Civic Intelligence

The Scleroderma Foundation of California

EIN 77-0229244 • 501(c)3 • Los Angeles, CA

Profile

Empowering the scleroderma community to live better lives through programs committed to support, education, and research.pillars of our mission: support: inspiring our community through patient support services and resources for patients including 26 volunteer driven local community & peer led support groups, staff driven one-on-one professional guidance that allows them to thrive. Education: for medical professionals to help them understand and properly diagnosis scleroderma early, and for patients to help them and cope and thrive while living with scleroderma. Research: funding research projects that will lead the way to finding a cure for scleroderma.

8929 S Sepulveda Blvd 401Los Angeles, CA 90045

www.myscleroderma.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

26th percentile

0.00x

Higher debt load relative to assets than 26% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

23rd percentile

0.00x

Higher debt load relative to revenue than 23% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

90th percentile

53%

Higher net margin than 90% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

97th percentile

164%

Faster asset growth than 97% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

97th percentile

244%

Faster revenue growth than 97% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets26th percentile

Assets

Up

$787,598

Up $488,735 (+164%) from 2023

Liabilities

Down

$2,589

Down $7,615 (-75%) from 2023

Net Assets

Up

$785,009

Up $496,350 (+172%) from 2023

Operations
Liabilities / Revenue23rd percentileNet Margin90th percentile

Revenue

Up

$944,564

Up $669,788 (+244%) from 2023

Expenses

Up

$448,214

Up $111,313 (+33%) from 2023

Net Income

Up

$496,350

Up $558,475 (+899%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth97th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2010: $428,298Liabilities 2010: $0Net Assets 2010: $428,2982010Assets 2011: $363,946Liabilities 2011: $107Net Assets 2011: $363,8392011Assets 2012: $337,479Liabilities 2012: $528Net Assets 2012: $336,9512012Assets 2013: $256,518Liabilities 2013: $20,293Net Assets 2013: $236,2252013Assets 2014: $526,132Liabilities 2014: $194,925Net Assets 2014: $331,2072014Assets 2015: $557,442Liabilities 2015: $136,192Net Assets 2015: $421,2502015Assets 2016: $601,131Liabilities 2016: $154,906Net Assets 2016: $446,2252016Assets 2017: $564,607Liabilities 2017: $113,473Net Assets 2017: $451,1342017Assets 2018: $510,706Liabilities 2018: $89,742Net Assets 2018: $420,9642018Assets 2019: $392,338Liabilities 2019: $62,721Net Assets 2019: $329,6172019Assets 2020: $328,101Liabilities 2020: $7,225Net Assets 2020: $320,8762020Assets 2021: $388,498Liabilities 2021: $27,779Net Assets 2021: $360,7192021Assets 2022: $365,330Liabilities 2022: $14,546Net Assets 2022: $350,7842022Assets 2023: $298,863Liabilities 2023: $10,204Net Assets 2023: $288,6592023Assets 2024: $787,598Liabilities 2024: $2,589Net Assets 2024: $785,0092024

Highlighted filing

2024

Assets$787,598
Liabilities$2,589
Net Assets$785,009
Open 2024 Filing

Operations Trend

Revenue Growth97th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KExpenses 2010: $381,3122010Expenses 2011: $417,3582011Expenses 2012: $477,3122012Revenue 2013: $333,115Expenses 2013: $433,841Net Income 2013: -$100,7262013Revenue 2014: $581,014Expenses 2014: $486,032Net Income 2014: $94,9822014Revenue 2015: $424,467Expenses 2015: $334,423Net Income 2015: $90,0442015Revenue 2016: $423,370Expenses 2016: $398,395Net Income 2016: $24,9752016Revenue 2017: $420,753Expenses 2017: $415,844Net Income 2017: $4,9092017Revenue 2018: $370,265Expenses 2018: $400,435Net Income 2018: -$30,1702018Revenue 2019: $355,071Expenses 2019: $446,418Net Income 2019: -$91,3472019Revenue 2020: $311,085Expenses 2020: $373,826Net Income 2020: -$62,7412020Revenue 2021: $422,594Expenses 2021: $328,751Net Income 2021: $93,8432021Revenue 2022: $277,045Expenses 2022: $286,980Net Income 2022: -$9,9352022Revenue 2023: $274,776Expenses 2023: $336,901Net Income 2023: -$62,1252023Revenue 2024: $944,564Expenses 2024: $448,214Net Income 2024: $496,3502024

