Civic Intelligence

Association for the Bladder Exstrophy Community

990 • Fiscal year 2021 • EIN 68-0252009

Jul 01, 2020 to Jun 30, 2021 • Filed on May 03, 2022

Organization Profile505 Beachland Blvd Suite #1-180
204 37th Aven Suite 157Saint Petersburg, FL 33704-1416

(425) 941-1475

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

29th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Liabilities / Revenue

29th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Net Margin

35th percentile

3.8%

Higher net margin than 35% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Top Officer Pay

52nd percentile

$0

Higher top officer pay than 52% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Asset Growth

85th percentile

58%

Faster asset growth than 85% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Revenue Growth

97th percentile

466%

Faster revenue growth than 97% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets29th percentile

Assets

Up

$79,878

Up $29,245 (+58%) from 2020

Net Assets

Up

$79,878

Up $29,245 (+58%) from 2020

Liabilities

$0

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue29th percentileNet Margin35th percentile

Revenue

Up

$768,625

Up $632,764 (+466%) from 2020

Expenses

Up

$739,441

Up $637,785 (+627%) from 2020

Net Income

Down

$29,184

Down $5,021 (-15%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth85th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$100K$50K$0Assets 2016: $26,209Liabilities 2016: $1,2492016Assets 2017: $12,819Liabilities 2017: $02017Assets 2018: $27,114Liabilities 2018: $02018Assets 2019: $16,428Liabilities 2019: $02019Assets 2020: $50,633Net Assets 2020: $50,6332020Assets 2021: $79,878Liabilities 2021: $0Net Assets 2021: $79,8782021Assets 2022: $83,652Liabilities 2022: $0Net Assets 2022: $83,6522022Assets 2023: $50,015Liabilities 2023: $02023Assets 2024: $40,437Net Assets 2024: $40,4372024Assets 2025: $34,297Net Assets 2025: $34,2972025

Highlighted filing

2021

Assets$79,878
Liabilities$0
Net Assets$79,878
Open 2021 Filing

Operations Trend

Revenue Growth97th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2016: $87,393Expenses 2016: $86,341Net Income 2016: $1,0522016Revenue 2017: $111,649Expenses 2017: $123,892Net Income 2017: -$12,2432017Revenue 2018: $114,065Expenses 2018: $99,598Net Income 2018: $14,4672018Revenue 2019: $92,814Expenses 2019: $103,500Net Income 2019: -$10,6862019Revenue 2020: $135,861Expenses 2020: $101,656Net Income 2020: $34,2052020Revenue 2021: $768,625Expenses 2021: $739,441Net Income 2021: $29,1842021Revenue 2022: $72,420Expenses 2022: $68,646Net Income 2022: $3,7742022Revenue 2023: $114,198Expenses 2023: $147,835Net Income 2023: -$33,6372023Revenue 2024: $90,525Expenses 2024: $100,103Net Income 2024: -$9,5782024Revenue 2025: $92,904Expenses 2025: $100,418Net Income 2025: -$7,5142025

Highlighted filing

2021

Revenue$768,625
Expenses$739,441
Net Income$29,184
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
May 3, 2022
Return Version
2020v4.0
Gross Receipts
$768,625
Mission and Program Overview

Mission

The a ssociation for the bladder exstrophy community exists to provide information about this rare defect and support to individuals and their families through education advocacy and support.

The association for the bladder exstrophy community exists to provide information about this rare defect and support to individuals and their families through education advocacy and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$50,694$79,878▲ $29,184
Savings and Temporary Cash Investments$0$0→ $0
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Land, Buildings, and Equipment, Net$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$50,694$79,878▲ $29,184
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$50,694$79,878▲ $29,184
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$50,694$79,878▲ $29,184
Total Liabilities and Net Assets / Fund Balance$50,694$79,878▲ $29,184
Compensation and Service Providers
Top Officer Pay52nd percentile

Board Members and Trustees

NameTitle
Paul Merguerian MDAdvisory Board Chair
Pamela ArtigasPresident and Executive Director
Jeffrey Neizgoda MDPresident Emeritus
Janet GibsonBoard Member
Joseph RedmanBoard Member
Thomas ExlerBoard Member
Revenue and Support

Revenue Composition

Contributions and Grants
$690,985
Program Service Revenue
$77,640
Investment Income
$0
Other Revenue
$0
All Other Contributions
$690,985
Change in Net Assets
$29,184
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$739,441
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Expenses$541,222$840$0$542,062
Office Expenses$153,505$3,374$0$156,879
Fees for Services Other$32,850$7,650$0$40,500
Total Functional Expenses$727,577$11,864$0$739,441
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Part VI, Section B, Line 11B

