Civic Intelligence

The Als Association Oregon and Southwest Washington Chapter

990 • Fiscal year 2025 • EIN 68-0516066

Feb 01, 2024 to Jan 31, 2025 • Filed on Jul 08, 2025

Organization ProfileWWW.ALSNORTHWEST.ORG

View Organization Page

825 NE Multnomah St Suite 940Portland, OR 97232

(503) 238-5559

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

60th percentile

0.12x

Higher debt load relative to assets than 60% of similar nonprofits.

2025 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2025

Liabilities / Revenue

66th percentile

0.19x

Higher debt load relative to revenue than 66% of similar nonprofits.

2025 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2025

Net Margin

17th percentile

-12%

Higher net margin than 17% of similar nonprofits.

2025 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2025

Top Officer Pay

92nd percentile

$207,896

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 7.6% of source-year revenue.

2025 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2025

Asset Growth

21st percentile

-4.5%

Faster asset growth than 21% of similar nonprofits.

2025 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Revenue Growth

65th percentile

14%

Faster revenue growth than 65% of similar nonprofits.

2025 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets60th percentile

Assets

Down

$4,335,042

Down $204,223 (-4.5%) from 2024

Net Assets

Up

$3,804,010

Up $93,532 (+2.5%) from 2024

Liabilities

Down

$531,032

Down $297,755 (-36%) from 2024

Revenue And Expenses
Liabilities / Revenue66th percentileNet Margin17th percentile

Revenue

Up

$2,724,273

Up $341,472 (+14%) from 2024

Expenses

Up

$3,051,371

Up $125,821 (+4.3%) from 2024

Net Income

Up

-$327,098

Up $215,651 (+40%) from 2024

Historical Trend

Balance Sheet Trend

Asset Growth21st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2012: $998,092Liabilities 2012: $141,642Net Assets 2012: $856,4502012Assets 2013: $1,290,069Liabilities 2013: $101,346Net Assets 2013: $1,188,7232013Assets 2014: $1,501,105Liabilities 2014: $163,344Net Assets 2014: $1,337,7612014Assets 2015: $2,077,108Liabilities 2015: $121,629Net Assets 2015: $1,955,4792015Assets 2016: $1,953,639Liabilities 2016: $185,364Net Assets 2016: $1,768,2752016Assets 2017: $1,776,864Liabilities 2017: $154,315Net Assets 2017: $1,622,5492017Assets 2018: $1,734,906Liabilities 2018: $139,203Net Assets 2018: $1,595,7032018Assets 2019: $1,799,233Liabilities 2019: $135,466Net Assets 2019: $1,663,7672019Assets 2020: $2,009,997Liabilities 2020: $215,234Net Assets 2020: $1,794,7632020Assets 2021: $2,610,290Liabilities 2021: $309,442Net Assets 2021: $2,300,8482021Assets 2022: $3,939,845Liabilities 2022: $277,410Net Assets 2022: $3,662,4352022Assets 2023: $4,982,342Liabilities 2023: $930,566Net Assets 2023: $4,051,7762023Assets 2024: $4,539,265Liabilities 2024: $828,787Net Assets 2024: $3,710,4782024Assets 2025: $4,335,042Liabilities 2025: $531,032Net Assets 2025: $3,804,0102025

Highlighted filing

2025

Assets$4,335,042
Liabilities$531,032
Net Assets$3,804,010
Open 2025 Filing

Operations Trend

Revenue Growth65th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2012: $941,2862012Revenue 2013: $1,475,725Expenses 2013: $1,143,452Net Income 2013: $332,2732013Revenue 2014: $1,477,554Expenses 2014: $1,328,516Net Income 2014: $149,0382014Revenue 2015: $2,330,532Expenses 2015: $1,712,814Net Income 2015: $617,7182015Revenue 2016: $1,578,454Expenses 2016: $1,765,658Net Income 2016: -$187,2042016Revenue 2017: $1,689,321Expenses 2017: $1,835,047Net Income 2017: -$145,7262017Revenue 2018: $1,683,746Expenses 2018: $1,710,592Net Income 2018: -$26,8462018Revenue 2019: $1,936,812Expenses 2019: $1,868,748Net Income 2019: $68,0642019Revenue 2020: $2,259,238Expenses 2020: $2,128,242Net Income 2020: $130,9962020Revenue 2021: $2,541,270Expenses 2021: $2,035,185Net Income 2021: $506,0852021Revenue 2022: $4,368,601Expenses 2022: $2,957,335Net Income 2022: $1,411,2662022Revenue 2023: $3,729,208Expenses 2023: $3,120,040Net Income 2023: $609,1682023Revenue 2024: $2,382,801Expenses 2024: $2,925,550Net Income 2024: -$542,7492024Revenue 2025: $2,724,273Expenses 2025: $3,051,371Net Income 2025: -$327,0982025