Highlighted filing

2024

Revenue$944,564
Expenses$448,214
Net Income$496,350
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$787,598
Liabilities
$2,589
Net assets
$785,009
Revenue
$944,564
Expenses
$448,214
Net income
$496,350
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.88$0.03$7.85$9.45$4.48$4.96
2023Detailed filing. Detailed filing data is available for this year.$2.99$0.10$2.89$2.75$3.37$0.62
2022Detailed filing. Detailed filing data is available for this year.$3.65$0.15$3.51$2.77$2.87$0.10
2021Detailed filing. Detailed filing data is available for this year.$3.88$0.28$3.61$4.23$3.29$0.94
2020Detailed filing. Detailed filing data is available for this year.$3.28$0.07$3.21$3.11$3.74$0.63
2019Detailed filing. Detailed filing data is available for this year.$3.92$0.63$3.30$3.55$4.46$0.91
2018Detailed filing. Detailed filing data is available for this year.$5.11$0.90$4.21$3.70$4.00$0.30
2017Detailed filing. Detailed filing data is available for this year.$5.65$1.13$4.51$4.21$4.16$0.05
2016Detailed filing. Detailed filing data is available for this year.$6.01$1.55$4.46$4.23$3.98$0.25
2015Detailed filing. Detailed filing data is available for this year.$5.57$1.36$4.21$4.24$3.34$0.90
2014Detailed filing. Detailed filing data is available for this year.$5.26$1.95$3.31$5.81$4.86$0.95
2013Detailed filing. Detailed filing data is available for this year.$2.57$0.20$2.36$3.33$4.34$1.01
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.37$0.01$3.37$4.77
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.64$0.00$3.64$4.17
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.28$0.00$4.28$3.81
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 10, 2025
Return Version
2024v5.2
Gross Receipts
$1,027,565
Mission and Program Overview

Mission

The purpose of the scleroderma foundation/southern california chapter is to raise money to fund research to find treatments and a cure for scleroderma. Additionally, the southern californa chapter is an affiliate of the national scleroderma foundation and contributes to its mission.

To empower the scleroderma community to live better lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$0$600,000▲ $600,000
Cash and Non-Interest-Bearing Accounts$295,597$169,832▼ $125,765
Accounts Receivable$0$15,000▲ $15,000
Prepaid Expenses and Deferred Charges$500$0▼ $500
Total Assets$298,863$787,598▲ $488,735
Other Assets Total$2,766$2,766→ $0
Liabilities
Accounts Payable and Accrued Expenses$3,474$1,310▼ $2,164
Other Liabilities$6,730$1,279▼ $5,451
Total Liabilities$10,204$2,589▼ $7,615
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$288,659$785,009▲ $496,350
Total Net Assets Fund Balance$288,659$785,009▲ $496,350
Total Liabilities and Net Assets / Fund Balance$298,863$787,598▲ $488,735
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Andrew EmmettExecutive DirectorFT$125,500$4,489$129,989

Board Members and Trustees

NameTitle
Dr Dan FurstPast President
Laura FuhrmanPresident
Joel ChermanVice President
Chris CormanDirector
Evan GreenburgDirector
Jim HinesDirector
Johanna HerrmannDirector
Kristy KubotaDirector
Nancy GarzaDirector
Shervin GhanoongooiDirector
Stephen ElrodDirector
David ParkerSecretary
Chris PettitTreasurer
Sharon FriedmanVP Governance
Revenue and Support

