People with Disabilities Foundation

“Some directors have reviewed the form 990, its schedules and related attachments in detail and have presented the return and their findings to the balance of the governing body for their concurrence.”

“Pwdf monitors this on an on-going basis; as a small agency, it would have been reported and discussed at every general annual and budget board meeting. This fy there was no need for enforcement.”

“Every year, the voting board reviews the staffing and salary structure at the pwdf general annual budget meeting in april or may. Periodically, (every 5 years), we purchase naional and regional salary data from guidestar to compare our salary structure with similar nonprofits that have similar budget amounts.”

“The documents are available upon request to the organization and also through the office of the california attorney general.”

“Pwdf continues to consult with and represent individuals who have psychiatric, intellectual,and/or developmental disabilities (p/idd) on cases that involve social security disability, employment,and housing benefits including with reasonable accommodations issues. We primarily represent clients before the social security administration (ssa) for social security disability insurance (ssdi) and supplemental security income (ssi) benefits,including in post-entitlement and post eligibility for benefits. We have clinics for beneficiaries of ssdi and/or ssi who have issues due to ssdi work reviews and ssi redeterminations based on income, and resulting overpayments in either or both programs. This work continued throughout the covid-19 pandemic, but at reduced operations. In 2012, pwdf received favorable outcomes in two federal court cases filed against the ssa alleging that they discriminate against people with mental (schizophrenia) and developmental (autism) disabilities. (case nos. 3:06- cv-6108 emc (nc) and 3:09-cv-980 emc (nc).) this is the first time the ssa offered reasonable accommodations on the basis of mental/developmental disabilities. We are currently in the enforcement stage, ensuring the ssa is not in violation of this settlement agreement with respect to doe;davis passed away. This fiscal year,pwdf filed an appeal with the 9th circuit court of appeals against the u.s. Department of health and human services (hhs) and two insurance companies who denied beneficiary medicare coverage for a medication used to treat wasting syndrome as a symptom of lipodystrophy because claimant does not have another unrelated disease (hiv). Hhs also failed to provide access to the medicare compendia used as a basis for the denials. Pwdf believes that denying coverage under these conditions discriminates against the beneficiary based on disability (non-hiv lipodystrophy) and violates beneficiary's constitutional due process rights by basing the decision on an irrational basis. Subsequent to this fiscal year (in 11/2020), pwdf filed a petition for a writ of certiorari with the u.s. Supreme court on this case, which was denied.”

“Pwdf continues its public awareness and education activities through outreach events, guest speaking, a quarterly e-newsletter, informational seminars, training sessions and a youtube channel, which hosts and disseminates our seminar and other videos. To-date, we have nearly 20 3-hour educational seminars on our youtube channel. In addition, we continue to market our training videos for distribution. Over the last several years, we have been expanding our public awareness and education program from a primarily local program to a national program thouugh technology. In-person activities ceased in march 2020 due to the coronavirus stat-at-home orders; however, they are expected to resume when county and state orders allow. Pwdf has done research and planning for our next free public awareness seminar, with the working-title of "older adults and mental health issues: diagnosis, treatment, and solutions." this seminar will address psychiatric issues related to aging, including those that often or may onset late in life such as dementia (now per dsm 5, neuro-cognitive disorder),personality disorder, cognitive dysfunction, anxiety, and depressionto provide a robust and important topic with which to educate the community. In 2015, we began increasing our work in submitting public comments to governmental agencies advocating for policies and regulatory changes as they pertain to people with p/idd,because this population is too often underrepresented and stigmatized. In 2019-20, we submitted comments to the ssa on its notice of proposed rulemaking for "rules regarding the frequency and notice of continuing disability reviews." we provide training on the americans with disabilities act (ada) as well as (ssdi) and ssi with a focus on how the rules affect people with p/idd. We provide these trainings statewide and locally, including for organizations such as nami california, nami san francisco chapter, nami marin chapter, the bar association of san francisco, and support for families of children with disabilities, among others. This year, pwdf presented two workshops on the ada to the alameda county, california probation department, before in-person activities were ceased due to the pandemic.”