Liabilities / Assets
66th percentile
Higher debt load relative to assets than 66% of similar nonprofits.
EIN 80-0680447 • 501(c)3 • Columbia, PA
Profile
Fund research for cure of limb girdle muscular dystrophy
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
66th percentile
Higher debt load relative to assets than 66% of similar nonprofits.
Liabilities / Revenue
71st percentile
Higher debt load relative to revenue than 71% of similar nonprofits.
Net Margin
10th percentile
Higher net margin than 10% of similar nonprofits.
Top Officer Pay
93rd percentile
Higher top officer pay than 93% of similar nonprofits.
Top officer pay equals 20.2% of source-year revenue.
Asset Growth
25th percentile
Faster asset growth than 25% of similar nonprofits.
Revenue Growth
47th percentile
Faster revenue growth than 47% of similar nonprofits.
Assets
Down$360,790
Down $192,398 (-35%) from 2023
Liabilities
Up$2,989
Up $375 (+14%) from 2023
Net Assets
Down$357,801
Down $192,773 (-35%) from 2023
Revenue
Down$222,772
Down $12,484 (-5.3%) from 2023
Expenses
Up$415,545
Up $309,381 (+291%) from 2023
Net Income
Down-$192,773
Down $321,865 (-249%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
Fund research for cure of limb girdle muscular dystrophy
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $113,171 | $273,510 | ▲ $160,339 |
| Savings and Temporary Cash Investments | $440,017 | $87,280 | ▼ $352,737 |
| Total Assets | $553,188 | $360,790 | ▼ $192,398 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $2,614 | $2,989 | ▲ $375 |
| Total Liabilities | $2,614 | $2,989 | ▲ $375 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $544,574 | $351,801 | ▼ $192,773 |
| Net Assets With Donor Restrictions | $6,000 | $6,000 | → $0 |
| Total Net Assets Fund Balance | $550,574 | $357,801 | ▼ $192,773 |
| Total Liabilities and Net Assets / Fund Balance | $553,188 | $360,790 | ▼ $192,398 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Kelly Brazzo | President/CEO | PT | $45,000 | $45,000 |
| Name | Title |
|---|---|
| Dan Pope | Vice-president |
| Kaitlyn Neroladakis | Communications Director/executive Board Member |
| John Spencer | Creative Director/executive Board Member |
| Dr Jean Pierre Laurent | Scientific Director |
| Kristen Olsen | Secretary/treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $263,507 |
| Other Expenses | $103,213 |
| Salaries, Compensation, and Employee Benefits | $48,825 |
| Professional Fundraising Fees | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $156,601 | - | - | $156,601 |
| Foreign Grants | $106,906 | - | - | $106,906 |
| Other Expenses | $53,616 | $0 | $0 | $53,616 |
| Current Officers, Directors, Trustees, and Key Employees | $45,000 | $0 | $0 | $45,000 |
| Conferences and Meetings | $27,432 | $0 | $0 | $27,432 |
| Office Expenses | $0 | $5,144 | $0 | $5,144 |
| Payroll Taxes | $3,825 | $0 | $0 | $3,825 |
| Insurance | $0 | $3,525 | $0 | $3,525 |
| Fees for Services Accounting | $0 | $2,370 | $0 | $2,370 |
| Fees for Services Legal | $0 | $250 | $0 | $250 |
| Interest | $0 | $72 | $0 | $72 |
| Total Functional Expenses | $393,380 | $22,165 | $0 | $415,545 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Umass Chan Medical School | Worcester, MA | - | Lgmd2i Therapeutics for Fkrp Gene Correction Via Prime | $23,000 |
| The Speak Foundation | Norwalk, CT | - | 2025 International Lgmd Conference | $15,000 |
| University of Iowa | Iowa City, IA | - | Dystroglycanopathy Patient and Family Conference | $10,000 |
| Lgmd Awareness Foundation | Twin Lakes, WI | - | 10th Annual Lgmd Awareness Day Sponsorship | $7,000 |
| NATIONWIDE CHILDREN'S HOSPITAL | Columbus, OH | - | Novel Gene Therapy | - |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $53,036 |
| Fundraising Direct Expenses | $28,672 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Casino Night | $53,036 | $53,036 | $17,435 | $35,601 |
| Total Events | $53,036 | $53,036 | $17,435 | $35,601 |
“President of foundation reviews form 990 before return is filed.”
“President/ceo and vice president are husband and wife.”
“There is no compensation paid to any officer of the foundation.”
“There are no compensated individuals of the foundation. All aspects of foundations activities are performed by volunteers.”
“Documents required to be disclosed to public are made available upon request.”
