Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2022 • EIN 52-1749047

Feb 01, 2021 to Jan 31, 2022 • Filed on Dec 05, 2022

Organization ProfileWEBDC.ALSA.ORG
30 W Gude Drive 150Rockville, MD 20850

(301) 978-9855

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

66th percentile

0.18x

Higher debt load relative to assets than 66% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

60th percentile

0.15x

Higher debt load relative to revenue than 60% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

23rd percentile

-7.9%

Higher net margin than 23% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

88th percentile

$177,321

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 6.2% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

33rd percentile

-3.9%

Faster asset growth than 33% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

22nd percentile

-15%

Faster revenue growth than 22% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets66th percentile

Assets

Down

$2,372,268

Down $95,316 (-3.9%) from 2021

Net Assets

Down

$1,949,762

Down $199,899 (-9.3%) from 2021

Liabilities

Up

$422,506

Up $104,583 (+33%) from 2021

Revenue And Expenses
Liabilities / Revenue60th percentileNet Margin23rd percentile

Revenue

Down

$2,861,706

Down $519,688 (-15%) from 2021

Expenses

Up

$3,087,624

Up $462,354 (+18%) from 2021

Net Income

Down

-$225,918

Down $982,042 (-130%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth33rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $2,017,131Liabilities 2010: $195,747Net Assets 2010: $1,821,3842010Assets 2011: $1,622,112Liabilities 2011: $31,763Net Assets 2011: $1,590,3492011Assets 2012: $1,396,480Liabilities 2012: $112,429Net Assets 2012: $1,284,0512012Assets 2013: $1,183,569Liabilities 2013: $176,653Net Assets 2013: $1,006,9162013Assets 2014: $1,059,716Liabilities 2014: $110,090Net Assets 2014: $949,6262014Assets 2015: $1,972,413Liabilities 2015: $171,244Net Assets 2015: $1,801,1692015Assets 2016: $1,834,743Liabilities 2016: $294,414Net Assets 2016: $1,540,3292016Assets 2017: $1,686,671Liabilities 2017: $283,156Net Assets 2017: $1,403,5152017Assets 2018: $1,827,498Liabilities 2018: $289,420Net Assets 2018: $1,538,0782018Assets 2019: $2,030,309Liabilities 2019: $395,245Net Assets 2019: $1,635,0642019Assets 2020: $1,707,024Liabilities 2020: $323,698Net Assets 2020: $1,383,3262020Assets 2021: $2,467,584Liabilities 2021: $317,923Net Assets 2021: $2,149,6612021Assets 2022: $2,372,268Liabilities 2022: $422,506Net Assets 2022: $1,949,7622022Assets 2023: $2,136,299Liabilities 2023: $0Net Assets 2023: $2,136,2992023

Highlighted filing

2022

Assets$2,372,268
Liabilities$422,506
Net Assets$1,949,762
Open 2022 Filing

Operations Trend

Revenue Growth22nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $2,283,6812010Expenses 2011: $2,324,5852011Expenses 2012: $2,440,6962012Revenue 2013: $2,250,927Expenses 2013: $2,541,823Net Income 2013: -$290,8962013Revenue 2014: $2,363,011Expenses 2014: $2,435,151Net Income 2014: -$72,1402014Revenue 2015: $3,131,731Expenses 2015: $2,280,188Net Income 2015: $851,5432015Revenue 2016: $2,393,054Expenses 2016: $2,653,894Net Income 2016: -$260,8402016Revenue 2017: $2,625,297Expenses 2017: $2,762,111Net Income 2017: -$136,8142017Revenue 2018: $2,969,709Expenses 2018: $2,835,146Net Income 2018: $134,5632018Revenue 2019: $2,764,791Expenses 2019: $2,667,280Net Income 2019: $97,5112019Revenue 2020: $2,478,854Expenses 2020: $2,745,445Net Income 2020: -$266,5912020Revenue 2021: $3,381,394Expenses 2021: $2,625,270Net Income 2021: $756,1242021Revenue 2022: $2,861,706Expenses 2022: $3,087,624Net Income 2022: -$225,9182022Revenue 2023: $116,491Expenses 2023: $118,147Net Income 2023: -$1,6562023

Highlighted filing

2022

Revenue$2,861,706
Expenses$3,087,624
Net Income-$225,918
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2021 to Jan 31, 2022
Signed
Dec 5, 2022
Return Version
2021v4.2
Gross Receipts
$2,965,840
Mission and Program Overview

Mission

Leading the fight to treat and cure als through research and advocacy while empowering people with als and their families to live fuller lives through compassionate care and support.

