Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2021 • EIN 52-1749047

Feb 01, 2020 to Jan 31, 2021 • Filed on Jun 11, 2021

Organization ProfileWEBDC.ALSA.ORG
30 W Gude Drive No 150Rockville, MD 20850

(301) 978-9855

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

60th percentile

0.13x

Higher debt load relative to assets than 60% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

51st percentile

0.09x

Higher debt load relative to revenue than 51% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

65th percentile

22%

Higher net margin than 65% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

88th percentile

$170,709

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 5.0% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

84th percentile

45%

Faster asset growth than 84% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

70th percentile

36%

Faster revenue growth than 70% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets60th percentile

Assets

Up

$2,467,584

Up $760,560 (+45%) from 2020

Net Assets

Up

$2,149,661

Up $766,335 (+55%) from 2020

Liabilities

Down

$317,923

Down $5,775 (-1.8%) from 2020

Revenue And Expenses
Liabilities / Revenue51st percentileNet Margin65th percentile

Revenue

Up

$3,381,394

Up $902,540 (+36%) from 2020

Expenses

Down

$2,625,270

Down $120,175 (-4.4%) from 2020

Net Income

Up

$756,124

Up $1,022,715 (+384%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth84th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $2,017,131Liabilities 2010: $195,747Net Assets 2010: $1,821,3842010Assets 2011: $1,622,112Liabilities 2011: $31,763Net Assets 2011: $1,590,3492011Assets 2012: $1,396,480Liabilities 2012: $112,429Net Assets 2012: $1,284,0512012Assets 2013: $1,183,569Liabilities 2013: $176,653Net Assets 2013: $1,006,9162013Assets 2014: $1,059,716Liabilities 2014: $110,090Net Assets 2014: $949,6262014Assets 2015: $1,972,413Liabilities 2015: $171,244Net Assets 2015: $1,801,1692015Assets 2016: $1,834,743Liabilities 2016: $294,414Net Assets 2016: $1,540,3292016Assets 2017: $1,686,671Liabilities 2017: $283,156Net Assets 2017: $1,403,5152017Assets 2018: $1,827,498Liabilities 2018: $289,420Net Assets 2018: $1,538,0782018Assets 2019: $2,030,309Liabilities 2019: $395,245Net Assets 2019: $1,635,0642019Assets 2020: $1,707,024Liabilities 2020: $323,698Net Assets 2020: $1,383,3262020Assets 2021: $2,467,584Liabilities 2021: $317,923Net Assets 2021: $2,149,6612021Assets 2022: $2,372,268Liabilities 2022: $422,506Net Assets 2022: $1,949,7622022Assets 2023: $2,136,299Liabilities 2023: $0Net Assets 2023: $2,136,2992023

Highlighted filing

2021

Assets$2,467,584
Liabilities$317,923
Net Assets$2,149,661
Open 2021 Filing

Operations Trend

Revenue Growth70th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $2,283,6812010Expenses 2011: $2,324,5852011Expenses 2012: $2,440,6962012Revenue 2013: $2,250,927Expenses 2013: $2,541,823Net Income 2013: -$290,8962013Revenue 2014: $2,363,011Expenses 2014: $2,435,151Net Income 2014: -$72,1402014Revenue 2015: $3,131,731Expenses 2015: $2,280,188Net Income 2015: $851,5432015Revenue 2016: $2,393,054Expenses 2016: $2,653,894Net Income 2016: -$260,8402016Revenue 2017: $2,625,297Expenses 2017: $2,762,111Net Income 2017: -$136,8142017Revenue 2018: $2,969,709Expenses 2018: $2,835,146Net Income 2018: $134,5632018Revenue 2019: $2,764,791Expenses 2019: $2,667,280Net Income 2019: $97,5112019Revenue 2020: $2,478,854Expenses 2020: $2,745,445Net Income 2020: -$266,5912020Revenue 2021: $3,381,394Expenses 2021: $2,625,270Net Income 2021: $756,1242021Revenue 2022: $2,861,706Expenses 2022: $3,087,624Net Income 2022: -$225,9182022Revenue 2023: $116,491Expenses 2023: $118,147Net Income 2023: -$1,6562023

Highlighted filing

2021

Revenue$3,381,394
Expenses$2,625,270
Net Income$756,124
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2020 to Jan 31, 2021
Signed
Jun 11, 2021
Return Version
2020v4.1
Gross Receipts
$3,452,625
Mission and Program Overview

Mission

Leading the fight to treat and cure als through research and advocacy while empowering people with als and their families to live fuller lives through compassionate care and support.

