Civic Intelligence

The Myositis Association

990 • Fiscal year 2014 • EIN 54-1660976

Jan 01, 2014 to Dec 31, 2014 • Filed on Oct 06, 2015

Organization Profilewww.Myositis.org
1737 King StreetAlexandria, VA 22314

(703) 299-4851

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

37th percentile

0.04x

Higher debt load relative to assets than 37% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

31st percentile

0.04x

Higher debt load relative to revenue than 31% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

92nd percentile

51%

Higher net margin than 92% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

91st percentile

$220,958

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 8.2% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

96th percentile

101%

Faster asset growth than 96% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

94th percentile

106%

Faster revenue growth than 94% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets37th percentile

Assets

Up

$2,600,936

Up $1,308,270 (+101%) from 2013

Net Assets

Up

$2,497,461

Up $1,359,491 (+119%) from 2013

Liabilities

Down

$103,475

Down $51,221 (-33%) from 2013

Revenue And Expenses
Liabilities / Revenue31st percentileNet Margin92nd percentile

Revenue

Up

$2,704,998

Up $1,391,405 (+106%) from 2013

Expenses

Up

$1,337,435

Up $255,282 (+24%) from 2013

Net Income

Up

$1,367,563

Up $1,136,123 (+491%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth96th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $561,377Liabilities 2010: $85,619Net Assets 2010: $475,7582010Assets 2011: $753,945Liabilities 2011: $94,557Net Assets 2011: $659,3882011Assets 2012: $1,067,934Liabilities 2012: $153,424Net Assets 2012: $914,5102012Assets 2013: $1,292,666Liabilities 2013: $154,696Net Assets 2013: $1,137,9702013Assets 2014: $2,600,936Liabilities 2014: $103,475Net Assets 2014: $2,497,4612014Assets 2015: $2,693,796Liabilities 2015: $91,281Net Assets 2015: $2,602,5152015Assets 2016: $2,607,075Liabilities 2016: $59,504Net Assets 2016: $2,547,5712016Assets 2017: $2,707,789Liabilities 2017: $56,938Net Assets 2017: $2,650,8512017Assets 2018: $2,838,260Liabilities 2018: $420,667Net Assets 2018: $2,417,5932018Assets 2019: $2,226,058Liabilities 2019: $337,327Net Assets 2019: $1,888,7312019Assets 2020: $2,242,240Liabilities 2020: $197,076Net Assets 2020: $2,045,1642020Assets 2021: $2,957,547Liabilities 2021: $632,994Net Assets 2021: $2,324,5532021Assets 2022: $2,327,942Liabilities 2022: $574,535Net Assets 2022: $1,753,4072022Assets 2023: $1,779,524Liabilities 2023: $489,420Net Assets 2023: $1,290,1042023Assets 2024: $2,013,453Liabilities 2024: $469,479Net Assets 2024: $1,543,9742024

Highlighted filing

2014

Assets$2,600,936
Liabilities$103,475
Net Assets$2,497,461
Open 2014 Filing

Operations Trend

Revenue Growth94th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,026,7942010Expenses 2011: $993,8432011Expenses 2012: $915,2532012Revenue 2013: $1,313,593Expenses 2013: $1,082,153Net Income 2013: $231,4402013Revenue 2014: $2,704,998Expenses 2014: $1,337,435Net Income 2014: $1,367,5632014Revenue 2015: $1,530,309Expenses 2015: $1,378,390Net Income 2015: $151,9192015Revenue 2016: $1,399,213Expenses 2016: $1,544,574Net Income 2016: -$145,3612016Revenue 2017: $1,757,990Expenses 2017: $1,753,124Net Income 2017: $4,8662017Revenue 2018: $1,762,199Expenses 2018: $1,584,809Net Income 2018: $177,3902018Revenue 2019: $1,016,099Expenses 2019: $1,622,977Net Income 2019: -$606,8782019Revenue 2020: $1,179,750Expenses 2020: $1,183,055Net Income 2020: -$3,3052020Revenue 2021: $1,770,917Expenses 2021: $1,269,788Net Income 2021: $501,1292021Revenue 2022: $1,317,262Expenses 2022: $1,654,469Net Income 2022: -$337,2072022Revenue 2023: $1,249,899Expenses 2023: $1,888,477Net Income 2023: -$638,5782023Revenue 2024: $2,012,099Expenses 2024: $1,794,414Net Income 2024: $217,6852024

