Civic Intelligence

Dare to Be Rare Inc

EIN 81-5240164 • 501(c)3 • Oyster Bay Cove, NY

Profile

To raise awareness for rare diseases and to raise money to support research in rare diseases.

One South RoadOyster Bay Cove, NY 11771

daretoberare.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

98th percentile

4.68x

Higher debt load relative to assets than 98% of similar nonprofits.

NTEE T • <$500k nonprofits • Source year 2025

Liabilities / Revenue

99th percentile

17.21x

Higher debt load relative to revenue than 99% of similar nonprofits.

NTEE T • <$500k nonprofits • Source year 2025

Net Margin

13th percentile

-159%

Higher net margin than 13% of similar nonprofits.

NTEE T • <$500k nonprofits • Source year 2025

Top Officer Pay

93rd percentile

$0

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

NTEE T • <$500k nonprofits • Source year 2025

Asset Growth

65th percentile

3.3%

Faster asset growth than 65% of similar nonprofits.

NTEE T • <$500k nonprofits • Annualized from 2023 to 2025

Revenue Growth

50th percentile

0.8%

Faster revenue growth than 50% of similar nonprofits.

NTEE T • <$500k nonprofits • Annualized from 2023 to 2025

Balance Sheet
Liabilities / Assets98th percentile

Assets

Up

$8,173

Up $4,678 (+134%) from 2021

Liabilities

Up

$38,282

Up $11,232 (+42%) from 2021

Net Assets

Down

-$30,109

Down $6,554 (-28%) from 2021

Operations
Liabilities / Revenue99th percentileNet Margin13th percentile

Revenue

Up

$2,225

Up $521 (+31%) from 2021

Expenses

Up

$5,767

Up $2,993 (+108%) from 2021

Net Income

Down

-$3,542

Down $2,472 (-231%) from 2021

Trend Graphs

Balance Sheet Trend

Asset Growth65th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$40K$20K$0-$20K-$40KAssets 2017: $7,112Liabilities 2017: $13,276Net Assets 2017: -$6,1642017Assets 2018: $121Liabilities 2018: $13,581Net Assets 2018: -$13,4602018Assets 2019: $336Liabilities 2019: $19,756Net Assets 2019: -$19,4202019Assets 2020: $627Liabilities 2020: $23,112Net Assets 2020: -$22,4852020Assets 2021: $3,495Liabilities 2021: $27,050Net Assets 2021: -$23,5552021Assets 2025: $8,173Liabilities 2025: $38,282Net Assets 2025: -$30,1092025

Highlighted filing

2025

Assets$8,173
Liabilities$38,282
Net Assets-$30,109
Open 2025 Filing

Operations Trend

Revenue Growth50th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$20K$10K$0-$10KRevenue 2017: -$1,959Expenses 2017: $4,205Net Income 2017: -$6,1642017Revenue 2018: $6,002Expenses 2018: $13,298Net Income 2018: -$7,2962018Revenue 2019: $1,334Expenses 2019: $7,293Net Income 2019: -$5,9592019Revenue 2020: $172Expenses 2020: $3,239Net Income 2020: -$3,0672020Revenue 2021: $1,704Expenses 2021: $2,774Net Income 2021: -$1,0702021Revenue 2025: $2,225Expenses 2025: $5,767Net Income 2025: -$3,5422025

Highlighted filing

2025

Revenue$2,225
Expenses$5,767
Net Income-$3,542
Open 2025 Filing

Filings

Most recent year

2025 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,173
Liabilities
$38,282
Net assets
-$30,109
Revenue
$2,225
Expenses
$5,767
Net income
-$3,542
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$8.17$38.3$30.1$2.23$5.77$3.54
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.50$27.1$23.6$1.70$2.77$1.07
2020Detailed filing. Detailed filing data is available for this year.$0.63$23.1$22.5$0.17$3.24$3.07
2019Detailed filing. Detailed filing data is available for this year.$0.34$19.8$19.4$1.33$7.29$5.96
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.12$13.6$13.5$6.00$13.3$7.30
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.11$13.3$6.16$1.96$4.21$6.16
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Aug 1, 2024 to Jul 31, 2025
Signed
Jan 14, 2026
Return Version
2024v5.0
Gross Receipts
$2,225
Mission and Program Overview

Mission

To raise awareness for rare diseases and to raise money to support research in rare diseases.

Program Services

DescriptionGrantsExpenses
SALE AND DISTRIBUTION OF T SHIRTS TO RAISE MONEY AND AWARENESS-$5,317
Compensation and Service Providers
Top Officer Pay93rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
DONNA APPELLPresident-$0--
KERRI BERTOLINICOO-$0--
RENEE MCEVOYCFO-$0--
Filing and Contact Details

Filer

Filer Name
Dare to Be Rare Inc
EIN
81-5240164
Phone
8007899477
Address
ONE SOUTH ROAD, OYSTER BAY COVE, NY 11771

Signing Officer

Name
Donna Appell
Title
President
Phone
0800789947
Signed
2026-01-14
Discuss with paid preparer
Yes

Preparer

Firm
Weissberg & Speller Cpas
Address
3601 HEMPSTEAD TPKE STE 200, LEVITTOWN, NY 11756-1331
Preparer
John W Speller
Phone
5167962727
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 16

“Expenses bank charges 192 computer expenses 1,438 purchase of dare to be 3,129 rare tshirts for sale & 1 distribution -1 total 4,759”

Form 990-ez, Part II, Line 24

“Trademark 8,365 8,365 less accumulated amortization 778 1,335 total 7,587 7,030”

Form 990-ez, Part II, Line 26

“Loans payable 35,847 38,282”

Form 990-ez, Part III

“To raise awareness for rare diseases and to raise money to support research in rare diseases.”

