Liabilities / Assets
65th percentile
Higher debt load relative to assets than 65% of similar nonprofits.
EIN 59-2918100 • 501(c)3 • North Kansas City, MO
Profile
The IFOPA's mission is to fund research to find a cure for Fibrodysplasia Ossificans Progressiva (FOP) while supporting individuals and their families through education, public awareness, and advocacy.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
65th percentile
Higher debt load relative to assets than 65% of similar nonprofits.
Liabilities / Revenue
71st percentile
Higher debt load relative to revenue than 71% of similar nonprofits.
Net Margin
11th percentile
Higher net margin than 11% of similar nonprofits.
Top Officer Pay
91st percentile
Higher top officer pay than 91% of similar nonprofits.
Top officer pay equals 8.8% of source-year revenue.
Asset Growth
12th percentile
Faster asset growth than 12% of similar nonprofits.
Revenue Growth
77th percentile
Faster revenue growth than 77% of similar nonprofits.
Assets
Down$3,492,725
Down $679,310 (-16%) from 2023
Liabilities
Down$630,798
Down $2,462 (-0.4%) from 2023
Net Assets
Down$2,861,927
Down $676,848 (-19%) from 2023
Revenue
Up$2,421,587
Up $611,557 (+34%) from 2023
Expenses
Down$3,105,043
Down $213,041 (-6.4%) from 2023
Net Income
Up-$683,456
Up $824,598 (+55%) from 2023
Most recent year
2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.
The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2022 below.
The ifopa's mission is to fund research to find a cure for fibrodysplasia ossificans progressiva (fop) while supporting individuals and their families through education, public awareness, and advocacy.
See schedule othe ifopa's mission is to fund research to find a cure for fibrodysplasia ossificans progressiva (fop) while supporting, connecting and advocating for individuals with fop and their families, and raising awareness worldwide.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $3,667,473 | $3,233,300 | ▼ $434,173 |
| Cash and Non-Interest-Bearing Accounts | $589,513 | $732,118 | ▲ $142,605 |
| Pledges and Grants Receivable | $1,044,647 | $631,166 | ▼ $413,481 |
| Intangible Assets | $262,169 | $235,995 | ▼ $26,174 |
| Accounts Receivable | $848 | $167,057 | ▲ $166,209 |
| Savings and Temporary Cash Investments | $160,312 | $58,304 | ▼ $102,008 |
| Prepaid Expenses and Deferred Charges | $98,757 | $18,443 | ▼ $80,314 |
| Inventories for Sale or Use | $6,198 | $0 | ▼ $6,198 |
| Land, Buildings, and Equipment, Net | $666 | $444 | ▼ $222 |
| Total Assets | $5,830,583 | $5,076,827 | ▼ $753,756 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $135,694 | $224,880 | ▲ $89,186 |
| Grants Payable | $52,825 | $77,949 | ▲ $25,124 |
| Total Liabilities | $188,519 | $302,829 | ▲ $114,310 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $2,793,430 | $2,421,669 | ▼ $371,761 |
| Net Assets Without Donor Restrictions | $2,848,634 | $2,352,329 | ▼ $496,305 |
| Total Net Assets Fund Balance | $5,642,064 | $4,773,998 | ▼ $868,066 |
| Total Liabilities and Net Assets / Fund Balance | $5,830,583 | $5,076,827 | ▼ $753,756 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $444 | $5,559 | $6,003 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Michelle Davis | Executive Director | FT | $165,687 | $8,979 | $174,666 |
| Danielle Kerkovich | Research Director | FT | $140,401 | $8,930 | $149,331 |
| Name | Title |
|---|---|
| Megan Olsen | Chair |
| Rebecca Wallace | Vice Chair |
| Amy Gordon | Director |
| Chris Bedford-gay | Director |
| Chrissy Flexer | Director |
| Danielle Fraser | Director |
| Hollie Schmidt | Director |
| Kerry Hueston | Director |
| Kristi Gonzales | Director |
| Kyle Brinkman | Director |
| Nadine Grossman | Director |
| Emma Albee | Secretary |
| Gary Mcguire | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,448,146 |
| Grants and Similar Amounts Paid | $1,177,802 |
| Salaries, Compensation, and Employee Benefits | $868,400 |
| Total Fundraising Expense | $222,611 |
| Professional Fundraising Fees | $8,315 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $880,471 | - | - | $880,471 |
| Fees for Services Other | $610,445 | $2,939 | $41,344 | $654,728 |
| Other Salaries and Wages | $462,334 | $72,402 | $75,174 | $609,910 |
| Foreign Grants | $291,635 | - | - | $291,635 |
| Information Technology | $183,962 | $17,548 | $8,289 | $209,799 |
