Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2019 • EIN 52-1749047

Feb 01, 2018 to Jan 31, 2019 • Filed on Aug 23, 2019

Organization ProfileWEBDC.ALSA.ORG
30 W Gude Drvie No 150Rockville, MD 20850

(301) 978-9855

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

64th percentile

0.19x

Higher debt load relative to assets than 64% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

59th percentile

0.14x

Higher debt load relative to revenue than 59% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

51st percentile

3.5%

Higher net margin than 51% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

74th percentile

$113,453

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 4.1% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

69th percentile

11%

Faster asset growth than 69% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

26th percentile

-6.9%

Faster revenue growth than 26% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets64th percentile

Assets

Up

$2,030,309

Up $202,811 (+11%) from 2018

Net Assets

Up

$1,635,064

Up $96,986 (+6.3%) from 2018

Liabilities

Up

$395,245

Up $105,825 (+37%) from 2018

Revenue And Expenses
Liabilities / Revenue59th percentileNet Margin51st percentile

Revenue

Down

$2,764,791

Down $204,918 (-6.9%) from 2018

Expenses

Down

$2,667,280

Down $167,866 (-5.9%) from 2018

Net Income

Down

$97,511

Down $37,052 (-28%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth69th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2010: $2,017,131Liabilities 2010: $195,747Net Assets 2010: $1,821,3842010Assets 2011: $1,622,112Liabilities 2011: $31,763Net Assets 2011: $1,590,3492011Assets 2012: $1,396,480Liabilities 2012: $112,429Net Assets 2012: $1,284,0512012Assets 2013: $1,183,569Liabilities 2013: $176,653Net Assets 2013: $1,006,9162013Assets 2014: $1,059,716Liabilities 2014: $110,090Net Assets 2014: $949,6262014Assets 2015: $1,972,413Liabilities 2015: $171,244Net Assets 2015: $1,801,1692015Assets 2016: $1,834,743Liabilities 2016: $294,414Net Assets 2016: $1,540,3292016Assets 2017: $1,686,671Liabilities 2017: $283,156Net Assets 2017: $1,403,5152017Assets 2018: $1,827,498Liabilities 2018: $289,420Net Assets 2018: $1,538,0782018Assets 2019: $2,030,309Liabilities 2019: $395,245Net Assets 2019: $1,635,0642019Assets 2020: $1,707,024Liabilities 2020: $323,698Net Assets 2020: $1,383,3262020Assets 2021: $2,467,584Liabilities 2021: $317,923Net Assets 2021: $2,149,6612021Assets 2022: $2,372,268Liabilities 2022: $422,506Net Assets 2022: $1,949,7622022Assets 2023: $2,136,299Liabilities 2023: $0Net Assets 2023: $2,136,2992023

Highlighted filing

2019

Assets$2,030,309
Liabilities$395,245
Net Assets$1,635,064
Open 2019 Filing

Operations Trend

Revenue Growth26th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $2,283,6812010Expenses 2011: $2,324,5852011Expenses 2012: $2,440,6962012Revenue 2013: $2,250,927Expenses 2013: $2,541,823Net Income 2013: -$290,8962013Revenue 2014: $2,363,011Expenses 2014: $2,435,151Net Income 2014: -$72,1402014Revenue 2015: $3,131,731Expenses 2015: $2,280,188Net Income 2015: $851,5432015Revenue 2016: $2,393,054Expenses 2016: $2,653,894Net Income 2016: -$260,8402016Revenue 2017: $2,625,297Expenses 2017: $2,762,111Net Income 2017: -$136,8142017Revenue 2018: $2,969,709Expenses 2018: $2,835,146Net Income 2018: $134,5632018Revenue 2019: $2,764,791Expenses 2019: $2,667,280Net Income 2019: $97,5112019Revenue 2020: $2,478,854Expenses 2020: $2,745,445Net Income 2020: -$266,5912020Revenue 2021: $3,381,394Expenses 2021: $2,625,270Net Income 2021: $756,1242021Revenue 2022: $2,861,706Expenses 2022: $3,087,624Net Income 2022: -$225,9182022Revenue 2023: $116,491Expenses 2023: $118,147Net Income 2023: -$1,6562023

Highlighted filing

2019

Revenue$2,764,791
Expenses$2,667,280
Net Income$97,511
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2018 to Jan 31, 2019
Signed
Aug 23, 2019
Return Version
2018v3.1
Gross Receipts
$2,996,555
Mission and Program Overview

Mission

Leading the fight to treat and cure als through research and advocacy while empowering people with als and their families to live fuller lives through compassionate care and support.

