Liabilities / Assets
76th percentile
Higher debt load relative to assets than 76% of similar nonprofits.
EIN 82-1255650 • 501(c)3 • Pittsburgh, PA
Profile
Provides education, information, & resources to families & medical professionals caring for children with life limiting illnesses.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
76th percentile
Higher debt load relative to assets than 76% of similar nonprofits.
Liabilities / Revenue
83rd percentile
Higher debt load relative to revenue than 83% of similar nonprofits.
Net Margin
60th percentile
Higher net margin than 60% of similar nonprofits.
Top Officer Pay
94th percentile
Higher top officer pay than 94% of similar nonprofits.
Top officer pay equals 19.7% of source-year revenue.
Asset Growth
74th percentile
Faster asset growth than 74% of similar nonprofits.
Revenue Growth
58th percentile
Faster revenue growth than 58% of similar nonprofits.
Assets
Up$452,007
Up $69,214 (+18%) from 2023
Liabilities
Up$30,491
Up $28,081 (+1165%) from 2023
Net Assets
Up$421,516
Up $41,133 (+11%) from 2023
Revenue
Up$273,629
Up $11,160 (+4.3%) from 2023
Expenses
Up$252,599
Up $69,640 (+38%) from 2023
Net Income
Down$21,030
Down $58,480 (-74%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
See Attached Schedule O for more detail
Provides education, information, & resources to families & medical professionals caring for children with life limiting illnesses.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $289,223 | $441,634 | ▲ $152,411 |
| Accounts Receivable | $75,000 | - | - |
| Intangible Assets | $18,570 | $9,284 | ▼ $9,286 |
| Prepaid Expenses and Deferred Charges | - | $1,089 | - |
| Total Assets | $382,793 | $452,007 | ▲ $69,214 |
| Liabilities | |||
| Deferred Revenue | - | $24,239 | - |
| Accounts Payable and Accrued Expenses | $2,410 | $6,252 | ▲ $3,842 |
| Total Liabilities | $2,410 | $30,491 | ▲ $28,081 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $213,535 | $210,815 | ▼ $2,720 |
| Net Assets With Donor Restrictions | $166,848 | $210,701 | ▲ $43,853 |
| Total Net Assets Fund Balance | $380,383 | $421,516 | ▲ $41,133 |
| Total Liabilities and Net Assets / Fund Balance | $382,793 | $452,007 | ▲ $69,214 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Betsy Hawley MA | Executive Director | PT | $53,900 | $53,900 |
| Name | Title |
|---|---|
| Carol May RN MSN MBA CHPPN | President |
| Allyson Weber RN | Director |
| Dana Dombrowski MSW LSW | Director |
| Deborah Dimasi | Director |
| Jack Brice | Director |
| Jeanne Vogt RN CHPPN MSN MBA | Director |
| Kristen Moyer MD MTS FAAP | Director |
| Susan Bartlett RNBSNMSNCRNP | Director |
| Nicole Hahnlen RN CHPPN | Secretary |
| Morgan Daley MS CHES | Treasurer |
| Donna Salovay Esq | VP |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $127,607 |
| Other Expenses | $124,992 |
| Total Fundraising Expense | $19,049 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $120,203 | $3,702 | $3,702 | $127,607 |
| Fees for Services Management | $15,333 | $35,116 | $13,911 | $64,360 |
| All Other Expenses | $28,795 | $837 | $1,233 | $30,865 |
| Travel | $15,660 | $0 | $0 | $15,660 |
| Depreciation Depletion | $0 | $9,286 | $0 | $9,286 |
| Advertising | $2,716 | $0 | $0 | $2,716 |
| Insurance | $1,355 | $133 | $42 | $1,530 |
| Office Expenses | $60 | $354 | $161 | $575 |
| Total Functional Expenses | $184,122 | $49,428 | $19,049 | $252,599 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $180 |
| Professional Fundraising Fees | $0 |
“The 990 is reviewed by the Executive Director and/or the Finance Committee before it is presented to the Board.”
“The conflict of interest statement is presented to the Board annually.”
“The compensation of the Executive Director is reviewed by the finance committee and the Board each year.”
“All documents are available upon request”
“Webinar Fees 9238. 9238. 0. 0.”
“Fiduciary Administrative fees 3000. 3000. 0. 0.”
“Dues & Subscriptions 4275. 3858. 417. 0.”
“Volunteers 511. 511. 0. 0.”
“Fundraising Expenses 127. 0. 0. 127.”
“Advocacy & Lobbying 4937. 4937. 0. 0.”
“Postage 487. 290. 116. 81.”
“Professional Development 140. 0. 70. 70.”
“Meals & Entertainment 1502. 1502. 0. 0.”
“Bank charges & fees 5510. 5071. 234. 205.”
