORGANIZATION IS SUBJECT TO ROUTINE AUDITS BY TAXING JURISDICTIONS; HOWEVER, THERE ARE CURRENTLY NO AUDITS FOR ANY TAX PERIODS IN PROGRESS.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISER EXPENSES 1,987.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2FUNDRAISER EXPENSES 1,987.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt01268147
IRS990ScheduleD/TotalRevenuePerForm990Amt01420429
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01446416
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01294134
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0106653
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0106653
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt01987
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm05K RACES
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0108640
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0108640
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt01987
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt01987
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt00
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt0256
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt0256
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt01731
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt01731
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/CashGrantAmt057446
IRS990ScheduleI/RecipientTable/CashGrantAmt160000
IRS990ScheduleI/RecipientTable/CashGrantAmt2123751
IRS990ScheduleI/RecipientTable/CashGrantAmt3343881
IRS990ScheduleI/RecipientTable/CashGrantAmt410000
IRS990ScheduleI/RecipientTable/CashGrantAmt5100000
IRS990ScheduleI/RecipientTable/CashGrantAmt625000
IRS990ScheduleI/RecipientTable/CashGrantAmt730324
IRS990ScheduleI/RecipientTable/CashGrantAmt878590
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc5501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc6501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc7501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc8501(C)(3)
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt30
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt40
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt50
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt60
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt70
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt80
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0TO FUND RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1TO FUND RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2TO FUND NATURAL HISTORY STUDY
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3TO FUND NATURAL HISTORY STUDY AND CENTER OF EXCELLENCE
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4TO FUND RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5TO FUND NATURAL HISTORY STUDY
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt6TO FUND RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt7TO FUND RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt8TO FUND RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF PENNSYLVANIA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CHILDREN'S HOSPITAL OF PENNSYLVANIA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2WEILL CORNELL MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3CHILDREN'S HOSPITAL COLORADO
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4UPLIFTING ATHLETES
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5BAYLOR COLLEGE OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt6UNIVERSITY OF RICHMOND
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt7NYU
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt8STANFORD UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientEIN0231352685
IRS990ScheduleI/RecipientTable/RecipientEIN1231352166
IRS990ScheduleI/RecipientTable/RecipientEIN2136094042
IRS990ScheduleI/RecipientTable/RecipientEIN3454182666
IRS990ScheduleI/RecipientTable/RecipientEIN4341986485
IRS990ScheduleI/RecipientTable/RecipientEIN5741613878
IRS990ScheduleI/RecipientTable/RecipientEIN6540505965
IRS990ScheduleI/RecipientTable/RecipientEIN7135562308
IRS990ScheduleI/RecipientTable/RecipientEIN8941156365
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt03400 CIVIC CENTER BOULEVARD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt13400 CIVIC CENTER BOULEVARD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt21300 YORK AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt313123 E 16TH AVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt48 ATKINSON DRIVE UNIT 574
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt5ONE BAYLOR PLAZA
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt6110 UR DRIVE SUITE 201
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt7105 EAST 17TH ST 3RD FLOOR
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt8326 GALVEZ STREET
IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt0BUILDING 421

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