Civic Intelligence

The Myositis Association

990 • Fiscal year 2017 • EIN 54-1660976

Jan 01, 2017 to Dec 31, 2017 • Filed on Sep 24, 2018

Organization Profilewww.Myositis.org
1940 Duke StreetAlexandria, VA 22314

(703) 553-2631

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

32nd percentile

0.02x

Higher debt load relative to assets than 32% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

31st percentile

0.03x

Higher debt load relative to revenue than 31% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

41st percentile

0.3%

Higher net margin than 41% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

92nd percentile

$227,817

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 13.0% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

52nd percentile

3.9%

Faster asset growth than 52% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

77th percentile

26%

Faster revenue growth than 77% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets32nd percentile

Assets

Up

$2,707,789

Up $100,714 (+3.9%) from 2016

Net Assets

Up

$2,650,851

Up $103,280 (+4.1%) from 2016

Liabilities

Down

$56,938

Down $2,566 (-4.3%) from 2016

Revenue And Expenses
Liabilities / Revenue31st percentileNet Margin41st percentile

Revenue

Up

$1,757,990

Up $358,777 (+26%) from 2016

Expenses

Up

$1,753,124

Up $208,550 (+14%) from 2016

Net Income

Up

$4,866

Up $150,227 (+103%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth52nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $561,377Liabilities 2010: $85,619Net Assets 2010: $475,7582010Assets 2011: $753,945Liabilities 2011: $94,557Net Assets 2011: $659,3882011Assets 2012: $1,067,934Liabilities 2012: $153,424Net Assets 2012: $914,5102012Assets 2013: $1,292,666Liabilities 2013: $154,696Net Assets 2013: $1,137,9702013Assets 2014: $2,600,936Liabilities 2014: $103,475Net Assets 2014: $2,497,4612014Assets 2015: $2,693,796Liabilities 2015: $91,281Net Assets 2015: $2,602,5152015Assets 2016: $2,607,075Liabilities 2016: $59,504Net Assets 2016: $2,547,5712016Assets 2017: $2,707,789Liabilities 2017: $56,938Net Assets 2017: $2,650,8512017Assets 2018: $2,838,260Liabilities 2018: $420,667Net Assets 2018: $2,417,5932018Assets 2019: $2,226,058Liabilities 2019: $337,327Net Assets 2019: $1,888,7312019Assets 2020: $2,242,240Liabilities 2020: $197,076Net Assets 2020: $2,045,1642020Assets 2021: $2,957,547Liabilities 2021: $632,994Net Assets 2021: $2,324,5532021Assets 2022: $2,327,942Liabilities 2022: $574,535Net Assets 2022: $1,753,4072022Assets 2023: $1,779,524Liabilities 2023: $489,420Net Assets 2023: $1,290,1042023Assets 2024: $2,013,453Liabilities 2024: $469,479Net Assets 2024: $1,543,9742024

Highlighted filing

2017

Assets$2,707,789
Liabilities$56,938
Net Assets$2,650,851
Open 2017 Filing

Operations Trend

Revenue Growth77th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,026,7942010Expenses 2011: $993,8432011Expenses 2012: $915,2532012Revenue 2013: $1,313,593Expenses 2013: $1,082,153Net Income 2013: $231,4402013Revenue 2014: $2,704,998Expenses 2014: $1,337,435Net Income 2014: $1,367,5632014Revenue 2015: $1,530,309Expenses 2015: $1,378,390Net Income 2015: $151,9192015Revenue 2016: $1,399,213Expenses 2016: $1,544,574Net Income 2016: -$145,3612016Revenue 2017: $1,757,990Expenses 2017: $1,753,124Net Income 2017: $4,8662017Revenue 2018: $1,762,199Expenses 2018: $1,584,809Net Income 2018: $177,3902018Revenue 2019: $1,016,099Expenses 2019: $1,622,977Net Income 2019: -$606,8782019Revenue 2020: $1,179,750Expenses 2020: $1,183,055Net Income 2020: -$3,3052020Revenue 2021: $1,770,917Expenses 2021: $1,269,788Net Income 2021: $501,1292021Revenue 2022: $1,317,262Expenses 2022: $1,654,469Net Income 2022: -$337,2072022Revenue 2023: $1,249,899Expenses 2023: $1,888,477Net Income 2023: -$638,5782023Revenue 2024: $2,012,099Expenses 2024: $1,794,414Net Income 2024: $217,6852024

