Civic Intelligence

Loeys-Dietz Syndrome Foundation Inc

EIN 65-1306978 • 501(c)3 • Baltimore, MD

Profile

Loeys-dietz syndrome foundation, inc. Is a non profit, charitable organization dedicted to bringing greater awareness to loeys-diets syndrome (lds). Ldsf encourages education about this and related connective tissue disorders, aids in identification, diagnosis & treatment of lds, foster research about lds and provides a support network for parents & families affected by lds.

PO Box 22468Baltimore, MD 21203

n/A

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2017

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

78th percentile

24%

Higher net margin than 78% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

72nd percentile

15%

Faster asset growth than 72% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

58th percentile

4.5%

Faster revenue growth than 58% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets60th percentile

Assets

Up

$452,063

Up $59,279 (+15%) from 2016

Liabilities

Flat

$0

Flat from 2016

Net Assets

Up

$452,063

Up $59,279 (+15%) from 2016

Operations
Liabilities / Revenue62nd percentileNet Margin78th percentile

Revenue

Up

$244,111

Up $10,618 (+4.5%) from 2016

Expenses

Up

$184,832

Up $36,676 (+25%) from 2016

Net Income

Down

$59,279

Down $26,058 (-31%) from 2016

Trend Graphs

Balance Sheet Trend

Asset Growth72nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2011: $1Liabilities 2011: $02011Assets 2012: $181,725Liabilities 2012: $02012Assets 2013: $178,941Liabilities 2013: $02013Assets 2014: $199,254Liabilities 2014: $0Net Assets 2014: $199,2542014Assets 2015: $307,447Liabilities 2015: $0Net Assets 2015: $307,4472015Assets 2016: $392,784Liabilities 2016: $0Net Assets 2016: $392,7842016Assets 2017: $452,063Liabilities 2017: $0Net Assets 2017: $452,0632017

Highlighted filing

2017

Assets$452,063
Liabilities$0
Net Assets$452,063
Open 2017 Filing

Operations Trend

Revenue Growth58th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$300K$200K$100K$0-$100KRevenue 2011: $103,168Expenses 2011: $48,901Net Income 2011: $54,2672011Revenue 2012: $139,397Expenses 2012: $105,266Net Income 2012: $34,1312012Revenue 2013: $77,088Expenses 2013: $79,872Net Income 2013: -$2,7842013Revenue 2014: $122,651Expenses 2014: $102,338Net Income 2014: $20,3132014Revenue 2015: $131,143Expenses 2015: $22,950Net Income 2015: $108,1932015Revenue 2016: $233,493Expenses 2016: $148,156Net Income 2016: $85,3372016Revenue 2017: $244,111Expenses 2017: $184,832Net Income 2017: $59,2792017

Highlighted filing

2017

Revenue$244,111
Expenses$184,832
Net Income$59,279
Open 2017 Filing

Filings

Most recent year

2017 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$452,063
Liabilities
$0
Net assets
$452,063
Revenue
$244,111
Expenses
$184,832
Net income
$59,279
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$0.00$4.52$2.44$1.85$0.59
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.93$0.00$3.93$2.33$1.48$0.85
2015Detailed filing. Detailed filing data is available for this year.$3.07$0.00$3.07$1.31$0.23$1.08
2014Detailed filing. Detailed filing data is available for this year.$1.99$0.00$1.99$1.23$1.02$0.20
2013Summary only. Only limited summary data is available for this year.$1.79$0.00$0.77$0.80$0.03
2012Summary only. Only limited summary data is available for this year.$1.82$0.00$1.39$1.05$0.34
2011Summary only. Only limited summary data is available for this year.$0.00$0.00$1.03$0.49$0.54
Latest Detailed Filing

The latest 2017 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2015 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Mar 3, 2016
Return Version
2015v2.1
Gross Receipts
$132,587
Mission and Program Overview

Mission

To raise awareness about loeys dietz syndrome. ("lds") (see schedule o for additional information)

Loeys-dietz syndrome foundation, inc. Is a non profit, charitable organization dedicted to bringing greater awareness to loeys-diets syndrome (lds). Ldsf encourages education about this and related connective tissue disorders, aids in identification, diagnosis & treatment of lds, foster research about lds and provides a support network for parents & families affected by lds.