Highlighted filing

2014

Revenue$2,704,998
Expenses$1,337,435
Net Income$1,367,563
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Oct 6, 2015
Return Version
2014v5.0
Gross Receipts
$2,874,411
Mission and Program Overview

Mission

The Myositis Association is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members, and the medical community. TMA provides patient education and support, advocacy, physician education, and research funding for myositis diseases. To learn more about myositis go to www.myositis.org. TMA's mission is to improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy, while working to improve the quality of life of our patients. TMA accomplishes this through raising awareness, patient and physician education, support groups nationwide, research and advocacy efforts. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved aroun

TMA's mission is to:- Provide support to myositis patients and their families,- Provide connections between the medical advisory board and the general medical and patient communities - Increase funding to support myositis researchTMA accomplishes this through patient and physician education, support groups, research and advocacy. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved around the U.S. geographically each year to maximize the number of patients and their caregivers with access to this invaluable experience. The Annual Patient Conference draws 300-400 paints and caregivers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$437,391$1,753,505▲ $1,316,114
Pledges and Grants Receivable$50,796$510,247▲ $459,451
Savings and Temporary Cash Investments$720,838$269,638▼ $451,200
Cash and Non-Interest-Bearing Accounts$37,477$41,159▲ $3,682
Land, Buildings, and Equipment, Net$35,736$14,095▼ $21,641
Prepaid Expenses and Deferred Charges$6,428$8,292▲ $1,864
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$1,292,666$2,600,936▲ $1,308,270
Other Assets Total$4,000$4,000→ $0
Liabilities
Other Liabilities$127,788$86,379▼ $41,409
Accounts Payable and Accrued Expenses$26,908$17,096▼ $9,812
Total Liabilities$154,696$103,475▼ $51,221
Net Assets / Fund Balance
Temporarily Rstr Net Assets$544,199$1,415,124▲ $870,925
Unrestricted Net Assets$570,771$1,059,337▲ $488,566
Permanently Rstr Net Assets$23,000$23,000→ $0
Total Net Assets Fund Balance$1,137,970$2,497,461▲ $1,359,491
Total Liabilities and Net Assets / Fund Balance$1,292,666$2,600,936▲ $1,308,270

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$13,696$49,949$63,645
Equipment$399$14,747$15,146

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2014$23,000---$23,000
2013$1,000$22,000--$23,000
2012$1,000---$1,000
2011$1,000---$1,000
2010$1,000-▲ $1$1$1,000
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Robert GoldbergExecutive DirectorFT$195,173$25,785$220,958

Board Members and Trustees

NameTitle
Augie DeAugustinisChairman
Marianne MoyerImm. Past Chair
Terry AndersonVice Chair
Carla StevensonDirector
Christopher DoturDirector
Dana AschermanDirector
Doreen CahoonDirector
John SuttleDirector
Marvin LauwasserDirector
Patrick ZennerDirector
William PrallDirector
Renee LantnerSecretary
Craig PattersonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,609,984
Program Service Revenue
$62,584
Investment Income
$17,022
Other Revenue
$15,408
All Other Contributions
$2,329,477
Change in Net Assets
$1,367,563