We improve the lives of people living with als by providing a wide range of free services. We also support worldwide research to find a cure for als and sponsor educational and advocacy programs to benefit the als community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$527,071$1,470,067▲ $942,996
Cash and Non-Interest-Bearing Accounts$908,698$240,699▼ $667,999
Pledges and Grants Receivable$197,151$160,279▼ $36,872
Land, Buildings, and Equipment, Net$109,863$98,900▼ $10,963
Prepaid Expenses and Deferred Charges$61,472$46,060▼ $15,412
Total Assets$1,827,498$2,030,309▲ $202,811
Other Assets Total$23,243$14,304▼ $8,939
Liabilities
Accounts Payable and Accrued Expenses$224,939$257,402▲ $32,463
Other Liabilities$27,281$127,843▲ $100,562
Deferred Revenue$37,200$10,000▼ $27,200
Total Liabilities$289,420$395,245▲ $105,825
Net Assets / Fund Balance
Unrestricted Net Assets$1,104,213$1,299,846▲ $195,633
Temporarily Rstr Net Assets$433,865$335,218▼ $98,647
Total Net Assets Fund Balance$1,538,078$1,635,064▲ $96,986
Total Liabilities and Net Assets / Fund Balance$1,827,498$2,030,309▲ $202,811

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$94,036$364,343$458,379
Leasehold Improvements$4,864$256$5,120
Compensation and Service Providers
Top Officer Pay74th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Judy TaylorExecutive Director (until 7/2018)FT$103,504$9,949$113,453
Tremetris HarrellInterim Exe Director (8/18 - 1/19)FT$83,926$9,156$93,082

Board Members and Trustees

NameTitle
Judith BaileyPast President
Paul IngholtPresident
Robert RosemanVice President
Alethia BaggettDirector
Betsy LichtscheinDirector
David LoweDirector
Jeff BrainardDirector
Jill McglaughlinDirector
Kathy ThompsonDirector
Keith SegalmanDirector
Kurt WiegertDirector
Richard BodsonDirector
Sally HornerDirector
Thomas MohlerDirector
Andrew BermanAssistant Treasurer
Steve WellnerSecretary
Scott GoldenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,751,123
Program Service Revenue
$0
Investment Income
$6,168
Other Revenue
$7,500
All Other Contributions
$1,033,731
Change in Net Assets
$97,511

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table52$126,000Fair Market Value (FMV)
Other Non Cash Contri Table155$71,917Fmw
Total Noncash Contributions207$197,917-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,764,776
Revenue Not Reported on Financial Statements
$15
Revenue Not Reported on Form 990
$2,616
Total Revenue per Audited Statements
$2,767,392
Total Revenue per Form 990
$2,764,791
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,304,777
Other Expenses$1,066,089
Total Fundraising Expense$437,402
Grants and Similar Amounts Paid$296,414
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$684,946$37,291$188,168$910,405
Payments to Affiliates$401,948--$401,948
Current Officers, Directors, Trustees, and Key Employees$152,245$8,273$41,989$202,507
Grants to Domestic Orgs$160,414--$160,414
Occupancy$110,809$7,030$29,549$147,388
Grants to Domestic Individuals$136,000--$136,000
Fees for Services Other$94,712$5,426$24,279$124,417
Office Expenses$56,548$3,059$50,489$110,096
Other Employee Benefits$68,613$3,209$18,263$90,085
Payroll Taxes$63,855$3,514$18,038$85,407
Information Technology$40,288$1,273$35,774$77,335
Travel$46,015$3,067$12,271$61,353
Fees for Services Accounting-$58,800-$58,800
Depreciation Depletion$37,821$2,521$10,086$50,428
Pension Plan Contributions$10,989$995$4,389$16,373
Other Expenses$15,087--$15,087
Insurance$6,533$436$1,742$8,711
Conferences and Meetings$4,891$106$1,988$6,985
Advertising$2,970-$368$3,338
Interest$141$38$9$188
Fees for Service Investment Mgmnt Fees-$15-$15
Total Functional Expenses$2,094,825$135,053$437,402$2,667,280

