Civic Intelligence

Spoonbill Foundation

EIN 81-5080532 • 501(c)3 • Portland, OR

Pub. 78 Eligible

Profile

To discover, develop, and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost.

c/o Immix Law Group 600 Naito PkwyPortland, OR 97209

spoonbillfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

35th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

97th percentile

86%

Higher net margin than 97% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

55th percentile

$0

Higher top officer pay than 55% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

49th percentile

2.7%

Faster asset growth than 49% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

22nd percentile

-15%

Faster revenue growth than 22% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Up

$801,717

Up $21,070 (+2.7%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$801,717

Up $21,070 (+2.7%) from 2023

Operations
Liabilities / Revenue35th percentileNet Margin97th percentile

Revenue

Down

$24,611

Down $4,236 (-15%) from 2023

Expenses

Down

$3,541

Down $29,209 (-89%) from 2023

Net Income

Up

$21,070

Up $24,973 (+640%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth49th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$2.0M$1.5M$1.0M$500K$0Assets 2017: $120,517Liabilities 2017: $02017Assets 2018: $929,746Liabilities 2018: $0Net Assets 2018: $929,7462018Assets 2019: $1,534,633Liabilities 2019: $0Net Assets 2019: $1,534,6332019Assets 2020: $1,191,526Liabilities 2020: $0Net Assets 2020: $1,191,5262020Assets 2021: $1,043,854Liabilities 2021: $0Net Assets 2021: $1,043,8542021Assets 2022: $784,550Liabilities 2022: $0Net Assets 2022: $784,5502022Assets 2023: $780,647Liabilities 2023: $0Net Assets 2023: $780,6472023Assets 2024: $801,717Liabilities 2024: $0Net Assets 2024: $801,7172024

Highlighted filing

2024

Assets$801,717
Liabilities$0
Net Assets$801,717
Open 2024 Filing

Operations Trend

Revenue Growth22nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2017: $153,070Expenses 2017: $32,553Net Income 2017: $120,5172017Revenue 2018: $1,162,601Expenses 2018: $112,338Net Income 2018: $1,050,2632018Revenue 2019: $1,983,394Expenses 2019: $387,780Net Income 2019: $1,595,6142019Revenue 2020: $134,485Expenses 2020: $477,592Net Income 2020: -$343,1072020Revenue 2021: $89,539Expenses 2021: $237,211Net Income 2021: -$147,6722021Revenue 2022: $18,165Expenses 2022: $277,469Net Income 2022: -$259,3042022Revenue 2023: $28,847Expenses 2023: $32,750Net Income 2023: -$3,9032023Revenue 2024: $24,611Expenses 2024: $3,541Net Income 2024: $21,0702024

Highlighted filing

2024

Revenue$24,611
Expenses$3,541
Net Income$21,070
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$801,717
Liabilities
$0
Net assets
$801,717
Revenue
$24,611
Expenses
$3,541
Net income
$21,070
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.80$0.00$0.80$0.02$0.00$0.02
2023Detailed filing. Detailed filing data is available for this year.$0.78$0.00$0.78$0.03$0.03$0.00
2022Detailed filing. Detailed filing data is available for this year.$0.78$0.00$0.78$0.02$0.28$0.26
2021Detailed filing. Detailed filing data is available for this year.$1.04$0.00$1.04$0.09$0.24$0.15
2020Detailed filing. Detailed filing data is available for this year.$1.19$0.00$1.19$0.13$0.48$0.34
2019Summary only. Only limited summary data is available for this year.$1.53$0.00$1.53$1.98$0.39$1.60
2018Summary only. Only limited summary data is available for this year.$0.93$0.00$0.93$1.16$0.11$1.05
2017Summary only. Only limited summary data is available for this year.$0.12$0.00$0.15$0.03$0.12
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 18, 2025
Return Version
2024v5.0
Gross Receipts
$24,611
Mission and Program Overview

Mission

To discover, develop, and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost.

