Civic Intelligence

Primary Billary Cholangitis Organization

990EZ • Fiscal year 2023 • EIN 76-0622718

Jan 01, 2023 to Dec 31, 2023 • Filed on Nov 05, 2024

1014A Greenleaf RoadRochester, NY 14612

(585) 285-7136

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

64th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • NTEE G • <$500k nonprofits • Source year 2023

Liabilities / Revenue

63rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • NTEE G • <$500k nonprofits • Source year 2023

Net Margin

45th percentile

1.1%

Higher net margin than 45% of similar nonprofits.

2023 filings • NTEE G • <$500k nonprofits • Source year 2023

Top Officer Pay

86th percentile

$0

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2023 filings • NTEE G • <$500k nonprofits • Source year 2023

Asset Growth

54th percentile

0.6%

Faster asset growth than 54% of similar nonprofits.

2023 filings • NTEE G • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

18th percentile

-42%

Faster revenue growth than 18% of similar nonprofits.

2023 filings • NTEE G • <$500k nonprofits • Annualized from 2022 to 2023

Assets

Up

$117,585

Up $750 (+0.6%) from 2022

Net Assets

Up

$117,585

Up $750 (+0.6%) from 2022

Liabilities

Flat

$0

Flat from 2022

Revenue

Down

$65,717

Down $47,904 (-42%) from 2022

Expenses

Down

$64,967

Down $121,634 (-65%) from 2022

Net Income

Up

$750

Up $73,730 (+101%) from 2022

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0-$100KAssets 2010: $59,644Liabilities 2010: $0Net Assets 2010: $59,6442010Assets 2011: $40,298Liabilities 2011: $0Net Assets 2011: $40,2982011Assets 2012: $30,084Liabilities 2012: $0Net Assets 2012: $30,0842012Assets 2013: $37,689Liabilities 2013: $0Net Assets 2013: $37,6892013Assets 2014: $40,614Liabilities 2014: -$3,362Net Assets 2014: $43,9762014Assets 2015: $54,996Liabilities 2015: $0Net Assets 2015: $54,9962015Assets 2016: $40,714Liabilities 2016: $0Net Assets 2016: $40,7142016Assets 2017: $26,512Liabilities 2017: $0Net Assets 2017: $26,5122017Assets 2018: $67,262Liabilities 2018: $0Net Assets 2018: $67,2622018Assets 2019: $104,549Liabilities 2019: $0Net Assets 2019: $104,5492019Assets 2020: $130,379Liabilities 2020: $0Net Assets 2020: $130,3792020Assets 2021: $189,815Liabilities 2021: $0Net Assets 2021: $189,8152021Assets 2022: $116,835Liabilities 2022: $0Net Assets 2022: $116,8352022Assets 2023: $117,585Liabilities 2023: $0Net Assets 2023: $117,5852023Assets 2024: $263,314Liabilities 2024: $0Net Assets 2024: $263,3142024

Highlighted filing

2023

Assets$117,585
Liabilities$0
Net Assets$117,585

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$300K$200K$100K$0-$100KExpenses 2010: $55,5102010Expenses 2011: $46,6482011Expenses 2012: $26,9552012Revenue 2013: $27,169Expenses 2013: $19,564Net Income 2013: $7,6052013Revenue 2014: $91,515Expenses 2014: $85,228Net Income 2014: $6,2872014Revenue 2015: $35,490Expenses 2015: $24,470Net Income 2015: $11,0202015Revenue 2016: $72,051Expenses 2016: $86,332Net Income 2016: -$14,2812016Revenue 2017: $71,609Expenses 2017: $85,811Net Income 2017: -$14,2022017Revenue 2018: $165,373Expenses 2018: $125,223Net Income 2018: $40,1502018Revenue 2019: $95,450Expenses 2019: $58,164Net Income 2019: $37,2862019Revenue 2020: $71,733Expenses 2020: $41,903Net Income 2020: $29,8302020Revenue 2021: $96,941Expenses 2021: $37,505Net Income 2021: $59,4362021Revenue 2022: $113,621Expenses 2022: $186,601Net Income 2022: -$72,9802022Revenue 2023: $65,717Expenses 2023: $64,967Net Income 2023: $7502023Revenue 2024: $274,828Expenses 2024: $129,099Net Income 2024: $145,7292024

Highlighted filing

2023

Revenue$65,717
Expenses$64,967
Net Income$750
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 5, 2024
Return Version
2023v5.1
Gross Receipts
$65,717
Mission and Program Overview

