Civic Intelligence

The Myositis Association

990 • Fiscal year 2019 • EIN 54-1660976

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 12, 2020

Organization Profilewww.Myositis.org
2000 Duke Street Suite 300Alexandria, VA 22314

(703) 553-2631

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

60th percentile

0.15x

Higher debt load relative to assets than 60% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

74th percentile

0.33x

Higher debt load relative to revenue than 74% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

5th percentile

-60%

Higher net margin than 5% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

91st percentile

$224,386

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 22.1% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

6th percentile

-22%

Faster asset growth than 6% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

6th percentile

-42%

Faster revenue growth than 6% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets60th percentile

Assets

Down

$2,226,058

Down $612,202 (-22%) from 2018

Net Assets

Down

$1,888,731

Down $528,862 (-22%) from 2018

Liabilities

Down

$337,327

Down $83,340 (-20%) from 2018

Revenue And Expenses
Liabilities / Revenue74th percentileNet Margin5th percentile

Revenue

Down

$1,016,099

Down $746,100 (-42%) from 2018

Expenses

Up

$1,622,977

Up $38,168 (+2.4%) from 2018

Net Income

Down

-$606,878

Down $784,268 (-442%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth6th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $561,377Liabilities 2010: $85,619Net Assets 2010: $475,7582010Assets 2011: $753,945Liabilities 2011: $94,557Net Assets 2011: $659,3882011Assets 2012: $1,067,934Liabilities 2012: $153,424Net Assets 2012: $914,5102012Assets 2013: $1,292,666Liabilities 2013: $154,696Net Assets 2013: $1,137,9702013Assets 2014: $2,600,936Liabilities 2014: $103,475Net Assets 2014: $2,497,4612014Assets 2015: $2,693,796Liabilities 2015: $91,281Net Assets 2015: $2,602,5152015Assets 2016: $2,607,075Liabilities 2016: $59,504Net Assets 2016: $2,547,5712016Assets 2017: $2,707,789Liabilities 2017: $56,938Net Assets 2017: $2,650,8512017Assets 2018: $2,838,260Liabilities 2018: $420,667Net Assets 2018: $2,417,5932018Assets 2019: $2,226,058Liabilities 2019: $337,327Net Assets 2019: $1,888,7312019Assets 2020: $2,242,240Liabilities 2020: $197,076Net Assets 2020: $2,045,1642020Assets 2021: $2,957,547Liabilities 2021: $632,994Net Assets 2021: $2,324,5532021Assets 2022: $2,327,942Liabilities 2022: $574,535Net Assets 2022: $1,753,4072022Assets 2023: $1,779,524Liabilities 2023: $489,420Net Assets 2023: $1,290,1042023Assets 2024: $2,013,453Liabilities 2024: $469,479Net Assets 2024: $1,543,9742024

Highlighted filing

2019

Assets$2,226,058
Liabilities$337,327
Net Assets$1,888,731
Open 2019 Filing

Operations Trend

Revenue Growth6th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,026,7942010Expenses 2011: $993,8432011Expenses 2012: $915,2532012Revenue 2013: $1,313,593Expenses 2013: $1,082,153Net Income 2013: $231,4402013Revenue 2014: $2,704,998Expenses 2014: $1,337,435Net Income 2014: $1,367,5632014Revenue 2015: $1,530,309Expenses 2015: $1,378,390Net Income 2015: $151,9192015Revenue 2016: $1,399,213Expenses 2016: $1,544,574Net Income 2016: -$145,3612016Revenue 2017: $1,757,990Expenses 2017: $1,753,124Net Income 2017: $4,8662017Revenue 2018: $1,762,199Expenses 2018: $1,584,809Net Income 2018: $177,3902018Revenue 2019: $1,016,099Expenses 2019: $1,622,977Net Income 2019: -$606,8782019Revenue 2020: $1,179,750Expenses 2020: $1,183,055Net Income 2020: -$3,3052020Revenue 2021: $1,770,917Expenses 2021: $1,269,788Net Income 2021: $501,1292021Revenue 2022: $1,317,262Expenses 2022: $1,654,469Net Income 2022: -$337,2072022Revenue 2023: $1,249,899Expenses 2023: $1,888,477Net Income 2023: -$638,5782023Revenue 2024: $2,012,099Expenses 2024: $1,794,414Net Income 2024: $217,6852024

Highlighted filing

2019

Revenue$1,016,099
Expenses$1,622,977
Net Income-$606,878
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 12, 2020
Return Version
2019v5.0
Gross Receipts
$1,325,609
Mission and Program Overview