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded2$108,899Fair Market Value (FMV)
Other Non Cash Contri Table92$37,290Fair Market Value (FMV)
Total Noncash Contributions94$146,189-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,704,998
Revenue Not Reported on Form 990
$60,028
Total Revenue per Audited Statements
$2,765,026
Total Revenue per Form 990
$2,704,998
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$483,053
Salaries, Compensation, and Employee Benefits$441,505
Grants and Similar Amounts Paid$401,901
Total Fundraising Expense$115,814
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$305,301--$305,301
Current Officers, Directors, Trustees, and Key Employees$99,102$39,641$59,461$198,204
Other Salaries and Wages$145,560$28,702$9,574$183,836
Foreign Grants$96,600--$96,600
Conferences and Meetings$88,741--$88,741
Occupancy$29,175$8,043$8,011$45,229
Fees for Services Accounting-$41,070-$41,070
Fees for Services Other$35,997$1,004$2,296$39,297
Other Employee Benefits$19,189$7,105$7,077$33,371
Information Technology$14,941$11,131$4,090$30,162
Travel$24,439$1,881$3,651$29,971
Payroll Taxes$16,394$5,050$4,650$26,094
Depreciation Depletion$13,842$3,907$3,892$21,641
Office Expenses$5,816$9,309$905$16,030
Benefits to Members$10,976--$10,976
Other Expenses$27,505$8,000$777$8,000
Insurance$2,040$576$573$3,189
All Other Expenses$28$2,876-$2,904
Fees for Services Legal--$2,508$2,508
Advertising$2,245--$2,245
Interest-$225-$225
Total Functional Expenses$1,047,891$173,730$115,814$1,337,435

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,405,535
Expenses per Audited Statements$1,337,435
Total Expenses per Form 990$1,337,435
Expenses Not Reported on Form 990$68,100
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
NiehsResearch Triang, NC-Research Grant$143,663
Childrens Research InstituteWashington, DC-Research Grant$67,726
Washington UniversitySt Louis, MO-Research Grant$50,000
Mayo ClinicRochester, MN-Program Support$30,000
Johns Hopkins Medical CenterBaltimore, MD-Program Support$13,412

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$73,969
Fundraising Direct Expenses$68,100
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Pedano Mem. Golf Outing$39,953$22,507$16,191$6,316
Rock n' Roll$28,039$15,795$11,363$4,432
Total Events$106,980$60,266$58,239$2,027
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Refundable Advance$86,379
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 6: Explanation of Classes of Members or Shareholder

“Membership is free. Upon registering with TMA, an individual becomes a member and is entitled to newsletters and various incidental benefits. The membership does not convey a right to vote concerning organization matters.”

Form 990, Part VI, Line 11B: Form 990 Review Process

“The Form 990 is reviewed by and approved by the Finance Committee and then circulated to the full Board for comment prior to release.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The conflict of interest policy is signed by each Board member and officer at the beginning of his or her term of service. The policy requires that the member or officer make the organization aware of any conflicts. Subsequently, an annual positive confirmation is required from each member and officer. The annual results are reviewed and acted upon by the Executive Committee of the Board.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Executive Director compensation is documented in a written employment contract. His compensation is reviewed annually based upon performance objectives established by the Board at the beginning of each year as well as market compensation considerations. This review is conducted by the Executive Committee of the Board (all of whom are independent directors) and its recommendations are then brought to the full Board for consideration. Deliberations are documented in minutes.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The organization's audited annual financial statements are published on its website. Governing documents and conflict of interest policy are available by request. TMA provides Guidestar.org with a digital copy of its Form 990, which is available on that site and others.”

Filing and Contact Details

Filer

Filer Name
The Myositis Association
EIN
54-1660976
Phone
7032994851
Address
1737 King Street, Alexandria, VA 22314

Signing Officer

Name
Robert Goldberg
Title
Executive Director
Signed
2015-10-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert Goldberg
Formed
1993
Legal Domicile
Va
Voting Board Members
13
Independent Board Members
13
Employees
4
Volunteers
60

Preparer

Firm
Elizabeth a C Quist CPA Ea
Address
PO BOX 372, OCCOQUAN, VA 22125-0372
Preparer
Elizabeth A C Quist
Phone
7035971370
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

“OTHER PROGRAM SERVICES 4: Other Program Expenditures”

Form 990, Part XII, Line 2: Change of Oversight or Selection Process

“The process for overseeing the audit of the financial statements and selection of an independent accountant that audited the financial statements has been consistent with prior years.”

