Civic Intelligence

Joubert Syndrome and Related Disorders Foundation Corporation

990 • Fiscal year 2016 • EIN 52-1871536

Jan 01, 2016 to Dec 31, 2016 • Filed on May 03, 2017

Organization ProfileJSRDF.ORG
1415 West AveCincinnati, OH 45215

(513) 354-0757

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

89th percentile

42%

Higher net margin than 89% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

66th percentile

13%

Faster asset growth than 66% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

9th percentile

-52%

Faster revenue growth than 9% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$229,619

Up $26,595 (+13%) from 2015

Net Assets

Up

$229,619

Up $26,851 (+13%) from 2015

Liabilities

Down

$0

Down $256 (-100%) from 2015

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin89th percentile

Revenue

Down

$64,347

Down $69,722 (-52%) from 2015

Expenses

Down

$37,496

Down $74,957 (-67%) from 2015

Net Income

Up

$26,851

Up $5,235 (+24%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth66th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2010: $119,627Liabilities 2010: $0Net Assets 2010: $119,6272010Assets 2011: $97,012Liabilities 2011: $2,125Net Assets 2011: $94,8872011Assets 2012: $155,751Liabilities 2012: $93Net Assets 2012: $155,6582012Assets 2013: $142,686Liabilities 2013: $614Net Assets 2013: $142,0722013Assets 2014: $182,118Liabilities 2014: $966Net Assets 2014: $181,1522014Assets 2015: $203,024Liabilities 2015: $256Net Assets 2015: $202,7682015Assets 2016: $229,619Liabilities 2016: $0Net Assets 2016: $229,6192016Assets 2017: $233,938Liabilities 2017: $4,396Net Assets 2017: $229,5422017Assets 2018: $322,699Liabilities 2018: $2,984Net Assets 2018: $319,7152018Assets 2019: $313,758Liabilities 2019: $1,541Net Assets 2019: $312,2172019Assets 2020: $415,286Liabilities 2020: $1,836Net Assets 2020: $413,4502020Assets 2021: $474,067Liabilities 2021: $1,012Net Assets 2021: $473,0552021Assets 2022: $488,438Liabilities 2022: $1,514Net Assets 2022: $486,9242022Assets 2023: $260,324Liabilities 2023: $91Net Assets 2023: $260,2332023Assets 2024: $308,516Liabilities 2024: $826Net Assets 2024: $307,6902024

Highlighted filing

2016

Assets$229,619
Liabilities$0
Net Assets$229,619
Open 2016 Filing

Operations Trend

Revenue Growth9th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200K-$400KExpenses 2010: $25,6152010Expenses 2011: $124,4042011Expenses 2012: $27,4392012Revenue 2013: $105,495Expenses 2013: $119,031Net Income 2013: -$13,5362013Revenue 2014: $57,235Expenses 2014: $23,155Net Income 2014: $34,0802014Revenue 2015: $134,069Expenses 2015: $112,453Net Income 2015: $21,6162015Revenue 2016: $64,347Expenses 2016: $37,496Net Income 2016: $26,8512016Revenue 2017: $218,972Expenses 2017: $196,638Net Income 2017: $22,3342017Revenue 2018: $133,230Expenses 2018: $26,060Net Income 2018: $107,1702018Revenue 2019: $249,356Expenses 2019: $251,854Net Income 2019: -$2,4982019Revenue 2020: $169,140Expenses 2020: $67,907Net Income 2020: $101,2332020Revenue 2021: $163,968Expenses 2021: $104,363Net Income 2021: $59,6052021Revenue 2022: $52,346Expenses 2022: $38,477Net Income 2022: $13,8692022Revenue 2023: $137,061Expenses 2023: $363,752Net Income 2023: -$226,6912023Revenue 2024: $69,166Expenses 2024: $21,709Net Income 2024: $47,4572024

Highlighted filing

2016

Revenue$64,347
Expenses$37,496
Net Income$26,851
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
May 3, 2017
Return Version
2016v3.0
Gross Receipts
$64,347
Mission and Program Overview

Mission

To administer a bi-annual conference featuring physicians who are conducting joubert syndrome