We improve the lives of people living with als by providing a wide range of free services. We also support worldwide research to find a cure for als and sponsor educational and advocacy programs to benefit the als community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,416,056$1,097,382▼ $318,674
Cash and Non-Interest-Bearing Accounts$522,342$694,913▲ $172,571
Investments in Publicly Traded Securities-$407,981-
Pledges and Grants Receivable$416,253$131,916▼ $284,337
Land, Buildings, and Equipment, Net$38,430$19,846▼ $18,584
Prepaid Expenses and Deferred Charges$60,199$5,926▼ $54,273
Total Assets$2,467,584$2,372,268▼ $95,316
Other Assets Total$14,304$14,304→ $0
Liabilities
Accounts Payable and Accrued Expenses$208,193$327,110▲ $118,917
Other Liabilities$109,730$95,396▼ $14,334
Total Liabilities$317,923$422,506▲ $104,583
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,499,459$1,383,847▼ $115,612
Net Assets With Donor Restrictions$650,202$565,915▼ $84,287
Total Net Assets Fund Balance$2,149,661$1,949,762▼ $199,899
Total Liabilities and Net Assets / Fund Balance$2,467,584$2,372,268▼ $95,316

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$15,771$420,207$435,978
Other Land Buildings$747$21,654$22,401
Leasehold Improvements$3,328$1,792$5,120
Compensation and Service Providers
Top Officer Pay88th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Lynn AaronsonExecutive DirectorFT$168,955$8,366$177,321
Jonathan M StrausbergDirector of PhilanthropyFT$108,901$663$109,564

Board Members and Trustees

NameTitle
Paul IngholtPast President
Robert RosemanPresident
Jeff BrainardVice President
Alethia BaggettDirector
Andrea KelleherDirector
Betsy LichtscheinDirector
Bill ThoetDirector
Craig RiceDirector
David LoweDirector
Keith SegalmanDirector
Kevin SmithDirector
Richard BodsonDirector
Sally HornerDirector
Scott Bowen EvansDirector
Steve WellnerDirector
Zachery DanielDirector
Karen CottrellDirector as of March 2021
Katie DuthalerDirector as of March 2021
Stephen GreerDirector as of March 2021
Thomas MohlerSecretary
Scott GoldenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,949,998
Program Service Revenue
$0
Investment Income
$1,497
Other Revenue
$-89,789
All Other Contributions
$1,311,678
Change in Net Assets
$-225,918

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table53$94,500Fair Market Value (FMV)
Total Noncash Contributions53$94,500-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,859,150
Revenue Not Reported on Financial Statements
$2,556
Revenue Not Reported on Form 990
$26,019
Total Revenue per Audited Statements
$2,885,169
Total Revenue per Form 990
$2,861,706
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,518,289
Other Expenses$994,456
Grants and Similar Amounts Paid$574,879
Total Fundraising Expense$340,450
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$767,546$175,439$153,509$1,096,494
Payments to Affiliates$313,335--$313,335
Grants to Domestic Individuals$299,101--$299,101
Grants to Domestic Orgs$275,778--$275,778
Office Expenses$179,566$18,342$30,848$228,756
Current Officers, Directors, Trustees, and Key Employees$124,125$28,372$24,825$177,322
Occupancy$112,153$8,011$40,054$160,218
Fees for Services Other$84,432$5,135$44,484$134,051
Other Employee Benefits$84,441$19,300$16,889$120,630
Payroll Taxes$69,185$15,814$13,836$98,835
Fees for Services Accounting-$60,762-$60,762
Other Expenses$26,575--$26,575
Pension Plan Contributions$17,506$4,001$3,501$25,008
Travel$14,386$1,028$5,138$20,552
Depreciation Depletion-$18,584-$18,584
Information Technology$11,775$841$4,206$16,822
Insurance$6,681$477$2,386$9,544
Fees for Service Investment Mgmnt Fees-$2,556-$2,556
Conferences and Meetings$949-$449$1,398
Interest$737$53$263$1,053
Advertising$175$13$62$250
Total Functional Expenses$2,388,446$358,728$340,450$3,087,624