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,670,406
Total Expenses per Form 990$2,667,280
Expenses per Audited Statements$2,667,265
Expenses Not Reported on Form 990$3,141
Expenses Not Reported on Financial Statements$15
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
George Washington University Als CenterWashington, DC501 (c)(3)Care Services$30,000
University of Maryland - BaltimoreBaltimore, MD501 (c)(3)Care Services$25,000
Sentara Medical GroupVirginia Beach, VA501 (c)(3)Care Services$10,000
University of Virginia Medical CenterCharlottesville, VA501 (c)(3)Care Services$10,000
Peninsula Regional Medical CenterSalisbury, MD501 (c)(3)Care Services$7,500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$231,764
Fundraising Gross Income$231,764
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Program$1,278,248$151,990$231,764$-79,774
Dinner$381,514$45,364-$45,364
Total Events$1,949,156$231,764$231,764$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Andrew BermanAssistant TreasurerPrinting ServicesNo$19,919
Scott GoldenTreasurerHealth and Benefit PlanNo$6,500
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Deferred Rent$127,843
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1

“The executive committee shall include the chapter's officers and such other persons as may be selected, from time to time, by the board of directors. The chairperson of this committee shall be the president of the chapter. In the absence of specific directions given by the board of directors, the executive committee shall have and exercise all of the powers and duties of the board in the management of the affairs of the chapter whenever the board is not in session, except to: elect officers, other than to appoint officers to fill vacancies; approve appointments of committee chairpersons; amend bylaws; and authorize monetary obligations in excess of an amount approved by the board. The executive committee shall keep regular minutes of its proceedings and shall report action taken by it to the board of directors at its next meeting following the taking of such action.”

Form 990, Part VI, Section A, Line 2

“Judy taylor, executive director (until july 2018) and andrew berman, assistant treasurer have a business relationship as ms. Taylor's husband is employed by mr. Berman's printing company. Mr. Berman was recused from participating in any discussions or decisions involving ms. Taylor's performance evaluation or her compensation.”

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the executive director, vice president executive committee and finance committee. A reasonable deadline for responses is provided. Any questions, concerns, issues that are presented within that timeframe are addressed. Final approval is collectively reached by the reviewing parties.”

Form 990, Part VI, Section B, Line 12C

“The board of directors has a conflict of interest policy which is signed by the individual board members at the beginning of each fiscal year. All chapter employees, independent contractors, consultants and board members are subject to the conflict of interest policy. Upon their engagement, they are provided with the policy and asked to confirm that no conflict exists or to disclose any real or potential conflicts. The executive committee is responsible for monitoring and enforcing the compliance with the policy every year. At this time, all real or apparent conflicts that have been identified have been addressed by the board of directors with restrictions imposed, as appropriate, to protect the chapter's best interests.”

Form 990, Part VI, Section B, Line 15A

“The executive director's compensation is determined by an independent board committee annually, using evaluations, competent salary surveys, and comparisons with other als association chapters. The committee's recommendation is then presented to the executive committee and to the full board for review and approval. The review of the compensation did not take place in 2018 as the prior executive director left in july 2018 and new executive director jointed in feb 2019.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy, and the financial statements are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Als Association Dcmdva Chapter
EIN
52-1749047
Phone
3019789855
Address
30 W GUDE DRVIE NO 150, ROCKVILLE, MD 20850

Signing Officer

Name
Paul Ingholt
Title
President
Phone
3019789855
Signed
2019-08-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Paul Ingholt
Formed
1991
Legal Domicile
Dc
Voting Board Members
17
Independent Board Members
16
Employees
31
Volunteers
350

Preparer

Firm
Jones Maresca & Mcquade Pa
Address
1730 RHODE ISLAND AVE NW SUITE 800, WASHINGTON, DC 20036
Preparer
David Jones
Phone
2022963306
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The organization has not changed its oversight or selection process during the tax year.”