| Current Officers, Directors, Trustees, and Key Employees | $118,773 | $34,934 | $20,959 | $174,666 |
| Conferences and Meetings | $125,568 | $5,210 | - | $130,778 |
| Travel | $79,004 | $1,348 | $7,405 | $87,757 |
| Fees for Services Accounting | $1,025 | $82,755 | - | $83,780 |
| Depreciation Depletion | $77,575 | $2,515 | - | $80,090 |
| Payroll Taxes | $45,314 | $6,402 | $7,989 | $59,705 |
| Fees for Services Legal | $38,940 | $1,935 | $1,043 | $41,918 |
| Office Expenses | $26,471 | $2,439 | $485 | $29,395 |
| Other Employee Benefits | $414 | $23,593 | $112 | $24,119 |
| Other Expenses | $6,493 | $1,311 | $10,256 | $18,060 |
| All Other Expenses | $2,184 | $9,112 | $152 | $11,448 |
| Occupancy | $1,000 | $7,684 | - | $8,684 |
| Fees for Services Professional Fundraising | - | - | $8,315 | $8,315 |
| Insurance | $1,964 | $4,420 | $309 | $6,693 |
| Grants to Domestic Individuals | $5,696 | - | - | $5,696 |
| Advertising | $4,395 | $150 | $282 | $4,827 |
| Total Functional Expenses | $2,979,468 | $300,584 | $222,611 | $3,502,663 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $3,630,021 |
| Expenses per Audited Statements | $3,502,663 |
| Total Expenses per Form 990 | $3,502,663 |
| Expenses Not Reported on Form 990 | $127,358 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Pennsylvania | Philadelphia, PA | - | Research | $599,618 |
| University of Massachusetts | Worcester, MA | - | Research | $200,000 |
| Emory University | Atlanta, GA | - | Research | $39,119 |
| Regents of the University of Michigan | Ann Arbor, MI | - | Research | $15,234 |
| Navrogen Inc | Glen Mills, PA | - | Research | $9,750 |
| Coriell Institute for Medical Research | Camden, NJ | - | Research | $8,000 |
| Regents of the University of California San Francisco | Los Angeles, CA | - | Research | $7,750 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $291,899 |
| Fundraising Gross Income | $140,593 |
| Professional Fundraising Fees | $8,315 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Pursuit of a Cure | $445,376 | - | $85,165 | - |
| Finding a Cure | $759,508 | $120,600 | $140,991 | $-20,391 |
| Total Events | $1,253,746 | $140,593 | $291,899 | $-151,306 |
“International fop association inc (ifopa) has entered into a relationship with trinet, a professional employer organization (peo). As a result, ifopa does not file form w-3 and employees are not reported directly by ifopa. The peo filed on behalf of 8 ifopa employees during the year. The amounts from these filings are reported on part ix, lines 5 and 7.”
“Membership in the organization is open to anyone with an interest in the organization and its purposes and activities. The organization has one class of membership.”
“Members of the organization have the power to elect directors of the organization.”
“The organization's top management official and top financial official each review the organization's form 990 prior to its filing with the irs. A copy of the final form 990 is also provided to the organization's governing body prior to its filing with the irs.”
“The chairperson of the board monitors all transactions entered into by the organization to determine if there is a conflict of interest, as defined in the organization's conflict of interest policy. If potential conflicts of interest arise, the conflict is discussed with the executive committee of the board for resolution in accordance with the procedures outlined in the conflicts of interest policy.”
“The organization has adopted an executive compensation setting policy applicable to all disqualified persons, including the organization's officers and key employees. Under the policy, an independent committee of the board of directors annually reviews and approves the compensation levels of all individuals subject to the policy. The deliberations and decisions of the committee are contemporaneously substantiated. The committee utilizes comparability data in its deliberations. Updated comparability data is generally obtained every two to three years.”
“The organization provides, upon request, copies of its articles of incorporation, bylaws, conflict of interest policy, and its financial statements.”
“Communications: program service expenses 119,256. Management and general expenses 0. Fundraising expenses 29,437. Total expenses 148,693. Other professional fees: program service expenses 491,189. Management and general expenses 2,939. Fundraising expenses 11,907. Total expenses 506,035.”