Mission

The Myositis Association is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members, and the medical community. TMA provides patient education and support, advocacy, physician education, and research funding for myositis diseases. To learn more about myositis go to www.myositis.org. TMA's mission is to improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy, while working to improve the quality of life of our patients. TMA accomplishes this through raising awareness, patient and physician education, support groups nationwide, research and advocacy efforts. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved aroun

The Myositis Association is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members, and the medical community. TMA provides patient education and support, advocacy, physician education, and research funding for myositis diseases. To learn more about myositis go to www.myositis.org. TMA's mission is to improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy. TMA accomplishes this through raising awareness, patient and physician education, support groups nationwide, research and advocacy efforts. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved around the U.S. geographically each year to maximize the number of

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,993,338$1,831,869▼ $161,469
Pledges and Grants Receivable$444,973$166,254▼ $278,719
Savings and Temporary Cash Investments$125,825$79,254▼ $46,571
Cash and Non-Interest-Bearing Accounts$192,392$77,800▼ $114,592
Land, Buildings, and Equipment, Net$51,235$29,764▼ $21,471
Prepaid Expenses and Deferred Charges$11,979$16,443▲ $4,464
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$2,838,260$2,226,058▼ $612,202
Other Assets Total$18,518$24,674▲ $6,156
Liabilities
Other Liabilities$293,557$263,557▼ $30,000
Accounts Payable and Accrued Expenses$127,110$73,770▼ $53,340
Total Liabilities$420,667$337,327▼ $83,340
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,394,593$1,702,163▼ $692,430
Net Assets With Donor Restrictions$23,000$186,568▲ $163,568
Total Net Assets Fund Balance$2,417,593$1,888,731▼ $528,862
Total Liabilities and Net Assets / Fund Balance$2,838,260$2,226,058▼ $612,202

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$29,764$32,793$62,557
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Mary McGowanExecutive DirectorFT$224,386$224,386

Board Members and Trustees

NameTitle
John McClunChairman
James MathewsVice President
Christopher DoturDirector
David MochelDirector
Gail BaylissDirector
Jeff AutreyDirector
Jim McTeviaDirector
Laurie BoyerDirector
Rex BickersDirector
Steven YtterbergDirector
Terry AndersonDirector
Martha ArnoldSecretary
Wayne MortensenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$804,288
Program Service Revenue
$111,273
Investment Income
$129,697
Other Revenue
$-29,159
All Other Contributions
$664,915
Change in Net Assets
$-606,878

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table53$31,856Fair Market Value (FMV)
Securities Publicly Traded1$5,107Fair Market Value (FMV)
Total Noncash Contributions54$36,963-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,016,099
Revenue Not Reported on Form 990
$141,455
Total Revenue per Audited Statements
$1,157,554
Total Revenue per Form 990
$1,016,099
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$791,988
Salaries, Compensation, and Employee Benefits$611,015
Grants and Similar Amounts Paid$219,974
Total Fundraising Expense$79,004
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$262,499$21,569$15,192$299,260
Current Officers, Directors, Trustees, and Key Employees$183,996$17,951$22,439$224,386
Conferences and Meetings$156,621$8,447$1,145$166,213
Grants to Domestic Orgs$158,291--$158,291
Occupancy$113,029$11,213$7,305$131,547
Fees for Services Other$86,565$19,968-$106,533
Office Expenses$57,052$18,340$5,345$80,737
Travel$66,386$7,244$1,019$74,649
Foreign Grants$61,683--$61,683
Fees for Services Accounting-$59,268-$59,268
Other Employee Benefits$39,332$3,906$2,544$45,782
Payroll Taxes$30,195$2,676$2,548$35,419
Depreciation Depletion$18,446$1,832$1,193$21,471
Other Expenses$4,464$295$2,267$7,026
Pension Plan Contributions-$6,168-$6,168
Insurance$3,718$369$241$4,328
Fees for Services Legal-$3,700-$3,700
Total Functional Expenses$1,345,824$198,149$79,004$1,622,977

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,686,416
Expenses per Audited Statements$1,622,977
Total Expenses per Form 990$1,622,977
Expenses Not Reported on Form 990$63,439
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Binghamton UniversityBinghamton, NY-Research Grant$75,000
Johns Hopkins UniversityBaltimore, MD-Research Grant$25,000
Philadelphia Research & EducPhiladelphia, PA-Research Grant$25,000
Johns Hopkins Medical CenterBaltimore, MD-Program Support$23,941
Brigham & Womens HospitalBoston, MA-Research Grant$9,350