Highlighted filing

2025

Revenue$2,724,273
Expenses$3,051,371
Net Income-$327,098
Open 2025 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2024 to Jan 31, 2025
Signed
Jul 8, 2025
Return Version
2024v5.2
Gross Receipts
$2,887,588
Mission and Program Overview

Mission

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with als (lou gehrigs disease) and their families to live fuller lives by providing them with compassionate care and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,386,812$3,209,013▼ $177,799
Cash and Non-Interest-Bearing Accounts$133,241$409,897▲ $276,656
Savings and Temporary Cash Investments$349,911$231,627▼ $118,284
Pledges and Grants Receivable$20,000$40,000▲ $20,000
Prepaid Expenses and Deferred Charges$27,717$24,950▼ $2,767
Land, Buildings, and Equipment, Net$3,830$0▼ $3,830
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$4,539,265$4,335,042▼ $204,223
Other Assets Total$617,754$419,555▼ $198,199
Liabilities
Other Liabilities$627,160$438,739▼ $188,421
Accounts Payable and Accrued Expenses$153,552$76,978▼ $76,574
Deferred Revenue$48,075$15,315▼ $32,760
Total Liabilities$828,787$531,032▼ $297,755
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,431,852$3,594,010▲ $162,158
Net Assets With Donor Restrictions$278,626$210,000▼ $68,626
Total Net Assets Fund Balance$3,710,478$3,804,010▲ $93,532
Total Liabilities and Net Assets / Fund Balance$4,539,265$4,335,042▼ $204,223

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings-$38,522$38,522
Other Assets Org$419,555--
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Lance ChristianPast Exec. DirectorFT$185,408$22,488$207,896
Cassy AdamsExecutive DirectorFT$114,854$18,172$133,026
Amy EastonDevelopment DirectorFT$102,280$17,347$119,627

Board Members and Trustees

NameTitle
Amy FrazeyPast President
Jason DruckerPresident
Arturo GonzalezVice President
Ian MchoneDirector
Jerry CatlinDirector
Jim LobdellDirector
Katie CurtisDirector
Ken FinkDirector
Kim GoslinDirector
Lou LibbyDirector
Mark DoarDirector
Mark DuinDirector
Mark TurnbullDirector
Rocky DallumDirector
Tom HoltDirector
Whitney ParnellDirector
Doug McclureSecretary
Katherine HartTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Lloyd Center TowerRent3420 CARMEL MOUNTAIN ROAD STE 100, San Diego, CA 92121$109,608
Revenue and Support

Revenue Composition

Contributions and Grants
$2,784,849
Program Service Revenue
$0
Investment Income
$102,739
Other Revenue
$-163,315
All Other Contributions
$2,414,513
Change in Net Assets
$-327,098

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,724,273
Revenue Not Reported on Form 990
$338,302
Total Revenue per Audited Statements
$3,062,575
Total Revenue per Form 990
$2,724,273
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,767,135
Other Expenses$962,071
Total Fundraising Expense$341,585
Grants and Similar Amounts Paid$322,165
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$1,207,272$90,911$109,785$1,407,968
Other Employee Benefits$196,438$16,545$15,532$228,515
Grants to Domestic Orgs$199,265--$199,265
Office Expenses$139,478$16,151$17,898$173,527
Fees for Services Other$20,007$78,964$39,081$138,052
Occupancy$109,426$16,177$6,412$132,015
Payroll Taxes$113,708$7,184$9,760$130,652
Grants to Domestic Individuals$122,900--$122,900
Travel$82,680-$35,995$118,675
All Other Expenses$32,996$42,491$23$75,510
Conferences and Meetings$23,801$345$29,079$53,225
Advertising$38,681$1,980-$40,661
Other Expenses$11,562$7,875$6,640$26,077
Insurance$7,576$1,161$1,071$9,808
Depreciation Depletion-$3,830-$3,830
Total Functional Expenses$2,399,744$310,042$341,585$3,051,371

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,051,371
Total Expenses per Audited Statements$3,051,371
Total Expenses per Form 990$3,051,371
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Als NetworkWoodland Hills, CA501(c)(3)Research$150,000
OhsuPortland, OR-Research$30,000
Providence St VincentPortland, OR-Brain/spine Institute$18,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$163,315
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$370,336-$33,947-
Total Events$370,336-$163,315$-163,315
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Right of Use Liability$438,739
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Draft 990 is submitted electronically to board members for approval prior to filing.”