Program Services

DescriptionGrantsExpenses
DEVELOPED AND IMPLEMENTED THE FIRST-EVER SURVEY OF LOEYS-DIETZ PATIENTS, COLLECTING RESPONSES FROM 656 INDIVIDUAL PATIENTS ACROSS 44 STATES IN THE US AND 17 COUNTRIES.ADVANCED PLANNING FOR THE 2016 CONFERENCE, INCLUDING CONVENING A PLANNING COMMITTEE THAT HAS SECURED THE VENUE, PRESENTERS, AND ACTIVITIES.INCREASED DOLLARS RAISED BY MORE THAN 10 PERCENT AND NUMBER OF DONORS BY MORE THAN 40 PERCENT COMPARED TO THE ANNUAL AVERAGE OF 2012-2014.$0$0
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
RAQUEL GOMESPresidentPT$0--
MARY KASTENSecretary-$0--
WESLEY BANGEVice PresidentPT$0--
GRETCHEN MACCARRICKInterim TreasurerPT$0--
TOM FUOCODirector-$0--
GABE MCCAULEYDirector-$0--
CAROL NELSON-CHENGDirectorPT$0--
EDWARD PAGEDirector-$0--
DAWN REINERDirectorPT$0--
SUE LAWRENCEDirector-$0--
Fundraising, Events, and Gaming

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Chicagoland 5k$23,520$23,520-$23,520
Bange 5k$18,919$18,919$604$18,315
Total Events$53,029$53,029$1,444$51,585
Filing and Contact Details

Filer

Filer Name
Loeys-dietz Syndrome Foundation Inc
EIN
65-1306978
Phone
4438505874
Address
PO BOX 22468, BALTIMORE, MD 21203

Signing Officer

Name
Raquel Gomes
Title
President
Phone
4438505874
Signed
2016-03-03
Discuss with paid preparer
Yes

Preparer

Firm
Weyrich Cronin & Sorra Chartered
Address
1301 YORK ROAD SUITE 800, LUTHERVILLE, MD 21093
Preparer
Kelli L Miller CPA
Phone
4103396464
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 16 - Other Expenses

“Description: advertising. Amount: 1,870. Description: bank fees. Amount: 728. Description: dues & memberships. Amount: 150. Description: credit card fees. Amount: 465. Description: office supplies. Amount: 3,137. Description: travel. Amount: 4,422. Description: insurance. Amount: 1,239. Description: licenses & permits. Amount: 830. Description: conference. Amount: 420. Description: miscellaneous. Amount: 221. Total to form 990-ez, line 16: 13,482.”

Form 990-ez, Part II, Line 24 - Other Assets

“Description: undeposited funds. Beg. Of year amount: 9,266. End of year amount: 1,860.”

