Civic Intelligence

Acmg Foundation for Genetic

EIN 52-1841165 • 501(c)3 • Bethesda, MD

View Organization Page

Profile

Support the american college of medical genetics and genomics' (acmg) educational mission to "translate genes into health" by raising funds to attract the next generation of medical geneticists and genetic counselors, to sponsor important research and to promote information about medical genetics.

7101 Wisconsin Avenue 990Bethesda, MD 20814

www.acmgfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

52nd percentile

0.08x

Higher debt load relative to assets than 52% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

78th percentile

0.43x

Higher debt load relative to revenue than 78% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

2nd percentile

-147%

Higher net margin than 2% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

45th percentile

2.3%

Faster asset growth than 45% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Revenue Growth

9th percentile

-34%

Faster revenue growth than 9% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets52nd percentile

Assets

Down

$3,524,087

Down $886,146 (-20%) from 2023

Liabilities

Down

$265,047

Down $220,224 (-45%) from 2023

Net Assets

Down

$3,259,040

Down $665,922 (-17%) from 2023

Operations
Liabilities / Revenue78th percentileNet Margin2nd percentile

Revenue

Down

$622,219

Down $1,199,689 (-66%) from 2023

Expenses

Up

$1,535,415

Up $699,829 (+84%) from 2023

Net Income

Down

-$913,196

Down $1,899,518 (-193%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth45th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2010: $713,684Liabilities 2010: $269,471Net Assets 2010: $444,2132010Assets 2011: $454,377Liabilities 2011: $193,495Net Assets 2011: $260,8822011Assets 2012: $1,060,246Liabilities 2012: $109,891Net Assets 2012: $950,3552012Assets 2013: $1,408,780Liabilities 2013: $471,723Net Assets 2013: $937,0572013Assets 2014: $1,102,170Liabilities 2014: $472,337Net Assets 2014: $629,8332014Assets 2015: $1,138,279Liabilities 2015: $623,463Net Assets 2015: $514,8162015Assets 2016: $3,304,172Liabilities 2016: $910,897Net Assets 2016: $2,393,2752016Assets 2017: $3,002,758Liabilities 2017: $883,612Net Assets 2017: $2,119,1462017Assets 2018: $2,538,965Liabilities 2018: $758,072Net Assets 2018: $1,780,8932018Assets 2019: $2,116,821Liabilities 2019: $677,298Net Assets 2019: $1,439,5232019Assets 2020: $3,151,168Liabilities 2020: $1,509,481Net Assets 2020: $1,641,6872020Assets 2021: $4,114,026Liabilities 2021: $1,449,158Net Assets 2021: $2,664,8682021Assets 2022: $3,370,243Liabilities 2022: $477,167Net Assets 2022: $2,893,0762022Assets 2023: $4,410,233Liabilities 2023: $485,271Net Assets 2023: $3,924,9622023Assets 2024: $3,524,087Liabilities 2024: $265,047Net Assets 2024: $3,259,0402024

Highlighted filing

2024

Assets$3,524,087
Liabilities$265,047
Net Assets$3,259,040
Open 2024 Filing

Operations Trend

Revenue Growth9th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2010: $1,032,147Expenses 2010: $1,007,896Net Income 2010: $24,2512010Revenue 2011: $761,122Expenses 2011: $943,059Net Income 2011: -$181,9372011Revenue 2012: $1,451,579Expenses 2012: $778,522Net Income 2012: $673,0572012Revenue 2013: $770,716Expenses 2013: $815,944Net Income 2013: -$45,2282013Revenue 2014: $778,368Expenses 2014: $1,088,646Net Income 2014: -$310,2782014Revenue 2015: $1,068,695Expenses 2015: $1,176,197Net Income 2015: -$107,5022015Revenue 2016: $2,612,580Expenses 2016: $742,332Net Income 2016: $1,870,2482016Revenue 2017: $730,485Expenses 2017: $1,037,475Net Income 2017: -$306,9902017Revenue 2018: $646,255Expenses 2018: $949,832Net Income 2018: -$303,5772018Revenue 2019: $869,825Expenses 2019: $1,260,140Net Income 2019: -$390,3152019Revenue 2020: $982,286Expenses 2020: $908,079Net Income 2020: $74,2072020Revenue 2021: $1,600,164Expenses 2021: $702,023Net Income 2021: $898,1412021Revenue 2022: $1,409,009Expenses 2022: $758,603Net Income 2022: $650,4062022Revenue 2023: $1,821,908Expenses 2023: $835,586Net Income 2023: $986,3222023Revenue 2024: $622,219Expenses 2024: $1,535,415Net Income 2024: -$913,1962024

