Liabilities / Assets
60th percentile
Tied with the lowest-debt nonprofits in its peer group.
Vwm Families Foundation Inc
EIN 81-2058803 • 501(c)3 • Greenwich, CT
Profile
1. Promote public awareness of vanishing white matter disease (vwm) 2. Raise funds to support research into a treatment and cure for vwm disease. 3. Support the community of families of vwm sufferers.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.00x
Liabilities / Revenue
62nd percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
80th percentile
Higher net margin than 80% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
87th percentile
Faster asset growth than 87% of similar nonprofits.
Revenue Growth
87th percentile
Faster revenue growth than 87% of similar nonprofits.
Balance Sheet
Assets
Up$68,173
Up $24,807 (+57%) from 2024
Liabilities
Flat$0
Flat from 2024
Net Assets
Up$68,173
Up $24,807 (+57%) from 2024
Revenue
Up$89,400
Up $34,326 (+62%) from 2024
Expenses
Down$64,986
Down $120,756 (-65%) from 2024
Net Income
Up$24,414
Up $155,082 (+119%) from 2024
Trend Graphs
Filings
Most recent year
2025 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $68,173
- Liabilities
- $0
- Net assets
- $68,173
- Revenue
- $89,400
- Expenses
- $64,986
- Net income
- $24,414
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2025 to Dec 31, 2025
- Signed
- Mar 3, 2026
- Return Version
- 2025v4.0
- Gross Receipts
- $89,785
Mission and Program Overview
Mission
Vanishing White Matter disease VWM is a very rare neurological condition that destroys myelin the brains white matter In doing so it permanently affects transmission of brain signals to the rest of the body VWM primarily affects children and is untreatable incurable and terminal In 2016 the VWM Families Foundation was formed to raise awareness of VWM to raise money for research and to support families living with VWM within the United States and worldwide
Program Services
| Description | Grants | Expenses |
|---|---|---|
| 0 | - | - |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Allyson Buck | Co-Founder And President | - | $0 | - | - |
| Nicholas Buck | Co-Founder And Operations | - | $0 | - | - |
| Brett Hollberg | Board Member Patient Advocacy | - | $0 | - | - |
| Donna Skwirut | Board Member Alliance Relations | - | $0 | - | - |
| Stefanie Rohring | Board Member | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Vwm Families Foundation Inc
- EIN
- 81-2058803
- Phone
- 2033437596
- Address
- 7 Lantern Lane, Greenwich, CT 06831
Signing Officer
- Name
- Nicholas J Buck
- Title
- 0
- Phone
- 2033437596
- Signed
- 2026-03-03
Supplemental Narrative
Additional Explanations
Part I, line 10
“Other expenses include payments and grants made in line with the primary charter of the VWM Families Foundation to support clinical research into a treatment or cure for the disease - Grant of 59940 made to the global research initiative to find a cure or treatment for Vanishing White Matter Disease run out of the VU University Amsterdam Medical Center under the leadership of Dr Marjo van der Knaap Additional expenses include small subsistence payments to families participating in the clinical trials to help cover living expenses”
Part I, line 16
“Remaining expenses include materials to promote ongoing fundraising activities including supplies stationery and printing and also fees and commissions paid for the use of online fundraising applications QGiv Facebook etc”
Raw XML Appendix205 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/OperateHospitalInd | 0 | false |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | false |
| IRS990EZ/OrganizationHadUBIInd | 0 | false |
| IRS990EZ/OtherAssetsTotalDetail/BOYAmt | 0 | 0 |
| IRS990EZ/OtherAssetsTotalDetail/EOYAmt | 0 | 0 |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | 0 |
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| IRS990EZ/OtherRevenueTotalAmt | 0 | 0 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | false |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | Vanishing White Matter disease VWM is a very rare neurological condition that destroys myelin the brains white matter In doing so it permanently affects transmission of brain signals to the rest of the body VWM primarily affects children and is untreatable incurable and terminal In 2016 the VWM Families Foundation was formed to raise awareness of VWM to raise money for research and to support families living with VWM within the United States and worldwide |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 0 |
| IRS990EZ/ProgramServiceRevenueAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | 0 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990EZ/SalariesOtherCompEmplBnftAmt | 0 | 0 |
| IRS990EZ/SaleOfAssetsGrossAmt | 0 | 0 |
| IRS990EZ/SchoolOperatingInd | 0 | false |
| IRS990EZ/SpecialEventsDirectExpensesAmt | 0 | 0 |
| IRS990EZ/SpecialEventsNetIncomeLossAmt | 0 | 0 |
| IRS990EZ/StatesWhereCopyOfReturnIsFldCd | 0 | CT |
| IRS990EZ/SubjectToProxyTaxInd | 0 | false |
| IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990EZ/TanningServicesProvidedInd | 0 | false |
| IRS990EZ/TotalExpensesAmt | 0 | 64986 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 0 |
| IRS990EZ/TotalRevenueAmt | 0 | 89400 |
| IRS990EZ/TransactionWithControlEntInd | 0 | false |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
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| IRS990ScheduleA/AdjustedNetIncomeGrp/AdjustedGrossIncomeGrp/CurrentYearAmt | 0 | 0 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Other expenses include payments and grants made in line with the primary charter of the VWM Families Foundation to support clinical research into a treatment or cure for the disease - Grant of 59940 made to the global research initiative to find a cure or treatment for Vanishing White Matter Disease run out of the VU University Amsterdam Medical Center under the leadership of Dr Marjo van der Knaap Additional expenses include small subsistence payments to families participating in the clinical trials to help cover living expenses |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Remaining expenses include materials to promote ongoing fundraising activities including supplies stationery and printing and also fees and commissions paid for the use of online fundraising applications QGiv Facebook etc |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part I, line 10 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Part I, line 16 |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Nicholas J Buck |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | 0 |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 2033437596 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2026-03-03 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | VWM FAMILIES FOUNDATION INC |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | VWMF |
| ReturnHeader/Filer/EIN | 0 | 812058803 |
| ReturnHeader/Filer/PhoneNum | 0 | 2033437596 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 7 Lantern Lane |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Greenwich |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CT |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 06831 |
| ReturnHeader/ReturnTs | 0 | 2026-03-03T03:30:04Z |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2025-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2025-12-31 |
| ReturnHeader/TaxYr | 0 | 2025 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
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