Financial Statement Notes

PART X, LINE 2:

“The chapter believes it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements or that would have an effect on its tax-exempt status. There are no unrecognized tax benefits or liabilities that need to be recorded.”

Raw XML AppendixShowing 400 of 656 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0WE IMPROVE THE LIVES OF PEOPLE LIVING WITH ALS BY PROVIDING A WIDE RANGE OF FREE SERVICES. WE ALSO SUPPORT WORLDWIDE RESEARCH TO FIND A CURE FOR ALS AND SPONSOR EDUCATIONAL AND ADVOCACY PROGRAMS TO BENEFIT THE ALS COMMUNITY.
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IRS990/Desc0CARE SERVICES - THE CHAPTER WORKS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE LIVING WITH ALS BY PROVIDING A HOST OF FREE SERVICES. THESE SERVICES INCLUDE HOME VISITS FROM COORDINATORS WHO PROVIDE CASE MANAGEMENT AND ASSISTANCE WITH BENEFIT APPLICATIONS, ASSISTIVE TECHNOLOGY LABS THAT PROVIDE ACCESS TO SPEECH GENERATING AND ENVIRONMENTAL CONTROL DEVICES, MULTIDISCIPLINARY CLINICS THAT ALLOW PATIENTS TO SEE, IN ONE VISIT, A VARIETY OF HEALTHCARE CLINICIANS, EQUIPMENT LOAN CLOSETS THAT PROVIDE ACCESS TO ITEMS SUCH AS WHEELCHAIRS, WALKERS AND BEDS, SUPPORT GROUPS FOR PEOPLE WITH ALS AND CAREGIVERS AND MUCH-NEEDED TRANSPORTATION GRANTS. THE CHAPTER ALSO HOSTS SEVERAL EVENTS THAT BRING PEOPLE WITH ALS AND THEIR FAMILIES TOGETHER TO RAISE AWARENESS FOR ALS IN OUR COMMUNITIES.
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IRS990/Form990PartVIISectionAGrp/PersonNm0PAUL INGHOLT
IRS990/Form990PartVIISectionAGrp/PersonNm1ROBERT ROSEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm2STEVE WELLNER
IRS990/Form990PartVIISectionAGrp/PersonNm3JUDITH BAILEY
IRS990/Form990PartVIISectionAGrp/PersonNm4SCOTT GOLDEN
IRS990/Form990PartVIISectionAGrp/PersonNm5ANDREW BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm6ALETHIA BAGGETT
IRS990/Form990PartVIISectionAGrp/PersonNm7RICHARD BODSON
IRS990/Form990PartVIISectionAGrp/PersonNm8JEFF BRAINARD
IRS990/Form990PartVIISectionAGrp/PersonNm9SALLY HORNER
IRS990/Form990PartVIISectionAGrp/PersonNm10BETSY LICHTSCHEIN
IRS990/Form990PartVIISectionAGrp/PersonNm11DAVID LOWE
IRS990/Form990PartVIISectionAGrp/PersonNm12JILL MCGLAUGHLIN
IRS990/Form990PartVIISectionAGrp/PersonNm13THOMAS MOHLER
IRS990/Form990PartVIISectionAGrp/PersonNm14KEITH SEGALMAN
IRS990/Form990PartVIISectionAGrp/PersonNm15KATHY THOMPSON
IRS990/Form990PartVIISectionAGrp/PersonNm16KURT WIEGERT
IRS990/Form990PartVIISectionAGrp/PersonNm17JUDY TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm18TREMETRIS HARRELL
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17103504
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1883926
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3PAST PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5ASSISTANT TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17EXECUTIVE DIRECTOR (UNTIL 7/2018)
IRS990/Form990PartVIISectionAGrp/TitleTxt18INTERIM EXE DIR (8/18 - 1/19)
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr01991
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
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IRS990/FundraisingDirectExpensesAmt0231764
IRS990/FundraisingGrossIncomeAmt0231764
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
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IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0136000
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IRS990/GrantsToDomesticOrgsGrp/TotalAmt0160414
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02996555
IRS990/GrossRentsGrp/RealAmt07500
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
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IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt035774
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01273
IRS990/InformationTechnologyGrp/ProgramServicesAmt040288
IRS990/InformationTechnologyGrp/TotalAmt077335
IRS990/InsuranceGrp/FundraisingAmt01742
IRS990/InsuranceGrp/ManagementAndGeneralAmt0436
IRS990/InsuranceGrp/ProgramServicesAmt06533
IRS990/InsuranceGrp/TotalAmt08711
IRS990/InterestGrp/FundraisingAmt09
IRS990/InterestGrp/ManagementAndGeneralAmt038
IRS990/InterestGrp/ProgramServicesAmt0141
IRS990/InterestGrp/TotalAmt0188
IRS990/InvestmentIncomeGrp/ExclusionAmt06168
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt06168
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0364599
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0109863
IRS990/LandBldgEquipBasisNetGrp/EOYAmt098900
IRS990/LandBldgEquipCostOrOtherBssAmt0463499
IRS990/LegalDomicileStateCd0DC
IRS990/LessRentalExpensesGrp/RealAmt00
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01538078
IRS990/NetAssetsOrFundBalancesEOYAmt01635064
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/ExclusionAmt07500
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt07500
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-525
IRS990/NoncashContributionsAmt0197917
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt029549
IRS990/OccupancyGrp/ManagementAndGeneralAmt07030
IRS990/OccupancyGrp/ProgramServicesAmt0110809
