Civic Intelligence

Multiple Myeloma Research Consortium Inc

990 • Fiscal year 2013 • EIN 81-0640775

Jan 01, 2013 to Dec 31, 2013 • Filed on Aug 11, 2014

Organization ProfileWWW.THEMMRC.ORG
383 Main Avenue 5th Floor06851

(203) 972-1250

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

71st percentile

0.36x

Higher debt load relative to assets than 71% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Liabilities / Revenue

69th percentile

0.32x

Higher debt load relative to revenue than 69% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Net Margin

41st percentile

0.0%

Higher net margin than 41% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Top Officer Pay

97th percentile

$464,060

Higher top officer pay than 97% of similar nonprofits.

Top officer pay equals 11.6% of source-year revenue.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2013

Asset Growth

11th percentile

-11%

Faster asset growth than 11% of similar nonprofits.

2013 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2012 to 2013

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2013

Balance Sheet
Liabilities / Assets71st percentile

Assets

Down

$3,517,392

Down $416,580 (-11%) from 2012

Net Assets

Up

$2,245,246

Up $1,223 (+0.1%) from 2012

Liabilities

Down

$1,272,146

Down $417,803 (-25%) from 2012

Revenue And Expenses
Liabilities / Revenue69th percentileNet Margin41st percentile

Revenue

$4,017,668

No earlier filing loaded for comparison.

Expenses

Down

$4,016,445

Down $521,393 (-11%) from 2012

Net Income

$1,223

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth11th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $6,112,921Liabilities 2010: $3,246,374Net Assets 2010: $2,866,5472010Assets 2011: $5,056,531Liabilities 2011: $2,852,918Net Assets 2011: $2,203,6132011Assets 2012: $3,933,972Liabilities 2012: $1,689,949Net Assets 2012: $2,244,0232012Assets 2013: $3,517,392Liabilities 2013: $1,272,146Net Assets 2013: $2,245,2462013

Highlighted filing

2013

Assets$3,517,392
Liabilities$1,272,146
Net Assets$2,245,246
Open 2013 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0Expenses 2010: $5,086,4312010Expenses 2011: $5,684,2682011Expenses 2012: $4,537,8382012Revenue 2013: $4,017,668Expenses 2013: $4,016,445Net Income 2013: $1,2232013

Highlighted filing

2013

Revenue$4,017,668
Expenses$4,016,445
Net Income$1,223
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
Aug 11, 2014
Return Version
2013v3.0
Gross Receipts
$4,017,668
Mission and Program Overview

Mission

To champion collaboration with and integration across academia and industry and to focus on speed and innovation to bring the most promising multiple myeloma treatments to patients faster.

To champion collaboration with and integregation across academia and industry and to focus on speed and innovation to bring the most promising multiple myeloma treatments to patients faster.

Balance Sheet Detail
LineBeginningEndChange
Assets
Accounts Receivable$1,141,085$2,088,000▲ $946,915
Savings and Temporary Cash Investments$1,936,489$937,253▼ $999,236
Cash and Non-Interest-Bearing Accounts$648,865$326,099▼ $322,766
Prepaid Expenses and Deferred Charges$174,578$159,542▼ $15,036
Land, Buildings, and Equipment, Net$32,955$6,498▼ $26,457
Total Assets$3,933,972$3,517,392▼ $416,580
Liabilities
Accounts Payable and Accrued Expenses$1,511,741$1,193,009▼ $318,732
Other Liabilities$178,208$79,137▼ $99,071
Total Liabilities$1,689,949$1,272,146▼ $417,803
Net Assets / Fund Balance
Unrestricted Net Assets$2,244,023$2,245,246▲ $1,223
Total Net Assets Fund Balance$2,244,023$2,245,246▲ $1,223
Total Liabilities and Net Assets / Fund Balance$3,933,972$3,517,392▼ $416,580

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$561,172$561,172
Other Land Buildings$6,498$293,233$299,731
Compensation and Service Providers
Top Officer Pay97th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Beverly HarrisonVP of Clinical DevelopmentPT$168,986$27,573$196,559
James GrazickTreasurer/director of FinaPT-$138,421$138,421
Karen DietzSecretary/in House Council--$103,474$103,474
Mike NeedleCMOPT$71,616$5,577$77,193

