Civic Intelligence

Jansens Foundation

EIN 81-5444211 • 501(c)3 • Elkhorn, NE

Profile

The miission of the Jansens Foundation is to bring awareness and support research in hope fo bringing about a cure to this debilitating skeletal condition. Jansen's Disease is an ultra-rare condition, affecting fewer than 30 patients worldwide, which often results in limited diagnosis and treatment options.

PO Box 115Elkhorn, NE 68022

www.thejansensfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2025

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.

Source year 2025

Net Margin

88th percentile

44%

Higher net margin than 88% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

87th percentile

$17,500

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 17.9% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2025

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2025

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2025

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

$63,780

No earlier filing loaded for comparison.

Liabilities

-

No earlier filing loaded for comparison.

Net Assets

$63,780

No earlier filing loaded for comparison.

Operations
Liabilities / RevenueScore unavailableNet Margin88th percentile

Revenue

$97,679

No earlier filing loaded for comparison.

Expenses

$54,263

No earlier filing loaded for comparison.

Net Income

$43,416

No earlier filing loaded for comparison.

Trend Graphs

Balance Sheet Trend

Asset GrowthScore unavailable

Grouped bars show assets, liabilities, and net assets across loaded filings.

$80K$60K$40K$20K$0Assets 2025: $63,780Net Assets 2025: $63,7802025

Highlighted filing

2025

Assets$63,780
Liabilities-
Net Assets$63,780
Open 2025 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income by year, with the latest filing highlighted.

$100K$50K$0Revenue 2025: $97,679Expenses 2025: $54,263Net Income 2025: $43,4162025

Highlighted filing

2025

Revenue$97,679
Expenses$54,263
Net Income$43,416
Open 2025 Filing

Filings

Most recent year

2025 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$63,780
Liabilities
-
Net assets
$63,780
Revenue
$97,679
Expenses
$54,263
Net income
$43,416
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$63.8$63.8$97.7$54.3$43.4
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Jan 20, 2026
Return Version
2025v4.0
Gross Receipts
$97,679
Mission and Program Overview

Mission

The miission of the Jansens Foundation is to bring awareness and support research in hope fo bringing about a cure to this debilitating skeletal condition. Jansen's Disease is an ultra-rare condition, affecting fewer than 30 patients worldwide, which often results in limited diagnosis and treatment options.

Program Services

DescriptionGrantsExpenses
Patient awareness: Develop and maintain website with information about the condition for people across the world to access. Patients and medical personnel from across the world (about 40 or more persons) can access contact information to seek out additional information regarding medical diagnosis, testing, and treatment. Maintain the foundations operation to meet the above objectives as well as objectives described below through independent contractors serving as Project Lead (2) and Administrative Official$0$41,108
Establish collaborative partnerships for research prioritization through community engagement by forming an advisory board of a diverse group of community stakeholders to identify and prioritize key research questions.$0$7,858
Empower the Jansens community and stakeholders by enhancing their capacity to define research priorities and engage in the CER process through training. By creating a structured framework for collaboration, we aim to establish best practices for involving ultra-rare patients, caregivers, and relevant community members (19 individuals) ultimately improving long-term outcomes in research and healthcare. Stipends awarded for completion of CER trainings.$0$5,011
Establish collaborative partnerships for research prioritization through community engagement by sending a representative to national medical workshops engaged in bone research.$0$286
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Neena NizarPresident & Project LeadPT$17,500-$17,500
Penni RomeroAdministrative Official & TreasurerPT$13,500-$13,500
Maegan WallaceProject Lead & SecretaryPT$7,750-$7,750
Filing and Contact Details

Filer

Filer Name
Jansens Foundation
EIN
81-5444211
Phone
4024579886
Address
PO Box 115, Elkhorn, NE 68022

Signing Officer

Name
Penni Romero
Title
Administrative Official & Treasurer
Phone
4024579886
Signed
2026-01-20
Supplemental Narrative

Additional Explanations

Part I, Line 16

“NORD membership $50 State Biennial fees $28 Simple 990 Fee $50 Squarespace $285 Restaurants $114 (conference related) Restaurant $374 Medical Board dinner Zoom subscription $171 PO BOX renewal $188 USPS shipping $31Travel $172 (taxi, UBER, conference related) Parent Training stipends (19) $5011 Advisory Panel stipends $3500 Checks for business $55 Transfer error out of checking $1500 (returned in 2026)”

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