Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
EIN 80-0613664 • 501(c)3 • West Bloomfield, MI
Profile
Our primary mission includes funding research to find a cure or treatment for duchenne muscular dystrophy. We are committed to saving this generation of children. When we work smart, leverage each dollar and work in close partnership with scientists and research companies, there is the promise for an end to duchenne. We are proud that 2 projects we've supported in early stages are now in clincial trial, and one is under review for fda approval. In the meantime, while we fight for the future for these boys, we are committed to being there for them and helping families right now in the present moment.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
33rd percentile
Higher debt load relative to assets than 33% of similar nonprofits.
Liabilities / Revenue
32nd percentile
Higher debt load relative to revenue than 32% of similar nonprofits.
Net Margin
9th percentile
Higher net margin than 9% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
8th percentile
Faster asset growth than 8% of similar nonprofits.
Revenue Growth
8th percentile
Faster revenue growth than 8% of similar nonprofits.
Assets
Down$1,395,110
Down $423,956 (-23%) from 2023
Liabilities
Down$17,135
Down $39,167 (-70%) from 2023
Net Assets
Down$1,377,975
Down $384,789 (-22%) from 2023
Revenue
Down$1,040,163
Down $591,925 (-36%) from 2023
Expenses
Up$1,436,962
Up $298,157 (+26%) from 2023
Net Income
Down-$396,799
Down $890,082 (-180%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
To fund cutting edge research in order to find a cure or treatment for duchenne muscular dystrophy. Additionally, team joseph will assist families with expenses directly related to the care of a child diagnosed with duchenne muscular dystrophy.
Our primary mission includes funding research to find a cure or treatment for duchenne muscular dystrophy. We are committed to saving this generation of children. When we work smart, leverage each dollar and work in close partnership with scientists and research companies, there is the promise for an end to duchenne. We are proud that 2 projects we've supported in early stages are now in clincial trial, and one is under review for fda approval. In the meantime, while we fight for the future for these boys, we are committed to being there for them and helping families right now in the present moment.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,244,521 | $682,231 | ▼ $562,290 |
| Savings and Temporary Cash Investments | $510,417 | $535,073 | ▲ $24,656 |
| Accounts Receivable | $32,665 | $128,957 | ▲ $96,292 |
| Investments in Publicly Traded Securities | $16,854 | $28,864 | ▲ $12,010 |
| Prepaid Expenses and Deferred Charges | - | $16,749 | - |
| Land, Buildings, and Equipment, Net | $2,262 | $3,236 | ▲ $974 |
| Total Assets | $1,819,066 | $1,395,110 | ▼ $423,956 |
| Other Assets Total | $12,347 | $0 | ▼ $12,347 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $43,955 | $17,135 | ▼ $26,820 |
| Other Liabilities | $12,347 | $0 | ▼ $12,347 |
| Total Liabilities | $56,302 | $17,135 | ▼ $39,167 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,152,275 | $1,133,763 | ▼ $18,512 |
| Net Assets With Donor Restrictions | $610,489 | $244,212 | ▼ $366,277 |
| Total Net Assets Fund Balance | $1,762,764 | $1,377,975 | ▼ $384,789 |
| Total Liabilities and Net Assets / Fund Balance | $1,819,066 | $1,395,110 | ▼ $423,956 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $3,236 | $11,114 | $14,350 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Marissa Penrod | Founder & CEO | FT | $149,600 | $149,600 |
| Name | Title |
|---|---|
| Harry Packman | President |
| Dina Kenkel | Director |
| Lynda Snage | Director |
| Matt Riley | Secretary |
| Pat Fuelling | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,044,686 |
| Salaries, Compensation, and Employee Benefits | $392,276 |
| Total Fundraising Expense | $134,142 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $137,042 | $5,619 | $34,705 | $177,366 |
| Current Officers, Directors, Trustees, and Key Employees | $104,720 | $22,440 | $22,440 | $149,600 |
| Fees for Services Other | $28,322 | $94,282 | $19,001 | $141,605 |
| Other Employee Benefits | $22,862 | $2,663 | $5,416 | $30,941 |
| Other Expenses | $30,901 | $185 | $32,171 | $30,901 |
| Office Expenses | $1,610 | $19,570 | $6,742 | $27,922 |
| Payroll Taxes | $19,453 | $2,269 | $4,601 | $26,323 |
| Occupancy | - | $16,910 | - | $16,910 |
| Fees for Services Accounting | - | $15,112 | - | $15,112 |
| Conferences and Meetings | $11,529 | $35 | $1,358 | $12,922 |
| Pension Plan Contributions | $5,949 | $690 | $1,407 | $8,046 |
| Fees for Services Legal | - | $7,100 | - | $7,100 |
| All Other Expenses | $6,896 | - | $158 | $7,054 |
| Advertising | - | - | $5,481 | $5,481 |
| Information Technology | - | $644 | $338 | $982 |
| Depreciation Depletion | $475 | $94 | $233 | $802 |
| Travel | $84 | - | - | $84 |
| Total Functional Expenses | $1,115,207 | $187,613 | $134,142 | $1,436,962 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $1,436,962 |
| Total Expenses per Audited Statements | $1,436,962 |
| Total Expenses per Form 990 | $1,436,962 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $70,613 |
| Fundraising Gross Income | $31,900 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Golf Outing | $198,092 | $31,900 | $35,428 | $-3,528 |
| Total Events | $198,092 | $31,900 | $70,613 | $-38,713 |
“The return is submitted to the governing body for their approval.”