Board Members and Trustees

NameTitle
Walter CaponePresident
Bill BowesBoard Member
Charles OrtnerBoard Member
Chris McwiltonBoard Member
Dana LaforgeBoard Member
David LucchinoBoard Member
David ParkinsonBoard Member
Gene GrisantiBoard Member
Gerald McdougallBoard Member
Joel MarcusBoard Member
Karen AndrewsBoard Member
Kenneth Anderson MdBoard Member
Lori Tauber-marcusBoard Member
Marie PinizzottoBoard Member
Meryl ZausnerBoard Member
Michael ReinertBoard Member
Mike MortimerBoard Member
Stephen GrandBoard Member
William MckiernanBoard Member
Joan LevyDirector of Translational
Kathy GiustiCEO

Highest Paid Contractors

ContractorServicesLocationCompensation
Act OncologyClinical Trial Mgmt-$564,527
Mednet SolutionsClinical Trial Tracking Services-$120,272
Revenue and Support

Revenue Composition

Contributions and Grants
$4,016,000
Program Service Revenue
$0
Investment Income
$766
Other Revenue
$902
Change in Net Assets
$1,223

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,017,668
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$4,017,668
Total Revenue per Form 990
$4,017,668
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,084,672
Grants and Similar Amounts Paid$1,230,000
Salaries, Compensation, and Employee Benefits$701,773
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,230,000--$1,230,000
Current Officers, Directors, Trustees, and Key Employees$430,625$27,018-$457,643
Other Salaries and Wages$244,130--$244,130
Fees for Services Other$118,690$14,550-$133,240
Office Expenses$124,049$6,735-$130,784
Other Expenses$114,784--$114,784
Insurance$62,861$2,517-$65,378
Occupancy$45,914$1,838-$47,752
Conferences and Meetings$33,074$2,720-$35,794
Advertising$32,162--$32,162
Depreciation Depletion$25,438$1,019-$26,457
All Other Expenses$-101,254--$-101,254
Total Functional Expenses$3,960,048$56,397$0$4,016,445

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,016,445
Total Expenses per Audited Statements$4,016,445
Total Expenses per Form 990$4,016,445
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
36-2177139-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$100,000
04-2263040-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$90,000
58-0566256-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$90,000
20-1649466-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$90,000
13-6171197-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$90,000
36-2177139-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$90,000
94-6036493-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$90,000
43-0653611--THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$90,000
95-3435919-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$50,000
41-6011702-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$50,000
31-6401599-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$50,000
20-1557751-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$50,000
54-1795091--THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$50,000
75-1921898-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR.$30,000
22-1487576-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$30,000
41-6011702-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$30,000
38-6006309-501(c)(3)THE PURPOSE OF THE MMRC'S SITE INVESTMENT GRANT (SIG) IS TO DEMONSTRABLY IMPACT THE CLINICAL TRIAL PROCESS AT EACH OF THE MEMBER INSTITUTIONS IN A MANNER QUANTIFIABLE FOR FUTURE EVALUATION. TO ACHIEVE THIS GOAL, THE MMRC PROVIDES FUNDING UNDER THE SIG FOR A MMPC (MULTIPLE MYELOMA PROGRAM COORDINATOR) AT EACH MEMBER INSTITUTION. THE LEVEL OF FUNDING PROVIDED IS CALCULATED AND DERIVED FROM THE SITE'S OVERALL INVOLVEMENT AND PERFORMANCE DURING THE PREVIOUS YEAR$30,000

International Summary

Offices
0
Employees
0
Spending
$130,000

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaGrants to RecipientsClinical Trials Core Grant.00$90,000
North AmericaGrants to RecipientsSite Investment Grant.00$40,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accounts Payable to Mmrf$79,137
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Kathy giusti, ceo and karen andrews, co-founder and bod member are sisters.”

