Liabilities / Assets
88th percentile
Higher debt load relative to assets than 88% of similar nonprofits.
Autoimmune Registry Inc.
EIN 81-1688265 • 501(c)3 • Guilford, CT
Pub. 78 Eligible
Profile
Autoimmune Registry, Inc., ARI, is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases. ARI operates a database where patients who suffer from any autoimmune disease can enroll to participate in medical research and clinical trials. Our goals are: 1. To reduce the time of diagnosis, 2. To support research, 3. To research, compute and publish statistics on all autoimmune diseases, 4. To serve as a trusted source of credible, scientifically supported information about every autoimmune disease, including diseases currently suspected of being autoimmune, and 5. To Increase awareness of autoimmune diseases to ensure they receive the attention and funding they deserve.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.47x
Liabilities / Revenue
85th percentile
Higher debt load relative to revenue than 85% of similar nonprofits.
Net Margin
31st percentile
Higher net margin than 31% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
93rd percentile
Faster asset growth than 93% of similar nonprofits.
Revenue Growth
92nd percentile
Faster revenue growth than 92% of similar nonprofits.
Balance Sheet
Assets
Up$18,687
Up $330 (+1.8%) from 2023
Liabilities
Up$8,746
Up $5,802 (+197%) from 2023
Net Assets
Down$9,941
Down $5,472 (-36%) from 2023
Revenue
Down$58,563
Down $11,573 (-17%) from 2023
Expenses
Up$64,036
Up $11,308 (+21%) from 2023
Net Income
Down-$5,473
Down $22,881 (-131%) from 2023
Trend Graphs
Filings
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
- Assets
- $18,687
- Liabilities
- $8,746
- Net assets
- $9,941
- Revenue
- $58,563
- Expenses
- $64,036
- Net income
- -$5,473
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2024 to Dec 31, 2024
- Signed
- Sep 30, 2025
- Return Version
- 2024v5.0
- Gross Receipts
- $58,563
Mission and Program Overview
Mission
Autoimmune Registry, Inc., ARI, is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases. ARI operates a database where patients who suffer from any autoimmune disease can enroll to participate in medical research and clinical trials. Our goals are: 1. To reduce the time of diagnosis, 2. To support research, 3. To research, compute and publish statistics on all autoimmune diseases, 4. To serve as a trusted source of credible, scientifically supported information about every autoimmune disease, including diseases currently suspected of being autoimmune, and 5. To Increase awareness of autoimmune diseases to ensure they receive the attention and funding they deserve.
Autoimmune Registry, Inc. (ARI) is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases. ARI operates a database where patients who suffer from any autoimmune disease can enroll to participate in medical research and clinical trials. Our goals are: 1. To reduce the time of diagnosis, 2. To support research, 3. To research, compute, and publish statistics on all autoimmune diseases, 4. To serve as a trusted source of credible, scientifically supported information about every autoimmune disease, including diseases currently suspected of being autoimmune, and 5. To increase awareness of autoimmune diseases to ensure they receives the attention and funding they deserve.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $10,357 | $18,687 | ▲ $8,330 |
| Rtn Earn Endowment Incm Other Fnds | $15,413 | $9,941 | ▼ $5,472 |
| Accounts Receivable | $8,000 | $0 | ▼ $8,000 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $18,357 | $18,687 | ▲ $330 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $2,944 | $8,746 | ▲ $5,802 |
| Total Liabilities | $2,944 | $8,746 | ▲ $5,802 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $15,413 | $9,941 | ▼ $5,472 |
| Total Liabilities and Net Assets / Fund Balance | $18,357 | $18,687 | ▲ $330 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Ingrid He | Director of Research | FT | $38,000 | $38,000 |
Board Members and Trustees
| Name | Title |
|---|---|
| Amber Gilbert | Board Member |
| Michael Craig | Board Member |
| Reginald Barnes | Director of Patient Partnerships |
| Aaron Abend | Executive Director |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $23,563
- Program Service Revenue
- $35,000
- Investment Income
- $0
- Other Revenue
- $0
- All Other Contributions
- $19,536
- Change in Net Assets
- $-5,473
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Other Expenses | $62,357 |
| Salaries, Compensation, and Employee Benefits | $1,679 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Total Fundraising Expense | $0 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Management | $52,625 | - | - | $52,625 |
| Insurance | - | $3,091 | - | $3,091 |
| Information Technology | - | $2,485 | - | $2,485 |
| Office Expenses | - | $1,560 | - | $1,560 |
| Advertising | $1,369 | - | - | $1,369 |
| Other Salaries and Wages | $855 | - | - | $855 |
| Payroll Taxes | $824 | - | - | $824 |
| All Other Expenses | - | $499 | - | $499 |
| Travel | $441 | - | - | $441 |
| Fees for Services Other | $287 | - | - | $287 |
| Total Functional Expenses | $56,401 | $7,635 | $0 | $64,036 |
Fundraising, Events, and Gaming
- Fundraising activities
- No
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- No
- Subject to proxy tax
- No
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- No
- Annual disclosure for covered persons
- Yes
- Backup withholding compliance
- Yes
- Business relationship with 35% controlled entity
- No
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- No
- Other officer compensation reviewed
- Yes
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Form 990, Part VI, Section B, Line 11B
“The Form 990 is submitted to all board members by email and they have 7 days to review.”
