Civic Intelligence

Solve Me Cfs Initiative Inc.

990 • Fiscal year 2019 • EIN 56-1683450

Jul 01, 2018 to Jun 30, 2019 • Filed on May 07, 2020

Organization ProfileWWW.SOLVECFS.ORG

View Organization Page

350 N Glendale Blvd Ste B No 368Glendale, CA 91206

(704) 364-0016

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

46th percentile

0.06x

Higher debt load relative to assets than 46% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

33rd percentile

0.03x

Higher debt load relative to revenue than 33% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

82nd percentile

26%

Higher net margin than 82% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

85th percentile

$163,600

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 6.3% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

93rd percentile

71%

Faster asset growth than 93% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

88th percentile

52%

Faster revenue growth than 88% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets46th percentile

Assets

Up

$1,434,405

Up $596,400 (+71%) from 2018

Net Assets

Up

$1,349,075

Up $674,805 (+100%) from 2018

Liabilities

Down

$85,330

Down $78,405 (-48%) from 2018

Revenue And Expenses
Liabilities / Revenue33rd percentileNet Margin82nd percentile

Revenue

Up

$2,596,294

Up $882,998 (+52%) from 2018

Expenses

Up

$1,921,489

Up $125,215 (+7.0%) from 2018

Net Income

Up

$674,805

Up $757,783 (+913%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth93rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $1,133,588Liabilities 2011: $53,698Net Assets 2011: $1,079,8902011Assets 2012: $1,036,291Liabilities 2012: $100,368Net Assets 2012: $935,9232012Assets 2013: $1,803,772Liabilities 2013: $58,780Net Assets 2013: $1,744,9922013Assets 2014: $1,746,808Liabilities 2014: $81,956Net Assets 2014: $1,664,8522014Assets 2015: $1,172,410Liabilities 2015: $84,703Net Assets 2015: $1,087,7072015Assets 2016: $1,003,457Liabilities 2016: $69,503Net Assets 2016: $933,9542016Assets 2017: $879,527Liabilities 2017: $122,279Net Assets 2017: $757,2482017Assets 2018: $838,005Liabilities 2018: $163,735Net Assets 2018: $674,2702018Assets 2019: $1,434,405Liabilities 2019: $85,330Net Assets 2019: $1,349,0752019Assets 2020: $2,460,484Liabilities 2020: $295,849Net Assets 2020: $2,164,6352020Assets 2021: $1,880,953Liabilities 2021: $291,942Net Assets 2021: $1,589,0112021Assets 2022: $3,950,139Liabilities 2022: $430,039Net Assets 2022: $3,520,1002022Assets 2023: $2,188,069Liabilities 2023: $485,906Net Assets 2023: $1,702,1632023Assets 2024: $1,074,263Liabilities 2024: $313,990Net Assets 2024: $760,2732024

Highlighted filing

2019

Assets$1,434,405
Liabilities$85,330
Net Assets$1,349,075
Open 2019 Filing

Operations Trend

Revenue Growth88th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2011: $1,219,911Expenses 2011: $1,119,645Net Income 2011: $100,2662011Expenses 2012: $1,248,1362012Revenue 2013: $2,281,889Expenses 2013: $1,470,852Net Income 2013: $811,0372013Revenue 2014: $1,316,641Expenses 2014: $1,396,781Net Income 2014: -$80,1402014Revenue 2015: $1,381,984Expenses 2015: $1,643,842Net Income 2015: -$261,8582015Revenue 2016: $620,843Expenses 2016: $575,295Net Income 2016: $45,5482016Revenue 2017: $1,798,173Expenses 2017: $1,925,767Net Income 2017: -$127,5942017Revenue 2018: $1,713,296Expenses 2018: $1,796,274Net Income 2018: -$82,9782018Revenue 2019: $2,596,294Expenses 2019: $1,921,489Net Income 2019: $674,8052019Revenue 2020: $3,669,548Expenses 2020: $2,788,306Net Income 2020: $881,2422020Revenue 2021: $2,192,325Expenses 2021: $2,767,949Net Income 2021: -$575,6242021Revenue 2022: $5,520,483Expenses 2022: $3,466,562Net Income 2022: $2,053,9212022Revenue 2023: $2,037,881Expenses 2023: $3,812,598Net Income 2023: -$1,774,7172023Revenue 2024: $1,947,106Expenses 2024: $2,847,006Net Income 2024: -$899,9002024

Highlighted filing

2019

Revenue$2,596,294
Expenses$1,921,489
Net Income$674,805
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2018 to Jun 30, 2019
Signed
May 7, 2020
Return Version
2018v3.1
Gross Receipts
$2,597,628
Mission and Program Overview

Mission

The solve me/cfs initiative (solve m.e.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (me/cfs), long covid and other (continued on sch. O) post-infection diseases. Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies, and alliances with patient groups around the world are laying the foundation for breakthroughs that can improve the lives of millions who suffer from various ''long haul'' diseases.

