Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2020 • EIN 52-1749047

Feb 01, 2019 to Jan 31, 2020 • Filed on Jun 05, 2020

Organization ProfileWEBDC.ALSA.ORG
30 W Gude Drive No 150Rockville, MD 20850

(301) 978-9855

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.19x

Higher debt load relative to assets than 61% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

49th percentile

0.13x

Higher debt load relative to revenue than 49% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

22nd percentile

-11%

Higher net margin than 22% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

81st percentile

$139,127

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 5.6% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

6th percentile

-16%

Faster asset growth than 6% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

32nd percentile

-10%

Faster revenue growth than 32% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets61st percentile

Assets

Down

$1,707,024

Down $323,285 (-16%) from 2019

Net Assets

Down

$1,383,326

Down $251,738 (-15%) from 2019

Liabilities

Down

$323,698

Down $71,547 (-18%) from 2019

Revenue And Expenses
Liabilities / Revenue49th percentileNet Margin22nd percentile

Revenue

Down

$2,478,854

Down $285,937 (-10%) from 2019

Expenses

Up

$2,745,445

Up $78,165 (+2.9%) from 2019

Net Income

Down

-$266,591

Down $364,102 (-373%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth6th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $2,017,131Liabilities 2010: $195,747Net Assets 2010: $1,821,3842010Assets 2011: $1,622,112Liabilities 2011: $31,763Net Assets 2011: $1,590,3492011Assets 2012: $1,396,480Liabilities 2012: $112,429Net Assets 2012: $1,284,0512012Assets 2013: $1,183,569Liabilities 2013: $176,653Net Assets 2013: $1,006,9162013Assets 2014: $1,059,716Liabilities 2014: $110,090Net Assets 2014: $949,6262014Assets 2015: $1,972,413Liabilities 2015: $171,244Net Assets 2015: $1,801,1692015Assets 2016: $1,834,743Liabilities 2016: $294,414Net Assets 2016: $1,540,3292016Assets 2017: $1,686,671Liabilities 2017: $283,156Net Assets 2017: $1,403,5152017Assets 2018: $1,827,498Liabilities 2018: $289,420Net Assets 2018: $1,538,0782018Assets 2019: $2,030,309Liabilities 2019: $395,245Net Assets 2019: $1,635,0642019Assets 2020: $1,707,024Liabilities 2020: $323,698Net Assets 2020: $1,383,3262020Assets 2021: $2,467,584Liabilities 2021: $317,923Net Assets 2021: $2,149,6612021Assets 2022: $2,372,268Liabilities 2022: $422,506Net Assets 2022: $1,949,7622022Assets 2023: $2,136,299Liabilities 2023: $0Net Assets 2023: $2,136,2992023

Highlighted filing

2020

Assets$1,707,024
Liabilities$323,698
Net Assets$1,383,326
Open 2020 Filing

Operations Trend

Revenue Growth32nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $2,283,6812010Expenses 2011: $2,324,5852011Expenses 2012: $2,440,6962012Revenue 2013: $2,250,927Expenses 2013: $2,541,823Net Income 2013: -$290,8962013Revenue 2014: $2,363,011Expenses 2014: $2,435,151Net Income 2014: -$72,1402014Revenue 2015: $3,131,731Expenses 2015: $2,280,188Net Income 2015: $851,5432015Revenue 2016: $2,393,054Expenses 2016: $2,653,894Net Income 2016: -$260,8402016Revenue 2017: $2,625,297Expenses 2017: $2,762,111Net Income 2017: -$136,8142017Revenue 2018: $2,969,709Expenses 2018: $2,835,146Net Income 2018: $134,5632018Revenue 2019: $2,764,791Expenses 2019: $2,667,280Net Income 2019: $97,5112019Revenue 2020: $2,478,854Expenses 2020: $2,745,445Net Income 2020: -$266,5912020Revenue 2021: $3,381,394Expenses 2021: $2,625,270Net Income 2021: $756,1242021Revenue 2022: $2,861,706Expenses 2022: $3,087,624Net Income 2022: -$225,9182022Revenue 2023: $116,491Expenses 2023: $118,147Net Income 2023: -$1,6562023

