Civic Intelligence

Pura Syndrome Foundation

EIN 81-2235818 • 501(c)3 • Berwick, ME

Profile

To serve, educate, and fund research for families coping with the effects of PURA Syndrome.

3 Little Harbor RoadBerwick, ME 03901

www.purasyndrome.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

73rd percentile

0.04x

Higher debt load relative to assets than 73% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

85th percentile

0.16x

Higher debt load relative to revenue than 85% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

79th percentile

27%

Higher net margin than 79% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

64th percentile

6.9%

Faster asset growth than 64% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

91st percentile

103%

Faster revenue growth than 91% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets73rd percentile

Assets

Up

$389,883

Up $25,035 (+6.9%) from 2023

Liabilities

Flat

$15,059

Flat from 2023

Net Assets

Up

$374,824

Up $25,035 (+7.2%) from 2023

Operations
Liabilities / Revenue85th percentileNet Margin79th percentile

Revenue

Up

$94,004

Up $47,638 (+103%) from 2023

Expenses

Down

$68,968

Down $2,610 (-3.6%) from 2023

Net Income

Up

$25,036

Up $50,248 (+199%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth64th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$300K$200K$100K$0Assets 2017: $62,223Net Assets 2017: $62,2232017Assets 2018: $159,476Net Assets 2018: $159,4762018Assets 2019: $251,988Liabilities 2019: $15,059Net Assets 2019: $236,9292019Assets 2020: $326,995Liabilities 2020: $15,059Net Assets 2020: $311,9362020Assets 2021: $334,494Liabilities 2021: $15,059Net Assets 2021: $319,4352021Assets 2022: $390,060Liabilities 2022: $15,059Net Assets 2022: $375,0012022Assets 2023: $364,848Liabilities 2023: $15,059Net Assets 2023: $349,7892023Assets 2024: $389,883Liabilities 2024: $15,059Net Assets 2024: $374,8242024

Highlighted filing

2024

Assets$389,883
Liabilities$15,059
Net Assets$374,824
Open 2024 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$200K$150K$100K$50K$0-$50KRevenue 2017: $88,559Expenses 2017: $39,685Net Income 2017: $48,8742017Revenue 2018: $136,778Expenses 2018: $39,449Net Income 2018: $97,3292018Revenue 2019: $174,594Expenses 2019: $97,141Net Income 2019: $77,4532019Revenue 2020: $84,736Expenses 2020: $9,267Net Income 2020: $75,4692020Revenue 2021: $54,086Expenses 2021: $46,588Net Income 2021: $7,4982021Revenue 2022: $69,881Expenses 2022: $14,315Net Income 2022: $55,5662022Revenue 2023: $46,366Expenses 2023: $71,578Net Income 2023: -$25,2122023Revenue 2024: $94,004Expenses 2024: $68,968Net Income 2024: $25,0362024

Highlighted filing

2024

Revenue$94,004
Expenses$68,968
Net Income$25,036
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$389,883
Liabilities
$15,059
Net assets
$374,824
Revenue
$94,004
Expenses
$68,968
Net income
$25,036
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.90$0.15$3.75$0.94$0.69$0.25
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.65$0.15$3.50$0.46$0.72$0.25
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.90$0.15$3.75$0.70$0.14$0.56
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.34$0.15$3.19$0.54$0.47$0.07
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.27$0.15$3.12$0.85$0.09$0.75
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.52$0.15$2.37$1.75$0.97$0.77
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.59$1.59$1.37$0.39$0.97
2017Detailed filing. Detailed filing data is available for this year.$0.62$0.62$0.89$0.40$0.49
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 14, 2025
Return Version
2024v5.1
Gross Receipts
$94,004
Mission and Program Overview

Mission

See Schedule O.

Program Services

DescriptionGrantsExpenses
Medical and research professionals, and other interested attendees from around the world to gather together. Families and medical specialists had the chance to meet each other, sharing information and ideas--
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Elizabeth AstridgeCo-PresidentPT$0--
Eva TuckerCo-PresidentPT$0--
Melissa VaughtVice PresidentPT$0--
Damon FisherTreasurerPT$0--
Eva KittayAt LargePT$0--
Nancy BocciaAt LargePT$0--
Filing and Contact Details

Filer

Filer Name
PURA Syndrome Foundation
EIN
81-2235818
Phone
5124132460
Address
3 Little Harbor Road, Berwick, ME 03901

Signing Officer

Name
Damon Fisher
Title
Treasurer
Signed
2025-05-14
Discuss with paid preparer
No

Preparer

Firm
Montemayor Britton Bender Carey Pc
Address
2110 B Boca Raton Suite B 102, Austin, TX 78747
Preparer
Arturo Montemayor III
Phone
5124420380
Supplemental Narrative

Additional Explanations

Part I, Ln 16

“Description: Website and Software Expense: $6,690; Conference Expense: $48,568; Taxes and Licenses: $1,050; Insurance: $770; Office Expenses: $1,241; Advertising: $120; Other Expenses: $3,800.”

Part II, Ln 26

“Description: Uncategorized Liability: $15,059”

Part II, Purpose

“To serve, educate, and fund research for families coping with the effects of PURA Syndrome.”

Raw XML Appendix240 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/TotalExpensesAmt068968
IRS990EZ/TotalProgramServiceExpensesAmt00
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IRS990ScheduleA/DistributableAmountGrp/CYAdjNetIncomeDistributableAmt00
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Description: Uncategorized Liability: $15,059
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2To serve, educate, and fund research for families coping with the effects of PURA Syndrome.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, Ln 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Part II, Ln 26
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Part II, Purpose
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ReturnHeader/PreparerPersonGrp/PreparationDt02025-05-14
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ReturnHeader/ReturnTs02025-05-15T22:27:38-05:00
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ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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