Form 990, Part VI, Section A, Line 3

“Hr services were provided by intuitive hr.”

Form 990, Part VI, Section B, Line 11

“The 990 is first reviewed with the president of the foundation. Then the president, along with the finance director, reviews the 990 with the ceo. Once reviewed with the ceo, the 990 is emailed to each board member. Each board member reviews the 990 and if any questions arise, are communicated to the foundation and addressed. After all questions are addressed, the 990 is submitted to the irs. No changes were made after the ceo reviewed the 990, to when the 990 was submitted to the irs.”

Form 990, Part VI, Section B, Line 12C

“Annual disclosure form is required by each officer, director, key employee which is reviewed by the conflict of interest committee. Duty to disclose a potential conflict of interest. Any interested person must disclose the existence of his or her financial interest to the board or conflicts committee and must be given the opportunity to disclose all material facts to the board, members of the conflicts committee and all members of any committee considering the proposed contract or transaction. Determining whether a conflict of interest exists. After disclosure of the financial interest and all material facts, and after any discussion with the interested person, the interested person shall leave the board or conflicts committee meeting while the determination of a conflict of interest is discussed and voted upon. The remaining board or conflict committee members, as applicable, shall decide if a conflict of interest exists. Procedures for addressing the conflict of interest. I. An interested person may make a presentation at the board or conflicts committee meeting, but after such presentation, he or she shall leave the meeting during the discussion of, and the vote on, the contract or transaction that result in the conflict of interest. Ii. The chair of the board or chairperson of the conflicts committee shall, if appropriate, appoint a disinterested person or appoint or establish an advisory committee to investigate alternatives to the proposed contract or transaction. After exercising due diligence, the board or the conflicts committee shall take all reasonable steps to determine whether the mmrc can obtain a more advantageous contract or transaction with reasonable efforts from a person or entity that would not give rise to a conflict of interest. If a more advantageous contract or transaction is not reasonably attainable under circumstances that would not give rise to a conflict of interest, the board or conflict committee shall determine by a majority vote, but not less than two, of the disinterested directors or members thereof whether the contract or transaction is in the mmrc's best interest and is fair and reasonable to the mmrc; provided, however, if such contract or transaction is approved by disinterested directors who do not satisfy a quorum or voting requirement applicable to the authorization of the action by reason of the mmrc's certificate of incorporation, bylaws or a provision of law, the action must be independently approved by such interested and disinterested directors as satisfy the applicable quorum or voting requirement. Violation of the conflicts of interest policy iii. If the board or conflicts committee has reasonable cause to believe that a director, officer or committee member has failed to disclose actual or possible conflicts of interest, it shall inform such person of the basis for such belief and afford such person an opportunity to explain the alleged failure to disclose. If, after hearing the response of the director, officer or committee member and making such further investigation as may be warranted in the circumstances, the board or conflicts committee determines that such person has in fact failed to disclose an actual or possible conflict of interest, the board or conflicts committee, as applicable, shall take appropriate disciplinary and corrective action.”

Form 990, Part VI, Section B, Line 15

“The ceo's and president's compensation is reviewed and approved by the hr committee. Compensation for all other employees are benchmarked against other 501 c (3)'s and research organizations, then reviewed and approved by the compensation committee.”

Form 990, Part VI, Section C, Line 18

“Form 990 and audited financial statements are also available at the organization's website: themmrc.org. Form 990 is available on www.guidestar.org, www.charitynavigator.org, and www.eri-non-profit-salaries.com”

Form 990, Part VI, Section C, Line 19

“Financial statements, governing documents, form 990 and form 1023 are made available for public viewing upon written request at mmrc's headquarters located at 383 main avenue, 5th floor, norwalk, ct 06851.”

Filing and Contact Details

Filer

EIN
81-0640775
Phone
2039721250

Signing Officer

Name
Kathy Giusti
Title
President
Phone
2039721250
Signed
2014-08-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Walter Capone
Formed
2003
Legal Domicile
Ct
Voting Board Members
19
Independent Board Members
19
Employees
4
Volunteers
5

Preparer

Preparer
Robin Strong
Phone
2033232400
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“This process has not changed from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The consortium recognizes the effect of income tax positions only if those positions are more likely than not to be sustained. Management has determined that the consortium had no uncertain tax positions that would require financial statement recognition or disclosure. The consortium is no longer subject to examinations by the applicable taxing jurisdictions for periods prior to 2010.”

