Patient Advocate Foundation Inc.

“John l. Murphy, board member and finance committee chair of patient advocate foundation, is the brother-in-law of nancy davenport-ennis, founder and chair emerita of patient advocate foundation. Frances castellow, president, operations of patient advocate foundation, is the daughter of nancy davenport-ennis, founder and chair emerita of patient advocate foundation. Beth moore, evp of corporate communications of patient advocate foundation, is the daughter of nancy davenport-ennis, founder and chair emerita of patient advocate foundation.”

“The finance committee of the board of directors receives a draft copy of the form 990 then subsequently reviews it for accuracy and compliance. Once it is approved by the finance committee, all members of the executive board of directors receive the final copy of the form 990 for review and approval prior to filing and is so noted in the board meeting minutes.”

“Members of the paf board of directors are required to review and sign the conflict of interest policy upon establishing membership and annually complete an updated conflict of interest disclosure questionnaire. Each member must disclose any/all known conflicts of interest at that time. If any conflicts of interest are noted more information will be gathered by the governance & compliance committee and a determination on the existence of a material conflict will be issued. The governance & compliance committee of the board of directors is charged with enforcement of this policy.”

“Patient advocate foundation completes compensation studies that utilize national comparability data of organizations similar in mission, size and revenues. Paf has a compensation committee within the board of directors that consists of at least 4 independent executive board members and is chaired by the board president. This committee is provided with the compensation report and utilizes it to establish the ceo's annual compensation. This committee also reviews the compensation of key employees utilizing the compensation report. This process is documented through minutes of the compensation committee meeting.”

“Patient advocate foundation makes available the last 10 years of form 990s, audited financial statements, annual reports and current list of board members on the organization's website, www.patientadvocate.org under the "meet paf" section. Additionally, paf makes available the governing documents, conflict of interest policy, archived form 990s (older than 10 years) and audited financial statements (older than 10 years) upon request.”

“The west virginia (wv) lung cancer project is one of the newest initiatives launched by paf in fy2016/2017. The project is designed to link individuals at risk for or diagnosed with lung cancer to case management support with specific focus on medicaid beneficiaries and other low income populations across west virginia. This project is conducted in partnership with the american cancer society, wv university cancer institute, wv mountains of hope cancer coalition, wv cancer and tobacco programs, aetna better health (wv cmo) and the wv hospital association. One of the key challenges is the limited knowledge among the provider population and general population about the new lung cancer screening guidelines. Although, an initial challenge, this has posed a great platform for both provider and public education. In the spring of 2017, family practice providers from across west virginia were educated on the new lung cancer screening guidelines and the new wv lung careline resource available to support their patients. Additionally, to increase awareness among the general public a host of outreach events have been held, including targeted messages at all home basketball games for the west virginia mountaineers. To add a more personal touch to education efforts, four videos were developed for social media sharing, featuring local wv residents. The videos feature a lung cancer survivor; the family of the lung cancer survivor; health care professionals discussing the importance of lung cancer screening; and a gentleman who is a former smoker planning to schedule his lung cancer screening. The videos will be disseminated by the wv lung cancer project advisory council through a myriad of outlets with the overall goal to increase awareness of and uptake in lung cancer screening among those who meet the lung cancer screening guidelines and subsequent linkage to the paf wv lung cancer careline. During fy2016/2017, the foundation's patient services teams also conducted educational outreach at the local, regional and national levels with the goal of educating the general public, nonprofit organizations and members of the healthcare community who support patients about all of the services and educational materials offered by the foundation. This outreach was, in some cases, targeted to a specific population that is known to be considered disparate in healthcare access and disease outcomes data. In fy2016/2017, the foundation attended 27 outreach events and distributed over 7,030 educational publications through these events. Scholarship for survivors program during paf's daily interactions with patients, paf staff often interface with patients who either themselves or a loved one has experienced the impact of a chronic illness or life threatening disease on one's post-secondary education. In 2000, the scholarship for survivors program was established to honor these individuals by offering educational scholarships to individuals who have suffered (or are suffering) a life threatening disease or chronic condition. These students have, despite their disease/condition, excelled academically, served the community, and desire to pursue a secondary education. To date, paf has awarded 83 scholarships totaling over $506,000. In fy2016/2017, paf awarded 12 scholarships to college students through this program.”

“Postretirement benefit changes other than periodic costs 184,625.”

“No changes were made to the organization oversight process or selection process during the tax year.”