Highlighted filing

2017

Revenue$1,757,990
Expenses$1,753,124
Net Income$4,866
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Sep 24, 2018
Return Version
2017v2.2
Gross Receipts
$2,259,832
Mission and Program Overview

Mission

The Myositis Association is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members, and the medical community. TMA provides patient education and support, advocacy, physician education, and research funding for myositis diseases. To learn more about myositis go to www.myositis.org. TMA's mission is to improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy, while working to improve the quality of life of our patients. TMA accomplishes this through raising awareness, patient and physician education, support groups nationwide, research and advocacy efforts. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved aroun

TMA's mission is to:- Provide support to myositis patients and their families,- Provide connections between the medical advisory board and the general medical and patient communities,- Increase funding to support myositis researchTMA accomplishes this through patient and physician education, support groups, research and advocacy. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved around the U.S. geographically each year to maximize the number of patients and their caregivers with access to this invaluable experience. The Annual Patient Conference draws over 500 patients and caregivers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,105,522$2,336,124▲ $230,602
Pledges and Grants Receivable$159,385$226,472▲ $67,087
Cash and Non-Interest-Bearing Accounts$272,998$87,455▼ $185,543
Prepaid Expenses and Deferred Charges$10,129$16,960▲ $6,831
Savings and Temporary Cash Investments$41,453$16,394▼ $25,059
Land, Buildings, and Equipment, Net$2,027$1,867▼ $160
Accounts Receivable$16$16→ $0
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$2,607,075$2,707,789▲ $100,714
Other Assets Total$15,545$22,501▲ $6,956
Liabilities
Other Liabilities$55,194$38,927▼ $16,267
Accounts Payable and Accrued Expenses$4,310$18,011▲ $13,701
Total Liabilities$59,504$56,938▼ $2,566
Net Assets / Fund Balance
Unrestricted Net Assets$2,064,658$2,376,885▲ $312,227
Temporarily Rstr Net Assets$459,913$250,966▼ $208,947
Permanently Rstr Net Assets$23,000$23,000→ $0
Total Net Assets Fund Balance$2,547,571$2,650,851▲ $103,280
Total Liabilities and Net Assets / Fund Balance$2,607,075$2,707,789▲ $100,714

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings-$63,645$63,645
Equipment$1,867$15,628$17,495

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$23,000---$23,000
2016$23,000---$23,000
2015$23,000---$23,000
2014$23,000---$23,000
2013$1,000$22,000--$23,000
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Robert GoldbergExecutive DirectorFT$195,173$32,644$227,817

Board Members and Trustees

NameTitle
Terry AndersonChairman
Augie DeAugustinisPast Chair
John McClunVice Chair
Carla StevensonDirector
Christopher DoturDirector
Dana AschermanDirector
Doreen CahoonDirector
Jim MatthewsDirector
Patrick ZennerDirector
Renee LantnerSecretary
John SuttleTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,478,276
Program Service Revenue
$148,216
Investment Income
$129,009
Other Revenue
$2,489
All Other Contributions
$1,286,896
Change in Net Assets
$4,866