Raw XML AppendixShowing 400 of 864 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/AccountsPayableAccrExpnssGrp/EOYAmt01193009
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IRS990/AccountsReceivableGrp/EOYAmt02088000
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO CHAMPION COLLABORATION WITH AND INTEGREGATION ACROSS ACADEMIA AND INDUSTRY AND TO FOCUS ON SPEED AND INNOVATION TO BRING THE MOST PROMISING MULTIPLE MYELOMA TREATMENTS TO PATIENTS FASTER.
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IRS990/ProgSrvcAccomActy2Grp/Desc0MMRC TISSUE BANK:THE MMRC TISSUE BANK IS A CENTRALLY LOCATED, STANDARDIZED TISSUE BANK OF HIGHLY ANNOTATED BONE MARROW AND PERIPHERAL BLOOD SAMPLES FROM MYELOMA PATIENTS AND PATIENTS WITH MYELOMA RELATED DISORDERS. HOUSED AT THE MAYO CLINIC, IN SCOTTSDALE, ARIZONA, THE TISSUE BANK IS THE ONLY RESOURCE OF ITS KIND THAT ACCRUES SAMPLES PROVIDED BY MMRC INSTITUTIONS UNDER GOOD LABORATORY PRACTICE (GLP) STANDARD PROCEDURES WITH THE CORRESPONDING CLINICAL DATA. THE BUDGET GRANTED TO THE MAYO SCOTTSDALE FOR THE TISSUE BANK ENABLES THE TISSUE TO BE UNIFORMLY PROCESSED AND STORED IN ADHERENCE WITH GLP STANDARDS AND UNDER THE GOVERNANCE OF MORE THAN 80 STANDARD OPERATING PROCEDURES. THE MMRC HAS ALSO ESTABLISHED A QUALITY ASSURANCE UNIT THAT PERFORMS REGULAR INTERNAL REVIEWS AND ISSUES QUARTERLY QUALITY ASSURANCE REPORTS. THE PAYMENTS TO MAYO SCOTTSDALE REFLECT THE STANDARD COSTS TO SUPPORT THE FULL TIME EMPLOYEES NEEDED TO PERFORM THE PROCESSING ACTIVITIES AS WELL AS VARIABLE CHARGES DEPENDING ON THE ACTUAL NUMBER OF SAMPLES SENT TO BANK TO BE PROCESSED. THE MMRC HAS A SPECIFICALLY DESIGNED TISSUE TRACKING SYSTEM THAT COLLECTS INFORMATION ON THE TISSUE SAMPLES WITH RESPECT TO PROCESSING AND STORAGE AS WELL AS COMPREHENSIVE CLINICAL DATA AND MEDICAL HISTORIES ON THE DE-IDENTIFIED PATIENTS WHO HAVE PROVIDED SAMPLES. ALL DATA IN THE MMRC TISSUE TRACKING SYSTEM IS CONSISTENTLY COLLECTED AND MAINTAINED USING STANDARDIZED PROCESSES THAT ENSURE DATA INTEGRITY. FURTHERMORE, THE DATA IS COLLECTED AND MANAGED IN A MANNER CONSISTENT WITH ALL REGULATORY REQUIREMENTS, INCLUDING THOSE OF THE U.S. FOOD AND DRUG ADMINISTRATION (FDA), THE HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT OF 1996 (HIPAA) AND IS COMPLIANT WITH OTHER FEDERAL REGULATIONS. THE COSTS ASSOCIATED WITH THE TISSUE TRACKING SYSTEM ARE DISTINCT FROM THE MMRC TISSUE BANK AND INCLUDE A HOSTING SERVICE FOR THE DATABASE, IT SUPPORT, AND MAINTENANCE CONTRACTS FOR THE SOFTWARE THAT SUPPORTS THE TISSUE TRACKING SYSTEM. THIS SPECIFICALLY DESIGNED TISSUE TRACKING SYSTEM ENABLES SCIENTISTS TO PERFORM CUSTOMIZED AND PRE-CONFIGURED QUERIES ON HIGHLY-ANNOTATED TISSUE SAMPLES, COMPREHENSIVE CLINICAL DATA AND MEDICAL HISTORIES; FUNCTIONS THAT ARE ESSENTIAL IN ADVANCING THE MMRC'S PRE-CLINICAL PROJECTS, CLINICAL TRIALS, AND CORRELATIVE STUDIES.