“The organization's board of directors, or a committee therof, assumes responsibility for the oversight of the audit of its financial statements and the selection of an independent accountant. This process has not changed from the prior year.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 135694 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 224880 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 848 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 167057 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | SEE SCHEDULE OTHE IFOPA'S MISSION IS TO FUND RESEARCH TO FIND A CURE FOR FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) WHILE SUPPORTING, CONNECTING AND ADVOCATING FOR INDIVIDUALS WITH FOP AND THEIR FAMILIES, AND RAISING AWARENESS WORLDWIDE. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 282 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 150 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 4395 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 4827 |
| IRS990/AllOtherContributionsAmt | 0 | 1825576 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 152 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 9112 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 2184 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 11448 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | BERGANKDV CHRIS HERME |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6122108993 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 3800 AMERICAN BOULEVARD WEST |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | BLOOMINGTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MN |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 55431 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 589513 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 732118 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 20959 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 34934 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 118773 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 174666 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 5210 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 125568 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 130778 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1113153 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2944223 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1177802 |
| IRS990/CYInvestmentIncomeAmt | 0 | 71594 |
| IRS990/CYOtherExpensesAmt | 0 | 1448146 |
| IRS990/CYOtherRevenueAmt | 0 | -147274 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 181638 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -452482 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 868400 |
| IRS990/CYTotalExpensesAmt | 0 | 3502663 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 222611 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 8315 |
| IRS990/CYTotalRevenueAmt | 0 | 3050181 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 2515 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 77575 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 80090 |
| IRS990/Desc | 0 | SEE SCHEDULE OMEDICAL RESEARCH: WITH A VISION TO CURE FOP, THE MAJORITY OF THE IFOPA'S BUDGET IS SPENT ON RESEARCH PROGRAMS AND SERVICES. THE GREATEST INVESTMENT IS THE FOP REGISTRY WHICH IS THE ONLY REGISTRY FOR FOP PATIENTS IN THE WORLD AND A CRITICAL TOOL FOR SCIENTIFIC RESEARCH. THE IFOPA ALSO DEDICATES A SIGNIFICANT PORTION OF FUNDING TO RESEARCH GRANTS, INCLUDING GRANTS TO THE UNIVERSITY OF PENNSYLVANIA'S CENTER FOR RESEARCH IN FOP AND RELATED DISORDERS. ADDITIONALLY, THE IFOPA FUNDS GRANTS THROUGH THE IFOPA'S ACT (ACCELERATING CURES AND TREATMENTS) FOR FOP GRANT PROGRAM AND GENE THERAPY AT THE UNIVERSITY OF MASSACHUSETTS. THE IFOPA ALSO SUPPORTS THE FOP BIOBANK AND A PRECLINICAL DRUG TESTING PROGRAM IN PARTNERSHIP WITH THE MAYO CLINIC. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 2793430 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 2421669 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2173305 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 5494 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 82755 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 1025 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 83780 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 1043 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 1935 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 38940 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 41918 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 41344 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 2939 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 610445 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 654728 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 8315 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 8315 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 291635 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 291635 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 8979 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 8930 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MEGAN OLSEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | REBECCA WALLACE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | EMMA ALBEE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | GARY MCGUIRE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CHRIS BEDFORD-GAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | KYLE BRINKMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | CHRISSY FLEXER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | DANIELLE FRASER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | KRISTI GONZALES |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | AMY GORDON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | NADINE GROSSMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | KERRY HUESTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | HOLLIE SCHMIDT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | MICHELLE DAVIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | DANIELLE KERKOVICH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 165687 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 140401 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | EXECUTIVE DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | RESEARCH DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1988 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1113153 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 291899 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 140593 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 7650 |
| IRS990/GamingActivitiesInd | 0 | 0 |
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| IRS990/GrantsPayableGrp/BOYAmt | 0 | 52825 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 77949 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 5696 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 5696 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 880471 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 880471 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 137462 |