To administer a conference featuring physicians who are conducting joubert syndrome research and to provide helpful information to parents raising children with joubert syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$197,834$224,211▲ $26,377
Inventories for Sale or Use$5,190$5,408▲ $218
Total Assets$203,024$229,619▲ $26,595
Liabilities
Accounts Payable and Accrued Expenses$256--
Total Liabilities$256$0▼ $256
Net Assets / Fund Balance
Unrestricted Net Assets$170,863$167,169▼ $3,694
Temporarily Rstr Net Assets$31,905$62,450▲ $30,545
Total Net Assets Fund Balance$202,768$229,619▲ $26,851
Total Liabilities and Net Assets / Fund Balance$203,024$229,619▲ $26,595
Compensation and Service Providers
Top Officer Pay75th percentile

Board Members and Trustees

NameTitle
Eric SwensonPresident
Larry MungerPresident El
Amanda TulumaloDirector
Anne PenceDirector
Ayah YoungDirector
Charles HeissDirector
Debra GarrisonDirector
Landon BordersDirector
Meghan KrystyniakDirector
Nicole FordDirector
Thomas Brett ElliottDirector
Michele AbdulazizBus Ops Coor
Denise MackSecretary
Pete AsmanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$64,347
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$61,449
Change in Net Assets
$26,851
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$37,496
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$19,809--$19,809
Fees for Services Accounting-$2,721-$2,721
Insurance$2,294--$2,294
Office Expenses$647--$647
Other Expenses$567--$567
Total Functional Expenses$34,775$2,721$0$37,496
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI

“Form 990, part vi, line 2 - see answer to part 1, line 1. This refers to the foundation's mission and significant activities as stated in part 1, line 1. The foundation was created due to recognition by individuals and families that there must be a means to promote knowledge and consideration of the syndrome among families dealing with it. On occasion, committees will include more than one family member who might be active as a volunteer as well as a sitting member of the board or on one of the other committees. Such relationships are known among the family members or at the least not hidden from other such volunteers. Having such family relationships generates better community values for the foundation but not at the detriment of others served by the foundation.”

Form 990, Page 6, Part VI, Line 11B

“A copy of form 990 was provided to the members of the governing body.”

Form 990, Page 6, Part VI, Line 12C

“1. The foundation did have a written policy that discussed conflicts of interest. 2. The policy did provide for a duty to disclose any such conflicts. 3. Technically the answer to part vi, 12c is no. The foundation had a new conflict of interest policy and was in the process of learning how to implement it.”

Form 990, Page 6, Part VI, Line 15A

“NOT APPLICABLE”

Form 990, Page 6, Part VI, Line 15B

“NOT APPLICABLE”

Form 990, Page 6, Part VI, Line 19

“Other information and documents are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Joubert Syndrome & Related
EIN
52-1871536
Phone
5133540757
Address
1415 WEST AVE, CINCINNATI, OH 45215

Signing Officer

Name
Pete Asman
Title
Treasurer
Phone
5133540757
Signed
2017-05-03
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Pete Asman
Formed
1994
Legal Domicile
Oh
Voting Board Members
13
Independent Board Members
13
Employees
0
Volunteers
30

