Civic Intelligence

Hemophilia of North Carolina Inc

EIN 56-1273974 • 501(c)3 • Cary, NC

Profile

Dedicated to improving the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research and delivery of supportive programs and services.

130 Iowa Lane 203Cary, NC 27511

www.hemophilia-nc.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

23rd percentile

0.00x

Higher debt load relative to assets than 23% of similar nonprofits.

NTEE P • $1M-$5M nonprofits • Source year 2025

Liabilities / Revenue

24th percentile

0.01x

Higher debt load relative to revenue than 24% of similar nonprofits.

NTEE P • $1M-$5M nonprofits • Source year 2025

Net Margin

75th percentile

21%

Higher net margin than 75% of similar nonprofits.

NTEE P • $1M-$5M nonprofits • Source year 2025

Top Officer Pay

59th percentile

$94,963

Higher top officer pay than 59% of similar nonprofits.

Top officer pay equals 12.6% of source-year revenue.

NTEE P • $1M-$5M nonprofits • Source year 2025

Asset Growth

67th percentile

12%

Faster asset growth than 67% of similar nonprofits.

NTEE P • $1M-$5M nonprofits • Annualized from 2024 to 2025

Revenue Growth

31st percentile

-2.9%

Faster revenue growth than 31% of similar nonprofits.

NTEE P • $1M-$5M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets23rd percentile

Assets

Up

$1,369,718

Up $151,877 (+12%) from 2024

Liabilities

Down

$5,832

Down $4,450 (-43%) from 2024

Net Assets

Up

$1,363,886

Up $156,327 (+13%) from 2024

Operations
Liabilities / Revenue24th percentileNet Margin75th percentile

Revenue

Down

$751,017

Down $22,689 (-2.9%) from 2024

Expenses

Down

$594,690

Down $44,903 (-7.0%) from 2024

Net Income

Up

$156,327

Up $22,214 (+17%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth67th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2011: $141,353Liabilities 2011: $2,126Net Assets 2011: $139,2272011Assets 2012: $111,755Liabilities 2012: $3,426Net Assets 2012: $108,3292012Assets 2013: $129,281Liabilities 2013: $4,633Net Assets 2013: $124,6482013Assets 2014: $172,785Liabilities 2014: $2,861Net Assets 2014: $169,9242014Assets 2015: $212,160Liabilities 2015: $3,073Net Assets 2015: $209,0872015Assets 2016: $229,463Liabilities 2016: $3,988Net Assets 2016: $225,4752016Assets 2017: $312,565Liabilities 2017: $4,271Net Assets 2017: $308,2942017Assets 2018: $457,054Liabilities 2018: $4,330Net Assets 2018: $452,7242018Assets 2019: $533,923Liabilities 2019: $5,299Net Assets 2019: $528,6242019Assets 2020: $704,599Liabilities 2020: $39,760Net Assets 2020: $664,8392020Assets 2021: $933,052Liabilities 2021: $6,681Net Assets 2021: $926,3712021Assets 2022: $1,009,537Liabilities 2022: $14Net Assets 2022: $1,009,5232022Assets 2023: $1,084,537Liabilities 2023: $11,091Net Assets 2023: $1,073,4462023Assets 2024: $1,217,841Liabilities 2024: $10,282Net Assets 2024: $1,207,5592024Assets 2025: $1,369,718Liabilities 2025: $5,832Net Assets 2025: $1,363,8862025

Highlighted filing

2025

Assets$1,369,718
Liabilities$5,832
Net Assets$1,363,886
Open 2025 Filing

Operations Trend

Revenue Growth31st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2011: $300,263Expenses 2011: $303,684Net Income 2011: -$3,4212011Revenue 2012: $358,992Expenses 2012: $389,890Net Income 2012: -$30,8982012Revenue 2013: $375,677Expenses 2013: $359,358Net Income 2013: $16,3192013Revenue 2014: $339,471Expenses 2014: $294,195Net Income 2014: $45,2762014Revenue 2015: $321,504Expenses 2015: $282,341Net Income 2015: $39,1632015Revenue 2016: $321,545Expenses 2016: $305,157Net Income 2016: $16,3882016Revenue 2017: $466,657Expenses 2017: $383,838Net Income 2017: $82,8192017Revenue 2018: $556,474Expenses 2018: $412,043Net Income 2018: $144,4312018Revenue 2019: $539,010Expenses 2019: $463,111Net Income 2019: $75,8992019Revenue 2020: $550,765Expenses 2020: $414,550Net Income 2020: $136,2152020Revenue 2021: $615,076Expenses 2021: $353,545Net Income 2021: $261,5312021Revenue 2022: $616,707Expenses 2022: $533,555Net Income 2022: $83,1522022Revenue 2023: $644,892Expenses 2023: $580,969Net Income 2023: $63,9232023Revenue 2024: $773,706Expenses 2024: $639,593Net Income 2024: $134,1132024Revenue 2025: $751,017Expenses 2025: $594,690Net Income 2025: $156,3272025