We improve the lives of people living with als by providing a wide range of free services. We also support worldwide research to find a cure for als and sponsor educational and advocacy programs to benefit the als community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,146,972$1,416,056▲ $269,084
Cash and Non-Interest-Bearing Accounts$375,766$522,342▲ $146,576
Pledges and Grants Receivable$68,825$416,253▲ $347,428
Prepaid Expenses and Deferred Charges$42,139$60,199▲ $18,060
Land, Buildings, and Equipment, Net$59,018$38,430▼ $20,588
Total Assets$1,707,024$2,467,584▲ $760,560
Other Assets Total$14,304$14,304→ $0
Liabilities
Accounts Payable and Accrued Expenses$195,311$208,193▲ $12,882
Other Liabilities$121,087$109,730▼ $11,357
Deferred Revenue$7,300--
Total Liabilities$323,698$317,923▼ $5,775
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,085,984$1,499,459▲ $413,475
Net Assets With Donor Restrictions$297,342$650,202▲ $352,860
Total Net Assets Fund Balance$1,383,326$2,149,661▲ $766,335
Total Liabilities and Net Assets / Fund Balance$1,707,024$2,467,584▲ $760,560

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$29,363$406,615$435,978
Other Land Buildings$5,227$17,174$22,401
Leasehold Improvements$3,840$1,280$5,120
Compensation and Service Providers
Top Officer Pay88th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Lynn AaronsonExecutive DirectorFT$157,578$13,131$170,709
Jonathan M StrausbergDirector of PhilanthropyFT$101,250$1,695$102,945

Board Members and Trustees

NameTitle
Paul IngholtPast President
Robert RosemanPresident
Jeff BrainardVice President
Alethia BaggettDirector
Andrea KelleherDirector
Betsy LichtscheinDirector
Craig RiceDirector
David LoweDirector
Keith SegalmanDirector
Kevin SmithDirector
Richard BodsonDirector
Sally HornerDirector
Scott Bowen EvansDirector
Steve WellnerDirector
Zachery DanielDirector
Bill ThoetDirector as of 1/26/21
Andrew BermanAssistant Treasurer
Thomas MohlerSecretary
Scott GoldenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,375,949
Program Service Revenue
$0
Investment Income
$5,445
Other Revenue
$0
All Other Contributions
$1,818,772
Change in Net Assets
$756,124

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table76$103,000Fair Market Value (FMV)
Total Noncash Contributions76$103,000-

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,381,292
Revenue Not Reported on Financial Statements
$102
Revenue Not Reported on Form 990
$14,013
Total Revenue per Audited Statements
$3,395,305
Total Revenue per Form 990
$3,381,394
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,494,845
Other Expenses$814,526
Total Fundraising Expense$372,039
Grants and Similar Amounts Paid$315,899
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$844,828$60,445$198,271$1,103,544
Payments to Affiliates$261,957--$261,957
Grants to Domestic Individuals$193,399--$193,399
Current Officers, Directors, Trustees, and Key Employees$132,211$10,229$30,691$173,131
Occupancy$103,993$9,155$36,645$149,793
Grants to Domestic Orgs$122,500--$122,500
Other Expenses$113,829--$113,829
Other Employee Benefits$78,664$11,165$15,773$105,602
Payroll Taxes$69,791$4,507$16,890$91,188
Fees for Services Other$43,855$2,199$32,549$78,603
Office Expenses$53,076$112$20,468$73,656
Fees for Services Accounting-$60,390-$60,390
Information Technology$25,567$1,948$9,009$36,524
Pension Plan Contributions$14,965$3,498$2,917$21,380
Depreciation Depletion$15,441$1,029$4,118$20,588
Travel$5,567$424$1,962$7,953
Insurance$4,495$342$1,584$6,421
Advertising$1,839$138$648$2,625
Conferences and Meetings$1,275$97$449$1,821
Interest$185$14$65$264
Fees for Service Investment Mgmnt Fees-$102-$102
Total Functional Expenses$2,087,437$165,794$372,039$2,625,270

