Civic Intelligence

Ataxia Telangiectasia Children'S

EIN 65-0427215 • 501(c)3 • Coconut Creek, FL

Profile

Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease, and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms, and biomarker development - to optimize disease management strategies, develop new treatments, and find a cure.

6810 N State Road 7 125Coconut Creek, FL 33073

www.atcp.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

89th percentile

0.74x

Higher debt load relative to assets than 89% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Liabilities / Revenue

90th percentile

1.26x

Higher debt load relative to revenue than 90% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Net Margin

13th percentile

-23%

Higher net margin than 13% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Top Officer Pay

92nd percentile

$241,755

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 13.4% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Asset Growth

65th percentile

9.7%

Faster asset growth than 65% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Revenue Growth

12th percentile

-28%

Faster revenue growth than 12% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets89th percentile

Assets

Up

$3,075,666

Up $272,685 (+9.7%) from 2024

Liabilities

Up

$2,284,945

Up $681,245 (+42%) from 2024

Net Assets

Down

$790,721

Down $408,560 (-34%) from 2024

Operations
Liabilities / Revenue90th percentileNet Margin13th percentile

Revenue

Down

$1,808,873

Down $693,489 (-28%) from 2024

Expenses

Up

$2,217,433

Up $321,460 (+17%) from 2024

Net Income

Down

-$408,560

Down $1,014,949 (-167%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth65th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MAssets 2011: $267,248Liabilities 2011: $319,400Net Assets 2011: -$52,1522011Assets 2012: $295,988Liabilities 2012: $346,022Net Assets 2012: -$50,0342012Assets 2013: $649,098Liabilities 2013: $577,389Net Assets 2013: $71,7092013Assets 2014: $1,025,382Liabilities 2014: $832,224Net Assets 2014: $193,1582014Assets 2015: $1,334,654Liabilities 2015: $1,130,219Net Assets 2015: $204,4352015Assets 2016: $1,663,047Liabilities 2016: $1,341,962Net Assets 2016: $321,0852016Assets 2017: $1,414,595Liabilities 2017: $1,201,292Net Assets 2017: $213,3032017Assets 2018: $2,380,279Liabilities 2018: $2,182,362Net Assets 2018: $197,9172018Assets 2019: $1,914,919Liabilities 2019: $1,695,766Net Assets 2019: $219,1532019Assets 2021: $1,453,834Liabilities 2021: $973,099Net Assets 2021: $480,7352021Assets 2022: $2,011,038Liabilities 2022: $1,504,462Net Assets 2022: $506,5762022Assets 2023: $2,125,334Liabilities 2023: $1,532,442Net Assets 2023: $592,8922023Assets 2024: $2,802,981Liabilities 2024: $1,603,700Net Assets 2024: $1,199,2812024Assets 2025: $3,075,666Liabilities 2025: $2,284,945Net Assets 2025: $790,7212025

Highlighted filing

2025

Assets$3,075,666
Liabilities$2,284,945
Net Assets$790,721
Open 2025 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2011: $848,551Expenses 2011: $842,994Net Income 2011: $5,5572011Revenue 2012: $919,047Expenses 2012: $916,929Net Income 2012: $2,1182012Revenue 2013: $1,394,776Expenses 2013: $1,273,033Net Income 2013: $121,7432013Revenue 2014: $1,491,828Expenses 2014: $1,370,379Net Income 2014: $121,4492014Revenue 2015: $1,731,208Expenses 2015: $1,719,931Net Income 2015: $11,2772015Revenue 2016: $2,005,549Expenses 2016: $1,888,899Net Income 2016: $116,6502016Revenue 2017: $1,270,814Expenses 2017: $1,378,596Net Income 2017: -$107,7822017Revenue 2018: $2,056,610Expenses 2018: $2,291,871Net Income 2018: -$235,2612018Revenue 2019: $1,766,537Expenses 2019: $1,745,301Net Income 2019: $21,2362019Revenue 2021: $1,461,138Expenses 2021: $1,326,098Net Income 2021: $135,0402021Revenue 2022: $1,739,187Expenses 2022: $1,713,346Net Income 2022: $25,8412022Revenue 2023: $1,567,615Expenses 2023: $1,481,299Net Income 2023: $86,3162023Revenue 2024: $2,502,362Expenses 2024: $1,895,973Net Income 2024: $606,3892024Revenue 2025: $1,808,873Expenses 2025: $2,217,433Net Income 2025: -$408,5602025