Highlighted filing

2025

Revenue$751,017
Expenses$594,690
Net Income$156,327
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,369,718
Liabilities
$5,832
Net assets
$1,363,886
Revenue
$751,017
Expenses
$594,690
Net income
$156,327
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.37$0.01$1.36$0.75$0.59$0.16
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.22$0.01$1.21$0.77$0.64$0.13
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.08$0.01$1.07$0.64$0.58$0.06
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.01$0.00$1.01$0.62$0.53$0.08
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.93$0.01$0.93$0.62$0.35$0.26
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.70$0.04$0.66$0.55$0.41$0.14
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.53$0.01$0.53$0.54$0.46$0.08
2018Summary only. Only limited summary data is available for this year.$0.46$0.00$0.45$0.56$0.41$0.14
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.31$0.00$0.31$0.47$0.38$0.08
2016Summary only. Only limited summary data is available for this year.$0.23$0.00$0.23$0.32$0.31$0.02
2015Summary only. Only limited summary data is available for this year.$0.21$0.00$0.21$0.32$0.28$0.04
2014Summary only. Only limited summary data is available for this year.$0.17$0.00$0.17$0.34$0.29$0.05
2013Summary only. Only limited summary data is available for this year.$0.13$0.00$0.12$0.38$0.36$0.02
2012Summary only. Only limited summary data is available for this year.$0.11$0.00$0.11$0.36$0.39$0.03
2011Summary only. Only limited summary data is available for this year.$0.14$0.00$0.14$0.30$0.30$0.00
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Dec 9, 2025
Return Version
2024v5.2
Gross Receipts
$780,424
Mission and Program Overview

Mission

Dedicated to improving the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research and delivery of supportive programs and services.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$567,656$617,723▲ $50,067
Savings and Temporary Cash Investments$529,177$529,293▲ $116
Cash and Non-Interest-Bearing Accounts$104,305$208,899▲ $104,594
Land, Buildings, and Equipment, Net$13,381$8,212▼ $5,169
Prepaid Expenses and Deferred Charges$3,322$3,758▲ $436
Total Assets$1,217,841$1,369,718▲ $151,877
Other Assets Total-$1,833-
Liabilities
Accounts Payable and Accrued Expenses$10,282$5,832▼ $4,450
Total Liabilities$10,282$5,832▼ $4,450
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,137,928$1,281,346▲ $143,418
Net Assets With Donor Restrictions$69,631$82,540▲ $12,909
Total Net Assets Fund Balance$1,207,559$1,363,886▲ $156,327
Total Liabilities and Net Assets / Fund Balance$1,217,841$1,369,718▲ $151,877

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$8,212$22,848$31,060
Other Securities$617,723--
Compensation and Service Providers
Top Officer Pay59th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Charlene CowellExecutive DirectorFT$94,963$94,963

Board Members and Trustees

NameTitle
Karyn DavisPresident
Anita SmithBoard Member
Ann SkinnerBoard Member
April EvansBoard Member
Cheri ClarkBoard Member
Erin OteyBoard Member
Guillermo SanchezBoard Member
Joseph TindallBoard Member
Kathy RegisterBoard Member
Daniel GoughertyTreasurer
Steven HumesVP
Revenue and Support

Revenue Composition

Contributions and Grants
$593,937
Program Service Revenue
$16,450
Investment Income
$58,006
Other Revenue
$82,624
All Other Contributions
$593,937
Change in Net Assets
$156,327

