Civic Intelligence

Joubert Syndrome and Related Disorders Foundation

EIN 52-1871536 • 501(c)3 • Lithia, FL

Profile

To administer a biennial conference featuring physicians who are conducting joubert syndrome research and to provide helpful information to parents raising children with joubert syndrome.

15411 Starling Crossing DrLithia, FL 33547

jsrdf.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

62nd percentile

0.00x

Higher debt load relative to assets than 62% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

69th percentile

0.01x

Higher debt load relative to revenue than 69% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

94th percentile

69%

Higher net margin than 94% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

84th percentile

$0

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

75th percentile

19%

Faster asset growth than 75% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

17th percentile

-50%

Faster revenue growth than 17% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Up

$308,516

Up $48,192 (+19%) from 2023

Liabilities

Up

$826

Up $735 (+808%) from 2023

Net Assets

Up

$307,690

Up $47,457 (+18%) from 2023

Operations
Liabilities / Revenue69th percentileNet Margin94th percentile

Revenue

Down

$69,166

Down $67,895 (-50%) from 2023

Expenses

Down

$21,709

Down $342,043 (-94%) from 2023

Net Income

Up

$47,457

Up $274,148 (+121%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth75th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2010: $119,627Liabilities 2010: $0Net Assets 2010: $119,6272010Assets 2011: $97,012Liabilities 2011: $2,125Net Assets 2011: $94,8872011Assets 2012: $155,751Liabilities 2012: $93Net Assets 2012: $155,6582012Assets 2013: $142,686Liabilities 2013: $614Net Assets 2013: $142,0722013Assets 2014: $182,118Liabilities 2014: $966Net Assets 2014: $181,1522014Assets 2015: $203,024Liabilities 2015: $256Net Assets 2015: $202,7682015Assets 2016: $229,619Liabilities 2016: $0Net Assets 2016: $229,6192016Assets 2017: $233,938Liabilities 2017: $4,396Net Assets 2017: $229,5422017Assets 2018: $322,699Liabilities 2018: $2,984Net Assets 2018: $319,7152018Assets 2019: $313,758Liabilities 2019: $1,541Net Assets 2019: $312,2172019Assets 2020: $415,286Liabilities 2020: $1,836Net Assets 2020: $413,4502020Assets 2021: $474,067Liabilities 2021: $1,012Net Assets 2021: $473,0552021Assets 2022: $488,438Liabilities 2022: $1,514Net Assets 2022: $486,9242022Assets 2023: $260,324Liabilities 2023: $91Net Assets 2023: $260,2332023Assets 2024: $308,516Liabilities 2024: $826Net Assets 2024: $307,6902024

Highlighted filing

2024

Assets$308,516
Liabilities$826
Net Assets$307,690
Open 2024 Filing

Operations Trend

Revenue Growth17th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200K-$400KExpenses 2010: $25,6152010Expenses 2011: $124,4042011Expenses 2012: $27,4392012Revenue 2013: $105,495Expenses 2013: $119,031Net Income 2013: -$13,5362013Revenue 2014: $57,235Expenses 2014: $23,155Net Income 2014: $34,0802014Revenue 2015: $134,069Expenses 2015: $112,453Net Income 2015: $21,6162015Revenue 2016: $64,347Expenses 2016: $37,496Net Income 2016: $26,8512016Revenue 2017: $218,972Expenses 2017: $196,638Net Income 2017: $22,3342017Revenue 2018: $133,230Expenses 2018: $26,060Net Income 2018: $107,1702018Revenue 2019: $249,356Expenses 2019: $251,854Net Income 2019: -$2,4982019Revenue 2020: $169,140Expenses 2020: $67,907Net Income 2020: $101,2332020Revenue 2021: $163,968Expenses 2021: $104,363Net Income 2021: $59,6052021Revenue 2022: $52,346Expenses 2022: $38,477Net Income 2022: $13,8692022Revenue 2023: $137,061Expenses 2023: $363,752Net Income 2023: -$226,6912023Revenue 2024: $69,166Expenses 2024: $21,709Net Income 2024: $47,4572024

Highlighted filing

2024

Revenue$69,166
Expenses$21,709
Net Income$47,457
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$308,516
Liabilities
$826
Net assets
$307,690
Revenue
$69,166
Expenses
$21,709
Net income
$47,457
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.09$0.01$3.08$0.69$0.22$0.47
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.60$0.00$2.60$1.37$3.64$2.27
2022Detailed filing. Detailed filing data is available for this year.$4.88$0.02$4.87$0.52$0.38$0.14
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.74$0.01$4.73$1.64$1.04$0.60
2020Summary only. Only limited summary data is available for this year.$4.15$0.02$4.13$1.69$0.68$1.01
2019Summary only. Only limited summary data is available for this year.$3.14$0.02$3.12$2.49$2.52$0.02
2018Summary only. Only limited summary data is available for this year.$3.23$0.03$3.20$1.33$0.26$1.07
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.34$0.04$2.30$2.19$1.97$0.22
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.30$0.00$2.30$0.64$0.37$0.27
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.03$0.00$2.03$1.34$1.12$0.22
2014Detailed filing. Detailed filing data is available for this year.$1.82$0.01$1.81$0.57$0.23$0.34
2013Detailed filing. Detailed filing data is available for this year.$1.43$0.01$1.42$1.05$1.19$0.14
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.56$0.00$1.56$0.27
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.02$0.95$1.24
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.00$1.20$0.26
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 5, 2025
Return Version
2024v5.2
Gross Receipts
$69,166
Mission and Program Overview

Mission

To administer a bi-annual conference featuring physicians who are conducting joubert syndrome

Providing an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference. The joubert syndrome & related disorders foundation plays an important role in educating physicians and their support teams as well as increasing public awareness.