“No review was or will be conducted”

Part VI, Section C, Line 19

“documents are available upon request and are listed on various sites ie Charity Navigator”

Filing and Contact Details

Filer

Filer Name
Association for the Bladder Exstrophy Community
EIN
68-0252009
In Care Of
% Pamela Artigas
Address
204 37TH AVEN SUITE 157, SAINT PETERSBURG, FL 33704-1416

Signing Officer

Name
Pamela Artigas
Title
President
Signed
2022-05-03
Discuss with paid preparer
No

Organization Details

Formed
2012
Legal Domicile
Wi
Voting Board Members
5
Independent Board Members
0
Employees
0
Volunteers
10
Supplemental Narrative

Additional Explanations

Part III, line 2

“COVID relief for our Global Care Centers in India.”

Part III, line 3

“We did not hold an annual conference due to COVID.”

Part III, Line 4D

“| Description:, Expense Amount:, Grants Amount:, Revenue Amount:|”

Part IX, line 11G

“| Description:, Amount:| program service expenses and accounting, $40500|”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt00
IRS990/OtherRevenueTotalAmt00
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt00
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt00
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt00
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfcrBusinessName/BusinessNameLine1Txt0Pamela Artigas
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0624230
IRS990/ProgramServiceRevenueGrp/BusinessCd1923120
IRS990/ProgramServiceRevenueGrp/Desc0Emergency and Other Relief Services
IRS990/ProgramServiceRevenueGrp/Desc1Administration of Public Health Programs
IRS990/ProgramServiceRevenueGrp/ExclusionAmt00
IRS990/ProgramServiceRevenueGrp/ExclusionAmt10
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt050068
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt127572
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt050068
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt127572
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt10
IRS990/ProgSrvcAccomActy2Grp/Desc0The Association for the Bladder Exstrophy Community programs provide parents caregivers and persons living with bladder exstrophy tools and resources to help manage their condition throughout their lifetime.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt024679
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt027572
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt00
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/FundraisingAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/ManagementAndGeneralAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/ProgramServicesAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt00
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt00
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt00
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt00
IRS990/RcvblFromDisqualifiedPrsnGrp/BOYAmt00
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/ReceivablesFromOfficersEtcGrp/BOYAmt00
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt029184
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/RelatedOrganizationsAmt00
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt050068
IRS990/RoyaltiesGrp/FundraisingAmt00
IRS990/RoyaltiesGrp/ManagementAndGeneralAmt00
IRS990/RoyaltiesGrp/ProgramServicesAmt00
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/ExclusionAmt00
IRS990/RoyaltiesRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/RoyaltiesRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0690985
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0135861
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt092814
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0114065
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0111649
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01145374
IRS990ScheduleA/InvestmentIncomeCYPct00
IRS990ScheduleA/InvestmentIncomePYPct00.00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct01
IRS990ScheduleA/PublicSupportPY509Pct01
IRS990ScheduleA/PublicSupportTotal509Amt01145374
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0690985
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0135861
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt092814
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0114065
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0111649
IRS990ScheduleA/Total509Grp/TotalAmt01145374
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0690985
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0135861
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt092814
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0114065
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0111649
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01145374
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0COVID relief for our Global Care Centers in India.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1We did not hold an annual conference due to COVID.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2| Description:, Expense Amount:, Grants Amount:, Revenue Amount:|
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3No review was or will be conducted
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4documents are available upon request and are listed on various sites ie Charity Navigator
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5| Description:, Amount:| program service expenses and accounting, $40500|
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Part III, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Part III, line 3

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$79,878
Liabilities
$0
Net assets
$79,878
Revenue
$768,625
Expenses
$739,441
Net income
$29,184
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.34$0.34$0.93$1.00$0.08
2024Detailed filing. Detailed filing data is available for this year.$0.40$0.40$0.91$1.00$0.10
2023Summary only. Only limited summary data is available for this year.$0.50$0.00$1.14$1.48$0.34
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.84$0.00$0.84$0.72$0.69$0.04
2021Detailed filing. Detailed filing data is available for this year.$0.80$0.00$0.80$7.69$7.39$0.29
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.51$0.51$1.36$1.02$0.34
2019Summary only. Only limited summary data is available for this year.$0.16$0.00$0.93$1.04$0.11
2018Summary only. Only limited summary data is available for this year.$0.27$0.00$1.14$1.00$0.14
2017Summary only. Only limited summary data is available for this year.$0.13$0.00$1.12$1.24$0.12
2016Summary only. Only limited summary data is available for this year.$0.26$0.01$0.87$0.86$0.01