Audited Revenue Reconciliation

Revenue per Audited Statements
$780,424
Revenue Not Reported on Financial Statements
$-29,407
Revenue Not Reported on Form 990
$0
Other Revenue Adjustments
$-29,407
Total Revenue per Audited Statements
$780,424
Total Revenue per Form 990
$751,017
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$306,477
Salaries, Compensation, and Employee Benefits$236,917
Grants and Similar Amounts Paid$51,296
Total Fundraising Expense$35,629
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$176,405$10,377$20,753$207,535
Conferences and Meetings$164,420--$164,420
Grants to Domestic Individuals$51,296--$51,296
Office Expenses$29,928$4,339$4,007$38,274
Fees for Services Accounting$11,213$3,234$2,748$17,195
Payroll Taxes$12,974$763$1,526$15,263
Other Employee Benefits$11,296$1,129$1,694$14,119
Occupancy$6,955$1,987$994$9,936
Travel$3,184-$3,183$6,367
Depreciation Depletion$3,360$1,085$724$5,169
Insurance$2,068$1,379-$3,447
Other Expenses$1,140$976-$1,140
All Other Expenses$456--$456
Advertising$200--$200
Total Functional Expenses$533,792$25,269$35,629$594,690

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$624,097
Total Expenses per Audited Statements$624,097
Total Expenses per Form 990$594,690
Expenses Not Reported on Form 990$0
Expenses Not Reported on Financial Statements$-29,407
Other Expense Adjustments$-29,407
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$107,081
Fundraising Direct Expenses$29,407
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hemophilia Walks/festivals$107,081$107,081$29,407$77,674
Total Events$107,081$107,081$29,407$77,674
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The board was provided a draft of the form 990 for their review prior to the submission of the form.”

Form 990, Part VI, Section B, Line 12C

“The conflict of interest statement and policy are reviewed and signed by the board members annually at a quarterly face-to-face meeting. Every new employee receives and signs a conflict of interest statement during orientation. All employees review and sign the conflict of interest statement annually.”

Form 990, Part VI, Section B, Line 15A

“The president of the board performs an evaluation of the executive director and presents it to the full board. The board then performs a review in the absence of the executive director. The board prepares the final evaluation which is signed by the executive director and kept in the executive director's personnel file.”

Form 990, Part VI, Section C, Line 19

“The organization makes information available to the public at the organization's office upon request and on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Bleeding Disorders Foundation of
EIN
56-1273974
Phone
9193190014
Address
130 IOWA LANE 203, CARY, NC 27511

Signing Officer

Name
Karyn Davis
Title
President
Phone
9193190014
Signed
2025-12-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Karyn Davis
Formed
1977
Legal Domicile
Nc
Voting Board Members
11
Independent Board Members
11
Employees
6
Volunteers
0

Preparer

Firm
Haigh Byrd & Lambert Llp
Address
PO BOX 53349, FAYETTEVILLE, NC 28305-3349
Preparer
Stephen G Terry
Phone
9104831437
Supplemental Narrative

Financial Statement Notes

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Direct expenses of special events”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“Direct expenses of special events”