Program Services

DescriptionGrantsExpenses
TO ADMINISTER A BIENNIAL CONFERENCE FEATURING PHYSICIANS WHO ARE CONDUCTING JOUBERT SYNDROME RESEARCH AND TO PROVIDE HELPFUL INFORMATION TO PARENTS RAISING CHILDREN WITH JOUBERT SYNDROME.$1,000$1,890
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
STEPHEN MACKPresident-$0--
MELISSA FIELDSPresident Elect-$0--
JESSIKA GARISTreasurer-$0--
AMY BALLOCKSecretary-$0--
MATT BALLOCKDirector-$0--
SARAH BORDERSDirector-$0--
KRISTIN CHAKODirector-$0--
COURTNEY EDDYDirector-$0--
DEVIN HAYSDirector-$0--
LORI MORTONDirector-$0--
CASSIE MEIERSDirector-$0--
CINDY SCHMITTDirector-$0--
Filing and Contact Details

Filer

Filer Name
Joubert Syndrome and Related Disorders
EIN
52-1871536
Phone
8473616542
Address
15411 STARLING CROSSING DR, LITHIA, FL 33547

Signing Officer

Name
Stephen Mack
Title
President
Phone
8473616542
Signed
2025-10-05
Discuss with paid preparer
Yes

Preparer

Firm
Cliftonlarsonallen Llp
Address
5255 EAST WILLIAMS CIRCLE SUITE, 5000, TUCSON, AZ 85711
Preparer
Jonathan Wittmann
Phone
5207903500
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 16 - Other Expenses

“Description: supplies. Amount: 566. Description: family support. Amount: 516. Description: website expenses. Amount: 127. Description: fundraising costs. Amount: 3,911. Description: bank charges. Amount: 99. Description: insurance. Amount: 1,794. Description: conferences. Amount: 375. Description: registration fee. Amount: 625. Total to form 990-ez, line 16: 8,013.”

Form 990-ez, Part II, Line 24 - Other Assets

“Description: prepaid expenses. Beg. Of year amount: 2,299. End of year amount: 2,299.”

Form 990-ez, Part II, Line 26 - Other Liabilities

“Description: accounts payable. Beg. Of year amount: 91. End of year amount: 826.”

Raw XML Appendix217 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1PRESIDENT ELECT
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt5DIRECTOR
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IRS990EZ/PrimaryExemptPurposeTxt0PROVIDING AN INTERNATIONAL NETWORK OF PARENTS WHO SHARE KNOWLEDGE, EXPERIENCE, AND EMOTIONAL SUPPORT. THE FOUNDATION OFFERS A NETWORKING LIST, NEWSLETTER, AND A BIENNIAL CONFERENCE. THE JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION PLAYS AN IMPORTANT ROLE IN EDUCATING PHYSICIANS AND THEIR SUPPORT TEAMS AS WELL AS INCREASING PUBLIC AWARENESS.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0DESCRIPTION: SUPPLIES. AMOUNT: 566. DESCRIPTION: FAMILY SUPPORT. AMOUNT: 516. DESCRIPTION: WEBSITE EXPENSES. AMOUNT: 127. DESCRIPTION: FUNDRAISING COSTS. AMOUNT: 3,911. DESCRIPTION: BANK CHARGES. AMOUNT: 99. DESCRIPTION: INSURANCE. AMOUNT: 1,794. DESCRIPTION: CONFERENCES. AMOUNT: 375. DESCRIPTION: REGISTRATION FEE. AMOUNT: 625. TOTAL TO FORM 990-EZ, LINE 16: 8,013.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1DESCRIPTION: PREPAID EXPENSES. BEG. OF YEAR AMOUNT: 2,299. END OF YEAR AMOUNT: 2,299.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DESCRIPTION: ACCOUNTS PAYABLE. BEG. OF YEAR AMOUNT: 91. END OF YEAR AMOUNT: 826.
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART II, LINE 24 - OTHER ASSETS
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART II, LINE 26 - OTHER LIABILITIES
TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
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ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum08473616542
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-10-05
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0JOUBERT SYNDROME AND RELATED DISORDERS
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ReturnHeader/Filer/BusinessNameControlTxt0JOUB
ReturnHeader/Filer/EIN0521871536
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ReturnHeader/Filer/USAddress/ZIPCd033547
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0410746749
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0CLIFTONLARSONALLEN LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt05255 EAST WILLIAMS CIRCLE SUITE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine2Txt05000
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0TUCSON
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0AZ
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd085711
ReturnHeader/PreparerPersonGrp/PhoneNum05207903500
ReturnHeader/PreparerPersonGrp/PreparationDt02025-10-05
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JONATHAN WITTMANN
ReturnHeader/ReturnTs02025-10-08T11:30:23-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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