Highlighted filing

2020

Revenue$2,478,854
Expenses$2,745,445
Net Income-$266,591
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2019 to Jan 31, 2020
Signed
Jun 5, 2020
Return Version
2019v5.1
Gross Receipts
$2,664,418
Mission and Program Overview

Mission

Leading the fight to treat and cure als through research and advocacy while empowering people with als and their families to live fuller lives through compassionate care and support.

We improve the lives of people living with als by providing a wide range of free services. We also support worldwide research to find a cure for als and sponsor educational and advocacy programs to benefit the als community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,470,067$1,146,972▼ $323,095
Cash and Non-Interest-Bearing Accounts$240,699$375,766▲ $135,067
Pledges and Grants Receivable$160,279$68,825▼ $91,454
Land, Buildings, and Equipment, Net$98,900$59,018▼ $39,882
Prepaid Expenses and Deferred Charges$46,060$42,139▼ $3,921
Total Assets$2,030,309$1,707,024▼ $323,285
Other Assets Total$14,304$14,304→ $0
Liabilities
Accounts Payable and Accrued Expenses$257,402$195,311▼ $62,091
Other Liabilities$127,843$121,087▼ $6,756
Deferred Revenue$10,000$7,300▼ $2,700
Total Liabilities$395,245$323,698▼ $71,547
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,299,846$1,085,984▼ $213,862
Net Assets With Donor Restrictions$335,218$297,342▼ $37,876
Total Net Assets Fund Balance$1,635,064$1,383,326▼ $251,738
Total Liabilities and Net Assets / Fund Balance$2,030,309$1,707,024▼ $323,285

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$54,666$403,713$458,379
Leasehold Improvements$4,352$768$5,120
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Lynn AaronsonExecutive DirectorFT$127,281$11,846$139,127
Tremetris HarrellVP of Care ServicesFT$100,991$9,559$110,550

Board Members and Trustees

NameTitle
Judith BaileyPast President
Paul IngholtPresident
Robert RosemanVice President
Alethia BaggettDirector
Betsy LichtscheinDirector
David LoweDirector
Keith SegalmanDirector
Richard BodsonDirector
Sally HornerDirector
Thomas MohlerDirector
Andrea KelleherDirector as of Sept. 2019
Craig RiceDirector as of Sept. 2019
Kevin SmithDirector as of Sept. 2019
Scott Bowen EvansDirector as of Sept. 2019
Zachery DanielDirector as of Sept. 2019
Andrew BermanAssistant Treasurer
Steve WellnerSecretary
Scott GoldenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,467,047
Program Service Revenue
$0
Investment Income
$11,807
Other Revenue
$0
All Other Contributions
$1,036,961
Change in Net Assets
$-266,591

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table53$118,000Fair Market Value (FMV)
Total Noncash Contributions53$118,000-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,478,854
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$19,794
Total Revenue per Audited Statements
$2,498,648
Total Revenue per Form 990
$2,478,854
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,503,411
Other Expenses$920,096
Total Fundraising Expense$402,772
Grants and Similar Amounts Paid$321,938
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$724,647$98,173$175,946$998,766
Payments to Affiliates$299,269--$299,269
Current Officers, Directors, Trustees, and Key Employees$183,945$28,958$43,205$256,108
Grants to Domestic Individuals$214,438--$214,438
Occupancy$104,330$16,320$33,488$154,138
Other Employee Benefits$78,055$33,732$10,544$122,331
Grants to Domestic Orgs$107,500--$107,500
Payroll Taxes$73,921$9,898$17,921$101,740
Travel$75,206$632$25,642$101,480
Office Expenses$56,172$7,903$31,139$95,214
Information Technology$35,832$1,497$40,953$78,282
Fees for Services Accounting-$59,973-$59,973
Fees for Services Other$28,377$4,307$9,406$42,090
Depreciation Depletion$29,912$1,994$7,976$39,882
Other Expenses$29,550--$29,550
Pension Plan Contributions$15,626$6,502$2,338$24,466
Conferences and Meetings$5,760$569$1,623$7,952
Advertising$5,720$160$1,541$7,421
Insurance$3,270$525$1,050$4,845
Total Functional Expenses$2,071,530$271,143$402,772$2,745,445