Raw XML Appendix211 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1SECRETARY
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4DIRECTOR
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt7DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt8DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt9DIRECTOR
IRS990EZ/OperateHospitalInd00
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd00
IRS990EZ/OrganizationHadUBIInd00
IRS990EZ/OtherAssetsTotalDetail/BOYAmt09266
IRS990EZ/OtherAssetsTotalDetail/EOYAmt01860
IRS990EZ/OtherChangesInNetAssetsAmt00
IRS990EZ/OtherExpensesTotalAmt013482
IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt0NONE
IRS990EZ/PartVIOfCompOfHghstPdEmplTxt0NONE
IRS990EZ/PoliticalCampaignActyInd00
IRS990EZ/PrimaryExemptPurposeTxt0LOEYS-DIETZ SYNDROME FOUNDATION, INC. IS A NON PROFIT, CHARITABLE ORGANIZATION DEDICTED TO BRINGING GREATER AWARENESS TO LOEYS-DIETS SYNDROME (LDS). LDSF ENCOURAGES EDUCATION ABOUT THIS AND RELATED CONNECTIVE TISSUE DISORDERS, AIDS IN IDENTIFICATION, DIAGNOSIS & TREATMENT OF LDS, FOSTER RESEARCH ABOUT LDS AND PROVIDES A SUPPORT NETWORK FOR PARENTS & FAMILIES AFFECTED BY LDS.
IRS990EZ/PrintingPublicationsPostageAmt01618
IRS990EZ/ProgramServiceRevenueAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0DEVELOPED AND IMPLEMENTED THE FIRST-EVER SURVEY OF LOEYS-DIETZ PATIENTS, COLLECTING RESPONSES FROM 656 INDIVIDUAL PATIENTS ACROSS 44 STATES IN THE US AND 17 COUNTRIES.ADVANCED PLANNING FOR THE 2016 CONFERENCE, INCLUDING CONVENING A PLANNING COMMITTEE THAT HAS SECURED THE VENUE, PRESENTERS, AND ACTIVITIES.INCREASED DOLLARS RAISED BY MORE THAN 10 PERCENT AND NUMBER OF DONORS BY MORE THAN 40 PERCENT COMPARED TO THE ANNUAL AVERAGE OF 2012-2014.
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt00
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IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0217396
IRS990ScheduleA/TotalSupportAmt0217396
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IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
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IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0BANGE 5K
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0CHICAGOLAND 5K
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IRS990ScheduleG/SolicitationOfNonGovtGrantsInd0X
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0DESCRIPTION: ADVERTISING. AMOUNT: 1,870. DESCRIPTION: BANK FEES. AMOUNT: 728. DESCRIPTION: DUES & MEMBERSHIPS. AMOUNT: 150. DESCRIPTION: CREDIT CARD FEES. AMOUNT: 465. DESCRIPTION: OFFICE SUPPLIES. AMOUNT: 3,137. DESCRIPTION: TRAVEL. AMOUNT: 4,422. DESCRIPTION: INSURANCE. AMOUNT: 1,239. DESCRIPTION: LICENSES & PERMITS. AMOUNT: 830. DESCRIPTION: CONFERENCE. AMOUNT: 420. DESCRIPTION: MISCELLANEOUS. AMOUNT: 221. TOTAL TO FORM 990-EZ, LINE 16: 13,482.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1DESCRIPTION: UNDEPOSITED FUNDS. BEG. OF YEAR AMOUNT: 9,266. END OF YEAR AMOUNT: 1,860.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/BuildTS02016-09-27 15:27:22Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0RAQUEL GOMES
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum04438505874
ReturnHeader/BusinessOfficerGrp/SignatureDt02016-03-03
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0LOEYS-DIETZ SYNDROME FOUNDATION INC
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0C/O RAQUEL GOMES
ReturnHeader/Filer/BusinessNameControlTxt0LOEY
ReturnHeader/Filer/EIN0651306978
ReturnHeader/Filer/PhoneNum04438505874
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 22468
ReturnHeader/Filer/USAddress/CityNm0BALTIMORE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MD
ReturnHeader/Filer/USAddress/ZIPCd021203
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0521162023
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0WEYRICH CRONIN & SORRA CHARTERED
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01301 YORK ROAD SUITE 800
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0LUTHERVILLE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd021093
ReturnHeader/PreparerPersonGrp/PhoneNum04103396464
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0KELLI L MILLER CPA
ReturnHeader/ReturnTs02016-03-24T11:13:50-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02015-01-01
ReturnHeader/TaxPeriodEndDt02015-12-31
ReturnHeader/TaxYr02015

Document Assets

No mirrored PDF or thumbnail assets are attached yet.