“Compensation of other employees is reasonable.”
“Governing documents disclosure explanation available upon request.”
“Accounting principles generally accepted in the united states of america require the organization to evaluate tax positions taken by the organization and recognize a tax liability if the organization has taken an uncertain position that more likely than not would not be sustained upon examination by the irs or other applicable taxing authorities. Management has analyzed the tax positions taken by the organization and has concluded that as of december 31, 2024, there are no uncertain positions taken or expected to be taken that would require recognition of a liability or disclosure in the financial statements.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 43955 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 17135 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 32665 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 128957 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | OUR PRIMARY MISSION INCLUDES FUNDING RESEARCH TO FIND A CURE OR TREATMENT FOR DUCHENNE MUSCULAR DYSTROPHY. WE ARE COMMITTED TO SAVING THIS GENERATION OF CHILDREN. WHEN WE WORK SMART, LEVERAGE EACH DOLLAR AND WORK IN CLOSE PARTNERSHIP WITH SCIENTISTS AND RESEARCH COMPANIES, THERE IS THE PROMISE FOR AN END TO DUCHENNE. WE ARE PROUD THAT 2 PROJECTS WE'VE SUPPORTED IN EARLY STAGES ARE NOW IN CLINCIAL TRIAL, AND ONE IS UNDER REVIEW FOR FDA APPROVAL. IN THE MEANTIME, WHILE WE FIGHT FOR THE FUTURE FOR THESE BOYS, WE ARE COMMITTED TO BEING THERE FOR THEM AND HELPING FAMILIES RIGHT NOW IN THE PRESENT MOMENT. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 5481 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 5481 |
| IRS990/AllOtherContributionsAmt | 0 | 888028 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 158 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 6896 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 7054 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 0 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | MARISSA PENROD |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2483300430 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 5745 W MAPLE ROAD SUITE 204 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WEST BLOOMFIELD |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MI |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 48322 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1244521 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 682231 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 22440 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 22440 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 104720 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 149600 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 1358 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 35 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 11529 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 12922 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 166192 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1054220 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 24656 |
| IRS990/CYOtherExpensesAmt | 0 | 1044686 |
| IRS990/CYOtherRevenueAmt | 0 | -38713 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -396799 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 392276 |
| IRS990/CYTotalExpensesAmt | 0 | 1436962 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 134142 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1040163 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 233 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 94 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 475 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 802 |
| IRS990/Desc | 0 | TO FUND CUTTING EDGE RESEARCH IN ORDER TO FIND A CURE OR TREATMENT FOR DUCHENNE MUSCULAR DYSTROPHY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 610489 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 244212 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 104452 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 15112 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 15112 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 7100 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 7100 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 19001 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 94282 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 28322 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 141605 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MARISSA PENROD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | HARRY PACKMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MATT RILEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DINA KENKEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | PAT FUELLING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | LYNDA SNAGE |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 149600 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | FOUNDER & CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2010 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 166192 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 70613 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 31900 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1110776 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 338 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 644 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 982 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 24656 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 24656 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 16854 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 28864 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 11114 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 2262 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 3236 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 14350 |
| IRS990/LegalDomicileStateCd | 0 | MI |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | OUR PRIMARY MISSION INCLUDES FUNDING RESEARCH TO FIND A CURE OR TREATMENT FOR DUCHENNE MUSCULAR DYSTROPHY. WE ARE COMMITTED TO SAVING THIS GENERATION OF CHILDREN. WHEN WE WORK SMART, LEVERAGE EACH DOLLAR AND WORK IN CLOSE PARTNERSHIP WITH SCIENTISTS AND RESEARCH COMPANIES, THERE IS THE PROMISE FOR AN END TO DUCHENNE. WE ARE PROUD THAT 2 PROJECTS WE'VE SUPPORTED IN EARLY STAGES ARE NOW IN CLINCIAL TRIAL, AND ONE IS UNDER REVIEW FOR FDA APPROVAL. IN THE MEANTIME, WHILE WE FIGHT FOR THE FUTURE FOR THESE BOYS, WE ARE COMMITTED TO BEING THERE FOR THEM AND HELPING FAMILIES RIGHT NOW IN THE PRESENT MOMENT. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1762764 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1377975 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -38713 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -38713 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 12010 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1152275 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1133763 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 16910 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 16910 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 6742 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 19570 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1610 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 27922 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 12347 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 5416 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2663 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 22862 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 30941 |
| IRS990/OtherExpensesGrp/Desc | 0 | FAMILY ASSISTANCE |
| IRS990/OtherExpensesGrp/Desc | 1 | FOCUS GROUP |
| IRS990/OtherExpensesGrp/Desc | 2 | FUNDRAISING |