Development of compounds to improve the health of people with rare neurodegenerative disorders, including PKAN

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$780,647$801,717▲ $21,070
Cap Stk Tr Prin Current Funds$780,647$801,717▲ $21,070
Cash and Non-Interest-Bearing Accounts$0$0→ $0
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Rtn Earn Endowment Incm Other Fnds$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$780,647$801,717▲ $21,070
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$780,647$801,717▲ $21,070
Total Liabilities and Net Assets / Fund Balance$780,647$801,717▲ $21,070
Compensation and Service Providers
Top Officer Pay55th percentile

Board Members and Trustees

NameTitle
Janet WeinerPresident
Harm Jan HektorDirector
Oda Cornelia Maria SibonDirector
Lynn BakerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$23,842
Program Service Revenue
$0
Investment Income
$769
Other Revenue
$0
All Other Contributions
$23,842
Change in Net Assets
$21,070
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,541
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$3,024$0$0$3,024
Other Expenses$299$0$0$299
Total Functional Expenses$3,541$0$0$3,541
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“copies on record for each member to review and comment on or request corrections.”

Form 990, Part VI, Section B, Line 15

“no compensation was received by any member or officer.”

Form 990, Part VI, Section C, Line 19

“upon request”

Filing and Contact Details

Filer

Filer Name
Spoonbill Foundation
EIN
81-5080532
Phone
5038025533
Address
c/o Immix Law Group 600 Naito Pkwy, Portland, OR 97209

Signing Officer

Name
Susan Hayflick
Title
recorder and cashier
Phone
5038025533
Signed
2025-08-18

Organization Details

Principal Officer
Janet Weiner
Formed
2017
Legal Domicile
Or
Voting Board Members
4
Independent Board Members
4
Employees
0
Volunteers
4
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Oregon Sec of State and DOJ charitable fees”

Raw XML AppendixShowing 400 of 534 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/NetUnrlzdGainsLossesInvstAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NoncashContributionsAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt00
IRS990/OccupancyGrp/ManagementAndGeneralAmt00
IRS990/OccupancyGrp/ProgramServicesAmt00
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt00
IRS990/OfficeExpensesGrp/ProgramServicesAmt00
IRS990/OfficeExpensesGrp/TotalAmt00
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrgDoesNotFollowFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt00
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt00
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0banking/wire fee
IRS990/OtherExpensesGrp/Desc1OR Sec of State and DOJ fees
IRS990/OtherExpensesGrp/Desc2Oregon Health & Science University - trial database
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt10
IRS990/OtherExpensesGrp/FundraisingAmt20
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt20
IRS990/OtherExpensesGrp/ProgramServicesAmt040
IRS990/OtherExpensesGrp/ProgramServicesAmt1178
IRS990/OtherExpensesGrp/ProgramServicesAmt2299
IRS990/OtherExpensesGrp/TotalAmt040
IRS990/OtherExpensesGrp/TotalAmt1178
IRS990/OtherExpensesGrp/TotalAmt2299
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt00
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt00
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt00
IRS990/OtherSalariesAndWagesGrp/TotalAmt00
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt00
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt00
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt00
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayrollTaxesGrp/FundraisingAmt00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt00
IRS990/PayrollTaxesGrp/ProgramServicesAmt00
IRS990/PayrollTaxesGrp/TotalAmt00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/BOYAmt00
IRS990/PdInCapSrplsLandBldgEqpFundGrp/EOYAmt00
IRS990/PensionPlanContributionsGrp/FundraisingAmt00
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt00
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt00
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0Janet Weiner
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0chemical manufacture and quality control
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt00
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt028087
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt0760
IRS990/PymtTravelEntrtnmntPubOfclGrp/FundraisingAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/ManagementAndGeneralAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/ProgramServicesAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt032750
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-3903
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt032750
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt028847
IRS990/RcvblFromDisqualifiedPrsnGrp/BOYAmt00
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/ReceivablesFromOfficersEtcGrp/BOYAmt00
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt021070
IRS990/RegularMonitoringEnfrcInd00
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990/RoyaltiesGrp/FundraisingAmt00
IRS990/RoyaltiesGrp/ManagementAndGeneralAmt00
IRS990/RoyaltiesGrp/ProgramServicesAmt00
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/ExclusionAmt00
IRS990/RoyaltiesRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/RoyaltiesRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0780647
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0801717
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt023842
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt028078
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt022127
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt088695
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0134485
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0297227
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0769

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