| IRS990/GrossReceiptsAmt | 0 | 3471892 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 13 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartVInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 8289 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 17548 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 183962 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 209799 |
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| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1964 |
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| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 235995 |
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| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 444 |
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| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE IFOPA'S MISSION IS TO FUND RESEARCH TO FIND A CURE FOR FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) WHILE SUPPORTING, CONNECTING AND ADVOCATING FOR INDIVIDUALS WITH FOP AND THEIR FAMILIES, AND RAISING AWARENESS WORLDWIDE. |
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| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
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| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 4773998 |
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| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 1000 |
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| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 26471 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 29395 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
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| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 23593 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 414 |
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| IRS990/OtherExpensesGrp/Desc | 0 | REGISTRATION FEES |
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| IRS990/OtherExpensesGrp/Desc | 2 | PRINTING AND PUBLICATIO |
| IRS990/OtherExpensesGrp/Desc | 3 | POSTAGE AND SHIPPING |
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| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 13001 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 10256 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 446 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 23202 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 239 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 1311 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 4589 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 1815 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 9401 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 6493 |
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| IRS990/OtherExpensesGrp/TotalAmt | 1 | 25017 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 22641 |
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| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS REVENUE |
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| IRS990/OtherRevenueTotalAmt | 0 | 4032 |
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| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 462334 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 609910 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 7989 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 6402 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 45314 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 59705 |
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| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 631166 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
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| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 18443 |
| IRS990/PrincipalOfficerNm | 0 | MICHELLE DAVIS |
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| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 541700 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | PROGRAM SERVICE FEES |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | EVENT REGISTRATION |
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| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 38275 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | SEE SCHEDULE OEDUCATION AND SUPPORT PROGRAMS: SUPPORT, BOTH FUNCTIONAL AND EMOTIONAL, IS IMPERATIVE TO THE HEALTH OF THOSE LIVING WITH FOP AS WELL AS THEIR FAMILIES. STARTING IN 2018, THE IFOPA BEGAN A MAJOR EXPANSION OF OUR PROGRAMS AND SERVICES FOR FOP FAMILIES. IN ADDITION TO ONE-ON-ONE SUPPORT PROVIDED WHEN FAMILIES ARE NEWLY DIAGNOSED OR ARE LOOKING FOR TOOLS, TIPS AND HOME MODIFICATIONS TO HELP THEM LIVE MORE INDEPENDENTLY THROUGH OUR ABILITY TOOLBOX PROGRAM, THE IFOPA HAS DEVELOPED TWO PROGRAMS - RESILIENT LIVING AND THE ADVOCACY SERIES - TO SUPPORT THE MENTAL HEALTH AND PROBLEM-SOLVING SKILLS OF FOP FAMILIES. SINCE 2016, THE IFOPA HAS OFFERED AN ANNUAL FOP FAMILY GATHERING WHICH BECAME GLOBAL IN SCOPE STARTING IN 2020. THROUGH THE IFOPA'S INTERNATIONAL PRESIDENT'S COUNCIL WE WORK TO COORDINATE PROGRAMS AND SERVICES IN COUNTRIES AROUND THE WORLD. COMMUNITY SOCIAL EVENTS, INCLUDING THE IFOPA'S FRIENDSHIP OVER PAGES BOOK CLUB AND BEREAVED FAMILIES ONLINE MEETUPS, OFFER FAMILIES THE OPPORTUNITY TO STAY CONNECTED AND SUPPORT ONE ANOTHER. FINALLY, EDUCATING PATIENTS AND FAMILIES ABOUT CLINICAL STUDIES AND TRIALS IS CORE TO OUR MISSION TO ADVANCE THE DEVELOPMENT OF THE FIRST-EVER TREATMENTS FOR FOP. |
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| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 40828 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | SEE SCHEDULE OPUBLIC AWARENESS: FOP IS AN ULTRA-RARE DISEASE. VERY FEW PEOPLE HAVE HEARD OF FOP, LET ALONE KNOW ALL THAT IT ENTAILS - INCLUDING HEALTH CARE PROFESSIONALS. INCREASING AWARENESS AMONG HEALTH CARE PROFESSIONALS IS CRITICAL TO ENSURE THAT PATIENTS ARE DIAGNOSED EARLY, AVOID SEVERE COMPLICATIONS CAUSED BY MISDIAGNOSIS, GET ON THE PATH TO THE BEST MEDICAL CARE AND HAVE AN OPPORTUNITY TO PARTICIPATE IN CLINICAL STUDIES AND TRIALS. THROUGH OUR WEBSITE WHERE WE LIST CONTINUING MEDICAL EDUCATION PROGRAMS ON FOP FOR HEALTH CARE PROFESSIONALS, THE FOP FAMILY GATHERING AND VARIOUS PARTNERSHIPS, THE IFOPA WORKS TO INCREASE AWARENESS AND EDUCATION OF FOP AMONG HEALTH CARE PROFESSIONALS. SINCE 2021, WE HAVE PARTNERED WITH MEMBERS OF THE INTERNATIONAL PRESIDENT'S COUNCIL TO LAUNCH A GLOBAL FOP AWARENESS DAY CAMPAIGN WHICH INCLUDED SOCIAL MEDIA POSTS AND VIDEOS SHARED AROUND THE WORLD DURING THE MONTH OF APRIL. |
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| IRS990/PYOtherRevenueAmt | 0 | -66152 |
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| IRS990/PYTotalRevenueAmt | 0 | 3272897 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
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| IRS990/ReconcilationRevenueExpnssAmt | 0 | -452482 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 185670 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 160312 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 58304 |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3155551 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2523785 |
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