Central Fl Down Syndrome Assoc Inc D/B/A Down Syndrome Assoc of Central Fl

“The 990 will first be reviewed by the finance committee for accuracy and then finance provides a recommendation to the board of directors to approve the 990. Board of directors ultimately approved the 990.”

“All conflict of interest statements are reviewed and any possible conflicts are identified. Any potential conflict of interest would go to the governance committee for review and decision. All documentation and records of decision would be retained for disclosure.”

“If an existing or interim executive director is in place, that person would pull compensation for similar positions in central florida and provide this to the board of directors. If no interim or existing executive director is in place at the time of the search, a member of the hiring committee would pull this data for review by the board of directors. Board of directors established an agreed upon salary range, however, salary is then negotiated at the time of a job offer and any subsequent raises, bonus, or annual increases are also approved by the board of directors.”

“The organization's governing documents, conflict of interest policy and financial statements are available to the public via sunbiz.org, guidestar.org and central florida foundation nonprofit search. Also, the audited financial statements are posted in the organization's website.”

“Advocacy/outreach: 1. Low down on law: in partnership with the law firm of catherine e davey, p.a., the down syndrome association of central florida is able to provide two low down on law day workshops each year. Expert lawyers, judges, and officials in the central florida community come together to break down the legal complexities families with special needs must navigate for their loved ones. 2. Step up for down syndrome walk: a day of community celebration, families get together and celebrate their loved one with down syndrome. Families set up walk teams, raise funds, for the organization, and on the day of the walk, come out to walk and celebrate the abilities of their loved one. Community members learn about down syndrome and community partners can showcase their services, wares, etc. 3. Special clinic for special needs: adult and youth clinics. For the youth clinic, parents have the ability to meet with, interview and source providers for a range of specialties that children with down syndrome often encounter. For the adult clinic, medical screenings, not offered elsewhere are provided, free of cost. 4. Family fun day: in partnership with our local theme parks, dsacf is periodically able to provide complimentary tickets to theme parks so that families can enjoy a day of camaraderie and pampering, while celebrating their family members with down syndrome. Tickets are reserved for members who have an active, paid membership and capacity limits are dictated by each theme park”

“Education 1. New parent kit and welcome celebration: dsacf welcomes any new parents, who've recently received a down syndrome diagnosis or delivered a child with down syndrome, to our community by bringing them a welcome basket and new baby kit. Baskets include both baby basics items, items procured from our adult entrepreneurs, and valuable resources on down syndrome. Twice a year we host our new family celebration & brunch! At the new family celebration, families will have the opportunity to meet other new parents of a baby with down syndrome, parents a little further down the road, and get lots of information about down syndrome. 2. Therapies and workshops: dsacf offers a wide variety of therapies and workshops. Popular yearly offerings include: signing time, music with mar, joyful music, baby basics occupational therapy, and baby playgroup. 3. Preschool readiness camp: this three-week long camp provides an authentic school experience for children (ages 3-5) with down syndrome during the month of july in a supportive and fun environment. This is especially important for children who may be going to a new school in the fall or going to preschool for the very first time, so that they are better prepared and excited to learn. 4. Start with hello: six-week program in which teens will learn and practice communication skills, appropriate social interactions, boundaries, and more that will help them build friendships, succeed in school, and prepare for future employment.”

“Dues and membership: program service expenses 1,000. Management and general expenses 0. Fundraising expenses 583. Total expenses 1,583.”