Highlighted filing

2025

Revenue$1,808,873
Expenses$2,217,433
Net Income-$408,560
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,075,666
Liabilities
$2,284,945
Net assets
$790,721
Revenue
$1,808,873
Expenses
$2,217,433
Net income
-$408,560
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$3.08$2.28$0.79$1.81$2.22$0.41
2024Detailed filing. Detailed filing data is available for this year.$2.80$1.60$1.20$2.50$1.90$0.61
2023Detailed filing. Detailed filing data is available for this year.$2.13$1.53$0.59$1.57$1.48$0.09
2022Detailed filing. Detailed filing data is available for this year.$2.01$1.50$0.51$1.74$1.71$0.03
2021Detailed filing. Detailed filing data is available for this year.$1.45$0.97$0.48$1.46$1.33$0.14
2019Summary only. Only limited summary data is available for this year.$1.91$1.70$0.22$1.77$1.75$0.02
2018Summary only. Only limited summary data is available for this year.$2.38$2.18$0.20$2.06$2.29$0.24
2017Summary only. Only limited summary data is available for this year.$1.41$1.20$0.21$1.27$1.38$0.11
2016Summary only. Only limited summary data is available for this year.$1.66$1.34$0.32$2.01$1.89$0.12
2015Summary only. Only limited summary data is available for this year.$1.33$1.13$0.20$1.73$1.72$0.01
2014Summary only. Only limited summary data is available for this year.$1.03$0.83$0.19$1.49$1.37$0.12
2013Summary only. Only limited summary data is available for this year.$0.65$0.58$0.07$1.39$1.27$0.12
2012Summary only. Only limited summary data is available for this year.$0.30$0.35$0.05$0.92$0.92$0.00
2011Summary only. Only limited summary data is available for this year.$0.27$0.32$0.05$0.85$0.84$0.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jun 1, 2024 to May 31, 2025
Signed
Mar 12, 2026
Return Version
2024v5.5
Gross Receipts
$2,039,246
Mission and Program Overview

Mission

Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease, and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms, and biomarker development - to optimize disease management strategies, develop new treatments, and find a cure.

Organizing and supporting innovative research, conferences, clinical teams, data platforms, and biomarker development to optimize disease management strategies, develop new treatments, and find a cure for A-T, a genetic disease that causes loss of muscle control, cancer, lung disease, and immune system problems.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$143,236$2,563,101▲ $2,419,865
Cash and Non-Interest-Bearing Accounts$2,614,427$475,417▼ $2,139,010
Prepaid Expenses and Deferred Charges$45,318$37,148▼ $8,170
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$2,802,981$3,075,666▲ $272,685
Liabilities
Grants Payable$1,454,452$2,138,364▲ $683,912
Accounts Payable and Accrued Expenses$149,248$146,581▼ $2,667
Total Liabilities$1,603,700$2,284,945▲ $681,245
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,199,281$790,721▼ $408,560
Total Net Assets Fund Balance$1,199,281$790,721▼ $408,560
Total Liabilities and Net Assets / Fund Balance$2,802,981$3,075,666▲ $272,685

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$50,441$50,441
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Jennifer ThorntonExecutive Director/DirectorFT$164,431$77,324$241,755

Board Members and Trustees

NameTitle
Bradley A MargusPresident
Amy MadisonVice President
David VeldinkDirector
Douglas WecksteinDirector
Elizabeth HughesDirector
John FeeleyDirector
Robert MiddlebrookDirector
Gregory JehlikSecretary
Timothy RahallTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,700,157
Program Service Revenue
$42,657
Investment Income
$29,615
Other Revenue
$36,444
All Other Contributions
$840,338
Change in Net Assets
$-408,560