“President of foundation selected and oversees the financial statement process of the accountant.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 2989 |
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| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | FUND RESEARCH FOR CURE OF LIMB GIRDLE MUSCULAR DYSTROPHY |
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| IRS990/AuditCommitteeInd | 0 | false |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | KELLY BRAZZO |
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| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 175128901 |
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| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
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| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 273510 |
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| IRS990/CollectionsOfArtInd | 0 | false |
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| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 45000 |
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| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 27432 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 27432 |
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| IRS990/CYRevenuesLessExpensesAmt | 0 | -192773 |
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| IRS990/CYTotalExpensesAmt | 0 | 415545 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
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| IRS990/CYTotalRevenueAmt | 0 | 222772 |
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| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | THE ORGANIZATION ISSUED FIFTEEN ANNUAL RESEARCH GRANTS TO RESEARCH GROUPS/FACILITIES IN 2024. THE PURPOSE OF WHICH WAS TO FURTHER ADVANCE RESEARCHING THE TREATMENT OF LGMD. |
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| IRS990/EmployeeCnt | 0 | 1 |
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| IRS990/ExpenseAmt | 0 | 393380 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
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| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 2370 |
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| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 250 |
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| IRS990/ForeignFinancialAccountInd | 0 | false |
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| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 106906 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
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| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DR JEAN PIERRE LAURENT |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | CREATIVE DIRECTOR/EXECUTIVE BOARD MEMBER |
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| IRS990/FormationYr | 0 | 2011 |
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| IRS990/GamingActivitiesInd | 0 | false |
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| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3525 |
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| IRS990/IRPDocumentCnt | 0 | 0 |
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| IRS990/MissionDesc | 0 | FUND RESEARCH FOR CURE OF LIMB GIRDLE MUSCULAR DYSTROPHY |
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| IRS990/OtherExpensesGrp/Desc | 3 | AWARENESS PROGRAM COSTS |
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| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 93 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 45 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 578 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 16733 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0 |
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| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.97460 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.99520 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 642804 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 0 |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 86906 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 20000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/DescriptionOfNonCashAsstTxt | 0 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/DescriptionOfNonCashAsstTxt | 1 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | WIRE TRANSFER |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 1 | WIRE TRANSFER |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | FUND RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | FUND RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | Europe |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 1 | East Asia and Pacific |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc | 0 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/ValuationMethodUsedDesc | 1 | 0 |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | PART IV LINE 1. THE FOUNDATION IS NOT REQUIRED TO FILE FORM 926 AS THE TRANSFER OF CASH TO THE FOREIGN ENTITY DID NOT RESULT IN OWNERSHIP OF 10% OR MORE OF THE VOTING POWER OF THE RECIPIENT ENTITY, NOR WAS THE AMOUNT TRANSFERRED MORE THAN $100,000 TO ANY SINGLE RECIPIENT |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Other |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 2 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | true |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 17435 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | CASINO NIGHT |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 53036 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 53036 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 53036 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 53036 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 35601 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 17435 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 17435 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 15000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 10000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 7000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 23000 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | 2025 INTERNATIONAL LGMD CONFERENCE |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | DYSTROGLYCANOPATHY PATIENT AND FAMILY CONFERENCE |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | 10TH ANNUAL LGMD AWARENESS DAY SPONSORSHIP |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | LGMD2I THERAPEUTICS FOR FKRP GENE CORRECTION VIA PRIME |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | NOVEL GENE THERAPY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | THE SPEAK FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | UNIVERSITY OF IOWA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | LGMD AWARENESS FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | UMASS CHAN MEDICAL SCHOOL |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | NATIONWIDE CHILDREN'S HOSPITAL |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 262087516 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 426004813 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 851504937 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 043108190 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 311036372 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 71 EAST AVENUE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 285 NEWTON ROAD |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 638 KENNEDY DR |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 55 LAKE AVENUE NORTH SUITE S1-859 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 700 CHILDRENS DR |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | NORWALK |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | IOWA CITY |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | TWIN LAKES |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | WORCESTER |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | COLUMBUS |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | CT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | IA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | WI |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | OH |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 06851 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 52242 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 53181 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 01655 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 43205 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 3 |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 3 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | PRESIDENT OF FOUNDATION REVIEWS FORM 990 BEFORE RETURN IS FILED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | PRESIDENT/CEO AND VICE PRESIDENT ARE HUSBAND AND WIFE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THERE IS NO COMPENSATION PAID TO ANY OFFICER OF THE FOUNDATION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THERE ARE NO COMPENSATED INDIVIDUALS OF THE FOUNDATION. ALL ASPECTS OF FOUNDATIONS ACTIVITIES ARE PERFORMED BY VOLUNTEERS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | DOCUMENTS REQUIRED TO BE DISCLOSED TO PUBLIC ARE MADE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | PRESIDENT OF FOUNDATION SELECTED AND OVERSEES THE FINANCIAL STATEMENT PROCESS OF THE ACCOUNTANT. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Pt VI, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Pt VI, Line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Pt VI, Line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Pt VI, Line 15b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Pt VI, Line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Pt XII, Line 2c |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 553188 |
| IRS990/TotalAssetsEOYAmt | 0 | 360790 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 553188 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 360790 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 184380 |
| IRS990/TotalEmployeeCnt | 0 | 1 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 22165 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 393380 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 415545 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 2614 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 2989 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 2614 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 2989 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 550574 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 357801 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 393380 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 45000 |
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