Revenue Composition

Contributions and Grants
$979,917
Program Service Revenue
$0
Investment Income
$3,293
Other Revenue
$-38,646
All Other Contributions
$624,269
Change in Net Assets
$496,350
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$255,712
Other Expenses$182,669
Total Fundraising Expense$60,562
Grants and Similar Amounts Paid$9,833
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$106,411$7,450$16,037$129,898
Other Salaries and Wages$83,534$5,849$12,589$101,972
Fees for Services Other$55,833$2,175$7,700$65,708
Office Expenses$21,025$7,485$4,349$32,859
Occupancy$16,578$3,031$4,805$24,414
Conferences and Meetings$21,415$895-$22,310
Travel$17,464$815$3,317$21,596
Payroll Taxes$12,982$1,020$3,356$17,358
Grants to Domestic Orgs$9,833--$9,833
Other Expenses-$284$6,505$6,789
Other Employee Benefits$4,313$852$1,319$6,484
Fees for Services Accounting-$5,750-$5,750
Insurance$2,332$326$585$3,243
Total Functional Expenses$351,720$35,932$60,562$448,214
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Friends of World Scleroderma FoundationSwampscott, MA501c3For Continuing Medical Education$9,833
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$83,001
Fundraising Gross Income$44,355
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$234,530$27,750$29,949$-2,199
Vertical Cure$34,398$2,781$115$2,666
Total Events$400,003$44,355$83,001$-38,646
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Funds Restricted to Research$1,279
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 will be distributed and discussed with the finance committee and the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Every year board members sign a statement disclosing whether any conflicts of interest exist.”

Form 990, Part VI, Section B, Line 15

“Committee of the board of directors reviews comparative salary data and the performance of the employee of the organization.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, policies, and financial statements available for public inspection upon request.”

Filing and Contact Details

Filer

Filer Name
The Scleroderma Foundation of California
EIN
77-0229244
Phone
4242276475
Address
8929 S SEPULVEDA BLVD 401, LOS ANGELES, CA 90045

Signing Officer

Name
Laura Fuhrman
Title
President
Phone
4242276475
Signed
2025-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Laura Fuhrman
Formed
1989
Legal Domicile
CA
Voting Board Members
14
Independent Board Members
14
Employees
3
Volunteers
65

Preparer

Firm
Cliftonlarsonallen Llp
Address
6116 EXECUTIVE BLVD 500, NORTH BETHESDA, MD 20852
Preparer
Joshua G Dzyak CPA
Phone
3017705100
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Other professional fees: program service expenses 55,833. Management and general expenses 2,175. Fundraising expenses 7,700. Total expenses 65,708.”