Form 990, Part VI, Section B, Line 15
“The process for establishing compensation for all key employees was based negotiation with the Executive Director and approved by independent members of the Board.”
Form 990, Part VI, Section C, Line 19
“Governing documents, as well as policies (including Conflict of Interest, Record Retention, and Whistleblower policies) are available on the organization website. Reasonable requests for financial statements or other documents are furnished upon request by mail and/or encrypted email.”
Filing and Contact Details
Filer
- Filer Name
- Autoimmune Registry Inc
- EIN
- 81-1688265
- Phone
- 8604706414
- Address
- 125 West Lane, Guilford, CT 06437
Signing Officer
- Name
- Aaron Abend
- Title
- President
- Phone
- 9786217745
- Signed
- 2025-09-30
Organization Details
- Principal Officer
- Aaron Abend
- Formed
- 2016
- Legal Domicile
- Ct
- Voting Board Members
- 5
- Independent Board Members
- 4
- Employees
- 0
- Volunteers
- 5
Supplemental Narrative
Additional Explanations
Form 990, Part XI, Line 9
“This is due to a rounding error.”
Raw XML Appendix359 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 10076 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 10076 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt | 0 | 10076 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 10076 |
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| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 58563 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 70136 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 13379 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 18769 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5942 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 166789 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 58563 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 70136 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 13379 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 18769 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 5942 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 166789 |
| IRS990/ScheduleBRequiredInd | 0 | 0 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | The Form 990 is submitted to all board members by email and they have 7 days to review. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The process for establishing compensation for all key employees was based negotiation with the Executive Director and approved by independent members of the Board. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Governing documents, as well as policies (including Conflict of Interest, Record Retention, and Whistleblower policies) are available on the organization website. Reasonable requests for financial statements or other documents are furnished upon request by mail and/or encrypted email. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | This is due to a rounding error. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Section B, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section B, Line 15 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section C, Line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part XI, Line 9 |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | CT |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
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| IRS990/TotalAssetsEOYAmt | 0 | 18687 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 18357 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 18687 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
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| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 64036 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
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| IRS990/TotalLiabilitiesEOYAmt | 0 | 8746 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 2944 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 8746 |
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| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 9941 |
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| IRS990/TotalProgramServiceRevenueAmt | 0 | 35000 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 38000 |
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| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 5 |
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| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 18687 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 441 |
| IRS990/TravelGrp/TotalAmt | 0 | 441 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | 125 West Lane |
| IRS990/USAddress/CityNm | 0 | Guilford |
| IRS990/USAddress/StateAbbreviationCd | 0 | CT |
| IRS990/USAddress/ZIPCd | 0 | 06437 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 5 |
| IRS990/VotingMembersIndependentCnt | 0 | 4 |
| IRS990/WebsiteAddressTxt | 0 | www.autoimmuneregistry.org |
| IRS990/WhistleblowerPolicyInd | 0 | 1 |
| ReasonableCauseExplanation/ExplanationTxt | 0 | Outside demands on the time of the personnel preparing the tax form delayed our ability to file on time. |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Aaron Abend |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 9786217745 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-09-30 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | AUTOIMMUNE REGISTRY INC |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | AUTO |
| ReturnHeader/Filer/EIN | 0 | 811688265 |
| ReturnHeader/Filer/PhoneNum | 0 | 8604706414 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 125 West Lane |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Guilford |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CT |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 06437 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | 1 |
| ReturnHeader/ReturnTs | 0 | 2025-10-08T12:50:20-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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