Raw XML AppendixShowing 400 of 482 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ActivityOrMissionDesc0DEDICATED TO IMPROVING THE QUALITY OF LIFE OF PERSONS AFFECTED BY BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, PROMOTION OF RESEARCH AND DELIVERY OF SUPPORTIVE PROGRAMS AND SERVICES.
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IRS990/Desc0BLEEDING DISORDERS FOUNDATION OF NC PROVIDES EDUCATION TO HELP PEOPLE WITH BLEEDING DISORDERS AVOID DEBILITATING COMPLICATIONS AND LIVE LONGER, MORE ACTIVE AND HEALTHIER LIVES; CONDUCTS ADVOCACY INITIATIVES AT LOCAL AND NATIONAL LEVELS TO HELP ENSURE ACCESS TO MEDICAL CARE AND EQUITABLE INSURANCE REIMBURSEMENT FOR ALL; BUILDS AWARENESS OF BLEEDNG DISORDERS AND PROMOTES EARLY DIAGNOSIS; ADVOCATES AND CREATES AWARENESS FOR BLOOD SAFETY AND HELPS TO FUND AND PROMOTE RESEARCH TOWARD BETTER TREATMENTS AND CURES.
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IRS990/Form990PartVIISectionAGrp/TitleTxt0VP
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IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
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IRS990/FundraisingActivitiesInd01
IRS990/FundraisingDirectExpensesAmt029407
IRS990/FundraisingGrossIncomeAmt0107081
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt051296
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt051296
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0780424
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/ManagementAndGeneralAmt01379
IRS990/InsuranceGrp/ProgramServicesAmt02068
IRS990/InsuranceGrp/TotalAmt03447
IRS990/InvestmentIncomeGrp/ExclusionAmt058006
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt058006
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt0567656
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0617723
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt022848
IRS990/LandBldgEquipBasisNetGrp/BOYAmt013381
IRS990/LandBldgEquipBasisNetGrp/EOYAmt08212
IRS990/LandBldgEquipCostOrOtherBssAmt031060
IRS990/LegalDomicileStateCd0NC
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MiscellaneousRevenueGrp/RelatedOrExemptFuncIncomeAmt04950
IRS990/MiscellaneousRevenueGrp/TotalRevenueColumnAmt04950
IRS990/MissionDesc0DEDICATED TO IMPROVING THE QUALITY OF LIFE OF PERSONS AFFECTED BY BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, PROMOTION OF RESEARCH AND DELIVERY OF SUPPORTIVE PROGRAMS AND SERVICES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01207559
IRS990/NetAssetsOrFundBalancesEOYAmt01363886
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt077674
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt077674
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01137928
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01281346
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt0994
IRS990/OccupancyGrp/ManagementAndGeneralAmt01987
IRS990/OccupancyGrp/ProgramServicesAmt06955
IRS990/OccupancyGrp/TotalAmt09936
IRS990/OfficeExpensesGrp/FundraisingAmt04007
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt04339
IRS990/OfficeExpensesGrp/ProgramServicesAmt029928
IRS990/OfficeExpensesGrp/TotalAmt038274
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/EOYAmt01833
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01694
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01129
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt011296
IRS990/OtherEmployeeBenefitsGrp/TotalAmt014119
IRS990/OtherExpensesGrp/Desc0ADVOCACY
IRS990/OtherExpensesGrp/Desc1SCHOLARSHIPS
IRS990/OtherExpensesGrp/Desc2NEWSLETTERS/FLYERS
IRS990/OtherExpensesGrp/Desc3AFFILIATIONS/REGISTRATI
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0976
IRS990/OtherExpensesGrp/ProgramServicesAmt027101
IRS990/OtherExpensesGrp/ProgramServicesAmt123000
IRS990/OtherExpensesGrp/ProgramServicesAmt28796
IRS990/OtherExpensesGrp/ProgramServicesAmt31140
IRS990/OtherExpensesGrp/TotalAmt027101
IRS990/OtherExpensesGrp/TotalAmt123000
IRS990/OtherExpensesGrp/TotalAmt29772
IRS990/OtherExpensesGrp/TotalAmt31140
IRS990/OtherRevenueTotalAmt04950
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt020753
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt010377
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0176405
IRS990/OtherSalariesAndWagesGrp/TotalAmt0207535
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt01526
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0763
IRS990/PayrollTaxesGrp/ProgramServicesAmt012974
IRS990/PayrollTaxesGrp/TotalAmt015263
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt03322
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt03758
IRS990/PrincipalOfficerNm0KARYN DAVIS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0AD INCOME AND FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt016450
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt016450
IRS990/ProgSrvcAccomActy2Grp/Desc0BLEEDING DISORDERS FOUNDATION OF NC PUBLISHES A QUARTERLY NEWSLETTER, THE CONCENTRATE, THAT IS DISTRIBUTED TO MEMBERS, THE MEDICAL COMMUNITY AND OTHER INTERESTED PARTIES. INFORMATION IN THE NEWSLETTER CONTAINS ARTICLES ON RELEVANT TOPICS TO THE BLEEDING DISORDERS COMMUNITY, UPDATES ON PROGRAMS AND SERVICES AND HIGHLIGHTS OF COMMUNITY MEMBERS. BASED ON INFORMATION RECEIVED FROM THE MEMBERSHIP, THE NEWSLETTER IS THEIR PRIMARY SOURCE OF INFORMATION. IN ADDITION TO THE NEWSLETTER, BLEEDING DISORDERS FOUNDATION OF NC PUBLISHES FLYERS WITH INFORMATION ABOUT UPCOMING PROGRAMS AND SERVICES.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt09772
IRS990/ProgSrvcAccomActy3Grp/Desc0THE BLEEDING DISORDERS FOUNDATION OF NC FINANCIAL ASSISTANCE PROGRAM IS PART OF THE ORGANIZATION'S CONTINUING EFFORT TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS AND FAMILIES AFFECTED BY BLEEDING DISORDERS. THIS PROGRAM PROVIDES FUNDS TO ELIGIBLE INDIVIDUALS AND FAMILIES WHO NEED ASSISTANCE WITH EXPENSES INCURRED IN THE CARE, TREATMENT OR PREVENTION OF A BLEEDING DISORDER, AND/OR BASIC LIVING EXPENSES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt051296