Raw XML Appendix137 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990EZ/ActivitiesNotPreviouslyRptInd0false
IRS990EZ/BooksInCareOfDetail/PersonNm0DONNA APPELL
IRS990EZ/BooksInCareOfDetail/PhoneNum08007899477
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt0ONE SOUTH RD
IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0OYSTER BAY COVE
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NY
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd011771
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt01693
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt01143
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd0false
IRS990EZ/DonorAdvisedFndsInd0false
IRS990EZ/EngagedInExcessBenefitTransInd0false
IRS990EZ/ExcessOrDeficitForYearAmt0-3542
IRS990EZ/FeesAndOtherPymtToIndCntrctAmt0450
IRS990EZ/FiledScheduleAInd0true
IRS990EZ/ForeignFinancialAccountInd0false
IRS990EZ/ForeignOfficeInd0false
IRS990EZ/Form1120PolFiledInd0false
IRS990EZ/Form990TotalAssetsGrp/BOYAmt09280
IRS990EZ/Form990TotalAssetsGrp/EOYAmt08173
IRS990EZ/GrossReceiptsAmt02225
IRS990EZ/InfoInScheduleOPartIIIInd0X
IRS990EZ/InfoInScheduleOPartIIInd0X
IRS990EZ/InfoInScheduleOPartIInd0X
IRS990EZ/LobbyingActivitiesInd0false
IRS990EZ/MadeLoansToFromOfficersInd0false
IRS990EZ/MethodOfAccountingCashInd0X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt0-26567
IRS990EZ/NetAssetsOrFundBalancesEOYAmt0-30109
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt0-26567
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt0-30109
IRS990EZ/OccupancyRentUtltsAndMaintAmt0558
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt0000.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt1000.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt2000.00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt00
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0DONNA APPELL
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1KERRI BERTOLINI
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2RENEE MCEVOY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1COO
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2CFO
IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
IRS990EZ/OrganizationHadUBIInd0false
IRS990EZ/OtherAssetsTotalDetail/BOYAmt07587
IRS990EZ/OtherAssetsTotalDetail/EOYAmt07030
IRS990EZ/OtherExpensesTotalAmt04759
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd0false
IRS990EZ/PrimaryExemptPurposeTxt0TO RAISE AWARENESS FOR RARE DISEASES AND TO RAISE MONEY TO SUPPORT RESEARCH IN RARE DISEASES.
IRS990EZ/ProgramServiceRevenueAmt02225
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0SALE AND DISTRIBUTION OF T SHIRTS TO RAISE MONEY AND AWARENESS
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt05317
IRS990EZ/ProhibitedTaxShelterTransInd0false
IRS990EZ/RelatedOrganizationCtrlEntInd0false
IRS990EZ/ScheduleBNotRequiredInd0X
IRS990EZ/SchoolOperatingInd0false
IRS990EZ/SubjectToProxyTaxInd0false
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt035847
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt038282
IRS990EZ/TanningServicesProvidedInd0false
IRS990EZ/TotalExpensesAmt05767
IRS990EZ/TotalProgramServiceExpensesAmt05317
IRS990EZ/TotalRevenueAmt02225
IRS990EZ/TransactionWithControlEntInd0false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0DARETOBERARE.ORG
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt01000
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt02225
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt04293
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt02190
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0104
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0704
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt09516
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/InvestmentIncomePYPct00.00000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct01.00000
IRS990ScheduleA/PublicSupportPY509Pct01.00000
IRS990ScheduleA/PublicSupportTotal509Amt010516
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt02225
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt04293
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt02190
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0104
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt01704
IRS990ScheduleA/Total509Grp/TotalAmt010516
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt02225
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt04293
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt02190
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0104
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt01704
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt010516
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0EXPENSES BANK CHARGES 192 COMPUTER EXPENSES 1,438 PURCHASE OF DARE TO BE 3,129 RARE TSHIRTS FOR SALE & 1 DISTRIBUTION -1 TOTAL 4,759
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1TRADEMARK 8,365 8,365 LESS ACCUMULATED AMORTIZATION 778 1,335 TOTAL 7,587 7,030
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2LOANS PAYABLE 35,847 38,282
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3TO RAISE AWARENESS FOR RARE DISEASES AND TO RAISE MONEY TO SUPPORT RESEARCH IN RARE DISEASES.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART II, LINE 24
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART II, LINE 26
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990-EZ, PART III
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0DONNA APPELL
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum00800789947
ReturnHeader/BusinessOfficerGrp/SignatureDt02026-01-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0DARE TO BE RARE INC
ReturnHeader/Filer/BusinessNameControlTxt0DARE
ReturnHeader/Filer/EIN0815240164
ReturnHeader/Filer/PhoneNum08007899477
ReturnHeader/Filer/USAddress/AddressLine1Txt0ONE SOUTH ROAD
ReturnHeader/Filer/USAddress/CityNm0OYSTER BAY COVE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd011771
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0false
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0113179015
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0WEISSBERG & SPELLER CPAS
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt03601 HEMPSTEAD TPKE STE 200
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0LEVITTOWN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0117561331
ReturnHeader/PreparerPersonGrp/PhoneNum05167962727
ReturnHeader/PreparerPersonGrp/PreparationDt02026-02-04
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JOHN W SPELLER
ReturnHeader/ReturnTs02026-02-06T12:23:00-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-08-01
ReturnHeader/TaxPeriodEndDt02025-07-31
ReturnHeader/TaxYr02024

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