Civic Intelligence

Friends of Patients at the Nih Inc

EIN 52-1449492 • 501(c)3 • Bethesda, MD

Profile

To provide assistance to patients and their families undergoing treatment at the NIH Clinical Center.

PO Box 34139Bethesda, MD 20827

www.friendsatnih.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

53rd percentile

0.02x

Higher debt load relative to assets than 53% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

61st percentile

0.05x

Higher debt load relative to revenue than 61% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

34th percentile

-3.0%

Higher net margin than 34% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

91st percentile

$125,948

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 30.6% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

58th percentile

6.7%

Faster asset growth than 58% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

57th percentile

12%

Faster revenue growth than 57% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets53rd percentile

Assets

Up

$828,162

Up $51,788 (+6.7%) from 2023

Liabilities

Down

$19,207

Down $598 (-3.0%) from 2023

Net Assets

Up

$808,955

Up $52,386 (+6.9%) from 2023

Operations
Liabilities / Revenue61st percentileNet Margin34th percentile

Revenue

Up

$411,106

Up $42,942 (+12%) from 2023

Expenses

Up

$423,494

Up $49,892 (+13%) from 2023

Net Income

Down

-$12,388

Down $6,950 (-128%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth58th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2012: $771,621Liabilities 2012: $14,561Net Assets 2012: $757,0602012Assets 2013: $1,001,622Liabilities 2013: $11,177Net Assets 2013: $990,4452013Assets 2014: $1,059,400Liabilities 2014: $21,230Net Assets 2014: $1,038,1702014Assets 2015: $1,000,282Liabilities 2015: $5,356Net Assets 2015: $994,9262015Assets 2016: $954,742Liabilities 2016: $10,878Net Assets 2016: $943,8642016Assets 2017: $910,632Liabilities 2017: $10,260Net Assets 2017: $900,3722017Assets 2018: $771,589Liabilities 2018: $22,280Net Assets 2018: $749,3092018Assets 2019: $734,688Liabilities 2019: $26,308Net Assets 2019: $708,3802019Assets 2020: $758,647Liabilities 2020: $16,579Net Assets 2020: $742,0682020Assets 2021: $818,252Liabilities 2021: $9,460Net Assets 2021: $808,7922021Assets 2022: $727,523Liabilities 2022: $35,697Net Assets 2022: $691,8262022Assets 2023: $776,374Liabilities 2023: $19,805Net Assets 2023: $756,5692023Assets 2024: $828,162Liabilities 2024: $19,207Net Assets 2024: $808,9552024

Highlighted filing

2024

Assets$828,162
Liabilities$19,207
Net Assets$808,955
Open 2024 Filing

Operations Trend

Revenue Growth57th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2012: $137,154Expenses 2012: $138,398Net Income 2012: -$1,2442012Revenue 2013: $178,694Expenses 2013: $136,533Net Income 2013: $42,1612013Revenue 2014: $176,950Expenses 2014: $187,793Net Income 2014: -$10,8432014Revenue 2015: $294,642Expenses 2015: $261,576Net Income 2015: $33,0662015Revenue 2016: $386,128Expenses 2016: $386,543Net Income 2016: -$4152016Revenue 2017: $496,114Expenses 2017: $436,413Net Income 2017: $59,7012017Revenue 2018: $295,854Expenses 2018: $410,592Net Income 2018: -$114,7382018Revenue 2019: $295,872Expenses 2019: $412,643Net Income 2019: -$116,7712019Revenue 2020: $256,940Expenses 2020: $274,918Net Income 2020: -$17,9782020Revenue 2021: $210,837Expenses 2021: $233,594Net Income 2021: -$22,7572021Revenue 2022: $314,594Expenses 2022: $320,443Net Income 2022: -$5,8492022Revenue 2023: $368,164Expenses 2023: $373,602Net Income 2023: -$5,4382023Revenue 2024: $411,106Expenses 2024: $423,494Net Income 2024: -$12,3882024