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded4$145,483Fair Market Value (FMV)
Other Non Cash Contri Table69$35,784Fair Market Value (FMV)
Total Noncash Contributions73$181,267-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,757,990
Revenue Not Reported on Form 990
$124,709
Total Revenue per Audited Statements
$1,882,699
Total Revenue per Form 990
$1,757,990
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$641,334
Grants and Similar Amounts Paid$595,685
Salaries, Compensation, and Employee Benefits$516,105
Total Fundraising Expense$192,130
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$295,219--$295,219
Foreign Grants$272,901--$272,901
Other Salaries and Wages$188,306$19,993$13,508$221,807
Conferences and Meetings$212,722$3,211$-1,639$214,294
Current Officers, Directors, Trustees, and Key Employees$85,228$39,641$73,336$198,205
Occupancy$48,787$10,494$15,283$74,564
Other Employee Benefits$41,505$9,029$13,149$63,683
Fees for Services Other$40,473$4,070$2,564$47,107
Fees for Services Accounting$8,745$24,628$2,776$36,149
Office Expenses$17,110$13,895$4,496$35,501
Travel$31,567$2,147$-1,457$32,257
Payroll Taxes$19,647$4,238$6,235$30,120
Grants to Domestic Individuals$27,565--$27,565
Insurance$2,754$600$874$4,228
Information Technology$2,442$440$641$3,523
Advertising$2,711$81$118$2,910
Pension Plan Contributions-$2,290-$2,290
Other Expenses$23,684$1,712$3,108$1,712
Interest-$1,115-$1,115
Depreciation Depletion$104$23$33$160
Fees for Services Legal$314$69$-1,119$-736
Total Functional Expenses$1,413,122$147,872$192,130$1,753,124

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,779,419
Expenses per Audited Statements$1,753,124
Total Expenses per Form 990$1,753,124
Expenses Not Reported on Form 990$26,295
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
NYU School of MedicineBoston, MA-Research Grant$76,142
NiamsBethesda, MD-Research Grant$50,000
The University of PittsburghPittsburgh, PA-Research Grant$50,000
Global Conference on MyositisJacksonville, FL-Program Sponsorship$30,000
Johns Hopkins UniversityBaltimore, MD-Research Grant$25,000
Philadelphia Research & EducPhiladelphia, PA-Research Grant$25,000
Research Foundation for SUNYAlbany, NY-Research Grant$25,000
Johns Hopkins Medical CenterBaltimore, MD-Program Support$15,219

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$26,295
Fundraising Gross Income$26,295
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
15th Annual Golf & Gala$98,304$19,785$10,152$9,633
2017 Rock N Roll Walk$29,735$4,328$3,478$850
Total Events$141,821$26,295$26,295-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Refundable Advance$38,927
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 6: Explanation of Classes of Members or Shareholder

“Membership is free. Upon registering with TMA, an individual becomes a member and is entitled to newsletters and various incidental benefits. The membership does not convey a right to vote concerning organization matters.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The Form 990 is reviewed by and approved by the Finance Committee and then circulated to the full Board for comment prior to release.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The conflict of interest policy is signed by each Board member and officer at the beginning of his or her term of service. The policy requires that the member or officer make the organization aware of any conflicts. Subsequently, an annual positive confirmation is required from each member and officer. The annual results are reviewed and acted upon by the Executive Committee of the Board.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Executive Director compensation is documented in a written employment contract. His compensation is reviewed annually based upon performance objectives established by the Board at the beginning of each year as well as market compensation considerations. This review is conducted by the Executive Committee of the Board (all of whom are independent directors) and its recommendations are then brought to the full Board for consideration. Deliberations are documented in minutes.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The organization's audited annual financial statements are published on its website. Governing documents and conflict of interest policy are available by request. TMA provides Guidestar.org with a digital copy of its Form 990, which is available on that site and others.”

Filing and Contact Details

Filer

Filer Name
The Myositis Association
EIN
54-1660976
Phone
7035532631
Address
1940 Duke Street, Alexandria, VA 22314

Signing Officer

Name
Robert Goldberg
Title
Executive Director
Signed
2018-09-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert Goldberg
Formed
1993
Legal Domicile
Va
Voting Board Members
11
Independent Board Members
11
Employees
6
Volunteers
40

Preparer

Firm
Elizabeth a C Quist CPA Ea
Address
PO BOX 372, OCCOQUAN, VA 22125-0372
Preparer
Elizabeth A C Quist
Phone
7035971370
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

“OTHER PROGRAM SERVICES 4: Other Program Expenditures”

Form 990, Part XII, Line 2: Change of Oversight or Selection Process

“The process for overseeing the audit of the financial statements and selection of an independent accountant that audited the financial statements has been consistent with prior years.”

Financial Statement Notes

Part V, Line 4: Intended uses of the endowment fund.

“Income from the permanent endowment is intended to support TMA programs and services.”