IRS990/OccupancyGrp/TotalAmt0147388
IRS990/OfficeExpensesGrp/FundraisingAmt050489
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt03059
IRS990/OfficeExpensesGrp/ProgramServicesAmt056548
IRS990/OfficeExpensesGrp/TotalAmt0110096
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt023243
IRS990/OtherAssetsTotalGrp/EOYAmt014304
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt018263
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03209
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt068613
IRS990/OtherEmployeeBenefitsGrp/TotalAmt090085
IRS990/OtherExpensesGrp/Desc0NATIONAL DUES
IRS990/OtherExpensesGrp/ProgramServicesAmt015087
IRS990/OtherExpensesGrp/TotalAmt015087
IRS990/OtherLiabilitiesGrp/BOYAmt027281
IRS990/OtherLiabilitiesGrp/EOYAmt0127843
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0188168
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt037291
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0684946
IRS990/OtherSalariesAndWagesGrp/TotalAmt0910405
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0401948
IRS990/PaymentsToAffiliatesGrp/TotalAmt0401948
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt018038
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03514
IRS990/PayrollTaxesGrp/ProgramServicesAmt063855
IRS990/PayrollTaxesGrp/TotalAmt085407
IRS990/PensionPlanContributionsGrp/FundraisingAmt04389
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0995
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt010989
IRS990/PensionPlanContributionsGrp/TotalAmt016373
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0197151
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0160279
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt061472
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt046060
IRS990/PrincipalOfficerNm0PAUL INGHOLT
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH - THE CHAPTER SUPPORTS THE ALS ASSOCIATION'S GLOBAL ALS RESEARCH PROGRAM TO FIND TREATMENTS AND A CURE FOR THIS FATAL DISEASE. THE AVERAGE LIFE EXPECTANCY OF SOMEONE WITH ALS IS ONLY 2-5 YEARS FROM DIAGNOSIS. ALSO, FOR UNKNOWN REASONS MILITARY VETERANS ARE NEARLY TWICE AS LIKELY TO BE DIAGNOSED WITH ALS. RESEARCH IS CRITICAL TO BETTER UNDERSTANDING OF THE DISEASE AND CREATING BETTER TREATMENTS AND ULTIMATELY A CURE FOR ALS. RECENT BREAKTHROUGHS MADE POSSIBLE BECAUSE OF THE CHAPTER SUPPORT INCLUDE: IDENTIFICATION OF THE SINGLE MOST COMMON KNOWN GENETIC ALS FACTOR, DEVELOPMENT OF A METHOD THAT CAN TEST TREATMENTS ON DIFFERENT FORMS OF ALS IN THE LAB AND THE FIRST FDA-APPROVED STEM CELL TRANSPLANT TRIAL IN ALS. THE PATIENT POPULATION IS GROWING RAPIDLY FROM 550 PLUS PATIENTS AND THEIR FAMILIES A FEW YEARS AGO TO NEARLY 900.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0193952
IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC EDUCATION & AWARENESS - EDUCATIONAL SYMPOSIUMS ARE OFFERED THROUGHOUT THE YEAR IN DIFFERENT GEOGRAPHICAL LOCATIONS WITHIN THE CHAPTER TERRITORY. THESE PROGRAMS ARE DESIGNED FOR PATIENTS AND FAMILY MEMBERS AS WELL AS HEALTHCARE PROFESSIONALS ON A WIDE RANGE OF TOPICS WHICH IMPACT ALS PATIENTS. ADVOCACY EVENTS ARE ALSO CONDUCTED THROUGHOUT THE YEAR WHICH ALLOW OUR GRASSROOTS MEMBERS ACCESS TO LEGISLATIVE REPRESENTATIVES IN ORDER TO VOICE THEIR CONCERN ON ISSUES WHICH IMPACT ALS PATIENTS AND FAMILY MEMBERS. EVENTS OCCUR BOTH IN PERSON AND ALSO ON THE INTERNET.
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IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02973368
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0249605
IRS990/PYInvestmentIncomeAmt0-3665
IRS990/PYOtherExpensesAmt01114440
IRS990/PYOtherRevenueAmt06
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0134563
IRS990/PYSalariesCompEmpBnftPaidAmt01471101
IRS990/PYTotalExpensesAmt02835146
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02969709
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt097511
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RentalIncomeOrLossGrp/RealAmt07500
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0527071
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01470067
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISC SALES - 2016 AMOUNT: $ 24. 2017 AMOUNT: $ 6.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt02973368
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt02622644
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt02328815
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt03008643
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt013684593
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt013668
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt02991
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt02629
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt02437
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt02110
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt023835
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IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt024
IRS990ScheduleA/OtherIncome170Grp/TotalAmt030
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99780
IRS990ScheduleA/PublicSupportPY170Pct00.99700