Raw XML AppendixShowing 400 of 485 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0SUPPORT GROUPS:OUR 26 SUPPORT GROUPS LOCATED IN THE COMMUNITIES WE SERVE, PROVIDE A SAFE, COMPASSIONATE SPACE WHERE PARTICIPANTS CAN SHARE EXPERIENCES, FIND UNDERSTANDING, AND BUILD RESILIENCE ALONGSIDE OTHERS WHO FACE SIMILAR CHALLENGES. FACILITATED BY PROFESSIONAL TRAINED VOLUNTEERS OUR SUPPORT GROUPS OFTEN FEATURE SPEAKERS SPECIALIZING IN SCLERODERMA OR RELATED TOPICS AND FOSTER EMOTIONAL WELL-BEING, REDUCE ISOLATION, AND PROMOTE A SENSE OF BELONGING. THEY ALSO CONNECT PATIENTS AND FAMILIES WITH OTHERS WHO CAN SHARE PRACTICAL KNOWLEDGE ABOUT TREATMENT OPTIONS, COPING STRATEGIES, LIFESTYLE MANAGEMENT, AND COMMUNITY RESOURCES.
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IRS990/Form990PartVIISectionAGrp/TitleTxt3VP GOVERNANCE
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5PAST PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01989
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0355648
IRS990/FundraisingDirectExpensesAmt083001
IRS990/FundraisingGrossIncomeAmt044355
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt09833
IRS990/GrantsToDomesticOrgsGrp/TotalAmt09833
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt01027565
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/FundraisingAmt0585
IRS990/InsuranceGrp/ManagementAndGeneralAmt0326
IRS990/InsuranceGrp/ProgramServicesAmt02332
IRS990/InsuranceGrp/TotalAmt03243
IRS990/InvestmentIncomeGrp/ExclusionAmt03293
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt03293
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt08
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0EMPOWERING THE SCLERODERMA COMMUNITY TO LIVE BETTER LIVES THROUGH PROGRAMS COMMITTED TO SUPPORT, EDUCATION, AND RESEARCH.PILLARS OF OUR MISSION: SUPPORT: INSPIRING OUR COMMUNITY THROUGH PATIENT SUPPORT SERVICES AND RESOURCES FOR PATIENTS INCLUDING 26 VOLUNTEER DRIVEN LOCAL COMMUNITY & PEER LED SUPPORT GROUPS, STAFF DRIVEN ONE-ON-ONE PROFESSIONAL GUIDANCE THAT ALLOWS THEM TO THRIVE. EDUCATION: FOR MEDICAL PROFESSIONALS TO HELP THEM UNDERSTAND AND PROPERLY DIAGNOSIS SCLERODERMA EARLY, AND FOR PATIENTS TO HELP THEM AND COPE AND THRIVE WHILE LIVING WITH SCLERODERMA. RESEARCH: FUNDING RESEARCH PROJECTS THAT WILL LEAD THE WAY TO FINDING A CURE FOR SCLERODERMA.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0288659
IRS990/NetAssetsOrFundBalancesEOYAmt0785009
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-38646
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-38646
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0288659
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0785009
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt04805
IRS990/OccupancyGrp/ManagementAndGeneralAmt03031
IRS990/OccupancyGrp/ProgramServicesAmt016578
IRS990/OccupancyGrp/TotalAmt024414
IRS990/OfficeExpensesGrp/FundraisingAmt04349
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt07485
IRS990/OfficeExpensesGrp/ProgramServicesAmt021025
IRS990/OfficeExpensesGrp/TotalAmt032859
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt02766
IRS990/OtherAssetsTotalGrp/EOYAmt02766
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01319
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0852
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt04313
IRS990/OtherEmployeeBenefitsGrp/TotalAmt06484
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS EXPENSES
IRS990/OtherExpensesGrp/FundraisingAmt06505
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0284
IRS990/OtherExpensesGrp/TotalAmt06789
IRS990/OtherLiabilitiesGrp/BOYAmt06730
IRS990/OtherLiabilitiesGrp/EOYAmt01279
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt012589
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt05849
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt083534
IRS990/OtherSalariesAndWagesGrp/TotalAmt0101972
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03356
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01020
IRS990/PayrollTaxesGrp/ProgramServicesAmt012982
IRS990/PayrollTaxesGrp/TotalAmt017358
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0500
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0LAURA FUHRMAN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION DAYS:WHETHER YOU'RE A PATIENT, CAREGIVER, OR HEALTHCARE PROFESSIONAL OUR EDUCATION DAYS EMPOWER ATTENDEES WITH THE LATEST INFORMATION AND STRATEGIES FOR LIVING WELL WITH SCLERODERMA. WITH LEADING EXPERT PRESENTATIONS SHARING THEIR KNOWLEDGE ABOUT SCLERODERMA AND ITS MANAGEMENT. DESIGNED TO ENHANCE SELF-ADVOCACY, IMPROVE HEALTH OUTCOMES, AND ENCOURAGE PROACTIVE ENGAGEMENT IN ONE'S OWN CARE. FOR MANY, IT ALSO PROVIDES THE OPPORTUNITY TO CONNECT WITH OTHERS WHO UNDERSTAND THEIR JOURNEY AND FIND COMFORT IN A SUPPORTIVE COMMUNITY. ALL EDUCATION DAYS ARE FREE FOR PATIENTS, FAMILY, FRIENDS AND CAREGIVERS TO ATTEND.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt053014
IRS990/ProgSrvcAccomActy2Grp/GrantAmt09833
IRS990/ProgSrvcAccomActy3Grp/Desc0PATIENT OUTREACH:OUR PATIENT OUTREACH PROGRAM IS DEDICATED TO EMPOWERING INDIVIDUALS AND THEIR FAMILIES AFFECTED BY SCLERODERMA. WE CONNECT THE PATIENTS TO THE COMMUNITY AND PROVIDE THE SUPPORT AND KNOWLEDGE, TO LIVE SUCCESSFULLY. WE REACH OUT TO PATIENTS AND CAREGIVERS TO ENSURE THEY ARE AWARE OF AVAILABLE RESOURCES, SERVICES, AND OPPORTUNITIES FOR ENGAGEMENT. THROUGH PERSONALIZED COMMUNICATION AND OUR OUTREACH EFFORTS WE CAN HELP INDIVIDUALS ACCESS CARE, NAVIGATE COMPLEX HEALTH SYSTEMS, AND FEEL SUPPORTED EVERY STEP OF THE WAY.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0149365
