Civic Intelligence

Batten Disease Support and Research Association

EIN 56-1918696 • 501(c)3 • Raleigh, NC

Profile

Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.

6304 Bayswater TrailRaleigh, NC 27612

n/A

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2013

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.

Source year 2013

Net Margin

15th percentile

-46%

Higher net margin than 15% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2013

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

16th percentile

-57%

Faster asset growth than 16% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

Revenue Growth

16th percentile

-52%

Faster revenue growth than 16% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Down

$5,335

Down $7,109 (-57%) from 2012

Liabilities

$0

No earlier filing loaded for comparison.

Net Assets

Down

$5,335

Down $7,109 (-57%) from 2012

Operations
Liabilities / RevenueScore unavailableNet Margin15th percentile

Revenue

Down

$15,461

Down $17,077 (-52%) from 2012

Expenses

Down

$22,570

Down $15,130 (-40%) from 2012

Net Income

Down

-$7,109

Down $1,947 (-38%) from 2012

Trend Graphs

Balance Sheet Trend

Asset Growth16th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$20K$15K$10K$5.0K$0Assets 2011: $19,590Liabilities 2011: $02011Assets 2012: $12,444Net Assets 2012: $12,4442012Assets 2013: $5,335Liabilities 2013: $0Net Assets 2013: $5,3352013

Highlighted filing

2013

Assets$5,335
Liabilities$0
Net Assets$5,335
Open 2013 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$40K$20K$0-$20KRevenue 2011: $25,959Expenses 2011: $25,551Net Income 2011: $4082011Revenue 2012: $32,538Expenses 2012: $37,700Net Income 2012: -$5,1622012Revenue 2013: $15,461Expenses 2013: $22,570Net Income 2013: -$7,1092013

Highlighted filing

2013

Revenue$15,461
Expenses$22,570
Net Income-$7,109
Open 2013 Filing

Filings

Most recent year

2013 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,335
Liabilities
$0
Net assets
$5,335
Revenue
$15,461
Expenses
$22,570
Net income
-$7,109
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2013Detailed filing. Detailed filing data is available for this year.$5.34$0.00$5.34$15.5$22.6$7.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$12.4$12.4$32.5$37.7$5.16
2011Summary only. Only limited summary data is available for this year.$19.6$0.00$26.0$25.6$0.41
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
May 5, 2014
Return Version
2013v3.1
Gross Receipts
$15,461
Mission and Program Overview

Mission

Batten disease support & research association's mission is to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as batten disease.

Program Services

DescriptionGrantsExpenses
GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE$10,000-
CONFERENCES & CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE$7,000-
PROGRAMS WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE$5,570-
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
DEBORAH LOWTHERPresident-$0--
CHRIS HAWKINSVice President-$0--
CHARLES LEFFLERTreasurer-$0--
CONNIE CURTISDirector-$0--
CECELIA FIELDSDirector-$0--
WENDY HAWKINSDirector-$0--
WANDA LEFFLERDirector-$0--
CHRIS LOWDENDirector-$0--
DONNA MCCANNDirector-$0--
DEB TISZAISecretary-$0--
Filing and Contact Details

Filer

EIN
56-1918696
Phone
9195152155

Signing Officer

Name
Charles Leffler
Title
Treasurer
Signed
2014-05-05
Discuss with paid preparer
Yes

Preparer

Preparer
Fred W Laubie
Phone
6144810700
Supplemental Narrative

Additional Explanations

Other Expenses.1007

“Conferences, Conventions, and Meetings $7000”

Other Expenses.1

“RESEARCH AWARDS $10000”

Other Expenses.2

“FUNDRAISING COSTS $4063”

Other Expenses.3

“MEMORIAL EXPENSES $929”

Other Expenses.4

“DUES $300”

Raw XML Appendix191 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt5Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt6Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt7Director
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt8Director
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IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
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IRS990EZ/OrganizationHadUBIInd0false
IRS990EZ/OtherExpensesTotalAmt022292
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IRS990EZ/PrimaryExemptPurposeTxt0BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION'S MISSION IS TO BE AN INTERNATIONAL SUPPORT AND RESEARCH NETWORKING ORGANIZATION FOR FAMILIES OF CHILDREN AND YOUNG ADULTS WITH AN INHERITED NEUROLOGICAL DEGENERATIVE DISORDER KNOWN AS BATTEN DISEASE.
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IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt27000
IRS990EZ/ProhibitedTaxShelterTransInd0false
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Conferences, Conventions, and Meetings $7000
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ReturnHeader/BuildTS02015-11-30 17:44:51Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0CHARLES LEFFLER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02014-05-05
ReturnHeader/Filer/BusinessName/BusinessNameLine10BATTEN DISEASE SUPPORT & RESEARCH ASSOC
ReturnHeader/Filer/BusinessName/BusinessNameLine20SOUTHEAST CHAPTER
ReturnHeader/Filer/BusinessNameControlTxt0BATT
ReturnHeader/Filer/EIN0561918696
ReturnHeader/Filer/PhoneNum09195152155
ReturnHeader/Filer/USAddress/AddressLine106304 BAYSWATER TRAIL
ReturnHeader/Filer/USAddress/City0RALEIGH
ReturnHeader/Filer/USAddress/State0NC
ReturnHeader/Filer/USAddress/ZIPCode027612
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine10Laubie Karling & Associates LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine101041 Dublin Rd
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/State0OH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCode043215
ReturnHeader/PreparerPersonGrp/PhoneNum06144810700
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Fred W Laubie
ReturnHeader/ReturnTs02014-05-05T13:17:11-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02013-01-01
ReturnHeader/TaxPeriodEndDt02013-12-31
ReturnHeader/TaxYr02013

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