Liabilities / Assets
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
Adcy5 Org Inc
EIN 81-1592495 • 501(c)3 • La Jolla, CA
Profile
ADCY5.org supports the following groups: families affected by the ADCY5 gene variant rare disease, clinicians treating patients, and researchers pursuing treatments. We achieve our goals through collaboration, or funding efforts. We look to identify anyone affected by, or interested in, the ADCY5 gene variant rare movement disorder.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.00x
Liabilities / Revenue
61st percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
2nd percentile
Higher net margin than 2% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
18th percentile
Faster asset growth than 18% of similar nonprofits.
Revenue Growth
7th percentile
Faster revenue growth than 7% of similar nonprofits.
Balance Sheet
Assets
Up$125,026
Up $84,568 (+209%) from 2023
Liabilities
Flat$0
Flat from 2023
Net Assets
Up$125,026
Up $84,568 (+209%) from 2023
Revenue
Up$87,121
Up $6,722 (+8.4%) from 2023
Expenses
Down$2,553
Down $79,481 (-97%) from 2023
Net Income
Up$84,568
Up $86,203 (+5272%) from 2023
Trend Graphs
Filings
Most recent year
2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $125,026
- Liabilities
- $0
- Net assets
- $125,026
- Revenue
- $87,121
- Expenses
- $2,553
- Net income
- $84,568
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2024 to Dec 31, 2024
- Signed
- May 15, 2025
- Return Version
- 2024v5.0
- Gross Receipts
- $87,121
Mission and Program Overview
Mission
ADCY5.org supports families affected by the ADCY5 gene variant, clinicians treating patients, and researchers pursuing treatments or a cure by collaborating or funding efforts. We search to identify anyone affected by, or interested in, the ADCY5 variant. We engage with others interested in solving our puzzle. We collaborate and share information to move science further.
ADCY5.org supports the following groups: families affected by the ADCY5 gene variant rare disease, clinicians treating patients, and researchers pursuing treatments. We achieve our goals through collaboration, or funding efforts. We look to identify anyone affected by, or interested in, the ADCY5 gene variant rare movement disorder.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Connected doctors with each other and patients to share ADCY5 rare movement disorder information. Connecting doctors has helped improve the care of new and existing patients | $251 | $251 |
| Provided families support related to ADCY5 related movement disorder via online meetings, one-on-one calls, and Slack channel. Discussed new treatments, potential clinical studies, and ways to manage the disease. | $180 | $180 |
| Acted as conduit between researchers, doctors, and patients. We met with researchers by web meeting, in-person, or at conferences to understand the status of current programs related to treatments and the basic science of the condition. Educated researchers on current patient challenges. | $133 | $133 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Steven Grossman | President | PT | $0 | - | - |
| Dan Bradbury | Chairman Of The Board | - | $0 | - | - |
| Jason Keyes | Board Treasurer | - | $0 | - | - |
| Tom Coll | Board Secretary | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Adcy5 Org Inc
- EIN
- 81-1592495
- Phone
- 8588827280
- Address
- 8914 Nottingham Pl, La Jolla, CA 92037
Signing Officer
- Name
- Steven Grossman
- Title
- President
- Phone
- 8588827280
- Signed
- 2025-05-15
Raw XML Appendix192 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | ADCY5.org supports the following groups: families affected by the ADCY5 gene variant rare disease, clinicians treating patients, and researchers pursuing treatments. We achieve our goals through collaboration, or funding efforts. We look to identify anyone affected by, or interested in, the ADCY5 gene variant rare movement disorder. |
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| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
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| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
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| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-05-15 |
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| ReturnHeader/ReturnTs | 0 | 2025-05-15T21:59:27-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.