The solve me/cfs initiative (smci) is a leading organization focused on me/cfs.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$612,121$1,054,016▲ $441,895
Savings and Temporary Cash Investments$187,073$187,767▲ $694
Accounts Receivable-$140,038-
Prepaid Expenses and Deferred Charges$17,182$28,532▲ $11,350
Investments in Publicly Traded Securities$16,822$22,584▲ $5,762
Land, Buildings, and Equipment, Net$4,807$1,468▼ $3,339
Total Assets$838,005$1,434,405▲ $596,400
Liabilities
Accounts Payable and Accrued Expenses$116,757$69,815▼ $46,942
Other Liabilities$46,978$15,515▼ $31,463
Total Liabilities$163,735$85,330▼ $78,405
Net Assets / Fund Balance
Unrestricted Net Assets$607,413$1,193,424▲ $586,011
Temporarily Rstr Net Assets$60,857$149,651▲ $88,794
Permanently Rstr Net Assets$6,000$6,000→ $0
Total Net Assets Fund Balance$674,270$1,349,075▲ $674,805
Total Liabilities and Net Assets / Fund Balance$838,005$1,434,405▲ $596,400

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,468$67,113$68,581

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$17,222---$17,222
2017$16,825$400▼ $3-$17,222
2016$15,543$200▲ $1,082-$16,825
2015$15,543---$15,543
2014$15,431-▲ $112-$15,543
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Carol HeadDirector-$163,600$163,600
Carolyn MayoDirector of DevelopmentFT$114,874$114,874

Board Members and Trustees

NameTitle
John NicolsChair
Victoria BoiesVice-chair
Andrea BankoskiDirector
Barbara LubashDirector
Christine Williams MedDirector
Diane Reimer BeanDirector
Janice StantonDirector
Rick SproutDirector
Rona E KramerDirector
William HasslerDirector
Maryellen GleasonInterim Pres & CEO
Beth GarfieldSecretary
Mike AthertonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,594,708
Program Service Revenue
$0
Investment Income
$786
Other Revenue
$800
All Other Contributions
$2,594,708
Change in Net Assets
$674,805

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,596,294
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$66,511
Total Revenue per Audited Statements
$2,662,805
Total Revenue per Form 990
$2,596,294
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$948,058
Other Expenses$740,521
Total Fundraising Expense$291,019
Grants and Similar Amounts Paid$223,500
Professional Fundraising Fees$9,410

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$418,672$34,473$81,064$534,209
Current Officers, Directors, Trustees, and Key Employees$218,246$17,970$42,258$278,474
Grants to Domestic Orgs$135,000--$135,000
Foreign Grants$88,500--$88,500
Payroll Taxes$44,427$5,464$16,233$66,124
Occupancy$31,106$14,139$11,311$56,556
Travel$38,876$9,241$8,226$56,343
Other Expenses$43,888$5,812$4,649$54,349
Pension Plan Contributions$26,374$7,285$9,176$42,835
Information Technology$38,009--$38,009
All Other Expenses$19,028$1,504$14,020$34,552
Other Employee Benefits$16,265$4,492$5,659$26,416
Office Expenses$11,472$5,714$4,172$21,358
Fees for Services Accounting$9,282$1,878$3,840$15,000
Insurance$5,310$2,414$1,931$9,655
Fees for Services Professional Fundraising--$9,410$9,410
Depreciation Depletion$1,102$501$401$2,004
Total Functional Expenses$1,487,833$142,637$291,019$1,921,489