Highlighted filing

2024

Revenue$411,106
Expenses$423,494
Net Income-$12,388
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$828,162
Liabilities
$19,207
Net assets
$808,955
Revenue
$411,106
Expenses
$423,494
Net income
-$12,388
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.83$0.02$0.81$0.41$0.42$0.01
2023Detailed filing. Detailed filing data is available for this year.$0.78$0.02$0.76$0.37$0.37$0.01
2022Detailed filing. Detailed filing data is available for this year.$0.73$0.04$0.69$0.31$0.32$0.01
2021Detailed filing. Detailed filing data is available for this year.$0.82$0.01$0.81$0.21$0.23$0.02
2020Detailed filing. Detailed filing data is available for this year.$0.76$0.02$0.74$0.26$0.27$0.02
2019Detailed filing. Detailed filing data is available for this year.$0.73$0.03$0.71$0.30$0.41$0.12
2018Detailed filing. Detailed filing data is available for this year.$0.77$0.02$0.75$0.30$0.41$0.11
2017Detailed filing. Detailed filing data is available for this year.$0.91$0.01$0.90$0.50$0.44$0.06
2016Summary only. Only limited summary data is available for this year.$0.95$0.01$0.94$0.39$0.39$0.00
2015Summary only. Only limited summary data is available for this year.$1.00$0.01$0.99$0.29$0.26$0.03
2014Summary only. Only limited summary data is available for this year.$1.06$0.02$1.04$0.18$0.19$0.01
2013Summary only. Only limited summary data is available for this year.$1.00$0.01$0.99$0.18$0.14$0.04
2012Summary only. Only limited summary data is available for this year.$0.77$0.01$0.76$0.14$0.14$0.00
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 13, 2025
Return Version
2024v5.2
Gross Receipts
$467,862
Mission and Program Overview

Mission

To provide assistance to patients and their families undergoing treatment at the NIH Clinical Center.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$615,429$665,045▲ $49,616
Cash and Non-Interest-Bearing Accounts$93,500$108,360▲ $14,860
Accounts Receivable$46,016$37,928▼ $8,088
Land, Buildings, and Equipment, Net$20,929$16,329▼ $4,600
Total Assets$776,374$828,162▲ $51,788
Other Assets Total$500$500→ $0
Liabilities
Accounts Payable and Accrued Expenses$19,805$19,207▼ $598
Total Liabilities$19,805$19,207▼ $598
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$633,983$665,931▲ $31,948
Net Assets With Donor Restrictions$122,586$143,024▲ $20,438
Total Net Assets Fund Balance$756,569$808,955▲ $52,386
Total Liabilities and Net Assets / Fund Balance$776,374$828,162▲ $51,788

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$16,329$10,713$27,042
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Heidi WilliamsChief Executive OfficerFT$125,948$125,948

Board Members and Trustees

NameTitle
Jay ShahPresident
Andrew DerrFirst Vice President
Jerry SachsSecond Vice President
David LiolaDirector
Edouard Benjamin JrDirector
Jeff VigneDirector
Randy SchoolsDirector
Stephen Patrick McGowanDirector
Vivian BlairDirector
Don HillTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$257,404
Program Service Revenue
$0
Investment Income
$14,841
Other Revenue
$138,861
All Other Contributions
$244,904
Change in Net Assets
$-12,388

Audited Revenue Reconciliation

Revenue per Audited Statements
$411,106
Revenue Not Reported on Form 990
$250,474
Total Revenue per Audited Statements
$661,580
Total Revenue per Form 990
$411,106
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$193,721
Grants and Similar Amounts Paid$179,163
Other Expenses$50,610
Total Fundraising Expense$27,967
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Individuals$179,163--$179,163
Current Officers, Directors, Trustees, and Key Employees$100,759$13,854$11,335$125,948
Other Salaries and Wages$40,344$5,547$4,539$50,430
Fees for Services Accounting$12,341$1,697$6,122$20,160
Office Expenses$13,600$1,870$1,740$17,210
Payroll Taxes$10,953$1,506$1,232$13,691
Fees for Services Other$4,254$585$2,110$6,949
Depreciation Depletion$3,680$506$414$4,600
Other Employee Benefits$2,921$402$329$3,652
Insurance$1,133$156$127$1,416
Travel$172$24$19$215
Conferences and Meetings-$60-$60
Total Functional Expenses$369,320$26,207$27,967$423,494

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$609,194
Expenses per Audited Statements$423,494
Total Expenses per Form 990$423,494
Expenses Not Reported on Form 990$185,700
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$195,617
Fundraising Direct Expenses$56,756
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Night Out$142,741$140,241$7,636$132,605
Golf Tournam$57,376$47,376$728$46,648
Total Events$208,117$195,617$56,756$138,861
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“The 990 will be reviewed by the CEO, then a copy is sent to the Executive Committee members for review before it is signed and filed with the IRS.”