Form 990, Part VI, Section B, Line 12C

“Annual signed form specifying conflicts of interest is required of all directors. Board members having conflict of interest will recuse themselves from related matters. No conflicts have been noted.”

Form 990, Part VI, Section B, Line 15A

“The board of directors periodically reviews, approves and substantiates the compensation for the executive director. The process is based on knowledge of comparable positions in similar organizations.”

Form 990, Part VI, Section B, Line 15B

“The board of directors periodically reviews, approves, and substantiates compensation for other officers and key employees. The process is based on knowledge of comparable positions in similar organizations.”

Form 990, Part VI, Section C, Line 19

“Governing documents, policies, and financial statements are available upon reasonable request. The federal form 990 is also available on the guidestar website.”

Filing and Contact Details

Filer

Filer Name
ALS Northwest
EIN
68-0516066
Phone
5032385559
Address
825 NE Multnomah St Suite 940, Portland, OR 97232

Signing Officer

Name
Cassy Adams
Title
Executive Director
Signed
2025-07-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Cassy Adams
Formed
2002
Legal Domicile
Or
Voting Board Members
17
Independent Board Members
17
Employees
23
Volunteers
450

Preparer

Firm
Kern & Thompson LLC
Address
1800 SW FIRST AVE STE 410, PORTLAND, OR 97201
Preparer
Eric A Zehntbauer CPA
Phone
5032223338
Raw XML AppendixShowing 400 of 697 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
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IRS990/Desc0OUTREACH AND ADVOCACYALS NORTHWEST PROVIDES ONGOING FINANCIAL SUPPORT TO SUPPORT FEDERAL AND STATE PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED SIGNIFICANT PROJECTS TO UNDERSTAND THE CAUSE OF ALS, THE DISEASE MECHANISM, GENETICS, BIOMARKERS FOR ALS, ENVIRONMENTAL FACTORS, AND TRANSLATIONAL RESEARCH TO MOVE THERAPY IDEAS FROM THE LAB BENCH TO THERAPY. RESEARCH SUPPORT WENT TO OVER 150 RESEARCH GRANTS AROUND THE GLOBE. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2025, INCLUDE ONLINE ADVOCACY OF PEOPLE WITH ALS TO CONNECT WITH LEGISLATORS IN WASHINGTON DC TO ADVOCATE FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, PASSING ACT FOR ALS ACT AND PROMOTING FEDERAL SUPPORT FOR ALS RESEARCH. AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE THE WALK TO DEFEAT ALS, SKI TO DEFEAT ALS, RIDE TO DEFEAT ALS, MAY ALS AWARENESS MONTH, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW CHAPTER SERVICES CAN HELP. NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE REGION AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM THE ALS NORTHWEST. RESEARCH IS A CRITICAL PART OF THE ORGANIZATIONS MISSION. AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES DEFEAT ALS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN THE NORTHWEST.
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Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$4,335,042
Liabilities
$531,032
Net assets
$3,804,010
Revenue
$2,724,273
Expenses
$3,051,371
Net income
-$327,098
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$4.34$0.53$3.80$2.72$3.05$0.33
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.54$0.83$3.71$2.38$2.93$0.54
2023Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.98$0.93$4.05$3.73$3.12$0.61
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.94$0.28$3.66$4.37$2.96$1.41
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.61$0.31$2.30$2.54$2.04$0.51
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.01$0.22$1.79$2.26$2.13$0.13
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.80$0.14$1.66$1.94$1.87$0.07
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.73$0.14$1.60$1.68$1.71$0.03
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.78$0.15$1.62$1.69$1.84$0.15
2016Detailed filing. Detailed filing data is available for this year.$1.95$0.19$1.77$1.58$1.77$0.19
2015Detailed filing. Detailed filing data is available for this year.$2.08$0.12$1.96$2.33$1.71$0.62
2014Detailed filing. Detailed filing data is available for this year.$1.50$0.16$1.34$1.48$1.33$0.15
2013Summary only. Only limited summary data is available for this year.$1.29$0.10$1.19$1.48$1.14$0.33
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.00$0.14$0.86$0.94
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2025 filings • 501(c)3 • $1M-$5M nonprofits