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,628,970
Total Expenses per Form 990$2,625,270
Expenses per Audited Statements$2,625,168
Expenses Not Reported on Form 990$3,802
Expenses Not Reported on Financial Statements$102
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Medical Faculty Associates IncWashington, DC501 (c)(3)Care Services$25,000
University of Maryland - BaltimoreBaltimore, MD501 (c)(3)Care Services$25,000
University of Virginia Health SystemCharlottesville, VA501 (c)(3)Care Services$25,000
The Johns Hopkins UniversityBaltimore, MD501 (c)(3)Care Services$20,000
Sentara Medical GroupVirginia Beach, VA501 (c)(3)Care Services$10,000
Peninsula Regional Medical CenterSalisbury, MD501 (c)(3)Care Services$7,500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$34,726
Fundraising Gross Income$34,726
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Dinner$329,846$27,029$25,720$1,309
Walk Program$570,806$5,175$4,034$1,141
Total Events$965,038$34,726$34,726$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Andrew BermanAssistant TreasurerPrinting ServicesNo$8,757
Scott GoldenTreasurerHealth and Benefit Plan CommissionNo$5,000
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$109,730
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1

“The executive committee shall include the chapter's officers and such other persons as may be selected, from time to time, by the board of directors. The chairperson of this committee shall be the president of the chapter. In the absence of specific directions given by the board of directors, the executive committee shall have and exercise all of the powers and duties of the board in the management of the affairs of the chapter whenever the board is not in session, except to: elect officers, other than to appoint officers to fill vacancies; approve appointments of committee chairpersons; amend bylaws; and authorize monetary obligations in excess of an amount approved by the board. The executive committee shall keep regular minutes of its proceedings and shall report action taken by it to the board of directors at its next meeting following the taking of such action.”

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the executive director, vice president, executive committee and finance committee. A copy is them sent to the entire board for review. A reasonable deadline for responses is provided. Any questions, concerns, or issues that are presented within that time frame are addressed. Final approval is collectively reached by the reviewing parties.”

Form 990, Part VI, Section B, Line 12C

“The board of directors has a conflict of interest policy which is signed by the individual board members at the beginning of each fiscal year. All chapter employees, independent contractors, consultants and board members are subject to the conflict of interest policy. Upon their engagement, they are provided with the policy and asked to confirm that no conflict exists or to disclose any real or potential conflicts. The executive committee is responsible for monitoring and enforcing the compliance with the policy every year. At this time, all real or apparent conflicts that have been identified have been addressed by the board of directors with restrictions imposed, as appropriate, to protect the chapter's best interests.”

Form 990, Part VI, Section B, Line 15

“The executive director's compensation is determined by an independent board committee annually, using evaluations, competent salary surveys, and comparisons with other als association chapters. The committee's recommendation is then presented to the executive committee and to the full board for review and approval. The last review of the executive director's compensation using these comparable data took place in january of 2019 when the new executive director was hired.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy, and the financial statements are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Als Association Dcmdva Chapter
EIN
52-1749047
Phone
3019789855
Address
30 W GUDE DRIVE NO 150, ROCKVILLE, MD 20850

Signing Officer

Name
Scott Golden
Title
Treasurer
Phone
3019789855
Signed
2021-06-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert Roseman
Formed
1991
Legal Domicile
Dc
Voting Board Members
19
Independent Board Members
19
Employees
24
Volunteers
350

Preparer

Firm
Jones Maresca & Mcquade Pa
Address
1730 RHODE ISLAND AVE NW SUITE 800, WASHINGTON, DC 20036
Preparer
Meena Bishnoi
Phone
2022963306
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has not changed its oversight or selection process during the tax year.”