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$3,087,624
Expenses per Audited Statements$3,085,068
Total Expenses per Audited Statements$3,085,068
Expenses Not Reported on Financial Statements$2,556
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Johns Hopkins UniversityBaltimore, MD501 (c)(3)Care Services$120,000
Zephyrx LLCTroy, NYN/aCare Services$64,111
George Washington UniversityAshburn, VA501 (c)(3)Care Services$25,000
University of Maryland - BaltimoreBaltimore, MD501 (c)(3)Care Services$25,000
University of Virginia Health SystemCharlottesville, VA501 (c)(3)Care Services$25,000
Peninsula Regional Medical CenterSalisbury, MD501 (c)(3)Care Services$7,500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$89,789
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Program$712,631-$12,434-
Dinner$298,871-$10,511-
Total Events$1,135,327-$89,789$-89,789
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Scott GoldenTreasurerHealth and Benefit Plan CommissionNo$10,000
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$95,396
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

“The executive committee shall include the chapter's officers and such other persons as may be selected, from time to time, by the board of directors. The chairperson of this committee shall be the president of the chapter. In the absence of specific directions given by the board of directors, the executive committee shall have and exercise all of the powers and duties of the board in the management of the affairs of the chapter whenever the board is not in session, except to: elect officers, other than to appoint officers to fill vacancies; approve appointments of committee chairpersons; amend bylaws; and authorize monetary obligations in excess of an amount approved by the board. The executive committee shall keep regular minutes of its proceedings and shall report action taken by it to the board of directors at its next meeting following the taking of such action.”

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the executive director, vice president, executive committee and finance committee. A copy is then sent to the entire board for review. A reasonable deadline for responses is provided. Any questions, concerns, or issues that are presented within that time frame are addressed. Final approval is collectively reached by the reviewing parties.”

Form 990, Part VI, Section B, Line 12C

“The board of directors has a conflict of interest policy which is signed by the individual board members at the beginning of each fiscal year. All chapter employees, independent contractors, consultants and board members are subject to the conflict of interest policy. Upon their engagement, they are provided with the policy and asked to confirm that no conflict exists or to disclose any real or potential conflicts. The executive committee is responsible for monitoring and enforcing the compliance with the policy every year. At this time, all real or apparent conflicts that have been identified have been addressed by the board of directors with restrictions imposed, as appropriate, to protect the chapter's best interests.”

Form 990, Part VI, Section B, Line 15

“The executive director's compensation is determined by an independent board committee annually, using evaluations, competent salary surveys, and comparisons with other als association chapters. The committee's recommendation is then presented to the executive committee and to the full board for review and approval. The last review of the executive director's compensation using these comparable data took place in january of 2020.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy, and the financial statements are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Als Association Dcmdva Chapter
EIN
52-1749047
Phone
3019789855
Address
30 W GUDE DRIVE 150, ROCKVILLE, MD 20850

Signing Officer

Name
Scott Golden
Title
Treasurer
Phone
3019789855
Signed
2022-12-05
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert Roseman
Formed
1991
Legal Domicile
Dc
Voting Board Members
21
Independent Board Members
21
Employees
25
Volunteers
350

Preparer

Firm
Jm&m
Address
1730 RHODE ISLAND AVE NW SUITE 800, WASHINGTON, DC 20036
Preparer
Meena Bishnoi
Phone
2022963306
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has not changed its oversight or selection process during the tax year.”