Preparer

Firm
Floyd-scott CPA & Assoc
Address
3612 GLENMORE AVENUE, CINCINNATI, OH 45211
Preparer
Nick Floyd-scott
Phone
5134517930
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/TotalSupportAmt0442613
IRS990/ScheduleBRequiredInd0false
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990, PART VI, LINE 2 - SEE ANSWER TO PART 1, LINE 1. THIS REFERS TO THE FOUNDATION'S MISSION AND SIGNIFICANT ACTIVITIES AS STATED IN PART 1, LINE 1. THE FOUNDATION WAS CREATED DUE TO RECOGNITION BY INDIVIDUALS AND FAMILIES THAT THERE MUST BE A MEANS TO PROMOTE KNOWLEDGE AND CONSIDERATION OF THE SYNDROME AMONG FAMILIES DEALING WITH IT. ON OCCASION, COMMITTEES WILL INCLUDE MORE THAN ONE FAMILY MEMBER WHO MIGHT BE ACTIVE AS A VOLUNTEER AS WELL AS A SITTING MEMBER OF THE BOARD OR ON ONE OF THE OTHER COMMITTEES. SUCH RELATIONSHIPS ARE KNOWN AMONG THE FAMILY MEMBERS OR AT THE LEAST NOT HIDDEN FROM OTHER SUCH VOLUNTEERS. HAVING SUCH FAMILY RELATIONSHIPS GENERATES BETTER COMMUNITY VALUES FOR THE FOUNDATION BUT NOT AT THE DETRIMENT OF OTHERS SERVED BY THE FOUNDATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A COPY OF FORM 990 WAS PROVIDED TO THE MEMBERS OF THE GOVERNING BODY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt21. THE FOUNDATION DID HAVE A WRITTEN POLICY THAT DISCUSSED CONFLICTS OF INTEREST. 2. THE POLICY DID PROVIDE FOR A DUTY TO DISCLOSE ANY SUCH CONFLICTS. 3. TECHNICALLY THE ANSWER TO PART VI, 12C IS NO. THE FOUNDATION HAD A NEW CONFLICT OF INTEREST POLICY AND WAS IN THE PROCESS OF LEARNING HOW TO IMPLEMENT IT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3NOT APPLICABLE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4NOT APPLICABLE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5OTHER INFORMATION AND DOCUMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PAGE 6, PART VI, LINE 19
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IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt031905
IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt062450
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0203024
IRS990/TotalAssetsEOYAmt0229619
IRS990/TotalAssetsGrp/BOYAmt0203024
IRS990/TotalAssetsGrp/EOYAmt0229619
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt064347
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt02721
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt034775
IRS990/TotalFunctionalExpensesGrp/TotalAmt037496
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0256
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt0256
IRS990/TotalLiabilitiesGrp/EOYAmt00
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IRS990/TotalProgramServiceExpensesAmt034775
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt064347
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IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0203024
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0229619
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IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt0170863
IRS990/UnrestrictedNetAssetsGrp/EOYAmt0167169
IRS990/UponRequestInd0X
IRS990/VotingMembersGoverningBodyCnt013
IRS990/VotingMembersIndependentCnt013
IRS990/WebsiteAddressTxt0JSRDF.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02017-02-10 21:41:12Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0PETE ASMAN
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum05133540757
ReturnHeader/BusinessOfficerGrp/SignatureDt02017-05-03
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0JOUBERT SYNDROME & RELATED
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0DISORDERS FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0JOUB
ReturnHeader/Filer/EIN0521871536
ReturnHeader/Filer/PhoneNum05133540757
ReturnHeader/Filer/USAddress/AddressLine1Txt01415 WEST AVE
ReturnHeader/Filer/USAddress/CityNm0CINCINNATI
ReturnHeader/Filer/USAddress/StateAbbreviationCd0OH
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ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId017AC327D81CF414CE9F7D93714DE5C2107045D3F
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId023E5CCA9635B08863AB9F1D84EB6CC7BD978BAB5
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0311393979
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0FLOYD-SCOTT CPA & ASSOC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt03612 GLENMORE AVENUE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0CINCINNATI
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0OH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd045211
ReturnHeader/PreparerPersonGrp/PhoneNum05134517930
ReturnHeader/PreparerPersonGrp/PreparationDt02017-08-24
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0NICK FLOYD-SCOTT
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02017-08-24T15:28:00-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02016-01-01
ReturnHeader/TaxPeriodEndDt02016-12-31
ReturnHeader/TaxYr02016

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$229,619
Liabilities
$0
Net assets
$229,619
Revenue
$64,347
Expenses
$37,496
Net income
$26,851
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.09$0.01$3.08$0.69$0.22$0.47
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.60$0.00$2.60$1.37$3.64$2.27
2022Detailed filing. Detailed filing data is available for this year.$4.88$0.02$4.87$0.52$0.38$0.14
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.74$0.01$4.73$1.64$1.04$0.60
2020Summary only. Only limited summary data is available for this year.$4.15$0.02$4.13$1.69$0.68$1.01
2019Summary only. Only limited summary data is available for this year.$3.14$0.02$3.12$2.49$2.52$0.02
2018Summary only. Only limited summary data is available for this year.$3.23$0.03$3.20$1.33$0.26$1.07
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.34$0.04$2.30$2.19$1.97$0.22
2016Detailed filing. Detailed filing data is available for this year.$2.30$0.00$2.30$0.64$0.37$0.27
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.03$0.00$2.03$1.34$1.12$0.22
2014Detailed filing. Detailed filing data is available for this year.$1.82$0.01$1.81$0.57$0.23$0.34
2013Detailed filing. Detailed filing data is available for this year.$1.43$0.01$1.42$1.05$1.19$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.56$0.00$1.56$0.27
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.02$0.95$1.24
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.00$1.20$0.26