Financial Statement Notes

PART X, LINE 2:

“The chapter believes it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements or that would have an effect on its tax-exempt status. There are no unrecognized tax benefits or liabilities that need to be recorded.”

Raw XML AppendixShowing 400 of 715 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE IMPROVE THE LIVES OF PEOPLE LIVING WITH ALS BY PROVIDING A WIDE RANGE OF FREE SERVICES. WE ALSO SUPPORT WORLDWIDE RESEARCH TO FIND A CURE FOR ALS AND SPONSOR EDUCATIONAL AND ADVOCACY PROGRAMS TO BENEFIT THE ALS COMMUNITY.
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IRS990/Desc0RESEARCH - THE CHAPTER SUPPORTS THE ALS ASSOCIATION'S GLOBAL ALS RESEARCH PROGRAM TO FIND TREATMENTS AND A CURE FOR THIS FATAL DISEASE. THE AVERAGE LIFE EXPECTANCY OF SOMEONE WITH ALS IS ONLY 2-5 YEARS FROM DIAGNOSIS. ALSO, FOR UNKNOWN REASONS MILITARY VETERANS ARE NEARLY TWICE AS LIKELY TO BE DIAGNOSED WITH ALS. RESEARCH IS CRITICAL TO GAIN A BETTER UNDERSTANDING OF THE DISEASE AND CREATING BETTER TREATMENTS AND ULTIMATELY, A CURE FOR ALS. RECENT BREAKTHROUGHS MADE POSSIBLE BECAUSE OF THE CHAPTER SUPPORT INCLUDE: IDENTIFICATION OF THE SINGLE MOST COMMON KNOWN GENETIC ALS FACTOR, DEVELOPMENT OF A METHOD THAT CAN TEST TREATMENTS ON DIFFERENT FORMS OF ALS IN THE LAB AND THE FIRST FDA-APPROVED STEM CELL TRANSPLANT TRIAL IN ALS. THE PATIENT POPULATION IS GROWING RAPIDLY FROM 550 PLUS PATIENTS AND THEIR FAMILIES A FEW YEARS AGO TO NEARLY 900 CURRENTLY.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1913131
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt201695
IRS990/Form990PartVIISectionAGrp/PersonNm0ROBERT ROSEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm1JEFF BRAINARD
IRS990/Form990PartVIISectionAGrp/PersonNm2THOMAS MOHLER
IRS990/Form990PartVIISectionAGrp/PersonNm3SCOTT GOLDEN
IRS990/Form990PartVIISectionAGrp/PersonNm4ANDREW BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm5PAUL INGHOLT
IRS990/Form990PartVIISectionAGrp/PersonNm6ALETHIA BAGGETT
IRS990/Form990PartVIISectionAGrp/PersonNm7RICHARD BODSON
IRS990/Form990PartVIISectionAGrp/PersonNm8SCOTT BOWEN EVANS
IRS990/Form990PartVIISectionAGrp/PersonNm9ZACHERY DANIEL
IRS990/Form990PartVIISectionAGrp/PersonNm10SALLY HORNER
IRS990/Form990PartVIISectionAGrp/PersonNm11ANDREA KELLEHER
IRS990/Form990PartVIISectionAGrp/PersonNm12BETSY LICHTSCHEIN
IRS990/Form990PartVIISectionAGrp/PersonNm13DAVID LOWE
IRS990/Form990PartVIISectionAGrp/PersonNm14CRAIG RICE
IRS990/Form990PartVIISectionAGrp/PersonNm15KEITH SEGALMAN
IRS990/Form990PartVIISectionAGrp/PersonNm16KEVIN SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm17STEVE WELLNER
IRS990/Form990PartVIISectionAGrp/PersonNm18BILL THOET
IRS990/Form990PartVIISectionAGrp/PersonNm19LYNN AARONSON
IRS990/Form990PartVIISectionAGrp/PersonNm20JONATHAN M STRAUSBERG
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19157578
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20101250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4ASSISTANT TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5PAST PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR AS OF 1/26/21
IRS990/Form990PartVIISectionAGrp/TitleTxt19EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIR. OF PHILANTHROPY
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01991
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0930312
IRS990/FundraisingDirectExpensesAmt034726
IRS990/FundraisingGrossIncomeAmt034726
IRS990/GainOrLossGrp/SecuritiesAmt087
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt019
IRS990/GovernmentGrantsAmt0626865
IRS990/GrantAmt0315899
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0193399
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0193399
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0122500
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0122500
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt036592
IRS990/GrossReceiptsAmt03452625
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt019
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt09009
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01948
IRS990/InformationTechnologyGrp/ProgramServicesAmt025567
IRS990/InformationTechnologyGrp/TotalAmt036524
IRS990/InsuranceGrp/FundraisingAmt01584
IRS990/InsuranceGrp/ManagementAndGeneralAmt0342
IRS990/InsuranceGrp/ProgramServicesAmt04495
IRS990/InsuranceGrp/TotalAmt06421
IRS990/InterestGrp/FundraisingAmt065
IRS990/InterestGrp/ManagementAndGeneralAmt014
IRS990/InterestGrp/ProgramServicesAmt0185
IRS990/InterestGrp/TotalAmt0264
IRS990/InvestmentIncomeGrp/ExclusionAmt05358
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt05358
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0425069
IRS990/LandBldgEquipBasisNetGrp/BOYAmt059018
IRS990/LandBldgEquipBasisNetGrp/EOYAmt038430