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,988,000
Expenses per Audited Statements$1,921,489
Total Expenses per Form 990$1,921,489
Expenses Not Reported on Form 990$66,511
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Nova Southeastern UniversityFort Lauderdale, FL-To Conquer Myalgic Encephalomyelitis/chronic Fatigue Syndrome (me/cfs).$32,500
Hudsonalpha FoundationHuntsville, AL-To Conquer Myalgic Encephalomyelitis/chronic Fatigue Syndrome (me/cfs).$22,500
Stanford UniversityStanford, CA-To Conquer Myalgic Encephalomyelitis/chronic Fatigue Syndrome (me/cfs).$20,000
Tufts UniversityMedford, MA-To Conquer Myalgic Encephalomyelitis/chronic Fatigue Syndrome (me/cfs).$20,000
University of Nevada RenoReno, NV-To Conquer Myalgic Encephalomyelitis/chronic Fatigue Syndrome (me/cfs).$20,000
University of VermontBurlington, VT-To Conquer Myalgic Encephalomyelitis/chronic Fatigue Syndrome (me/cfs).$20,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$9,410
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll and Vacation Accruals$15,515
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The financial oversight committee (foc) is responsible for reviewing the organization's form 990 and providing comments prior to it being submitted to the internal revenue service (irs). The foc consists of the board chair, board vice-chair, board treasurer and president and ceo. All members of the board of directors receive a copy of the reviewed form 990 prior to its submission to the irs, but are not required to provide comments.”

Form 990, Part VI, Section B, Line 12C

“The organization's form 990 and annual report are available on its website www.solvecfs.org. These reports are also available on guidestar's website for visitors to that organization. Upon request, the organization will make available copies of its audited financial statements, form 1023, governing by-laws and conflict of interest policy.”

Form 990, Part VI, Section B, Line 15A

“Employees of the organization undergo periodic performance and compensation reviews. Compensation level is determined upon performance, market and the financial position of the organization. The president performs all reviews, except for the position of president which is done by members of the professional staff recruiting and compensation committee (psrcc). This committee is comprised of the executive committee of the board of directors. To ensure salary compensation is comparable to similar organizations, the committee consults with published salary surveys, including by not limited to guidestar and the national center for non-profits. All reviews include a written document which is discussed in person with the employee. Employees also provide a self-assessment as well as an evaluation of their immediate supervisor. Written reviews and self-assessments are kept in each employee's personnel file in a locked cabinet.”

Form 990, Part VI, Section C, Line 19

“The organization's tax return and annual report are available on its website (www.solvecfs.org). The organization's governing documents and conflict of interest policy are available upon request.”

Filing and Contact Details

Filer

Filer Name
Solve Mecfs Initiative Inc
EIN
56-1683450
Phone
7043640016
Address
350 N GLENDALE BLVD STE B NO 368, GLENDALE, CA 91206

Signing Officer

Name
Maryellen Gleason
Title
Interim Pres & CEO
Phone
7043640016
Signed
2020-05-07

Organization Details

Principal Officer
Maryellen Gleason
Formed
1987
Legal Domicile
Nc
Voting Board Members
14
Independent Board Members
13
Employees
13
Volunteers
0

Preparer

Firm
Quigley & Miron
Address
3550 WILSHIRE BLVD 1660, LOS ANGELES, CA 90010
Preparer
John Bovard Miron
Phone
2136393550
Supplemental Narrative

Additional Explanations

Form 990, Page 12, Part XII, Line 2C

“During the year ended june 30, 2019, there was no change in the organization's oversight process of the audit of its financial statements or the organization's selection process of its independent accountant.”

Financial Statement Notes

PART V, LINE 4:

“Spending policy and how the investment objectives relate to spending policy.smci has a policy governing the amount of endowment earnings that can be released annually for spending, consistent with the restrictions, if any, placed on the endowment by donors until those amounts are appropriated for expenditure under the annual spending policy. Amounts available for distribution from the fund are based upon 4.5% of the fundfs average balance for the previous three years and are evaluated on an annual basis for prudence. In establishing this policy, smci considered the long]term expected return on its endowment. Accordingly, over the long term, smci expects the current spending policy to allow its endowment to grow at an amount that will at least keep pace with expected inflation.”