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$61,760
Fundraising Gross Income$28,694
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Member Fundraising$123,586$28,694$44,076$-15,382
Total Events$123,586$28,694$61,760$-33,066
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Refundable Advance$263,557
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 6: Explanation of Classes of Members or Shareholder

“Membership is free. Upon registering with TMA, an individual becomes a member and is entitled to newsletters and various incidental benefits. The membership does not convey a right to vote concerning organization matters.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The Form 990 is reviewed by and approved by the Finance Committee and then circulated to the full Board for comment prior to release.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The conflict of interest policy is signed by each Board member and officer at the beginning of his or her term of service. The policy requires that the member or officer make the organization aware of any conflicts. Subsequently, an annual positive confirmation is required from each member and officer. The annual results are reviewed and acted upon by the Executive Committee of the Board.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Executive Director compensation is documented in a written employment contract. Compensation is reviewed annually based upon performance objectives established by the Board at the beginning of each year as well as market compensation considerations. This review is conducted by the Executive Committee of the Board (all of whom are independent directors) and its recommendations are then brought to the full Board for consideration. Deliberations are documented in minutes.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The organization's audited annual financial statements are published on its website. Governing documents and conflict of interest policy are available by request. TMA provides Guidestar.org with a digital copy of its Form 990, which is available on that site and others.”

Filing and Contact Details

Filer

Filer Name
The Myositis Association
EIN
54-1660976
Phone
7035532631
Address
2000 Duke Street Suite 300, Alexandria, VA 22314

Signing Officer

Name
Lisa Motley
Title
Treasurer
Signed
2020-11-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
James Mathews
Formed
1993
Legal Domicile
Va
Voting Board Members
13
Independent Board Members
13
Employees
6
Volunteers
86

Preparer

Firm
Quist & Associates LLC
Address
PO Box 372, Occoquan, VA 22125
Preparer
Elizabeth Quist
Phone
7035971370
Supplemental Narrative

Financial Statement Notes

Part X : FIN48 Footnote

“TMA is exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code. Accordingly, no provision for income taxes has been made in the accompanying financial statements. TMA is not a private foundation. For the year ended December 31, 2019, TMA has documented its consideration of FASB ASC 740-10, Income Taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements.”

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

“Fundraising expenses netted with revenue $61761”

Part XII, Line 2D: Other expenses and losses per audited F/S

“Fundraising expenses netted with revenue $61761”

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IRS990/MissionDesc0The Myositis Association is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members, and the medical community. TMA provides patient education and support, advocacy, physician education, and research funding for myositis diseases. To learn more about myositis go to www.myositis.org. TMA's mission is to improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy. TMA accomplishes this through raising awareness, patient and physician education, support groups nationwide, research and advocacy efforts. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved around the U.S. geographically each year to maximize the number of
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,226,058
Liabilities
$337,327
Net assets
$1,888,731
Revenue
$1,016,099
Expenses
$1,622,977
Net income
-$606,878
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.01$0.47$1.54$2.01$1.79$0.22
2023Detailed filing. Detailed filing data is available for this year.$1.78$0.49$1.29$1.25$1.89$0.64
2022Detailed filing. Detailed filing data is available for this year.$2.33$0.57$1.75$1.32$1.65$0.34
2021Detailed filing. Detailed filing data is available for this year.$2.96$0.63$2.32$1.77$1.27$0.50
2020Detailed filing. Detailed filing data is available for this year.$2.24$0.20$2.05$1.18$1.18$0.00
2019Detailed filing. Detailed filing data is available for this year.$2.23$0.34$1.89$1.02$1.62$0.61
2018Detailed filing. Detailed filing data is available for this year.$2.84$0.42$2.42$1.76$1.58$0.18
2017Detailed filing. Detailed filing data is available for this year.$2.71$0.06$2.65$1.76$1.75$0.00
2016Detailed filing. Detailed filing data is available for this year.$2.61$0.06$2.55$1.40$1.54$0.15
2015Detailed filing. Detailed filing data is available for this year.$2.69$0.09$2.60$1.53$1.38$0.15
2014Detailed filing. Detailed filing data is available for this year.$2.60$0.10$2.50$2.70$1.34$1.37
2013Detailed filing. Detailed filing data is available for this year.$1.29$0.15$1.14$1.31$1.08$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.07$0.15$0.91$0.92
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.75$0.09$0.66$0.99
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.56$0.09$0.48$1.03