Mission

PBC education & support

Primary biliary cholangitis education and support

Program Services

DescriptionGrantsExpenses
ORGANIZE & HOST CONFERENCES AND REGIONAL MEETINGS TO SHARE INFORMATION ABOUT RESEARCH, PROVIDE CONTINUING EDUCATION, HELP PBCERS MEET FACE-TO-FACE TO SHARE EXPERIENCES, AND PROVIDE SUPPORT AND NETWORKING FOR PATIENTS, FAMILY & MEDICAL PROFESSIONALS.$0$43,358
BRING MEMBERS TOGETHER WORLDWIDE TO OFFER ONE ANOTHER HELP AND SUPPORT. PARTICIPATE IN RESEARCH PROJECTS IN CONJUNCTION WITH UNIVERSITIES AND THE AMERICAN LIVER FOUNDATION. PROVIDE THE LARGEST ONLINE PBC SUPPORT NETWORK AVAILABLE AND PROVIDE FUNDING TO THE UNIVERSITY OF CA RESEARCH PROGRAM.$15,050$15,050
THE PBCERS ORGANIZATION OFFERS PBC PATIENTS, FAMILY MEMBERS & FRIENDS ONLINE SUPPORT AND EDUCATION DESIGNED TO HELP THEM COPE WITH CHRONIC ILLNESS DAY-TO-DAY LIVING. THIS INCLUDES A WEBSITE CHATROOM, MESSAGE BOARD, A DOCTOR'S PANEL, DOCTOR'S REFERRAL & EMAILS TO APPROX 6000 MEMBERS.$0$1,334
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
TIM SNAKENBERGDirector-$0--
RICHARD KIMDirector-$0--
CAROL ROBERTSPresidentPT$0--
BRENDA JONESSecretary-$0--
CATHY MUMFORDVice PresidentPT$0--
Filing and Contact Details

Filer

Filer Name
Primary Biliary Cholangitis Organization
EIN
76-0622718
Phone
5852857136
Address
1014A GREENLEAF ROAD, ROCHESTER, NY 14612

Signing Officer

Name
Carol Roberts
Title
President
Phone
5852857136
Signed
2024-11-05
Discuss with paid preparer
Yes

Preparer

Firm
Insero & Co Cpas Llp
Address
20 THORNWOOD DRIVE, ITHACA, NY 14850
Preparer
Lesley Horner
Phone
6072724444
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 10 - Grants and Similar Amounts Paid

Activity classification: research. Grantee name: university of california davis. Grantee address: 1 shields ave davis, ca 95616. Grantee relationship: none. Property description: cash. Date of gift: 12/29/23. Amount given: 15,000.

Form 990-ez, Part I, Line 16 - Other Expenses

Description: advertising and marketing. Amount: 3,671. Description: conferences and meetings. Amount: 28,800. Description: donation. Amount: 5,650. Description: gifts for volunteers. Amount: 234. Description: insurance. Amount: 208. Description: office expenses. Amount: 1,957. Description: online and webhosting. Amount: 1,334. Description: local group projects. Amount: 2,630. Description: depreciation. Amount: 45. Total to form 990-ez, line 16: 44,529.

Form 990-ez, Part II, Line 24 - Other Assets

Description: other depreciable assets. Beg. Of year amount: 45. End of year amount: 0.

