Liabilities / Assets
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
93rd percentile
Higher net margin than 93% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Assets
$299,972
No earlier filing loaded for comparison.
Net Assets
$299,972
No earlier filing loaded for comparison.
Liabilities
$0
No earlier filing loaded for comparison.
Revenue
$432,470
No earlier filing loaded for comparison.
Expenses
$179,470
No earlier filing loaded for comparison.
Net Income
$253,000
No earlier filing loaded for comparison.
To cure and improve quality of life for children inpacted by AP-4 Associated Hereditary Spastic Paraplegia, Type 47 (AP4) by accelerating the research for a cure or treatment and providing financial support for patient therapies and equipment critical to their well-being and rehab
To cure and improve quality of life for children inpacted by hereditary spastic paraplegia, type 47 (spg47) by accelerating the research for a cure or treatment and providing financial support for patient therapies and equipment critical to their well-being and rehab
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $46,972 | $299,972 | ▲ $253,000 |
| Total Assets | $46,972 | $299,972 | ▲ $253,000 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $46,972 | $299,972 | ▲ $253,000 |
| Total Net Assets Fund Balance | $46,972 | $299,972 | ▲ $253,000 |
| Total Liabilities and Net Assets / Fund Balance | $46,972 | $299,972 | ▲ $253,000 |
| Name | Title |
|---|---|
| Christopher Edwards | President/Clerk |
| Erika Gill | Director |
| Kira Dies | Director |
| Kevin Duffy | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $168,472 |
| Other Expenses | $10,998 |
| Total Fundraising Expense | $3,317 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Foreign Grants | $100,000 | - | - | $100,000 |
| Grants to Domestic Orgs | $68,472 | - | - | $68,472 |
| Fees for Services Legal | $0 | $4,400 | $0 | $4,400 |
| Travel | $0 | $1,386 | $0 | $1,386 |
| Other Expenses | $90 | $800 | $0 | $890 |
| Fees for Services Accounting | $0 | $500 | $0 | $500 |
| Office Expenses | $0 | $350 | $0 | $350 |
| Total Functional Expenses | $168,562 | $7,591 | $3,317 | $179,470 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Boston Children's Hospital | Boston, MA | - | Research | $68,472 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $66,350 |
| Fundraising Direct Expenses | $44,412 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Golf Tournament | $272,409 | $63,115 | $17,845 | $45,270 |
| Bowling Party | $10,783 | - | - | - |
| Total Events | $283,192 | $63,115 | $44,397 | $18,718 |
“The Form 990 is prepared by and outside, independent accountant and then is reviewed by the Board of Directors at a meeting before being filed.”
“Bank Fees”
“Filing Fees”
“Website”
“The Organization is organized and operated exclusively for charitable purposes. Income related to its charitable purpose is exempt from federal and state income taxes under the provisions of Section 501(c)(3) of the Internal Revenue Code. The Organization has adopted the application of the provisions of FASB ASC 740-10 (formerly FASB Interpretation No. 48, "Accounting For Uncertainty in Income Taxes"). The primary tax positions made by the Organization are the existence/non-existence of Unrelated Business Income Tax and the Organization's status as an exempt organization under Section 501(c)(3) of the Internal Revenue Code. The Organization currently evaluates all tax positions and makes determinations regarding the likelihood of those positions being upheld under review. For the year presented, and as a result of adoption, the Organization has not recognized any tax benefits or loss contingencies for uncertain tax positions based on its evaluations. The Organization's Form 990, Return of Organization Exempt from Income Tax, are subject to examination by the IRS, generally for 3 years after it is filed.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO CURE AND IMPROVE QUALITY OF LIFE FOR CHILDREN INPACTED BY HEREDITARY SPASTIC PARAPLEGIA, TYPE 47 (SPG47) BY ACCELERATING THE RESEARCH FOR A CURE OR TREATMENT AND PROVIDING FINANCIAL SUPPORT FOR PATIENT THERAPIES AND EQUIPMENT CRITICAL TO THEIR WELL-BEING AND REHAB |
| IRS990/AllOtherContributionsAmt | 0 | 183454 |
| IRS990/AuditCommitteeInd | 0 | false |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | CHRISTOPHER EDWARDS |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6175498575 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 24R Pleasant Street Unit 2 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Newburyport |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 01950 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 46972 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 299972 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConflictOfInterestPolicyInd | 0 | false |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 227078 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 410532 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 168472 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 10998 |
| IRS990/CYOtherRevenueAmt | 0 | 21938 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 253000 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 179470 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 3317 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 432470 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | TO CURE AND IMPROVE QUALITY OF LIFE FOR CHILDREN IMPACTED BY HEREDITARY SPASTIC PARAPLEGIA, TYPE 47 (SPG47) BY ACCELERATING THE RESEARCH FOR A CURE OR TREATMENT AND PROVIDING FINANCIAL SUPPORT FOR PATIENT THERAPIES AND EQUIPMENT CRITICAL TO THEIR WELL-BEING AND REHABILITATION. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 168562 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 500 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 500 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 4400 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 4400 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 100000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 100000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | KIRA DIES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ERIKA GILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | CHRISTOPHER EDWARDS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | KEVIN DUFFY |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | President/Clerk |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2016 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 227078 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 44412 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 66350 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 4 |
| IRS990/GrantAmt | 0 | 168472 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 68472 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 68472 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 476882 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 4 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To cure and improve quality of life for children inpacted by Hereditary Spastic |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 46972 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 299972 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 21938 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 21938 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 350 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 350 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | Bank and credit fees |
| IRS990/OtherExpensesGrp/Desc | 1 | Miscellaneous |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 3317 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 155 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 800 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 90 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 3472 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 890 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | CHRISTOPHER EDWARDS |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 48640 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 48640 |
