Civic Intelligence

Joubert Syndrome and Related Disorders Foundation Corporation

990 • Fiscal year 2015 • EIN 52-1871536

Jan 01, 2015 to Dec 31, 2015 • Filed on Apr 29, 2016

Organization ProfileJSRDF.ORG
1415 West AveCincinnati, OH 45215

(513) 354-0757

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.00x

Higher debt load relative to assets than 57% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Liabilities / Revenue

57th percentile

0.00x

Higher debt load relative to revenue than 57% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Net Margin

72nd percentile

16%

Higher net margin than 72% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Asset Growth

64th percentile

11%

Faster asset growth than 64% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Annualized from 2014 to 2015

Revenue Growth

94th percentile

134%

Faster revenue growth than 94% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets57th percentile

Assets

Up

$203,024

Up $20,906 (+11%) from 2014

Net Assets

Up

$202,768

Up $21,616 (+12%) from 2014

Liabilities

Down

$256

Down $710 (-73%) from 2014

Revenue And Expenses
Liabilities / Revenue57th percentileNet Margin72nd percentile

Revenue

Up

$134,069

Up $76,834 (+134%) from 2014

Expenses

Up

$112,453

Up $89,298 (+386%) from 2014

Net Income

Down

$21,616

Down $12,464 (-37%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth64th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2010: $119,627Liabilities 2010: $0Net Assets 2010: $119,6272010Assets 2011: $97,012Liabilities 2011: $2,125Net Assets 2011: $94,8872011Assets 2012: $155,751Liabilities 2012: $93Net Assets 2012: $155,6582012Assets 2013: $142,686Liabilities 2013: $614Net Assets 2013: $142,0722013Assets 2014: $182,118Liabilities 2014: $966Net Assets 2014: $181,1522014Assets 2015: $203,024Liabilities 2015: $256Net Assets 2015: $202,7682015Assets 2016: $229,619Liabilities 2016: $0Net Assets 2016: $229,6192016Assets 2017: $233,938Liabilities 2017: $4,396Net Assets 2017: $229,5422017Assets 2018: $322,699Liabilities 2018: $2,984Net Assets 2018: $319,7152018Assets 2019: $313,758Liabilities 2019: $1,541Net Assets 2019: $312,2172019Assets 2020: $415,286Liabilities 2020: $1,836Net Assets 2020: $413,4502020Assets 2021: $474,067Liabilities 2021: $1,012Net Assets 2021: $473,0552021Assets 2022: $488,438Liabilities 2022: $1,514Net Assets 2022: $486,9242022Assets 2023: $260,324Liabilities 2023: $91Net Assets 2023: $260,2332023Assets 2024: $308,516Liabilities 2024: $826Net Assets 2024: $307,6902024

Highlighted filing

2015

Assets$203,024
Liabilities$256
Net Assets$202,768
Open 2015 Filing

Operations Trend

Revenue Growth94th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200K-$400KExpenses 2010: $25,6152010Expenses 2011: $124,4042011Expenses 2012: $27,4392012Revenue 2013: $105,495Expenses 2013: $119,031Net Income 2013: -$13,5362013Revenue 2014: $57,235Expenses 2014: $23,155Net Income 2014: $34,0802014Revenue 2015: $134,069Expenses 2015: $112,453Net Income 2015: $21,6162015Revenue 2016: $64,347Expenses 2016: $37,496Net Income 2016: $26,8512016Revenue 2017: $218,972Expenses 2017: $196,638Net Income 2017: $22,3342017Revenue 2018: $133,230Expenses 2018: $26,060Net Income 2018: $107,1702018Revenue 2019: $249,356Expenses 2019: $251,854Net Income 2019: -$2,4982019Revenue 2020: $169,140Expenses 2020: $67,907Net Income 2020: $101,2332020Revenue 2021: $163,968Expenses 2021: $104,363Net Income 2021: $59,6052021Revenue 2022: $52,346Expenses 2022: $38,477Net Income 2022: $13,8692022Revenue 2023: $137,061Expenses 2023: $363,752Net Income 2023: -$226,6912023Revenue 2024: $69,166Expenses 2024: $21,709Net Income 2024: $47,4572024

Highlighted filing

2015

Revenue$134,069
Expenses$112,453
Net Income$21,616
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Apr 29, 2016
Return Version
2015v2.1
Gross Receipts
$134,069
Mission and Program Overview

Mission

To administer a bi-annual conference featuring physicians who are conducting joubert syndrome

To administer a conference featuring physicians who are conducting joubert syndrome research and to provide helpful information to parents raising children with joubert syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$182,118$197,834▲ $15,716
Inventories for Sale or Use-$5,190-
Total Assets$182,118$203,024▲ $20,906
Liabilities
Accounts Payable and Accrued Expenses$966$256▼ $710
Total Liabilities$966$256▼ $710
Net Assets / Fund Balance
Unrestricted Net Assets$161,942$170,863▲ $8,921
Temporarily Rstr Net Assets$19,210$31,905▲ $12,695
Total Net Assets Fund Balance$181,152$202,768▲ $21,616
Total Liabilities and Net Assets / Fund Balance$182,118$203,024▲ $20,906
Compensation and Service Providers
Top Officer Pay75th percentile