Raw XML Appendix182 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/BooksInCareOfDetail/PhoneNum05852257845
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IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0ROCHESTER
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NY
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt40
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt10
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt30
IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt40
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0TIM SNAKENBERG
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1RICHARD KIM
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2CAROL ROBERTS
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3BRENDA JONES
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4CATHY MUMFORD
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2PRESIDENT
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4VICE PRESIDENT
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd00
IRS990EZ/OrganizationHadUBIInd00
IRS990EZ/OtherAssetsTotalDetail/BOYAmt045
IRS990EZ/OtherAssetsTotalDetail/EOYAmt00
IRS990EZ/OtherChangesInNetAssetsAmt00
IRS990EZ/OtherExpensesTotalAmt044529
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0PRIMARY BILIARY CHOLANGITIS EDUCATION AND SUPPORT
IRS990EZ/PrintingPublicationsPostageAmt0213
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0THE PBCERS ORGANIZATION OFFERS PBC PATIENTS, FAMILY MEMBERS & FRIENDS ONLINE SUPPORT AND EDUCATION DESIGNED TO HELP THEM COPE WITH CHRONIC ILLNESS DAY-TO-DAY LIVING. THIS INCLUDES A WEBSITE CHATROOM, MESSAGE BOARD, A DOCTOR'S PANEL, DOCTOR'S REFERRAL & EMAILS TO APPROX 6000 MEMBERS.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1BRING MEMBERS TOGETHER WORLDWIDE TO OFFER ONE ANOTHER HELP AND SUPPORT. PARTICIPATE IN RESEARCH PROJECTS IN CONJUNCTION WITH UNIVERSITIES AND THE AMERICAN LIVER FOUNDATION. PROVIDE THE LARGEST ONLINE PBC SUPPORT NETWORK AVAILABLE AND PROVIDE FUNDING TO THE UNIVERSITY OF CA RESEARCH PROGRAM.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2ORGANIZE & HOST CONFERENCES AND REGIONAL MEETINGS TO SHARE INFORMATION ABOUT RESEARCH, PROVIDE CONTINUING EDUCATION, HELP PBCERS MEET FACE-TO-FACE TO SHARE EXPERIENCES, AND PROVIDE SUPPORT AND NETWORKING FOR PATIENTS, FAMILY & MEDICAL PROFESSIONALS.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt115050
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt20
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt01334
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt115050
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt243358
IRS990EZ/ProhibitedTaxShelterTransInd00
IRS990EZ/RelatedOrganizationCtrlEntInd00
IRS990EZ/SchoolOperatingInd00
IRS990EZ/SubjectToProxyTaxInd00
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IRS990EZ/TanningServicesProvidedInd00
IRS990EZ/TaxImposedOnOrganizationMgrAmt00
IRS990EZ/TaxImposedUnderIRC4911Amt00
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IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0PBCERS.ORG
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt071733
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt095954
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0434113
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt082
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt082
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IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
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IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0443966
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ACTIVITY CLASSIFICATION: RESEARCH. GRANTEE NAME: UNIVERSITY OF CALIFORNIA DAVIS. GRANTEE ADDRESS: 1 SHIELDS AVE DAVIS, CA 95616. GRANTEE RELATIONSHIP: NONE. PROPERTY DESCRIPTION: CASH. DATE OF GIFT: 12/29/23. AMOUNT GIVEN: 15,000.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1DESCRIPTION: ADVERTISING AND MARKETING. AMOUNT: 3,671. DESCRIPTION: CONFERENCES AND MEETINGS. AMOUNT: 28,800. DESCRIPTION: DONATION. AMOUNT: 5,650. DESCRIPTION: GIFTS FOR VOLUNTEERS. AMOUNT: 234. DESCRIPTION: INSURANCE. AMOUNT: 208. DESCRIPTION: OFFICE EXPENSES. AMOUNT: 1,957. DESCRIPTION: ONLINE AND WEBHOSTING. AMOUNT: 1,334. DESCRIPTION: LOCAL GROUP PROJECTS. AMOUNT: 2,630. DESCRIPTION: DEPRECIATION. AMOUNT: 45. TOTAL TO FORM 990-EZ, LINE 16: 44,529.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DESCRIPTION: OTHER DEPRECIABLE ASSETS. BEG. OF YEAR AMOUNT: 45. END OF YEAR AMOUNT: 0.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 10 - GRANTS AND SIMILAR AMOUNTS PAID
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/BuildTS02024-10-15 13:58:12Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0CAROL ROBERTS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum05852857136
ReturnHeader/BusinessOfficerGrp/SignatureDt02024-11-05
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0PRIMARY BILIARY CHOLANGITIS ORGANIZATION
ReturnHeader/Filer/BusinessNameControlTxt0PRIM
ReturnHeader/Filer/EIN0760622718
ReturnHeader/Filer/PhoneNum05852857136
ReturnHeader/Filer/USAddress/AddressLine1Txt01014A GREENLEAF ROAD
ReturnHeader/Filer/USAddress/CityNm0ROCHESTER
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd014612
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0475324570
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0INSERO & CO CPAS LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt020 THORNWOOD DRIVE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0ITHACA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd014850
ReturnHeader/PreparerPersonGrp/PhoneNum06072724444
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0LESLEY HORNER
ReturnHeader/ReturnTs02024-11-05T12:07:03-06:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02023-01-01
ReturnHeader/TaxPeriodEndDt02023-12-31
ReturnHeader/TaxYr02023

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.63$0.00$2.63$2.75$1.29$1.46
2023Detailed filing. Detailed filing data is available for this year.$1.18$0.00$1.18$0.66$0.65$0.01
2022Detailed filing. Detailed filing data is available for this year.$1.17$0.00$1.17$1.14$1.87$0.73
2021Detailed filing. Detailed filing data is available for this year.$1.90$0.00$1.90$0.97$0.38$0.59
2020Detailed filing. Detailed filing data is available for this year.$1.30$0.00$1.30$0.72$0.42$0.30
2019Detailed filing. Detailed filing data is available for this year.$1.05$0.00$1.05$0.95$0.58$0.37
2018Detailed filing. Detailed filing data is available for this year.$0.67$0.00$0.67$1.65$1.25$0.40
2017Detailed filing. Detailed filing data is available for this year.$0.27$0.00$0.27$0.72$0.86$0.14
2016Detailed filing. Detailed filing data is available for this year.$0.41$0.00$0.41$0.72$0.86$0.14
2015Summary only. Only limited summary data is available for this year.$0.55$0.00$0.55$0.35$0.24$0.11
2014Detailed filing. Detailed filing data is available for this year.$0.41$0.03$0.44$0.92$0.85$0.06
2013Detailed filing. Detailed filing data is available for this year.$0.38$0.00$0.38$0.27$0.20$0.08
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.30$0.00$0.30$0.27
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.40$0.00$0.40$0.47
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.60$0.00$0.60$0.56