IRS990/ProgSrvcAccomActy3Grp/GrantAmt051296
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0620713
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt056157
IRS990/PYInvestmentIncomeAmt058421
IRS990/PYOtherExpensesAmt0323702
IRS990/PYOtherRevenueAmt065172
IRS990/PYProgramServiceRevenueAmt029400
IRS990/PYRevenuesLessExpensesAmt0134113
IRS990/PYSalariesCompEmpBnftPaidAmt0259734
IRS990/PYTotalExpensesAmt0639593
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0773706
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0156327
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0496805
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0529177
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0529293
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0610387
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0650113
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0477798
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0447561
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0359433
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02545292
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt058006
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt058421
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt032103
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0-12455
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt024515
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0160590
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0749175
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt04950
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt018804
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt03970
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt03500
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt054135
IRS990ScheduleA/OtherIncome170Grp/TotalAmt085359
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.91190
IRS990ScheduleA/PublicSupportPY170Pct00.91900
IRS990ScheduleA/PublicSupportTotal170Amt02545292
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0610387
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0650113
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0477798
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0447561
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0359433
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02545292
IRS990ScheduleA/TotalSupportAmt02791241
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt08212
IRS990ScheduleD/EquipmentGrp/DepreciationAmt022848
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt031060
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0-29407
IRS990ScheduleD/ExpensesSubtotalAmt0624097
IRS990ScheduleD/OtherExpensesNotIncludedAmt0-29407
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0-29407
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt0617723
IRS990ScheduleD/OtherSecuritiesGrp/Desc0VANGUARD SHORT TERM RESERVES
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0F
IRS990ScheduleD/RevenueNotReportedAmt00
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-29407
IRS990ScheduleD/RevenueSubtotalAmt0780424
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0DIRECT EXPENSES OF SPECIAL EVENTS
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1DIRECT EXPENSES OF SPECIAL EVENTS
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART XI, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XII, LINE 4B - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt08212
IRS990ScheduleD/TotalBookValueSecuritiesAmt0617723
IRS990ScheduleD/TotalExpensesPerForm990Amt0594690
IRS990ScheduleD/TotalRevenuePerForm990Amt0751017
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0780424
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0624097
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt029407
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0HEMOPHILIA WALKS/FESTIVALS
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0107081
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0107081
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0107081
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0107081
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt077674
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt029407
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt029407
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt051296
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0ASSISTANCE PROGRAMS INCLUDING: EMERGENCY FINANCIAL ASSISTANCE (RENT, UTILITIES, ETC.), MEDICAL IDS, SEATBELT STRAPS, AND TRANSPORTATION ASSISTANCE FOR PATIENTS TO THE HEMOPHILIA TREATMENT CENTERS.
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt0500
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/ValuationMethodUsedDesc0ACTUAL CASH PAYMENTS
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE BOARD WAS PROVIDED A DRAFT OF THE FORM 990 FOR THEIR REVIEW PRIOR TO THE SUBMISSION OF THE FORM.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE CONFLICT OF INTEREST STATEMENT AND POLICY ARE REVIEWED AND SIGNED BY THE BOARD MEMBERS ANNUALLY AT A QUARTERLY FACE-TO-FACE MEETING. EVERY NEW EMPLOYEE RECEIVES AND SIGNS A CONFLICT OF INTEREST STATEMENT DURING ORIENTATION. ALL EMPLOYEES REVIEW AND SIGN THE CONFLICT OF INTEREST STATEMENT ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE PRESIDENT OF THE BOARD PERFORMS AN EVALUATION OF THE EXECUTIVE DIRECTOR AND PRESENTS IT TO THE FULL BOARD. THE BOARD THEN PERFORMS A REVIEW IN THE ABSENCE OF THE EXECUTIVE DIRECTOR. THE BOARD PREPARES THE FINAL EVALUATION WHICH IS SIGNED BY THE EXECUTIVE DIRECTOR AND KEPT IN THE EXECUTIVE DIRECTOR'S PERSONNEL FILE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION MAKES INFORMATION AVAILABLE TO THE PUBLIC AT THE ORGANIZATION'S OFFICE UPON REQUEST AND ON THE ORGANIZATION'S WEBSITE.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00

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