Financial Statement Notes

PART X, LINE 2:

“The chapter believes it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements or that would have an effect on its tax-exempt status. There are no unrecognized tax benefits or liabilities that need to be recorded.”

Raw XML AppendixShowing 400 of 727 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE IMPROVE THE LIVES OF PEOPLE LIVING WITH ALS BY PROVIDING A WIDE RANGE OF FREE SERVICES. WE ALSO SUPPORT WORLDWIDE RESEARCH TO FIND A CURE FOR ALS AND SPONSOR EDUCATIONAL AND ADVOCACY PROGRAMS TO BENEFIT THE ALS COMMUNITY.
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IRS990/Desc0RESEARCH - THE CHAPTER SUPPORTS THE ALS ASSOCIATION'S GLOBAL ALS RESEARCH PROGRAM TO FIND TREATMENTS AND A CURE FOR THIS FATAL DISEASE. THE AVERAGE LIFE EXPECTANCY OF SOMEONE WITH ALS IS ONLY 2-5 YEARS FROM DIAGNOSIS. ALSO, FOR UNKNOWN REASONS MILITARY VETERANS ARE NEARLY TWICE AS LIKELY TO BE DIAGNOSED WITH ALS. RESEARCH IS CRITICAL TO GAIN A BETTER UNDERSTANDING OF THE DISEASE AND CREATING BETTER TREATMENTS AND ULTIMATELY, A CURE FOR ALS. RECENT BREAKTHROUGHS MADE POSSIBLE BECAUSE OF THE CHAPTER SUPPORT INCLUDE: IDENTIFICATION OF THE SINGLE MOST COMMON KNOWN GENETIC ALS FACTOR, DEVELOPMENT OF A METHOD THAT CAN TEST TREATMENTS ON DIFFERENT FORMS OF ALS IN THE LAB AND THE FIRST FDA-APPROVED STEM CELL TRANSPLANT TRIAL IN ALS. THE PATIENT POPULATION IS GROWING RAPIDLY FROM 550 PLUS PATIENTS AND THEIR FAMILIES A FEW YEARS AGO TO NEARLY 900 CURRENTLY.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt218366
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt22663
IRS990/Form990PartVIISectionAGrp/PersonNm0ROBERT ROSEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm1JEFF BRAINARD
IRS990/Form990PartVIISectionAGrp/PersonNm2THOMAS MOHLER
IRS990/Form990PartVIISectionAGrp/PersonNm3SCOTT GOLDEN
IRS990/Form990PartVIISectionAGrp/PersonNm4PAUL INGHOLT
IRS990/Form990PartVIISectionAGrp/PersonNm5ALETHIA BAGGETT
IRS990/Form990PartVIISectionAGrp/PersonNm6RICHARD BODSON
IRS990/Form990PartVIISectionAGrp/PersonNm7SCOTT BOWEN EVANS
IRS990/Form990PartVIISectionAGrp/PersonNm8ZACHERY DANIEL
IRS990/Form990PartVIISectionAGrp/PersonNm9SALLY HORNER
IRS990/Form990PartVIISectionAGrp/PersonNm10ANDREA KELLEHER
IRS990/Form990PartVIISectionAGrp/PersonNm11BETSY LICHTSCHEIN
IRS990/Form990PartVIISectionAGrp/PersonNm12DAVID LOWE
IRS990/Form990PartVIISectionAGrp/PersonNm13CRAIG RICE
IRS990/Form990PartVIISectionAGrp/PersonNm14KEITH SEGALMAN
IRS990/Form990PartVIISectionAGrp/PersonNm15KEVIN SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm16STEVE WELLNER
IRS990/Form990PartVIISectionAGrp/PersonNm17BILL THOET
IRS990/Form990PartVIISectionAGrp/PersonNm18KAREN COTTRELL
IRS990/Form990PartVIISectionAGrp/PersonNm19KATIE DUTHALER
IRS990/Form990PartVIISectionAGrp/PersonNm20STEPHEN GREER
IRS990/Form990PartVIISectionAGrp/PersonNm21LYNN AARONSON
IRS990/Form990PartVIISectionAGrp/PersonNm22JONATHAN M STRAUSBERG
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21168955
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22108901
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4PAST PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR AS OF MARCH 2021
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR AS OF MARCH 2021
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR AS OF MARCH 2021
IRS990/Form990PartVIISectionAGrp/TitleTxt21EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIR. OF PHILANTHROPY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01991
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01135327
IRS990/FundraisingDirectExpensesAmt089789
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/SecuritiesAmt0786
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt021