PART X, LINE 2:

“Accounting standards require an organization to evaluate its tax positions and provide for a liability for any positions that would not be considered 'more likely than not' to be upheld under a tax authority examination. Management has evaluated its tax positions and has concluded that a provision for a tax liability is not necessary at june 30, 2019.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE SOLVE ME/CFS INITIATIVE (SMCI) IS A LEADING ORGANIZATION FOCUSED ON ME/CFS.
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IRS990/Desc0RESEARCH. IN 2018/2019 SOLVE M.E. FUNDED SEVEN RESEARCH PROJECTS, AS THE THIRD CLASS OF RAMSAY GRANTS FOR ME/CFS RESEARCH. BUILDING ON 2018/2019 MOMENTUM, IN 2019/2020 WE APPROVED FUNDING FOR 7 NEW STUDIES AND WELCOMED 30 INVESTIGATORS AND COLLABORATORS, INCLUDING 6 EARLY CAREER STAGE SCIENTISTS, TO THE PROGRAM. OVER HALF OF THESE RESEARCH TEAMS IN THE 2019/2010 CLASS INCLUDE A PRINCIPAL INVESTIGATOR (PI) LEADING AN ME/CFS STUDY FOR THE FIRST TIME. RESEARCHERS IN THE 2019/2020 CLASS REPRESENT THE UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL, UNIVERSITY OF UTAH, JOINT GENOME INSTITUTE AT UNIVERSITY OF CALIFORNIA BERKELEY, STANFORD UNIVERSITY, HARVARD UNIVERSITY, UNIVERSITY OF NAVARRA (SPAIN), LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE (LONDON), AND FH JOANNEUM (AUSTRIA).WITH THE GOAL OF STRENGTHENING THE GLOBAL ME/CFS RESEARCH INFRASTRUCTURE, WE SUBMITTED A NATIONAL INSTITUTES OF HEALTH (NIH) GRANT FOR A RAMSAY RESEARCHER CONFERENCE TO BE HELD IN 2020 CONVENING ALL CURRENT AND PAST RAMSAY RESEARCHERS TO SHARE RESULTS FROM THEIR WORK AND BRAINSTORM COLLABORATIVE RESEARCH PROJECTS THAT BUILD ON RAMSAY PILOT DATA. AS PART OF A GLOBAL INITIATIVE TO CREATE A LARGE AND USEFUL DATABASE FOR MEDICAL RESEARCHERS, SOLVE M.E. CONTINUED TO DEVELOP TOOLS FOR THE YOU + M.E. REGISTRY AND BIOBANK THAT WILL ENABLE PEOPLE LIVING WITH ME/CFS TO CONTRIBUTE HEALTH INFORMATION TO A RICH REPOSITORY OF DATA AVAILABLE TO RESEARCHERS AROUND THE WORLD. SELECT MEMBERS OF THE ME/CFS COMMUNITY HELPED US BETA TEST A MOBILE APPLICATION TO RECORD HEALTH INFORMATION ON AN ONGOING BASIS, AND THE TESTER FEEDBACK WAS INCORPORATED TO MAKE THE APP READY FOR THE YOU + M.E. LAUNCH. AS PART OF THE BETA TEST WE ENGAGED PATIENTS AND THEIR CAREGIVERS TO HELP DESIGN THE FINAL PLATFORM THAT INCLUDED FEATURES SUCH AS A MOBILE SYMPTOM TRACKING APP AS WELL AS THE ABILITY TO INPUT DATA VIA AN ONLINE DATA ENTRY PORTAL.TOWARDS OUR OBJECTIVE OF KEEPING OUR ME/CFS COMMUNITY UP-TO-DATE ON BREAKTHROUGHS AND DEVELOPMENTS IN MEDICAL RESEARCH, WE CONDUCTED SEVERAL WEBINARS ATTRACTING NEAR 1,000 ATTENDEES AND OPEN TO THE ME/CFS COMMUNITY AT NO COST. UPCOMING WEBINAR TOPICS INCLUDE: GENETIC PREDISPOSITION FOR IMMUNE SYSTEM, HORMONE, AND METABOLIC DYSFUNCTION IN MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME: A PILOT STUDY; ME/CFS IN THE ERA OF THE HUMAN MICROBIOME: PERSISTENT PATHOGENS DRIVE CHRONIC SYMPTOMS BY INTERFERING WITH HOST METABOLISM, GENE EXPRESSION, AND IMMUNITY; ESTIMATING PREVALENCE, DEMOGRAPHICS, AND COSTS OF ME/CFS USING LARGE SCALE MEDICAL CLAIMS DATA AND MACHINE LEARNING.OUR CHIEF SCIENTIFIC OFFICER, DR. SADIE WHITTAKER PRESENTED ON THE RAMSAY RESEARCH PROGRAM TO A ROOM FULL OF EARLY CAREER RESEARCHERS AT THE "THINKING THE FUTURE" BREAKOUT SESSION AT THE 14TH INVEST IN M.E. RESEARCH INTERNATIONAL ME/CFS CONFERENCE IN LONDON IN JUNE 2019. FINALIZED RESEARCH PLAN FOR RNAI RESEARCH PROJECT AT MEMORIAL SLOAN KETTERING CANCER CENTER.