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,808,873
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$1,808,873
Total Revenue per Form 990
$1,808,873
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,305,119
Salaries, Compensation, and Employee Benefits$530,016
Other Expenses$382,298
Total Fundraising Expense$165,335
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$810,119--$810,119
Foreign Grants$495,000--$495,000
Current Officers, Directors, Trustees, and Key Employees$186,203$11,638$34,913$232,754
Other Salaries and Wages$133,627$20,898$65,428$219,953
Office Expenses$52,034$6,099$6,830$64,963
Payroll Taxes$36,772$3,801$13,880$54,453
Travel$42,509$775$2,216$45,500
Occupancy$29,357$4,500$11,327$45,184
Fees for Services Accounting-$29,544-$29,544
Conferences and Meetings$26,871--$26,871
Other Employee Benefits$13,483$1,905$7,468$22,856
Fees for Services Legal-$3,299$10,700$13,999
Insurance-$3,408$7,936$11,344
Other Expenses$38,714$820$2,547$3,367
All Other Expenses$2,717--$2,717
Total Functional Expenses$1,961,306$90,792$165,335$2,217,433

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,217,433
Total Expenses per Audited Statements$2,217,433
Total Expenses per Form 990$2,217,433
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Duke Cancer InstituteDurham, NC501(c)(3)Medical Research$600,000
The Johns Hopkins HospitalBaltimore, MD501(c)(3)Medical Research$163,717
Children's Hospital of PhiladelphiaPhiladelphia, PA501(c)(3)Medical Research$18,000
University of PennsylvaniaPhiladelphia, PA501(c)(3)Medical Research$13,550
QuanterixBillerica, MAN/aMedical Research$9,902

International Summary

Offices
0
Employees
0
Spending
$495,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrants to recipients located in the region-00$395,000
East Asia and the PacificGrants to recipients located in the region-00$100,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$266,817
Fundraising Direct Expenses$230,373
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Brave Golf$104,935$57,055$18,141$38,914
Rustic Run$147,480$30,103$2,043$28,060
Total Events$1,124,137$266,817$230,373$36,444
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“A copy of the 990 is provided to the A-T Children's Project Board of Directors via email prior to filing. Any questions from the Board are addressed.”

Form 990, Part VI, Section B, line 12C

“The A-T Children's Project regularly monitors and enforces compliance with the Conflict of Interest policy. A review of the policy and discussion of potential conflicts of interest are on the agenda for discussion at the annual Board of Directors meeting at which time members are asked to disclose any conflicts. Additionally, members sign the Conflict of Interest policy annually.”

Form 990, Part VI, Section B, line 15

“The process for determining the compensation of the A-T Children's Project Executive Director includes review and approval by independent persons, comparability data, and a contemporaneous substantiation of the deliberation and decisions. The independent Compensation Committee of the Board of Directors deliberates compensation using current comparative data and specific objectives met by the Executive Director. The Committee's findings are then thoroughly reviewed and subject to approval by the Board of Directors.”

Form 990, Part VI, Section C, line 19

“The Organization provides, upon request, copies of its Articles of Incorporation, bylaws, conflict of interest policy, and its financial statements.”

Filing and Contact Details

Filer

Filer Name
Ataxia Telangiectasia Children's
EIN
65-0427215
Phone
9544816611
Address
6810 N State Road 7 125, Coconut Creek, FL 33073

Signing Officer

Name
Bradley A Margus
Title
President
Phone
9544816611
Signed
2026-03-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Bradley A Margus
Formed
1993
Legal Domicile
Fl
Voting Board Members
10
Independent Board Members
9
Employees
4
Volunteers
1,000

Preparer

Firm
Batts Morrison Wales & Lee PA
Address
801 North Orange Avenue Suite 800, Orlando, FL 32801
Preparer
Michele M Wales CPA
Phone
4077706000
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C:

“The Organization's Board of Directors, or a committee thereof, assumes responsibility for the oversight of the audit of its financial statements and the selection of an independent accountant. This process has not changed from the prior year.”