Board Members and Trustees

NameTitle
Eric SwensonPresident
Larry MungerPresident El
Amanda TulumaloDirector
Anne PenceDirector
Charles HeissDirector
Debra GarrisonDirector
Landon BordersDirector
Meghan KrystyniakDirector
Nicole FordDirector
Thomas Brett ElliottDirector
Michele AbdulazizBus Ops Coor
Denise MackSecretary
Pete AsmanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$133,796
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$273
All Other Contributions
$132,311
Change in Net Assets
$21,616
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$112,453
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$83,325--$83,325
Insurance$2,294--$2,294
Other Expenses$1,252--$1,252
Office Expenses$1,220--$1,220
Fees for Services Accounting-$732-$732
All Other Expenses$246--$246
Fees for Services Legal$79--$79
Total Functional Expenses$111,721$732$0$112,453
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-See Part V.PhotographerNo$1,800
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI

“Form 990, part vi, line 2 - see answer to part 1, line 1. This refers to the foundation's mission and significant activities as stated in part 1, line 1. The foundation was created due to recognition by individuals and families that there must be a means to promote knowledge and consideration of the syndrome among families dealing with it. On occasion, committees will include more than one family member who might be active as a volunteer as well as a sitting member of the board or on one of the other committees. Such relationships are known among the family members or at the least not hidden from other such volunteers. Having such family relationships generates better community values for the foundation but not at the detriment of other members.”

Form 990, Page 6, Part VI, Line 11B

“A copy of form 990 was provided to the members of the governing body.”

Form 990, Page 6, Part VI, Line 12C

“1. The foundation did have a written policy that discussed conflicts of interest. 2. The policy did provide for a duty to disclose any such conflicts. 3. Technically the answer to part vi, 12c is no. The foundation had a new conflict of interest policy and was in the process of learning how to implement it.”

Form 990, Page 6, Part VI, Line 15A

“NOT APPLICABLE”

Form 990, Page 6, Part VI, Line 15B

“NOT APPLICABLE”

Form 990, Page 6, Part VI, Line 19

“Other information and documents are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Joubert Syndrome & Related
EIN
52-1871536
Phone
5133540757
Address
1415 WEST AVE, CINCINNATI, OH 45215

Signing Officer

Name
Pete Asman
Title
Treasurer
Phone
5133540757
Signed
2016-04-29

Organization Details

Principal Officer
Pete Asman
Formed
1994
Legal Domicile
Oh
Voting Board Members
11
Independent Board Members
11
Employees
0
Volunteers
30