| IRS990/OtherExpensesGrp/Desc | 3 | DMD CONFERENCE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 91 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 32171 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 185 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 647808 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 97556 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 30901 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 647899 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 97741 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 32171 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 30901 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 12347 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 34705 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 5619 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 137042 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 177366 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 4601 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2269 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 19453 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 26323 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 1407 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 690 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 5949 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 8046 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 16749 |
| IRS990/PrincipalOfficerNm | 0 | MARISSA PENROD |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | TO ASSIST FAMILIES WITH EXPENSES DIRECTLY RELATED TO THE CARE OF A CHILD DIAGNOSED WITH DUCHENNE MUSCULAR DYSTROPHY. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 1010755 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1652121 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/PYInvestmentIncomeAmt | 0 | 11347 |
| IRS990/PYOtherExpensesAmt | 0 | 668732 |
| IRS990/PYOtherRevenueAmt | 0 | -31380 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 493283 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 470073 |
| IRS990/PYTotalExpensesAmt | 0 | 1138805 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 1632088 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -396799 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 0 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 510417 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 535073 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 666000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 936000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 633500 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 465830 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 530000 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 3231330 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1054220 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1652121 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1168372 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 894639 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 936047 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 5705399 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 24656 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 11347 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 36003 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 24656 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 11347 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 36003 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00650 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00210 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | -38713 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | -31380 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | -44016 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | -12883 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | -36572 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | -163564 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.44360 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.45040 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2474069 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 666000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 936000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 633500 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus3YearsAmt | 0 | 465830 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt | 0 | 530000 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 3231330 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 1054220 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1652121 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1168372 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 894639 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 936047 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 5705399 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 1040163 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 1632088 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1124356 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 881756 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 899475 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 5577838 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 3236 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 11114 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 14350 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1436962 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 12010 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 12010 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1040163 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRE THE ORGANIZATION TO EVALUATE TAX POSITIONS TAKEN BY THE ORGANIZATION AND RECOGNIZE A TAX LIABILITY IF THE ORGANIZATION HAS TAKEN AN UNCERTAIN POSITION THAT MORE LIKELY THAN NOT WOULD NOT BE SUSTAINED UPON EXAMINATION BY THE IRS OR OTHER APPLICABLE TAXING AUTHORITIES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ORGANIZATION AND HAS CONCLUDED THAT AS OF DECEMBER 31, 2024, THERE ARE NO UNCERTAIN POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE FINANCIAL STATEMENTS. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 3236 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 1436962 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1040163 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1052173 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 1436962 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 166192 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 166192 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 70613 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt | 0 | 4550 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 4550 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | GOLF OUTING |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 198092 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 198092 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 31900 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 31900 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | -38713 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt | 0 | 9629 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt | 0 | 9629 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 35428 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 35428 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 21006 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 21006 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE RETURN IS SUBMITTED TO THE GOVERNING BODY FOR THEIR APPROVAL. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | COMPENSATION OF OTHER EMPLOYEES IS REASONABLE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | GOVERNING DOCUMENTS DISCLOSURE EXPLANATION AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 15 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | MI |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 1819066 |
| IRS990/TotalAssetsEOYAmt | 0 | 1395110 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 1819066 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 1395110 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 1054220 |
| IRS990/TotalEmployeeCnt | 0 | 4 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 134142 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 187613 |
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