Raw XML AppendixShowing 400 of 657 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0Research and Clinical GrantsThe A-T Children's Project provides competitive awards for scientific and clinical research grants related to finding life-improving therapies and a cure for ataxia-telangiectasia. Scientific excellence and relevance to A-T are the paramount criteria used to select research projects. Grant award decisions are made through a careful and detailed, two-tiered peer-review selection process. Consistent with the urgency felt by all families impacted by this disease, the A-T Children's Project's current focus is on funding innovative research strategies that look at A-T in new ways and that include a clear 'yes or 'no' answer to the hypothesis rather than merely defining a mechanism. Highest priority is given to projects that, while drawing on basic discoveries, include creative strategies for suggesting and evaluating specific disease-modifying and symptomatic interventions.
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IRS990/Form990PartVIISectionAGrp/PersonNm2Gregory Jehlik
IRS990/Form990PartVIISectionAGrp/PersonNm3Timothy Rahall
IRS990/Form990PartVIISectionAGrp/PersonNm4Jennifer Thornton
IRS990/Form990PartVIISectionAGrp/PersonNm5John Feeley
IRS990/Form990PartVIISectionAGrp/PersonNm6Elizabeth Hughes
IRS990/Form990PartVIISectionAGrp/PersonNm7Robert Middlebrook
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IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice President
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IRS990/MissionDesc0Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease, and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms, and biomarker development - to optimize disease management strategies, develop new treatments, and find a cure.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Conferences and Research SupportThe A-T Children's Project holds scientific meetings and workshops regularly as a way to encourage more cooperation between A-T research teams, to reduce redundancy in their work, and to bring scientists from different fields together to generate new research strategies. The agendas always include presentations of unpublished data and open discussions and debate. The Organization also sponsors scientific conferences whose mission falls within this realm. The Organization has found that these scientific meetings, properly orchestrated generate new research strategies, help to form new collaborations between previously competing labs, and encourage sharing of limited patient tissue samples and animal models of A-T between labs. They consistently help to accelerate research progress. Additionally, staff of the A-T Children's Project coordinate the Global A-T Family Data Platform, a patient-driven effort overseen by A-T families and experts worldwide through which health information, genetic, and potentially other types of data about people with A-T can be shared with researchers, enabling them to access important patient data from around the world quickly, securely, and efficiently, hopefully leading to new discoveries.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Awareness and EducationThe A-T Children's Project maintains a database of people interested in receiving news and other information from the A-T Children's Project including families, extended family members, friends, caregivers, therapists, doctors, donors, volunteers, nonprofit organizations, and others interested in learning about A-T and our progress. The Organization does not charge membership fees or other fees for educational and awareness materials. Additional awareness activities include: making sure event attendees know what A-T is and the importance of the work they are supporting; conducting outreach to assist with the timely and accurate diagnosis of A-T; creating materials to help explain A-T and the Organization's research progress; answering questions and providing materials to constituents and the general public about A-T; and, maintaining a website with up-to-date information about the disease and the Organization's research projects.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0Family SupportThe A-T Children's Project developed and maintains an A-T patient registry. In addition to helping families searching for the proper diagnosis, the Organization helps them by providing support, putting them in touch with other A-T families, and assisting them with scheduling evaluations at the A-T Clinical Center at Johns Hopkins. The families contact the Organization through email, phone, website, and social media platforms such as Facebook. Each newly diagnosed family gets an information package including the Caring for People with A-T handbook. The Organization typically corresponds and speaks with parents often to help them understand this rare disease and what it means for their families throughout their children's lives. A-T families and extended family members also receive information updating them on current A-T biomedical and clinical research happenings. The Organization also publishes and distributes their Caring for People with A-T handbook free of charge. This handbook gives specific medical information about A-T for families and caregivers. The Organization also plans and hosts Caregiver Weekends periodically to give parents and other caregivers opportunities to formally and informally build connections; speak openly about sensitive subjects related to A-T; and, learn directly from clinicians and researchers.
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IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Medical research
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IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0Grants are made to accredited schools of higher education with world-renowned research departments, hospitals, or companies with specific technologies for the purpose of direct research on ataxia-telangiectasia. Detailed research grant proposals must be submitted. Grants are only made upon thorough review and approval by the Scientific Advisory Network and Board of Directors. Grantees are required to submit progress reports at six-month intervals and at the conclusion of their grants. These reports ensure that the grant funds are expended as contracted.
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