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,750,386
Expenses per Audited Statements$2,745,445
Total Expenses per Form 990$2,745,445
Expenses Not Reported on Form 990$4,941
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Medical Faculty Associates IncWashington, DC501 (c)(3)Care Services$30,000
University of Maryland - BaltimoreBaltimore, MD501 (c)(3)Care Services$25,000
The Johns Hopkins UniversityChicago, IL501 (c)(3)Care Services$20,000
Sentara Medical GroupVirginia Beach, VA501 (c)(3)Care Services$10,000
University of Virginia Health SystemCharlottesville, VA501 (c)(3)Care Services$10,000
Peninsula Regional Medical CenterSalisbury, MD501 (c)(3)Care Services$7,500
Mcv Associated PhysiciansRichmond, VA501 (c)(3)Care Services$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$185,564
Fundraising Gross Income$185,564
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Program$1,176,199$135,091$166,361$-31,270
Dinner$269,043$-119,935-$-119,935
Total Events$1,615,650$185,564$185,564$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Andrew BermanAssistant TreasurerPrinting ServicesNo$11,990
Scott GoldenTreasurerHealth and Benefit PlanNo$6,500
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$121,087
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1

“The executive committee shall include the chapter's officers and such other persons as may be selected, from time to time, by the board of directors. The chairperson of this committee shall be the president of the chapter. In the absence of specific directions given by the board of directors, the executive committee shall have and exercise all of the powers and duties of the board in the management of the affairs of the chapter whenever the board is not in session, except to: elect officers, other than to appoint officers to fill vacancies; approve appointments of committee chairpersons; amend bylaws; and authorize monetary obligations in excess of an amount approved by the board. The executive committee shall keep regular minutes of its proceedings and shall report action taken by it to the board of directors at its next meeting following the taking of such action.”

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the executive director, vice president executive committee and finance committee. A reasonable deadline for responses is provided. Any questions, concerns, issues that are presented within that timeframe are addressed. Final approval is collectively reached by the reviewing parties.”

Form 990, Part VI, Section B, Line 12C

“The board of directors has a conflict of interest policy which is signed by the individual board members at the beginning of each fiscal year. All chapter employees, independent contractors, consultants and board members are subject to the conflict of interest policy. Upon their engagement, they are provided with the policy and asked to confirm that no conflict exists or to disclose any real or potential conflicts. The executive committee is responsible for monitoring and enforcing the compliance with the policy every year. At this time, all real or apparent conflicts that have been identified have been addressed by the board of directors with restrictions imposed, as appropriate, to protect the chapter's best interests.”

Form 990, Part VI, Section B, Line 15A

“The executive director's compensation is determined by an independent board committee annually, using evaluations, competent salary surveys, and comparisons with other als association chapters. The committee's recommendation is then presented to the executive committee and to the full board for review and approval. The review of the compensation took place in january of 2019 when the new executive director was hired.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy, and the financial statements are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Als Association Dcmdva Chapter
EIN
52-1749047
Phone
3019789855
Address
30 W GUDE DRIVE NO 150, ROCKVILLE, MD 20850

Signing Officer

Name
Scott Golden
Title
Treasurer
Phone
3019789855
Signed
2020-06-05
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert Roseman
Formed
1991
Legal Domicile
Dc
Voting Board Members
18
Independent Board Members
17
Employees
31
Volunteers
350

Preparer

Firm
Jones Maresca & Mcquade Pa
Address
1730 RHODE ISLAND AVE NW SUITE 800, WASHINGTON, DC 20036
Preparer
David Jones
Phone
2022963306
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The organization has not changed its oversight or selection process during the tax year.”