IRS990/GovernmentGrantsAmt0502993
IRS990/GrantAmt0574879
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0299101
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0299101
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0275778
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0275778
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt015131
IRS990/GrossReceiptsAmt02965840
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt021
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt04206
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt0841
IRS990/InformationTechnologyGrp/ProgramServicesAmt011775
IRS990/InformationTechnologyGrp/TotalAmt016822
IRS990/InsuranceGrp/FundraisingAmt02386
IRS990/InsuranceGrp/ManagementAndGeneralAmt0477
IRS990/InsuranceGrp/ProgramServicesAmt06681
IRS990/InsuranceGrp/TotalAmt09544
IRS990/InterestGrp/FundraisingAmt0263
IRS990/InterestGrp/ManagementAndGeneralAmt053
IRS990/InterestGrp/ProgramServicesAmt0737
IRS990/InterestGrp/TotalAmt01053
IRS990/InvestmentIncomeGrp/ExclusionAmt0711
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0711
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0407981
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0443653
IRS990/LandBldgEquipBasisNetGrp/BOYAmt038430
IRS990/LandBldgEquipBasisNetGrp/EOYAmt019846
IRS990/LandBldgEquipCostOrOtherBssAmt0463499
IRS990/LegalDomicileStateCd0DC
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt014345
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02149661
IRS990/NetAssetsOrFundBalancesEOYAmt01949762
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0786
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0786
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-89789
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-89789
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt026019
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01499459
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01383847
IRS990/NoncashContributionsAmt094500
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt040054
IRS990/OccupancyGrp/ManagementAndGeneralAmt08011
IRS990/OccupancyGrp/ProgramServicesAmt0112153
IRS990/OccupancyGrp/TotalAmt0160218
IRS990/OfficeExpensesGrp/FundraisingAmt030848
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt018342
IRS990/OfficeExpensesGrp/ProgramServicesAmt0179566
IRS990/OfficeExpensesGrp/TotalAmt0228756
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt014304
IRS990/OtherAssetsTotalGrp/EOYAmt014304
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt016889
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt019300
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt084441
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0120630
IRS990/OtherExpensesGrp/Desc0RESEARCH EXPENSE
IRS990/OtherExpensesGrp/ProgramServicesAmt026575
IRS990/OtherExpensesGrp/TotalAmt026575
IRS990/OtherLiabilitiesGrp/BOYAmt0109730
IRS990/OtherLiabilitiesGrp/EOYAmt095396
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0153509
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0175439
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0767546
IRS990/OtherSalariesAndWagesGrp/TotalAmt01096494
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0313335
IRS990/PaymentsToAffiliatesGrp/TotalAmt0313335
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt013836
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt015814
IRS990/PayrollTaxesGrp/ProgramServicesAmt069185
IRS990/PayrollTaxesGrp/TotalAmt098835
IRS990/PensionPlanContributionsGrp/FundraisingAmt03501
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt04001
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt017506
IRS990/PensionPlanContributionsGrp/TotalAmt025008
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0416253