Financial Statement Notes

Part V, Line 4: Intended uses of the endowment fund.

“Income from the permanent endowment is intended to support TMA programs and services.”

Part X : FIN48 Footnote

“TMA is generally exempt from federal income taxes under the provisions of Section 501(c)(3) of the Internal Revenue Code. In addition, TMA qualifies for charitable contribution deductions and has been classified as an organization that is not a private foundation. Income which is not related to exempt purposes, less applicable deductions, is subject to federal and state corporate income taxes. TMA did not have any net unrelated business income for the year ended December 31, 2014. Management has evaluated TMA's tax positions and has concluded that TMA has taken no uncertain tax positions that require disclosure. Generally, TMA is no longer subject to income tax examinations by the U.S. federal, state, or local authorities for years before 2011.”

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

“Fundraising expenses netted with revenue $68100”

Part XII, Line 2D: Other expenses and losses per audited F/S

“Fundraising expenses netted with revenue $68100”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm2Renee Lantner
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IRS990/Form990PartVIISectionAGrp/PersonNm4Marianne Moyer
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IRS990/Form990PartVIISectionAGrp/PersonNm6Doreen Cahoon
IRS990/Form990PartVIISectionAGrp/PersonNm7John Suttle
IRS990/Form990PartVIISectionAGrp/PersonNm8Dana Ascherman
IRS990/Form990PartVIISectionAGrp/PersonNm9William Prall
IRS990/Form990PartVIISectionAGrp/PersonNm10Patrick Zenner
IRS990/Form990PartVIISectionAGrp/PersonNm11Christopher Dotur
IRS990/Form990PartVIISectionAGrp/PersonNm12Carla Stevenson
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IRS990/MissionDesc0TMA's mission is to:- Provide support to myositis patients and their families,- Provide connections between the medical advisory board and the general medical and patient communities - Increase funding to support myositis researchTMA accomplishes this through patient and physician education, support groups, research and advocacy. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved around the U.S. geographically each year to maximize the number of patients and their caregivers with access to this invaluable experience. The Annual Patient Conference draws 300-400 paints and caregivers.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Through its publications, newsletters, website and support groups, TMA educates patients and physicians about myositis. Its communication and education efforts entail print quarterly newsletters, electronic newsletters, comprehensive guides to myositis such as "Myositis 101", 40 support groups and numerous brochures.
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Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,600,936
Liabilities
$103,475
Net assets
$2,497,461
Revenue
$2,704,998
Expenses
$1,337,435
Net income
$1,367,563
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.01$0.47$1.54$2.01$1.79$0.22
2023Detailed filing. Detailed filing data is available for this year.$1.78$0.49$1.29$1.25$1.89$0.64
2022Detailed filing. Detailed filing data is available for this year.$2.33$0.57$1.75$1.32$1.65$0.34
2021Detailed filing. Detailed filing data is available for this year.$2.96$0.63$2.32$1.77$1.27$0.50
2020Detailed filing. Detailed filing data is available for this year.$2.24$0.20$2.05$1.18$1.18$0.00
2019Detailed filing. Detailed filing data is available for this year.$2.23$0.34$1.89$1.02$1.62$0.61
2018Detailed filing. Detailed filing data is available for this year.$2.84$0.42$2.42$1.76$1.58$0.18
2017Detailed filing. Detailed filing data is available for this year.$2.71$0.06$2.65$1.76$1.75$0.00
2016Detailed filing. Detailed filing data is available for this year.$2.61$0.06$2.55$1.40$1.54$0.15
2015Detailed filing. Detailed filing data is available for this year.$2.69$0.09$2.60$1.53$1.38$0.15
2014Detailed filing. Detailed filing data is available for this year.$2.60$0.10$2.50$2.70$1.34$1.37
2013Detailed filing. Detailed filing data is available for this year.$1.29$0.15$1.14$1.31$1.08$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.07$0.15$0.91$0.92
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.75$0.09$0.66$0.99
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.56$0.09$0.48$1.03