Conflict of interest policy compliance Part VI line 12C

“Board Members and employees of the Friends of Patients at the NIH are required to complete a disclosure statement every year and during the on-boarding process for new Board Members. The President monitors compliance with this requirement.”

CEO executive director top management comp Part VI line 15A

“Executive compensation review is done annually and was done in January 2024 and January 2025.”

Governing documents etc available to public Part VI line 19

“The Organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Friends of Patients at the NIH Inc
EIN
52-1449492
In Care Of
% Heidi Williams
Phone
3014020193
Address
PO Box 34139, Bethesda, MD 20827

Signing Officer

Name
Heidi Williams
Title
Chief Executive Officer
Phone
3014020193
Signed
2025-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Heidi Williams
Formed
1984
Legal Domicile
Md
Voting Board Members
10
Independent Board Members
10
Employees
4
Volunteers
12

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

General explanation attachment

“Form 990, Part VI, Section A, Line 1:The Corporation shall have an Executive Committee comprising the President, first Vice President, second Vice President and Treasurer. The Executive Committee shall have and exercise all of the authority of the Board of Directors in the management of the Corporations affairs when necessary during intervals between the meetings of the board of directors, provided that the Executive Committee shall not have or exercise the authority to: (a) Fill vacancies on the Board of Directors; (b) Amend the articles of Incorporation; (c) Adopt, amend, or repeal the bylaws; or (d) Dissolve or merge the Corporation. The President shall be the chair of the Executive Committee, and the Executive Committee shall be subject to the authority and supervision of the Board of Directors.”

Financial Statement Notes

Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)

“Friends at NIH believes that it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements.”

Raw XML AppendixShowing 400 of 474 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0Patient Support Services - Friends at NIH provides hope by giving emotional and financial support to patients receiving ground breaking and life saving treatment at the Clinical Center. Friends at NIH helps patients cover their essential needs so that they can focus on recovery. This includes the provision of shelter near the Clinical Center during treatment and assistance with housing costs, support system for patient families and caregivers to enable them to travel to and from the Clinical Center and an allowance to cover meals, utilities, patient insurance, medical and non-medical expenses, long-term patient housing, and other costs incurred during the patients stay at the Clinical Center. RP Awareness and Support - Relapsing polychondritis (RP) is a rare autoimmune disease characterized by recurrent widespread inflammation of different body areas, in particularly, cartilage. Friends at NIH has partnered with the relapsing Polychondritis Awareness and Support Foundation to raise money to provide travel and lodging for patients receiving treatment for this disease. Additional Accomplishments for 2024: 1. Five Local furnished apartments for patients and caregivers stay. Free of charge to patients. 2. Support for patient emergency financial needs such as direct payments for rent, mortgage, transportation, food, essential medical devices. 3. Support of meals for patients and caregivers at Sunday Safra lodge dinners 4. Weekly distribution of wellness items for patients staying in the hospital.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Friends at NIH believes that it has appropriate support for any tax positions taken, and as such, does not have any uncertain tax positions that are material to the financial statements.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)
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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0The Organization provides financial assistance, housing, and other assistance to patients and their families who are unable to afford the necessary personal expenses while undergoing treatment at the center. The Organization works directly with NIH social workers who link qualifying patients and their families with assistance from the organization. Therefore, minimal monitoring is considered necessary.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Monitoring procedures (Part I, line 2)
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The 990 will be reviewed by the CEO, then a copy is sent to the Executive Committee members for review before it is signed and filed with the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Board Members and employees of the Friends of Patients at the NIH are required to complete a disclosure statement every year and during the on-boarding process for new Board Members. The President monitors compliance with this requirement.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Executive compensation review is done annually and was done in January 2024 and January 2025.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The Organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Form 990, Part VI, Section A, Line 1:The Corporation shall have an Executive Committee comprising the President, first Vice President, second Vice President and Treasurer. The Executive Committee shall have and exercise all of the authority of the Board of Directors in the management of the Corporations affairs when necessary during intervals between the meetings of the board of directors, provided that the Executive Committee shall not have or exercise the authority to: (a) Fill vacancies on the Board of Directors; (b) Amend the articles of Incorporation; (c) Adopt, amend, or repeal the bylaws; or (d) Dissolve or merge the Corporation. The President shall be the chair of the Executive Committee, and the Executive Committee shall be subject to the authority and supervision of the Board of Directors.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4General explanation attachment
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