Financial Statement Notes

PART X, LINE 2:

“The chapter believes it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements or that would have an effect on its tax-exempt status. There are no unrecognized tax benefits or liabilities that need to be recorded.”

Raw XML AppendixShowing 400 of 674 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE IMPROVE THE LIVES OF PEOPLE LIVING WITH ALS BY PROVIDING A WIDE RANGE OF FREE SERVICES. WE ALSO SUPPORT WORLDWIDE RESEARCH TO FIND A CURE FOR ALS AND SPONSOR EDUCATIONAL AND ADVOCACY PROGRAMS TO BENEFIT THE ALS COMMUNITY.
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IRS990/Desc0CARE SERVICES - THE CHAPTER WORKS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE LIVING WITH ALS BY PROVIDING A HOST OF FREE SERVICES. THESE SERVICES INCLUDE HOME VISITS FROM COORDINATORS WHO PROVIDE CASE MANAGEMENT AND ASSISTANCE WITH BENEFIT APPLICATIONS, ASSISTIVE TECHNOLOGY LABS THAT PROVIDE ACCESS TO SPEECH GENERATING AND ENVIRONMENTAL CONTROL DEVICES, MULTIDISCIPLINARY CLINICS THAT ALLOW PATIENTS TO SEE, IN ONE VISIT, A VARIETY OF HEALTHCARE CLINICIANS, EQUIPMENT LOAN CLOSETS THAT PROVIDE ACCESS TO ITEMS SUCH AS WHEELCHAIRS, WALKERS AND BEDS, SUPPORT GROUPS FOR PEOPLE WITH ALS AND CAREGIVERS AND MUCH-NEEDED TRANSPORTATION GRANTS. THE CHAPTER ALSO HOSTS SEVERAL EVENTS THAT BRING PEOPLE WITH ALS AND THEIR FAMILIES TOGETHER TO RAISE AWARENESS FOR ALS IN OUR COMMUNITIES.
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IRS990/Form990PartVIISectionAGrp/PersonNm0PAUL INGHOLT
IRS990/Form990PartVIISectionAGrp/PersonNm1ROBERT ROSEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm2STEVE WELLNER
IRS990/Form990PartVIISectionAGrp/PersonNm3JUDITH BAILEY
IRS990/Form990PartVIISectionAGrp/PersonNm4SCOTT GOLDEN
IRS990/Form990PartVIISectionAGrp/PersonNm5ANDREW BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm6ALETHIA BAGGETT
IRS990/Form990PartVIISectionAGrp/PersonNm7RICHARD BODSON
IRS990/Form990PartVIISectionAGrp/PersonNm8SCOTT BOWEN EVANS
IRS990/Form990PartVIISectionAGrp/PersonNm9ZACHERY DANIEL
IRS990/Form990PartVIISectionAGrp/PersonNm10SALLY HORNER
IRS990/Form990PartVIISectionAGrp/PersonNm11ANDREA KELLEHER
IRS990/Form990PartVIISectionAGrp/PersonNm12BETSY LICHTSCHEIN
IRS990/Form990PartVIISectionAGrp/PersonNm13DAVID LOWE
IRS990/Form990PartVIISectionAGrp/PersonNm14CRAIG RICE
IRS990/Form990PartVIISectionAGrp/PersonNm15KEITH SEGALMAN
IRS990/Form990PartVIISectionAGrp/PersonNm16KEVIN SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm17THOMAS MOHLER
IRS990/Form990PartVIISectionAGrp/PersonNm18LYNN AARONSON
IRS990/Form990PartVIISectionAGrp/PersonNm19TREMETRIS HARRELL
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18127281
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19100991
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3PAST PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5ASSISTANT TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR AS OF SEPT. 2019
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR AS OF SEPT. 2019
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR AS OF SEPT. 2019
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR AS OF SEPT. 2019
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR AS OF SEPT. 2019
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19VP OF CARE SERVICES
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr01991
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01430086
IRS990/FundraisingDirectExpensesAmt0185564
IRS990/FundraisingGrossIncomeAmt0185564
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantAmt0321938
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0214438
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0214438
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0107500
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0107500
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02664418
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt040953
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01497
IRS990/InformationTechnologyGrp/ProgramServicesAmt035832
IRS990/InformationTechnologyGrp/TotalAmt078282
IRS990/InsuranceGrp/FundraisingAmt01050
IRS990/InsuranceGrp/ManagementAndGeneralAmt0525
IRS990/InsuranceGrp/ProgramServicesAmt03270
IRS990/InsuranceGrp/TotalAmt04845
IRS990/InvestmentIncomeGrp/ExclusionAmt011807
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt011807
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0404481
IRS990/LandBldgEquipBasisNetGrp/BOYAmt098900
IRS990/LandBldgEquipBasisNetGrp/EOYAmt059018
IRS990/LandBldgEquipCostOrOtherBssAmt0463499
IRS990/LegalDomicileStateCd0DC
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01635064
IRS990/NetAssetsOrFundBalancesEOYAmt01383326
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt014853
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01299846
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01085984
IRS990/NoncashContributionsAmt0118000
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt033488
IRS990/OccupancyGrp/ManagementAndGeneralAmt016320
IRS990/OccupancyGrp/ProgramServicesAmt0104330