| IRS990/PYTotalRevenueAmt | 0 | 48640 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 253000 |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 410532 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 48460 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 458992 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 323986 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 135006 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 410532 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 48460 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 458992 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 458992 |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | The Organization is organized and operated exclusively for charitable purposes. Income related to its charitable purpose is exempt from federal and state income taxes under the provisions of Section 501(c)(3) of the Internal Revenue Code. The Organization has adopted the application of the provisions of FASB ASC 740-10 (formerly FASB Interpretation No. 48, "Accounting For Uncertainty in Income Taxes"). The primary tax positions made by the Organization are the existence/non-existence of Unrelated Business Income Tax and the Organization's status as an exempt organization under Section 501(c)(3) of the Internal Revenue Code. The Organization currently evaluates all tax positions and makes determinations regarding the likelihood of those positions being upheld under review. For the year presented, and as a result of adoption, the Organization has not recognized any tax benefits or loss contingencies for uncertain tax positions based on its evaluations. The Organization's Form 990, Return of Organization Exempt from Income Tax, are subject to examination by the IRS, generally for 3 years after it is filed. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt X, Line 2 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 100000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | Wire |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | Europe |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | The Organization makes their foreign grantees adhere to the same contract and write the same reports as their grantees in the US. The Organization offers grants designed to encourage research aimed at finding a cure or treatment for Hereditary Spastic Paraplegia, Type 47. Istitutions receiving grants must be exempt from federal income tax under Section 501(c)(3) of the US Interenal Revenue Code, if in the US. Institutions outside the US must must be nonprofit educational institutions. There are progress reports that are due before additional funding is given to the grantee. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt I Line 2 |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 220077 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 209294 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 10783 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 44397 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | Golf Tournament |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | Bowling Party |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 25752 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 25752 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 272409 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 10783 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 283192 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 63115 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 63115 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 18718 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 17845 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 17845 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 800 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 800 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 68472 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | Research |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | Boston Children's Hospital |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 042774441 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 300 Longwood Avenue |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Boston |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 02115 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | The Organization makes their foreign grantees adhere to the same contract and write the same reports as their grantees in the US. The Organization offers grants designed to encourage research aimed at finding a cure or treatment for Hereditary Spastic Paraplegia, Type 47. Istitutions receiving grants must be exempt from federal income tax under Section 501(c)(3) of the US Interenal Revenue Code, if in the US. Institutions outside the US must must be nonprofit educational institutions. There are progress reports that are due before additional funding is given to the grantee. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt I Line 2 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | The Form 990 is prepared by and outside, independent accountant and then is reviewed by the Board of Directors at a meeting before being filed. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Bank Fees |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Filing Fees |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Website |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt VI, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990EZ, Part I, Line 16 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | MA |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TempOrPermanentEndowmentsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 46972 |
| IRS990/TotalAssetsEOYAmt | 0 | 299972 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 46972 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 299972 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 410532 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 3317 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 7591 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 168562 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 179470 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 46972 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 299972 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 168562 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 21938 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 432470 |
| IRS990/TotalVolunteersCnt | 0 | 10 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 46972 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 299972 |
| IRS990/TravelGrp/FundraisingAmt | 0 | 0 |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 1386 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/TravelGrp/TotalAmt | 0 | 1386 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UnrestrictedNetAssetsGrp/BOYAmt | 0 | 46972 |
| IRS990/UnrestrictedNetAssetsGrp/EOYAmt | 0 | 299972 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 24R Pleasant Street Unit 2 |
| IRS990/USAddress/CityNm | 0 | Newburyport |
| IRS990/USAddress/StateAbbreviationCd | 0 | MA |
| IRS990/USAddress/ZIPCd | 0 | 01950 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 4 |
| IRS990/VotingMembersIndependentCnt | 0 | 4 |
| IRS990/WebsiteAddressTxt | 0 | N/A |
| IRS990/WhistleblowerPolicyInd | 0 | false |
| ReturnHeader/BuildTS | 0 | 2018-06-14 16:35:46Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | CHRISTOPHER EDWARDS |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | PRESIDENT |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 6175498575 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2018-05-11 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | Cure SPG47 Inc |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | CURE |
| ReturnHeader/Filer/EIN | 0 | 814300824 |
| ReturnHeader/Filer/PhoneNum | 0 | 6175498575 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 24R Pleasant St |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Newburyport |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 01950 |
| ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId | 0 | 9325813F8D33C623A5B4A5043004254F148EC2F7 |
| ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId | 0 | 9325813F8D33C623A5B4A5043004254F148EC2F7 |
| ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd | 0 | P |
| ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt | 0 | 173.13.123.81 |
| ReturnHeader/FilingSecurityInformation/IPDt | 0 | 2018-10-08 |
| ReturnHeader/FilingSecurityInformation/IPTimezoneCd | 0 | PD |
| ReturnHeader/FilingSecurityInformation/IPTm | 0 | 04:04:18 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | FRITZ DEGUGLIELMO LLC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 8 ESSEX STREET |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | NEWBURYPORT |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | MA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 01950 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 9784622161 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2018-10-08 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | DANIEL E SCHAFFNER CPA |
| ReturnHeader/ReturnTs | 0 | 2018-10-08T04:04:35-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2017-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2017-12-31 |
| ReturnHeader/TaxYr | 0 | 2017 |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.