Kentucky Hemophilia Foundation Inc

“Two board members are married to each other.”

“Form 990 is reviewed by the Executive Director and is made available to other executive committee members.”

“Conflict of interest policies are provided to board members on an annual basis and monitored by Executive Director”

“The consideration for an increase in the Executive Director's compensation occurs during the annual budget process. Performance is evaluated on an ongoing basis by reviewing program participation; program outcomes; and program development. The Executive Director submits an activities report to the board of directors at each board meeting.”

“Governing documents and financial statements are made available upon request.”

“Summer camp is a five day educational and recreational program for children and teens with bleeding disorders. The philosophy of our summer camp program is to empower campers to be healthy and active youngsters "just like any other kids" while learning to manage their bleeding disorder or learn about their sibling's bleeding disorder. The mission of the summer camp is to improve knowledge, attitudes, and behavorial skills of children with hemophilia or a similar bleeding disorder as well as accompanying siblings who do not have a bleeding disorder for developing a healthy, risk-reduced lifestyle. The goals of the summer camp program are to: 1. combine life skills education with outdoor adventure and fun for the development of self-esteem, confidence, team-building, and leadership skills through age and gender appropriate activities; 2. promote physical emotional, and mental wellness; 3. advocate risk-reducing behavior for optimal child development and prevention of complications for each child with a bleeding disorder.”

“Expenses: 52,595 The Annual Education Meeting and Summer Family Event is our largest yearly education event, which features several nationally known speakers who address topics pertinent to the bleeding disorders community in the realm of research advances, new and future treatment options as well as overall well-being. The Year-End Community Event provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor products and ancillary services and have an opportunity to meet and get acquainted with other families for support. Expenses: 121,273 Support Services include emergency financial assistance, Medic Alert emblems, bicycle helmets, post-secondary education scholarships, sponsorships for attending conferences, educational seminars, web site, newsletter, other support services, and allocation of overhead to programs.”