“Printing & Copying 1138. 388. 0. 750.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 2410 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 6252 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 75000 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | Provides education, information, & resources to families & medical professionals caring for children with life limiting illnesses. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 2716 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 2716 |
| IRS990/AllOtherContributionsAmt | 0 | 187535 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1233 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 837 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 28795 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 30865 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | Betsy Hawley |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4129638243 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 384 Fox Chapel Road |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Pittsburgh |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 15238 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 289223 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 441634 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 187535 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 5387 |
| IRS990/CYOtherExpensesAmt | 0 | 124992 |
| IRS990/CYOtherRevenueAmt | 0 | 180 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 80527 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 21030 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 127607 |
| IRS990/CYTotalExpensesAmt | 0 | 252599 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 19049 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 273629 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 24239 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 9286 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 9286 |
| IRS990/Desc | 0 | EDUCATION - Delivers high-quality educational programming to advance knowledge & collaboration in the field of pediatric palliative care. Through the Pediatric Palliative Care Webinar Series, virtual presentations are offered that are led by expert speakers who enhance visibility of the field & strengthen clinicians skills & confidence that featured 10 webinars with 16 expert presenters & over 5,000 attendees. In addition, the Firefly Chats - interactive virtual discussions - foster dialogue between healthcare professionals & family caregivers, focusing on key issues impacting the pediatric palliative care community. These Firefly chats included 4 sessions with 9 presenters & more than 1,200 participants. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 20103 |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 166848 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 210701 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 163431 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 13911 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 35116 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 15333 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 64360 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 25.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Dana Dombrowski MSW LSW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Nicole Hahnlen RN CHPPN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Donna Salovay Esq |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Jeanne Vogt RN CHPPN MSN MBA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Susan Bartlett RNBSNMSNCRNP |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Carol May RN MSN MBA CHPPN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Deborah Dimasi |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Betsy Hawley MA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Morgan Daley MS CHES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Kristen Moyer MD MTS FAAP |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Allyson Weber RN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Jack Brice |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 53900 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | VP |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Executive Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2017 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/FundraisingGrossIncomeAmt | 0 | 180 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantAmt | 0 | 3 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 273629 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 42 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 133 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1355 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1530 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 18570 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 9284 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 5387 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 5387 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | PA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | Provides education, information, & resources to families & medical professionals caring for children with life limiting illnesses. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 380383 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 421516 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 180 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 180 |
| IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 213535 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 210815 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 161 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 354 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 60 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 575 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 3702 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 3702 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 120203 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 127607 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 1089 |
| IRS990/PrincipalOfficerNm | 0 | Betsy Hawley |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 611430 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 611430 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 2 | 611430 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 3 | 611420 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Webinar Service Revenue |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | Conference Revenue |
| IRS990/ProgramServiceRevenueGrp/Desc | 2 | Speaker Service Revenue |
| IRS990/ProgramServiceRevenueGrp/Desc | 3 | Consulting Services Revenue |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 1 | 0 |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 2 | 0 |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 3 | 0 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 68052 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 9765 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 2 | 1500 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 3 | 1210 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 1 | 0 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 2 | 0 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 3 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | RESOURCES - Provides free, downloadable resources to support families & caregivers of children with life-limiting illnesses. These tools are designed to help children live as fully as possible while equipping families with accessible, practical guidance at their fingertips. In 2024, over 6,900 unique visits to our resource pages were received, resulting in 1,400 total downloads. Among the most acccessed materials were the Advocacy Toolkit (3,300 downloads), the Sibling Toolkit (801 downloads) & the Sibling Grief & Bereavement Toolkit (752 downloads). Additional offerings include the Care Plan Book, an organizational guide to help families manage their childs health information, & When a Child Dies, a memorial planning workbook to support families after the loss of a child. All of these toolkits also cover topics such as Self-Advocacy, Caring Conversations & Creative Expressions. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 7680 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | ADVOCACY - committed to ensure that children with serious illnesses have access to high-quality palliative & hospice care. In 2024, this mission was advanced through targeted advocacy efforts that emphasized rural access , provider education, & family empowerment. Participation occurred in 6 national, statewide & regional advocacy coalitions & distributed advocacy resources to over 2,500 families & professionals. Special attention was given to rural communities through ongoing dialogue with stakeholders to address service gaps. Additionally, collaberations occurred with 5 professional associations to raise awareness about pediatric palliative care & promote best practices. |
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| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | Other Income Part III, Line 12 Description: Other Misc. Income 2023: 647. 2024: 0. Description: Fundraising 2024: 180. |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | Pt III Ln 12 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | The 990 is reviewed by the Executive Director and/or the Finance Committee before it is presented to the Board. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The conflict of interest statement is presented to the Board annually. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | The compensation of the Executive Director is reviewed by the finance committee and the Board each year. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | All documents are available upon request |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Webinar Fees 9238. 9238. 0. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | Fiduciary Administrative fees 3000. 3000. 0. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | Dues & Subscriptions 4275. 3858. 417. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | Volunteers 511. 511. 0. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | Fundraising Expenses 127. 0. 0. 127. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 9 | Advocacy & Lobbying 4937. 4937. 0. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 10 | Postage 487. 290. 116. 81. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 11 | Professional Development 140. 0. 70. 70. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 12 | Meals & Entertainment 1502. 1502. 0. 0. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 13 | Bank charges & fees 5510. 5071. 234. 205. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 14 | Printing & Copying 1138. 388. 0. 750. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt VI, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Pt VI, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Pt VI, Line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Pt VI, Line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 8 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 9 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 10 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 11 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 12 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 13 | Form 990, Part IX, Line 24e |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 14 | Form 990, Part IX, Line 24e |
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