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,030,309
Liabilities
$395,245
Net assets
$1,635,064
Revenue
$2,764,791
Expenses
$2,667,280
Net income
$97,511
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$2.14$0.00$2.14$0.12$0.12$0.00
2022Detailed filing. Detailed filing data is available for this year.$2.37$0.42$1.95$2.86$3.09$0.23
2021Detailed filing. Detailed filing data is available for this year.$2.47$0.32$2.15$3.38$2.63$0.76
2020Detailed filing. Detailed filing data is available for this year.$1.71$0.32$1.38$2.48$2.75$0.27
2019Detailed filing. Detailed filing data is available for this year.$2.03$0.40$1.64$2.76$2.67$0.10
2018Detailed filing. Detailed filing data is available for this year.$1.83$0.29$1.54$2.97$2.84$0.13
2017Detailed filing. Detailed filing data is available for this year.$1.69$0.28$1.40$2.63$2.76$0.14
2016Detailed filing. Detailed filing data is available for this year.$1.83$0.29$1.54$2.39$2.65$0.26
2015Detailed filing. Detailed filing data is available for this year.$1.97$0.17$1.80$3.13$2.28$0.85
2014Detailed filing. Detailed filing data is available for this year.$1.06$0.11$0.95$2.36$2.44$0.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.18$0.18$1.01$2.25$2.54$0.29
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.40$0.11$1.28$2.44
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.62$0.03$1.59$2.32
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.02$0.20$1.82$2.28