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0131916
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt060199
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt05926
IRS990/PrincipalOfficerNm0ROBERT ROSEMAN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0CARE SERVICES - THE CHAPTER WORKS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE LIVING WITH ALS BY PROVIDING A HOST OF FREE SERVICES. THESE SERVICES INCLUDE HOME VISITS, THAT WERE ELIMINATED IN 2020 AS A RESULT OF THE CORONA VIRUS, AND SUBSTITUTED BY TELEHEALTH COMMUNICATION WITH COORDINATORS, WHO PROVIDE CASE MANAGEMENT AND ASSISTANCE WITH BENEFIT APPLICATIONS, ASSISTIVE TECHNOLOGY LABS THAT PROVIDE ACCESS TO SPEECH GENERATING AND ENVIRONMENTAL CONTROL DEVICES, MULTIDISCIPLINARY CLINICS THAT ALLOW PATIENTS TO SEE IN ONE VISIT, A VARIETY OF HEALTHCARE CLINICIANS, EQUIPMENT LOAN CLOSETS THAT PROVIDE ACCESS TO ITEMS SUCH AS WHEELCHAIRS, WALKERS AND BEDS, SUPPORT GROUPS FOR PEOPLE WITH ALS AND CAREGIVERS, AND MUCH-NEEDED TRANSPORTATION GRANTS. THE CHAPTER ALSO HOSTS SEVERAL EVENTS THAT BRING PEOPLE WITH ALS AND THEIR FAMILIES TOGETHER TO RAISE AWARENESS FOR ALS IN ALL COMMUNITIES.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0979502
IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC EDUCATION & AWARENESS - EDUCATIONAL SYMPOSIUMS ARE OFFERED THROUGHOUT THE YEAR IN DIFFERENT GEOGRAPHICAL LOCATIONS WITHIN THE CHAPTER TERRITORY. THESE PROGRAMS ARE DESIGNED FOR PATIENTS AND FAMILY MEMBERS AS WELL AS HEALTHCARE PROFESSIONALS ON A WIDE RANGE OF TOPICS, WHICH IMPACT ALS PATIENTS. ADVOCACY EVENTS ARE ALSO CONDUCTED THROUGHOUT THE YEAR, WHICH ALLOW THE CHAPTER'S GRASSROOTS MEMBERS ACCESS TO LEGISLATIVE REPRESENTATIVES IN ORDER TO VOICE THEIR CONCERNS ON ISSUES IMPACTING ALS PATIENTS AND FAMILY MEMBERS. EVENTS OCCUR BOTH IN PERSON AND VIRTUALLY.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0347041
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03375949
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0315899
IRS990/PYInvestmentIncomeAmt05445
IRS990/PYOtherExpensesAmt0814526
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0756124
IRS990/PYSalariesCompEmpBnftPaidAmt01494845
IRS990/PYTotalExpensesAmt02625270
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03381394
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,372,268
Liabilities
$422,506
Net assets
$1,949,762
Revenue
$2,861,706
Expenses
$3,087,624
Net income
-$225,918
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$2.14$0.00$2.14$0.12$0.12$0.00
2022Detailed filing. Detailed filing data is available for this year.$2.37$0.42$1.95$2.86$3.09$0.23
2021Detailed filing. Detailed filing data is available for this year.$2.47$0.32$2.15$3.38$2.63$0.76
2020Detailed filing. Detailed filing data is available for this year.$1.71$0.32$1.38$2.48$2.75$0.27
2019Detailed filing. Detailed filing data is available for this year.$2.03$0.40$1.64$2.76$2.67$0.10
2018Detailed filing. Detailed filing data is available for this year.$1.83$0.29$1.54$2.97$2.84$0.13
2017Detailed filing. Detailed filing data is available for this year.$1.69$0.28$1.40$2.63$2.76$0.14
2016Detailed filing. Detailed filing data is available for this year.$1.83$0.29$1.54$2.39$2.65$0.26
2015Detailed filing. Detailed filing data is available for this year.$1.97$0.17$1.80$3.13$2.28$0.85
2014Detailed filing. Detailed filing data is available for this year.$1.06$0.11$0.95$2.36$2.44$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.18$0.18$1.01$2.25$2.54$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.40$0.11$1.28$2.44
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.62$0.03$1.59$2.32
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.02$0.20$1.82$2.28