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IRS990/Form990PartVIISectionAGrp/PersonNm0BETH GARFIELD
IRS990/Form990PartVIISectionAGrp/PersonNm1RONA E KRAMER
IRS990/Form990PartVIISectionAGrp/PersonNm2MARYELLEN GLEASON
IRS990/Form990PartVIISectionAGrp/PersonNm3CHRISTINE WILLIAMS MED
IRS990/Form990PartVIISectionAGrp/PersonNm4DIANE REIMER BEAN
IRS990/Form990PartVIISectionAGrp/PersonNm5ANDREA BANKOSKI
IRS990/Form990PartVIISectionAGrp/PersonNm6JOHN NICOLS
IRS990/Form990PartVIISectionAGrp/PersonNm7MIKE ATHERTON
IRS990/Form990PartVIISectionAGrp/PersonNm8RICK SPROUT
IRS990/Form990PartVIISectionAGrp/PersonNm9BARBARA LUBASH
IRS990/Form990PartVIISectionAGrp/PersonNm10JANICE STANTON
IRS990/Form990PartVIISectionAGrp/PersonNm11VICTORIA BOIES
IRS990/Form990PartVIISectionAGrp/PersonNm12WILLIAM HASSLER
IRS990/Form990PartVIISectionAGrp/PersonNm13CAROL HEAD
IRS990/Form990PartVIISectionAGrp/PersonNm14CAROLYN MAYO
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IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2INTERIM PRES & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt7TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11VICE-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR OF DEVELOPMENT
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IRS990/MissionDesc0THE SOLVE ME/CFS INITIATIVE (SMCI)IS THE LEADING ORGANIZATION FOCUSED ON MYALGIC ENCEPHALOMYELITIS (ME)/CHRONIC FATIGUE SYNDROME (CFS), SINCE BEING FOUNDED IN 1987. SMCI ENVISIONS A WORLD FREE OF ME/CFS AND WORKS STEADFASTLY TO MAKE THIS DISEASE UNDERSTOOD, DIAGNOSABLE, AND TREATABLE. SMCI SEEKS TO ACTIVELY ENGAGE THE ENTIRE ME/CFS COMMUNITY IN RESEARCH, WORKS TO ACCELERATE THE DISCOVERY OF SAFE AND EFFECTIVE TREATMENTS, AND STRIVES FOR AN AGGRESSIVE EXPANSION OF FUNDING TOWARD A CURE.
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IRS990/OtherExpensesGrp/Desc1PRINTING AND POSTAGE
IRS990/OtherExpensesGrp/Desc2RESEARCH
IRS990/OtherExpensesGrp/Desc3ADVOCACY AND COMMUNICAT
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IRS990/OtherExpensesGrp/FundraisingAmt20
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IRS990/PrincipalOfficerNm0MARYELLEN GLEASON
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IRS990/ProgSrvcAccomActy2Grp/Desc0ADVOCACY AND PATIENT ENGAGEMENT.AS PART OF OUR ONGOING EFFORTS TO INCREASE FUNDING FOR ME/CFS AT THE FEDERAL LEVEL, WE ADDED FIVE NEW NATIONAL COALITION AND ADVOCACY PARTNERSHIPS DESIGNED TO ACCELERATE OUR STRATEGIES TO APPROPRIATE FUNDS FOR ME/CFS MEDICAL RESEARCH. AS PART OF OUR EXPANDED ADVOCACY IMPACT, WE WORKED WITH OUR ME/CFS CONSTITUENTS TO DELIVER OVER 15,500 ONLINE MESSAGES TO CONGRESS. AND TOGETHER WITH OUR EXPANDED COALITIONS AND COMMUNICATION PROGRAMS, WE WORKED TO INFLUENCE