Esophageal Cancer Action Network Inc

“The federal tax form 990 is prepared by the independent accountant as part of the annual review. The form 990 is forwarded to the entire board for review before filing.”

“The organization annually collects a conflict-of-interest disclosure from all board members.”

“Before the vote on the salary for the president and ceo, the board of directors receives an independent salary benchmarking report. Additionally, they have access to regional and national salary compensation information.”

“The organization's form 990 is available on ecan's website and through websites managed by others who report on non-profit organizations. Financial statements are available on ecan's website. Governing documents and other financial information are available upon request.”

“Ecan's mission is to save lives by 1) increasing awareness about the link between reflux disease and cancer, 2) promoting early detection, 3) supporting medical research into the prevention, detection, treatment and cure of esophageal cancer, and 4) providing patients and families with trustworthy information and compassionate support. This national nonprofit organization, based in baltimore, maryland, is led by a board of directors of top medical professionals, business leaders, and families that have been touched by esophageal cancer. History: ecan was founded in 2009 by former attorney and journalist mindy mintz mordecai and an impressive group of dedicated professionals after she lost the father of her two young children, and her husband of 14 years, to esophageal cancer. Angry and frustrated because she believes that her husband and thousands more like him might never have died had they been aware of the link between heartburn and cancer, mordecai is determined to prevent others from suffering the pain esophageal cancer has caused her family. Over the past 15 years, ecan has made significant strides in the fight to end esophageal cancer.”

“An active voice for patients at risk for and diagnosed with esophageal cancer ecan successfully advocated with the national cancer institute to change course and include esophageal cancer in its genome mapping project known as the cancer genome atlas (tcga) in 2011. The groundbreaking findings of that research led to the first fda approval of immunotherapy for esophageal cancer patients in 2021. Ecan's efforts to represent the interests of patients at risk for esophageal cancer has continued and, thus far, has resulted in the addition of nearly 20 million to federal budget for esophageal cancer. Ecan successfully led the charge to make sure that esophageal cancer researchers have access to a multi-million-dollar cancer research fund administered by the dept. Of defense. As a result, esophageal cancer researchers have been awarded millions of dollars in funding since 2021 and continue to be eligible to apply for funding every year. In 2024, ecan hosted its first in-person hill day where members of our ecan community had the opportunity to meet with legislators and their staff to advocate for the needs of esophageal cancer patients and those at risk for the disease, including the continuation of esophageal cancer researchers' access to the department of defense cancer research program. Ecan hosts a grassroots leadership training program to prepare members of our community to be the best advocates possible for those at risk for or diagnosed with esophageal cancer in 2017, ecan filed a petition with the food and drug administration requesting that warning labels be put on over-the-counter heartburn remedies to alert the public to the fact that heartburn can cause cancer. Though the fda did not approve the request, it provided clear guidance on how such a petition could be successful in the future. In 2024, ecan weighed in on new professional guidelines on treating barrett's esophagus, the precursor to esophageal cancer. Ecan asked for a change that would allow for treatment of patients who have undergone tests showing a higher risk of progressing to cancer. That change was implemented in the final guidelines. As a founding member of the deadliest cancers coalition, ecan strives to ensure that the national cancer institute develops a focus on esophageal cancer works to ensure adequate funding for research into the prevention, detection, treatment and cure of esophageal cancer. Esophageal cancer awareness month in 2009, ecan led the effort to have april designated as esophageal cancer awareness month in states throughout the united states. With ecan's support over the past 15 years, more than 150 gubernatorial declarations of ec awareness month have been achieved throughout the country and in some other nations, as well. April is now observed as ec awareness month by companies, organizations and governments across the nation - and the world. Ecan provides robust programming for esophageal cancer awareness month, including providing a text-a-day-service with awareness messages for our community to share, yard signs and periwinkle blue lights so supporters can make a statement in april, and more. In 2024, we hosted an animated billboard in times square in new york city warning that heartburn can cause cancer and recognizing esophageal cancer awareness month. Supporting patients and families ecan has a long-term partnership with smart patients, an online support platform that includes a focus on esophageal cancer. Ecan also provides free access to the intelligent nutrition assistant ina that gives 24/7 answers to questions about nutrition and eating issues in partnership with savor health. Ecan's partnership with massive bio has resulted in a free clinical trial matching service for our ecan community. Providing trustworthy, up-to-date education for patients and families in 2023, ecan created a series of animated educational modules that clearly explain the basics of esophageal cancer and its precursor barrett's esophagus. The project”

“Registration services 5,594 0 0 payroll fees 4,683 0 0 other professional services 1,308 0 16,055 legislative consultant 83,300 0 0 total 94,885 0 16,055”

“Cost of goods sold 1,120 cost of goods sold -1,120”