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IRS990/ProgSrvcAccomActy3Grp/Desc0CLINICAL TRIALS:THESE COSTS COVER MMRC SITE EXPENSES TO CONDUCT THE VARIOUS CLINICAL STUDIES THAT THE CONSORTIUM MEMBERS UNDERTAKE EACH YEAR. THESE INCLUDE COSTS FOR OUR CONTRACT RESEARCH ORGANIZATION (CRO) WHICH IS RESPONSIBLE FOR OVERSIGHT OF OUR CLINICAL TRIAL PROCESSES INCLUDING SITE TRAINING, STUDY START UP, REGULATORY COMPLIANCE, DATA COLLECTION, MONITORING AND REPORTING, AND PROJECT MANAGEMENT. THE CRO ALSO ORGANIZES SAFETY REVIEWS AND MAINTAINS METRICS TO ENSURE STUDY MEETS EXPECTED TIMELINE. ALSO INCLUDED IN THESE SITE EXPENSES ARE PAYMENTS FOR TESTS, PROCEDURES, AND STAFF FEES IN SUPPORT OF PATIENTS ENROLLED ON OUR CLINICAL TRIALS.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0IN ADDITION TO THE PROGRAM EXPENSES DESCRIBED ABOVE, CORRESPONDING ACTIVITIES IN ALIGNMENT WITH THE OVERALL GOALS OF THE ORGANIZATION ARE ALSO SUPPORTED. THESE INCLUDE, BUT ARE NOT LIMITED TO, SUPPORT OF KEY OPERATIONAL STAFF WHO CLOSELY MONITOR 6 TO 8 CLINICAL TRIALS OPENED EVERY YEAR WITHIN THE CONSORTIUM. ALSO, ASSOCIATED WITH CLINICAL TRIALS, ARE LEGAL AGREEMENTS WHICH MUST BE EXECUTED AMONGST MULTIPLE PHARMACEUTICAL COMPANIES AND ACADEMIC INSTITUTIONS REQUIRING MULTIPLE REVIEWS TO REACH AGREEMENT. BUSINESS DEVELOPMENT ACTIVITIES FOCUSING ON PROGRESS IN MYELOMA BASIC SCIENCE AND DRUG DEVELOPMENT PROVIDES THE PIPELINE OF TRIALS WHICH THE MMRC OPENS EACH YEAR AND IN ALIGNMENT WITH THIS, THE MMRC CONDUCTS AND ATTENDS CRITICAL SCIENTIFIC AND MEDICAL MEETINGS WITH GOVERNMENT, PHARMA/BIOTECH AND ACADEMIC PARTNERS. FINALLY AS WITH ANY ORGANIZATION, COSTS ASSOCIATED WITH OFFICE EQUIPMENT, RENT, UTILITIES, INSURANCE AND OTHER SUCH EXPENSES ARE ALSO SUPPORTED WITHIN THIS RESEARCH DIRECTED NON-PROFIT ORGANIZATION.
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IRS990/PYTotalRevenueAmt04578248
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Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,517,392
Liabilities
$1,272,146
Net assets
$2,245,246
Revenue
$4,017,668
Expenses
$4,016,445
Net income
$1,223
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2013Detailed filing. Detailed filing data is available for this year.$3.52$1.27$2.25$4.02$4.02$0.00
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.93$1.69$2.24$4.54
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.06$2.85$2.20$5.68
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.11$3.25$2.87$5.09