IRS990/OccupancyGrp/TotalAmt0154138
IRS990/OfficeExpensesGrp/FundraisingAmt031139
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt07903
IRS990/OfficeExpensesGrp/ProgramServicesAmt056172
IRS990/OfficeExpensesGrp/TotalAmt095214
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt014304
IRS990/OtherAssetsTotalGrp/EOYAmt014304
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt010544
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt033732
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt078055
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0122331
IRS990/OtherExpensesGrp/Desc0RESEARCH EXPENSE
IRS990/OtherExpensesGrp/ProgramServicesAmt029550
IRS990/OtherExpensesGrp/TotalAmt029550
IRS990/OtherLiabilitiesGrp/BOYAmt0127843
IRS990/OtherLiabilitiesGrp/EOYAmt0121087
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0175946
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt098173
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0724647
IRS990/OtherSalariesAndWagesGrp/TotalAmt0998766
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0299269
IRS990/PaymentsToAffiliatesGrp/TotalAmt0299269
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt017921
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt09898
IRS990/PayrollTaxesGrp/ProgramServicesAmt073921
IRS990/PayrollTaxesGrp/TotalAmt0101740
IRS990/PensionPlanContributionsGrp/FundraisingAmt02338
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt06502
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt015626
IRS990/PensionPlanContributionsGrp/TotalAmt024466
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0160279
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt068825
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt046060
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt042139
IRS990/PrincipalOfficerNm0ROBERT ROSEMAN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH - THE CHAPTER SUPPORTS THE ALS ASSOCIATION'S GLOBAL ALS RESEARCH PROGRAM TO FIND TREATMENTS AND A CURE FOR THIS FATAL DISEASE. THE AVERAGE LIFE EXPECTANCY OF SOMEONE WITH ALS IS ONLY 2-5 YEARS FROM DIAGNOSIS. ALSO, FOR UNKNOWN REASONS MILITARY VETERANS ARE NEARLY TWICE AS LIKELY TO BE DIAGNOSED WITH ALS. RESEARCH IS CRITICAL TO BETTER UNDERSTANDING OF THE DISEASE AND CREATING BETTER TREATMENTS AND ULTIMATELY A CURE FOR ALS. RECENT BREAKTHROUGHS MADE POSSIBLE BECAUSE OF THE CHAPTER SUPPORT INCLUDE: IDENTIFICATION OF THE SINGLE MOST COMMON KNOWN GENETIC ALS FACTOR, DEVELOPMENT OF A METHOD THAT CAN TEST TREATMENTS ON DIFFERENT FORMS OF ALS IN THE LAB AND THE FIRST FDA-APPROVED STEM CELL TRANSPLANT TRIAL IN ALS. THE PATIENT POPULATION IS GROWING RAPIDLY FROM 650 PLUS PATIENTS AND THEIR FAMILIES A FEW YEARS AGO TO NEARLY 900.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0188509
IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC EDUCATION & AWARENESS - EDUCATIONAL SYMPOSIUMS ARE OFFERED THROUGHOUT THE YEAR IN DIFFERENT GEOGRAPHICAL LOCATIONS WITHIN THE CHAPTER TERRITORY. THESE PROGRAMS ARE DESIGNED FOR PATIENTS AND FAMILY MEMBERS AS WELL AS HEALTHCARE PROFESSIONALS ON A WIDE RANGE OF TOPICS WHICH IMPACT ALS PATIENTS. ADVOCACY EVENTS ARE ALSO CONDUCTED THROUGHOUT THE YEAR WHICH ALLOW OUR GRASSROOTS MEMBERS ACCESS TO LEGISLATIVE REPRESENTATIVES IN ORDER TO VOICE THEIR CONCERN ON ISSUES WHICH IMPACT ALS PATIENTS AND FAMILY MEMBERS. EVENTS OCCUR BOTH IN PERSON AND ALSO ON THE INTERNET.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0184366
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02751123
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0296414
IRS990/PYInvestmentIncomeAmt06168
IRS990/PYOtherExpensesAmt01066089
IRS990/PYOtherRevenueAmt07500
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt097511
IRS990/PYSalariesCompEmpBnftPaidAmt01304777
IRS990/PYTotalExpensesAmt02667280
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02764791
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-266591
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01470067
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01146972
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISC SALES - 2016 AMOUNT: $ 24. 2017 AMOUNT: $ 6.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt02467047
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02751123
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt02973368
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt02622644
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt02328815
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt013142997
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt011807
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt013668
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt02991
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt02629
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt02437
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt033532
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt06
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt024
IRS990ScheduleA/OtherIncome170Grp/TotalAmt030
IRS990ScheduleA/PublicOrganization170Ind0X