CONGRESSIONAL APPROPRIATIONS ACTIONS.;WE STAGED THE 3RD ANNUAL ME/CFS ADVOCACY WEEK AND ADVOCACY DAY ON CAPITOL HILL IN WASHINGTON, DC. THE 246 REGISTERED ME/CFS PATIENT AND ADVOCATE ATTENDEES ATTENDING 185 MEETINGS WITH MEMBERS OF U.S. CONGRESS AND THEIR STAFFS. WORKED WITH UNREST FILM DISTRIBUTORS TO ENHANCE SCREENINGS AND VIEWINGS.AS PART OF OUR ME/CFS ADVOCACY WEEK ACTIVITIES, WE DEVELOPED AND LAUNCHED "EMPOWER M.E." IN NEARBY BETHESDA, MD, STAGING THE FIRST EVER PATIENT EDUCATION CONFERENCE DEDICATED TO EMPOWERING PATIENTS AND CAREGIVERS IN THE MEDICAL AND ADVOCACY ENVIRONMENTS, AND GIVING OUR COMMUNITY TOOLS TO BETTER COMMUNICATE WITH THEIR MEDICAL PROVIDERS. THE CONFERENCE INCLUDED EXERCISES AND IDEAS FOR EMPOWERING PATIENTS, WITH THE THEME BEING: EMPOWERMENT IN THE DOCTOR'S OFFICE: OVERCOMING WHITE COAT SYNDROME. FOR THOSE UNABLE TO ATTEND IN PERSON, THE CONFERENCE WAS LIVESTREAMED AND IS NOW AVAILABLE ON THE SOLVE M.E. YOUTUBE PAGE AND FOR PURCHASE ON DVD. THE "EMPOWER M.E." CONFERENCE FEATURED PROMINENT ME/CFS RESEARCHERS, INCLUDING DR. NANCY KLIMAS AND DR. CAMILLE BIRCH, AS WELL AS DR. BIRCH'S PARTNER AND CAREGIVER DR. ERIC BRAUN. OVERALL OUTCOMES FROM THE CONFERENCE INCLUDED EXPANSION OF OUR SUPPORT BASE, AS EVIDENCED BY INCREASED CONTRIBUTIONS AND E-MAIL REGISTRATIONS ON OUR SOLVE M.E. WEBSITE.EXPANSION OF OUR ADVOCACY EDUCATION PROGRAM CONTINUED THROUGH CREATION AND STAGING OF 19 IN-PERSON AND ONLINE MEDICAL AND COMMUNITY EDUCATION PRESENTATIONS DESIGNED TO TRAIN THE ME/CFS COMMUNITY ON CONTACTING REPRESENTATIVES AND EFFECTIVE MODES OF COMMUNICATING KEY ME/CFS ISSUES. ONE POPULAR ADVOCACY WEBINAR WAS FIGHTING THE GOOD FIGHT: NAVIGATING THE ERISA DISABILITY PROCESS FOR THOSE WITH ME/CFS.
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,434,405
Liabilities
$85,330
Net assets
$1,349,075
Revenue
$2,596,294
Expenses
$1,921,489
Net income
$674,805
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.07$0.31$0.76$1.95$2.85$0.90
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.19$0.49$1.70$2.04$3.81$1.77
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.95$0.43$3.52$5.52$3.47$2.05
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.88$0.29$1.59$2.19$2.77$0.58
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.46$0.30$2.16$3.67$2.79$0.88
2019Detailed filing. Detailed filing data is available for this year.$1.43$0.09$1.35$2.60$1.92$0.67
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.84$0.16$0.67$1.71$1.80$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.88$0.12$0.76$1.80$1.93$0.13
2016Summary only. Only limited summary data is available for this year.$1.00$0.07$0.93$0.62$0.58$0.05
2015Detailed filing. Detailed filing data is available for this year.$1.17$0.08$1.09$1.38$1.64$0.26
2014Summary only. Only limited summary data is available for this year.$1.75$0.08$1.66$1.32$1.40$0.08
2013Detailed filing. Detailed filing data is available for this year.$1.80$0.06$1.74$2.28$1.47$0.81
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.04$0.10$0.94$1.25
2011Summary only. Only limited summary data is available for this year.$1.13$0.05$1.08$1.22$1.12$0.10