IRS990/LandBldgEquipCostOrOtherBssAmt0463499
IRS990/LegalDomicileStateCd0DC
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt036505
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01383326
IRS990/NetAssetsOrFundBalancesEOYAmt02149661
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt087
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt087
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt010211
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01085984
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01499459
IRS990/NoncashContributionsAmt0103000
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt036645
IRS990/OccupancyGrp/ManagementAndGeneralAmt09155
IRS990/OccupancyGrp/ProgramServicesAmt0103993
IRS990/OccupancyGrp/TotalAmt0149793
IRS990/OfficeExpensesGrp/FundraisingAmt020468
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0112
IRS990/OfficeExpensesGrp/ProgramServicesAmt053076
IRS990/OfficeExpensesGrp/TotalAmt073656
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt014304
IRS990/OtherAssetsTotalGrp/EOYAmt014304
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt015773
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt011165
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt078664
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0105602
IRS990/OtherExpensesGrp/Desc0RESEARCH EXPENSE
IRS990/OtherExpensesGrp/ProgramServicesAmt0113829
IRS990/OtherExpensesGrp/TotalAmt0113829
IRS990/OtherLiabilitiesGrp/BOYAmt0121087
IRS990/OtherLiabilitiesGrp/EOYAmt0109730
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0198271
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt060445
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0844828
IRS990/OtherSalariesAndWagesGrp/TotalAmt01103544
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0261957
IRS990/PaymentsToAffiliatesGrp/TotalAmt0261957
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt016890
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt04507
IRS990/PayrollTaxesGrp/ProgramServicesAmt069791
IRS990/PayrollTaxesGrp/TotalAmt091188
IRS990/PensionPlanContributionsGrp/FundraisingAmt02917
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt03498
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt014965
IRS990/PensionPlanContributionsGrp/TotalAmt021380
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt068825
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0416253
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt042139
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt060199
IRS990/PrincipalOfficerNm0ROBERT ROSEMAN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0CARE SERVICES - THE CHAPTER WORKS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE LIVING WITH ALS BY PROVIDING A HOST OF FREE SERVICES. THESE SERVICES INCLUDE HOME VISITS, THAT WERE ELIMINATED IN 2020 AS A RESULT OF THE CORONA VIRUS, AND SUBSTITUTED BY TELEHEALTH COMMUNICATION WITH COORDINATORS, WHO PROVIDE CASE MANAGEMENT AND ASSISTANCE WITH BENEFIT APPLICATIONS, ASSISTIVE TECHNOLOGY LABS THAT PROVIDE ACCESS TO SPEECH GENERATING AND ENVIRONMENTAL CONTROL DEVICES, MULTIDISCIPLINARY CLINICS THAT ALLOW PATIENTS TO SEE IN ONE VISIT, A VARIETY OF HEALTHCARE CLINICIANS, EQUIPMENT LOAN CLOSETS THAT PROVIDE ACCESS TO ITEMS SUCH AS WHEELCHAIRS, WALKERS AND BEDS, SUPPORT GROUPS FOR PEOPLE WITH ALS AND CAREGIVERS, AND MUCH-NEEDED TRANSPORTATION GRANTS. THE CHAPTER ALSO HOSTS SEVERAL EVENTS THAT BRING PEOPLE WITH ALS AND THEIR FAMILIES TOGETHER TO RAISE AWARENESS FOR ALS IN ALL COMMUNITIES.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0201921
IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC EDUCATION & AWARENESS - EDUCATIONAL SYMPOSIUMS ARE OFFERED THROUGHOUT THE YEAR IN DIFFERENT GEOGRAPHICAL LOCATIONS WITHIN THE CHAPTER TERRITORY. THESE PROGRAMS ARE DESIGNED FOR PATIENTS AND FAMILY MEMBERS AS WELL AS HEALTHCARE PROFESSIONALS ON A WIDE RANGE OF TOPICS WHICH IMPACT ALS PATIENTS. ADVOCACY EVENTS ARE ALSO CONDUCTED THROUGHOUT THE YEAR, WHICH ALLOW THE CHAPTER'S GRASSROOTS MEMBERS ACCESS TO LEGISLATIVE REPRESENTATIVES IN ORDER TO VOICE CONCERNS ON ISSUES IMPACTING ALS PATIENTS AND FAMILY MEMBERS. EVENTS OCCUR BOTH IN PERSON AND VIRTUALLY.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0186479
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02467047
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0321938
IRS990/PYInvestmentIncomeAmt011807
IRS990/PYOtherExpensesAmt0920096
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-266591
IRS990/PYSalariesCompEmpBnftPaidAmt01503411
IRS990/PYTotalExpensesAmt02745445
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02478854
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0756124
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01146972
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01416056

Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,467,584
Liabilities
$317,923
Net assets
$2,149,661
Revenue
$3,381,394
Expenses
$2,625,270
Net income
$756,124
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$2.14$0.00$2.14$0.12$0.12$0.00
2022Detailed filing. Detailed filing data is available for this year.$2.37$0.42$1.95$2.86$3.09$0.23
2021Detailed filing. Detailed filing data is available for this year.$2.47$0.32$2.15$3.38$2.63$0.76
2020Detailed filing. Detailed filing data is available for this year.$1.71$0.32$1.38$2.48$2.75$0.27
2019Detailed filing. Detailed filing data is available for this year.$2.03$0.40$1.64$2.76$2.67$0.10
2018Detailed filing. Detailed filing data is available for this year.$1.83$0.29$1.54$2.97$2.84$0.13
2017Detailed filing. Detailed filing data is available for this year.$1.69$0.28$1.40$2.63$2.76$0.14
2016Detailed filing. Detailed filing data is available for this year.$1.83$0.29$1.54$2.39$2.65$0.26
2015Detailed filing. Detailed filing data is available for this year.$1.97$0.17$1.80$3.13$2.28$0.85
2014Detailed filing. Detailed filing data is available for this year.$1.06$0.11$0.95$2.36$2.44$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.18$0.18$1.01$2.25$2.54$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.40$0.11$1.28$2.44
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.62$0.03$1.59$2.32
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.02$0.20$1.82$2.28