Preparer

Firm
Floyd-scott CPA & Assoc
Address
5843 HARRISON AVE STE 306, CINCINNATI, OH 45248-1647
Preparer
Nick Floyd-scott
Phone
5134517930
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt026
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt046
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0273
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99990
IRS990ScheduleA/PublicSupportPY170Pct00.99980
IRS990ScheduleA/PublicSupportTotal170Amt0480319
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0132311
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt056310
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0104455
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt088068
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt099175
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0480319
IRS990ScheduleA/TotalSupportAmt0480365
IRS990/ScheduleBRequiredInd0false
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/BusinessName/BusinessNameLine1Txt0JENNI SWENSON
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/BusinessName/BusinessNameLine2Txt0JENNI SWENSON
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0SEE PART V.
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt01800
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0PHOTOGRAPHER
IRS990ScheduleL/SupplementalInformationDetail/ExplanationTxt0AT THE CONFERENCE IN JULY, 2015, THE PAID PHOTOGRAPHER WAS JENNI SWENSON. SHE IS THE WIFE OF ERIC SWENSON, WHO BECAME PRESIDENT OF THE FOUNDATION UPON COMPLETION OF THE CONFERENCE. SHE WAS PAID 1,800 FOR HER PHOTOGRAPHIC SERVICES.
IRS990ScheduleL/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE L, PART V
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990, PART VI, LINE 2 - SEE ANSWER TO PART 1, LINE 1. THIS REFERS TO THE FOUNDATION'S MISSION AND SIGNIFICANT ACTIVITIES AS STATED IN PART 1, LINE 1. THE FOUNDATION WAS CREATED DUE TO RECOGNITION BY INDIVIDUALS AND FAMILIES THAT THERE MUST BE A MEANS TO PROMOTE KNOWLEDGE AND CONSIDERATION OF THE SYNDROME AMONG FAMILIES DEALING WITH IT. ON OCCASION, COMMITTEES WILL INCLUDE MORE THAN ONE FAMILY MEMBER WHO MIGHT BE ACTIVE AS A VOLUNTEER AS WELL AS A SITTING MEMBER OF THE BOARD OR ON ONE OF THE OTHER COMMITTEES. SUCH RELATIONSHIPS ARE KNOWN AMONG THE FAMILY MEMBERS OR AT THE LEAST NOT HIDDEN FROM OTHER SUCH VOLUNTEERS. HAVING SUCH FAMILY RELATIONSHIPS GENERATES BETTER COMMUNITY VALUES FOR THE FOUNDATION BUT NOT AT THE DETRIMENT OF OTHER MEMBERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A COPY OF FORM 990 WAS PROVIDED TO THE MEMBERS OF THE GOVERNING BODY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt21. THE FOUNDATION DID HAVE A WRITTEN POLICY THAT DISCUSSED CONFLICTS OF INTEREST. 2. THE POLICY DID PROVIDE FOR A DUTY TO DISCLOSE ANY SUCH CONFLICTS. 3. TECHNICALLY THE ANSWER TO PART VI, 12C IS NO. THE FOUNDATION HAD A NEW CONFLICT OF INTEREST POLICY AND WAS IN THE PROCESS OF LEARNING HOW TO IMPLEMENT IT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3NOT APPLICABLE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4NOT APPLICABLE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5OTHER INFORMATION AND DOCUMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PAGE 6, PART VI, LINE 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt019210
IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt031905
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0182118
IRS990/TotalAssetsEOYAmt0203024
IRS990/TotalAssetsGrp/BOYAmt0182118
IRS990/TotalAssetsGrp/EOYAmt0203024
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0133796
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0732
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0111721
IRS990/TotalFunctionalExpensesGrp/TotalAmt0112453
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0966
IRS990/TotalLiabilitiesEOYAmt0256
IRS990/TotalLiabilitiesGrp/BOYAmt0966
IRS990/TotalLiabilitiesGrp/EOYAmt0256
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0181152
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0202768
IRS990/TotalProgramServiceExpensesAmt0111721
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0273
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0134069
IRS990/TotalVolunteersCnt030
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0182118
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0203024
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt0161942
IRS990/UnrestrictedNetAssetsGrp/EOYAmt0170863
IRS990/UponRequestInd0X
IRS990/VotingMembersGoverningBodyCnt011
IRS990/VotingMembersIndependentCnt011
IRS990/WebsiteAddressTxt0JSRDF.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02016-09-27 15:27:22Z
ReturnHeader/BusinessOfficerGrp/PersonNm0PETE ASMAN
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum05133540757
ReturnHeader/BusinessOfficerGrp/SignatureDt02016-04-29
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0JOUBERT SYNDROME & RELATED
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0DISORDERS FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0JOUB
ReturnHeader/Filer/EIN0521871536
ReturnHeader/Filer/PhoneNum05133540757
ReturnHeader/Filer/USAddress/AddressLine1Txt01415 WEST AVE
ReturnHeader/Filer/USAddress/CityNm0CINCINNATI
ReturnHeader/Filer/USAddress/StateAbbreviationCd0OH
ReturnHeader/Filer/USAddress/ZIPCd045215
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0311393979
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0FLOYD-SCOTT CPA & ASSOC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt05843 HARRISON AVE STE 306
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0CINCINNATI
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0OH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0452481647
ReturnHeader/PreparerPersonGrp/PhoneNum05134517930
ReturnHeader/PreparerPersonGrp/PreparationDt02016-06-01
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0NICK FLOYD-SCOTT
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02016-06-01T09:49:12-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02015-01-01
ReturnHeader/TaxPeriodEndDt02015-12-31
ReturnHeader/TaxYr02015

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$203,024
Liabilities
$256
Net assets
$202,768
Revenue
$134,069
Expenses
$112,453
Net income
$21,616
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.09$0.01$3.08$0.69$0.22$0.47
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.60$0.00$2.60$1.37$3.64$2.27
2022Detailed filing. Detailed filing data is available for this year.$4.88$0.02$4.87$0.52$0.38$0.14
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.74$0.01$4.73$1.64$1.04$0.60
2020Summary only. Only limited summary data is available for this year.$4.15$0.02$4.13$1.69$0.68$1.01
2019Summary only. Only limited summary data is available for this year.$3.14$0.02$3.12$2.49$2.52$0.02
2018Summary only. Only limited summary data is available for this year.$3.23$0.03$3.20$1.33$0.26$1.07
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.34$0.04$2.30$2.19$1.97$0.22
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.30$0.00$2.30$0.64$0.37$0.27
2015Detailed filing. Detailed filing data is available for this year.$2.03$0.00$2.03$1.34$1.12$0.22
2014Detailed filing. Detailed filing data is available for this year.$1.82$0.01$1.81$0.57$0.23$0.34
2013Detailed filing. Detailed filing data is available for this year.$1.43$0.01$1.42$1.05$1.19$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.56$0.00$1.56$0.27
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.02$0.95$1.24
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.00$1.20$0.26