IRS990/ProgSrvcAccomActyOtherGrp/Desc0HEALTHCARE AND PROFESSIONAL OUTREACH PROGRAM:WE WORK CLOSELY WITH HOSPITALS, CLINICS, AND COMMUNITY-BASED ORGANIZATIONS TO INTEGRATE BEST PRACTICES AND STRENGTHEN REFERRAL RELATIONSHIPS. WE AIM TO CREATE A COORDINATED NETWORK OF INFORMED PROFESSIONALS WHO CAN DELIVER TIMELY, COMPASSIONATE, AND COMPREHENSIVE CARE ULTIMATELY IMPROVING OUTCOMES AND QUALITY OF LIFE FOR THE PATIENTS AND FAMILIES WE SERVE. WE PARTNER WITH PHYSICIANS, NURSES, AND ALLIED HEALTH PROFESSIONALS TO PROVIDE SUPPORT AND RESOURCES TO HELP THEIR PATIENTS, ENSURING THAT PROVIDERS CONNECT THEM TO APPROPRIATE SERVICES. WE ALSO WORK TOGETHER THROUGH EDUCATIONAL PROGRAMS, COLLABORATIVE INITIATIVES, AND DIRECT COMMUNICATION. OUR CONTINUING MEDICAL EDUCATION PROGRAM WAS DESIGNED FOR PRIMARY CARE PHYSICIANS, NURSE PRACTITIONERS, NURSES AND OTHER ALLIED HEALTHCARE PROFESSIONALS AND IS FOR EARLY DETECTION AND DIAGNOSIS OF SCLERODERMA. THIS FREE, ACCREDITED CME EXISTS TO ENHANCE PATIENT OUTCOMES AND IMPROVE AWARENESS OF SCLERODERMA AMONG PROVIDERS. THE PROGRAM IS MANAGED BY THE OFFICE OF CONTINUING MEDICAL EDUCATION AND LIFELONG LEARNING AT THE UNIVERSITY OF MICHIGAN MEDICAL SCHOOL AND IS ACCREDITED BY THE ACCREDITATION COUNCIL FOR CONTINUING MEDICAL EDUCATION (ACCME) AND WORTH 3.75 AMA PRA CATEGORY 1 CREDITS. THERE IS NO FEE TO REGISTER OR TO CLAIM CME CREDIT.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt067925
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0340488
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt029500
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0101480
IRS990/PYOtherRevenueAmt0-65712
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-62125
IRS990/PYSalariesCompEmpBnftPaidAmt0205921
IRS990/PYTotalExpensesAmt0336901
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0274776
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0496350
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0600000
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0979917
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0340488
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0283435
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0422662
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0319091
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02345593
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt03293
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt03293
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.67070
IRS990ScheduleA/PublicSupportPY170Pct00.87780
IRS990ScheduleA/PublicSupportTotal170Amt01575343
IRS990ScheduleA/SubstantialContributorsTotAmt0770250
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0979917
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0340488
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0283435
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0422662
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0319091
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02345593
IRS990ScheduleA/TotalSupportAmt02348886
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt01279
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0FUNDS RESTRICTED TO RESEARCH
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalLiabilityAmt01279
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0355648
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt031617
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0206780
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt0117251
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt083001
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0VERTICAL CURE
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0GALA
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt06614
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt030167
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageOtherEventsAmt03689
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt040470
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt034398
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt0234530
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt0131075
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0400003
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt02781
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt027750
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt013824
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt044355
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-38646
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt012467
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt042531
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt0115
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt029949
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt01
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/CashGrantAmt09833
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501C3
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0FOR CONTINUING MEDICAL EDUCATION
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0FRIENDS OF WORLD SCLERODERMA FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientEIN0811305611
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt049 ELMWOOD ROAD BOX 559
IRS990ScheduleI/RecipientTable/USAddress/CityNm0SWAMPSCOTT
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd001907
IRS990ScheduleI/Total501c3OrgCnt01
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990 WILL BE DISTRIBUTED AND DISCUSSED WITH THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1EVERY YEAR BOARD MEMBERS SIGN A STATEMENT DISCLOSING WHETHER ANY CONFLICTS OF INTEREST EXIST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2COMMITTEE OF THE BOARD OF DIRECTORS REVIEWS COMPARATIVE SALARY DATA AND THE PERFORMANCE OF THE EMPLOYEE OF THE ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS AVAILABLE FOR PUBLIC INSPECTION UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 55,833. MANAGEMENT AND GENERAL EXPENSES 2,175. FUNDRAISING EXPENSES 7,700. TOTAL EXPENSES 65,708.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART IX, LINE 11G

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