Highlighted filing

2024

Revenue$622,219
Expenses$1,535,415
Net Income-$913,196
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,524,087
Liabilities
$265,047
Net assets
$3,259,040
Revenue
$622,219
Expenses
$1,535,415
Net income
-$913,196
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.52$0.27$3.26$0.62$1.54$0.91
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.41$0.49$3.92$1.82$0.84$0.99
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.37$0.48$2.89$1.41$0.76$0.65
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.11$1.45$2.66$1.60$0.70$0.90
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.15$1.51$1.64$0.98$0.91$0.07
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.12$0.68$1.44$0.87$1.26$0.39
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.54$0.76$1.78$0.65$0.95$0.30
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.00$0.88$2.12$0.73$1.04$0.31
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.30$0.91$2.39$2.61$0.74$1.87
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.14$0.62$0.51$1.07$1.18$0.11
2014Summary only. Only limited summary data is available for this year.$1.10$0.47$0.63$0.78$1.09$0.31
2013Summary only. Only limited summary data is available for this year.$1.41$0.47$0.94$0.77$0.82$0.05
2012Summary only. Only limited summary data is available for this year.$1.06$0.11$0.95$1.45$0.78$0.67
2011Summary only. Only limited summary data is available for this year.$0.45$0.19$0.26$0.76$0.94$0.18
2010Summary only. Only limited summary data is available for this year.$0.71$0.27$0.44$1.03$1.01$0.02
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$622,219
Mission and Program Overview

Mission

Support the american college of medical genetics and genomics' (acmg) educational mission to "translate genes into health" by raising funds to attract the next generation of medical geneticists and genetic counselors, to sponsor important research and to promote information about medical genetics.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,671,347$1,951,450▼ $719,897
Savings and Temporary Cash Investments$925,399$566,378▼ $359,021
Pledges and Grants Receivable$232,750$293,188▲ $60,438
Land, Buildings, and Equipment, Net$14,811$20,376▲ $5,565
Prepaid Expenses and Deferred Charges$1,152$9▼ $1,143
Total Assets$4,410,233$3,524,087▼ $886,146
Other Assets Total$564,774$692,686▲ $127,912
Liabilities
Accounts Payable and Accrued Expenses$275,271$265,047▼ $10,224
Grants Payable$210,000--
Total Liabilities$485,271$265,047▼ $220,224
Net Assets / Fund Balance
Net Assets With Donor Restrictions$2,596,929$2,627,930▲ $31,001
Net Assets Without Donor Restrictions$1,328,033$631,110▼ $696,923
Total Net Assets Fund Balance$3,924,962$3,259,040▼ $665,922
Total Liabilities and Net Assets / Fund Balance$4,410,233$3,524,087▼ $886,146

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$20,376$51,072$71,448
Other Assets Org$692,686--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$1,000---$1,000
2023$11,893--$10,893$1,000
2022$192,488-▼ $158,055$22,540$11,893
2021$85,889-▲ $129,139$22,540$192,488
2020$2,272-▲ $97,261$13,644$85,889
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Melanie WellsCEO-$330,016$40,423$370,439
Amy BrowerAssociate Project Director, Nbs-$183,984$36,236$220,220
Chris PitroCFO-$210,362$9,657$220,019
Kathleen MoranDirector of Communications-$183,490$35,835$219,325
Karl MoellerDirector of DevelopmentFT$180,322$32,441$212,763
Alexis MorganCOO-$163,083$24,803$187,886
Lynn FleisherGeneral Counsel-$182,000$1,607$183,607
Jane DahlrothSnr Director of Meetings & Exhibits-$148,064$32,253$180,317
Michelle McclureDirector of Public Policy-$149,992$17,566$167,558

Board Members and Trustees

NameTitle
Bruce KorfPast President
Nancy MendelsohnPresident
Brynn LevyPresident-elect
Aleksandar RajkovicDirector
David TilstraDirector
Harry OstrerDirector
James LuDirector
Katie Johansen TaberDirector
Lisa ShafferDirector
Marilyn JonesDirector
Rong MaoDirector
Sucheta BhattDirector
Madhuri HegdeSecretary
Sarah ElseaTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$493,178
Program Service Revenue
$0
Investment Income
$116,970
Other Revenue
$12,071
All Other Contributions
$493,178
Change in Net Assets
$-913,196