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,707,024
Liabilities
$323,698
Net assets
$1,383,326
Revenue
$2,478,854
Expenses
$2,745,445
Net income
-$266,591
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$2.14$0.00$2.14$0.12$0.12$0.00
2022Detailed filing. Detailed filing data is available for this year.$2.37$0.42$1.95$2.86$3.09$0.23
2021Detailed filing. Detailed filing data is available for this year.$2.47$0.32$2.15$3.38$2.63$0.76
2020Detailed filing. Detailed filing data is available for this year.$1.71$0.32$1.38$2.48$2.75$0.27
2019Detailed filing. Detailed filing data is available for this year.$2.03$0.40$1.64$2.76$2.67$0.10
2018Detailed filing. Detailed filing data is available for this year.$1.83$0.29$1.54$2.97$2.84$0.13
2017Detailed filing. Detailed filing data is available for this year.$1.69$0.28$1.40$2.63$2.76$0.14
2016Detailed filing. Detailed filing data is available for this year.$1.83$0.29$1.54$2.39$2.65$0.26
2015Detailed filing. Detailed filing data is available for this year.$1.97$0.17$1.80$3.13$2.28$0.85
2014Detailed filing. Detailed filing data is available for this year.$1.06$0.11$0.95$2.36$2.44$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.18$0.18$1.01$2.25$2.54$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.40$0.11$1.28$2.44
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.62$0.03$1.59$2.32
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.02$0.20$1.82$2.28