Part X : FIN48 Footnote

“TMA is generally exempt from federal income taxes under the provisions of Section 501(c)(3) of the Internal Revenue Code. In addition, TMA qualifies for charitable contribution deductions and has been classified as an organization that is not a private foundation. Income which is not related to exempt purposes, less applicable deductions, is subject to federal and state corporate income taxes. TMA did not have any net unrelated business income for the year ended December 31, 2017. Management has evaluated TMA's tax positions and has concluded that TMA has taken no uncertain tax positions that require disclosure.”

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

“Fundraising expenses netted with revenue $26295”

Part XII, Line 2D: Other expenses and losses per audited F/S

“Fundraising expenses netted with revenue $26295”

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IRS990/Form990PartVIISectionAGrp/PersonNm0Augie DeAugustinis
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IRS990/Form990PartVIISectionAGrp/PersonNm2Renee Lantner
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IRS990/Form990PartVIISectionAGrp/PersonNm4Jim Matthews
IRS990/Form990PartVIISectionAGrp/PersonNm5Doreen Cahoon
IRS990/Form990PartVIISectionAGrp/PersonNm6John Suttle
IRS990/Form990PartVIISectionAGrp/PersonNm7Patrick Zenner
IRS990/Form990PartVIISectionAGrp/PersonNm8Christopher Dotur
IRS990/Form990PartVIISectionAGrp/PersonNm9Carla Stevenson
IRS990/Form990PartVIISectionAGrp/PersonNm10John McClun
IRS990/Form990PartVIISectionAGrp/PersonNm11Robert Goldberg
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IRS990/MissionDesc0TMA's mission is to:- Provide support to myositis patients and their families,- Provide connections between the medical advisory board and the general medical and patient communities,- Increase funding to support myositis researchTMA accomplishes this through patient and physician education, support groups, research and advocacy. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved around the U.S. geographically each year to maximize the number of patients and their caregivers with access to this invaluable experience. The Annual Patient Conference draws over 500 patients and caregivers.
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IRS990/ProgSrvcAccomActy2Grp/Desc0TMA's Annual Patient Conference served approximately 520 attending members, providing the most recent news on myositis research and treatments, allowing attendees the chance to meet others with similar experiences and challenges.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Through its publications, newsletters, website and support groups, TMA educates patients and physicians about myositis. Its communication and education efforts entail print quarterly newsletters, electronic newsletters, comprehensive guides to myositis such as "Myositis 101", 40 support groups and numerous brochures.
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Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,707,789
Liabilities
$56,938
Net assets
$2,650,851
Revenue
$1,757,990
Expenses
$1,753,124
Net income
$4,866
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.01$0.47$1.54$2.01$1.79$0.22
2023Detailed filing. Detailed filing data is available for this year.$1.78$0.49$1.29$1.25$1.89$0.64
2022Detailed filing. Detailed filing data is available for this year.$2.33$0.57$1.75$1.32$1.65$0.34
2021Detailed filing. Detailed filing data is available for this year.$2.96$0.63$2.32$1.77$1.27$0.50
2020Detailed filing. Detailed filing data is available for this year.$2.24$0.20$2.05$1.18$1.18$0.00
2019Detailed filing. Detailed filing data is available for this year.$2.23$0.34$1.89$1.02$1.62$0.61
2018Detailed filing. Detailed filing data is available for this year.$2.84$0.42$2.42$1.76$1.58$0.18
2017Detailed filing. Detailed filing data is available for this year.$2.71$0.06$2.65$1.76$1.75$0.00
2016Detailed filing. Detailed filing data is available for this year.$2.61$0.06$2.55$1.40$1.54$0.15
2015Detailed filing. Detailed filing data is available for this year.$2.69$0.09$2.60$1.53$1.38$0.15
2014Detailed filing. Detailed filing data is available for this year.$2.60$0.10$2.50$2.70$1.34$1.37
2013Detailed filing. Detailed filing data is available for this year.$1.29$0.15$1.14$1.31$1.08$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.07$0.15$0.91$0.92
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.75$0.09$0.66$0.99
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.56$0.09$0.48$1.03