Audited Revenue Reconciliation

Revenue per Audited Statements
$601,163
Revenue Not Reported on Financial Statements
$21,056
Revenue Not Reported on Form 990
$247,277
Total Revenue per Audited Statements
$848,440
Total Revenue per Form 990
$622,219
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$890,268
Salaries, Compensation, and Employee Benefits$394,647
Total Fundraising Expense$278,906
Grants and Similar Amounts Paid$250,500
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Legal-$622,157-$622,157
Other Salaries and Wages$24,506$89,026$172,050$285,582
Grants to Domestic Orgs$250,500--$250,500
Fees for Services Other$1$98,587$1,956$100,544
Current Officers, Directors, Trustees, and Key Employees$3,585$13,024$25,170$41,779
Conferences and Meetings--$39,720$39,720
Fees for Services Accounting-$32,323-$32,323
Other Employee Benefits$2,513$9,129$17,641$29,283
Travel$3,815$23,911-$27,726
Payroll Taxes$17$10,887$12,183$23,087
Fees for Service Investment Mgmnt Fees-$21,056-$21,056
Office Expenses$1$15,435-$15,436
Pension Plan Contributions$1,280$4,650$8,986$14,916
Information Technology-$12,036-$12,036
Occupancy-$8,699-$8,699
Advertising-$4,140$1,200$5,340
Depreciation Depletion-$5,231-$5,231
Total Functional Expenses$286,218$970,291$278,906$1,535,415

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,535,415
Expenses per Audited Statements$1,514,359
Total Expenses per Audited Statements$1,514,359
Expenses Not Reported on Financial Statements$21,056
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Greenwood Genetic Center FoundationGreenwood, SC501(c)(3)Medical Fellowship$65,000
Massachusetts Eye & Ear InfirmarySomerville, MA501(c)(3)Medical Fellowship$37,500
University of ColoradoDenver, CO501(c)(3)Medical Fellowship$18,750
Baylor College of MedicineHouston, TX501(c)(3)Medical Fellowship$16,250
Johns Hopkins UniversityChicago, IL501(c)(3)Medical Fellowship$16,250
Oregon Health & Science UniversityPortland, OR501(c)(3)Medical Fellowship$16,250
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITALColumbus, OH501(c)(3)Medical Fellowship$16,250
UPMC CHILDREN'S HOSPITAL OF PITTSBURGHPittsburgh, PA501(c)(3)Medical Fellowship$16,250
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 was prepared by the outside accountants and reviewed by the leadership team. A copy of the form 990 was sent to the board of directors prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“Conflict of interest forms are annually completed by all employees, directors and committee members. The president and committee chairs ask for disclosures at each meeting. If a director has a disclosure, s/he is asked to leave the room during discussion of a conflicted issue.”

Form 990, Part VI, Section B, Line 15A

“The ceo's salary is reviewed each year by the president of the acmg, the president of the acmg foundation, and the immediate past president of acmg. They recommend salary increases to the board of directors for approval. The coo's salary is recommended by the ceo, approved by the three presidents and sent for board approval. The board approves the entire salary pool for acmg/acmg foundation during the budget approval process each year. The ceo has a written employment contract which is signed every three to five years. In the salary review process, the executive committee compares the ceo's salary to those in the genetics industry as well as to salaries in similar organizations through salary reports and 990s. The three presidents are chairs of their departments and/or deans and have comparable salary information from their universities that are also used. Correspondence is sent to acmg/acmg foundation's human resource department for filing in salary records. The last compensation review took place in january 2022.”

Form 990, Part VI, Section C, Line 19

“Copies of the organization's governing documents, conflict of interest policy and financial statements are available upon request.”

Filing and Contact Details

Filer

Filer Name
Acmg Foundation for Genetic
EIN
52-1841165
Phone
3017182014
Address
7101 WISCONSIN AVENUE 990, BETHESDA, MD 20814

Signing Officer

Name
Melanie Wells
Title
CEO
Phone
3017182014
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Melanie Wells
Formed
1992
Legal Domicile
Il
Voting Board Members
14
Independent Board Members
14
Employees
50
Volunteers
14

Preparer

Firm
Gelman Rosenberg & Freedman
Address
4550 MONTGOMERY AVE SUITE 800N, BETHESDA, MD 20814-2930
Preparer
Richard J Locastro CPA
Phone
3019519090
Supplemental Narrative

Financial Statement Notes

PART V, LINE 4:

“Contributions are restricted by donors to be invested in perpetuity. Interest earned on the invested balance, when released, is used to support the general operations of the foundation.”

Raw XML AppendixShowing 400 of 872 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0SEE PART III, LINE 1.
IRS990/AddressChangeInd0X
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IRS990/Desc0SUMMER GENETICS SCHOLARS PROGRAM: IN 2024 THERE WERE 11 SUMMER SCHOLARS ENROLLED IN THE SUMMER GENETICS SCHOLARS PROGRAM. ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- SANOFI CORPORATION FELLOWSHIP- TAKEDA CORPORATION FELLOWSHIP
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