Civic Intelligence

International League Against Epilepsy

EIN 52-1298610 • 501(c)3 • Washington, DC

View Organization Page

Profile

The goals of The International League Against Epilepsy are to advance and disseminate knowledge about epilepsy, promote research, education, and training, and improve services and care for patients, especially by prevention, diagnosis and treatment.

1747 Pennsylvania Avenue NW 1000Washington, DC 20006

www.ilae-epilepsy.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

39th percentile

0.12x

Higher debt load relative to assets than 39% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Liabilities / Revenue

70th percentile

0.64x

Higher debt load relative to revenue than 70% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Net Margin

29th percentile

-1.6%

Higher net margin than 29% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Top Officer Pay

30th percentile

$187,931

Higher top officer pay than 30% of similar nonprofits.

Top officer pay equals 3.1% of source-year revenue.

501(c)3 • $25M-$50M nonprofits • Source year 2024

Asset Growth

83rd percentile

20%

Faster asset growth than 83% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Annualized from 2023 to 2024

Revenue Growth

76th percentile

26%

Faster revenue growth than 76% of similar nonprofits.

501(c)3 • $25M-$50M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets39th percentile

Assets

Up

$32,307,875

Up $5,286,307 (+20%) from 2023

Liabilities

Up

$3,886,507

Up $2,466,387 (+174%) from 2023

Net Assets

Up

$28,421,368

Up $2,819,920 (+11%) from 2023

Operations
Liabilities / Revenue70th percentileNet Margin29th percentile

Revenue

Up

$6,105,104

Up $1,247,699 (+26%) from 2023

Expenses

Up

$6,205,716

Up $542,675 (+9.6%) from 2023

Net Income

Up

-$100,612

Up $705,024 (+88%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth83rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$40M$30M$20M$10M$0Assets 2010: $15,016,668Liabilities 2010: $713,662Net Assets 2010: $14,303,0062010Assets 2011: $15,214,120Liabilities 2011: $859,343Net Assets 2011: $14,354,7772011Assets 2012: $16,169,646Liabilities 2012: $756,180Net Assets 2012: $15,413,4662012Assets 2013: $17,763,418Liabilities 2013: $1,360,213Net Assets 2013: $16,403,2052013Assets 2014: $17,004,346Liabilities 2014: $585,157Net Assets 2014: $16,419,1892014Assets 2015: $16,409,998Liabilities 2015: $545,299Net Assets 2015: $15,864,6992015Assets 2016: $18,722,548Liabilities 2016: $1,238,412Net Assets 2016: $17,484,1362016Assets 2017: $22,039,524Liabilities 2017: $1,381,439Net Assets 2017: $20,658,0852017Assets 2018: $21,161,315Liabilities 2018: $1,124,442Net Assets 2018: $20,036,8732018Assets 2019: $23,272,840Liabilities 2019: $1,190,068Net Assets 2019: $22,082,7722019Assets 2020: $26,560,794Liabilities 2020: $2,789,855Net Assets 2020: $23,770,9392020Assets 2021: $28,768,514Liabilities 2021: $1,569,942Net Assets 2021: $27,198,5722021Assets 2022: $25,182,697Liabilities 2022: $2,001,326Net Assets 2022: $23,181,3712022Assets 2023: $27,021,568Liabilities 2023: $1,420,120Net Assets 2023: $25,601,4482023Assets 2024: $32,307,875Liabilities 2024: $3,886,507Net Assets 2024: $28,421,3682024

Highlighted filing

2024

Assets$32,307,875
Liabilities$3,886,507
Net Assets$28,421,368
Open 2024 Filing

Operations Trend

Revenue Growth76th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $4,519,2922010Expenses 2011: $3,779,4742011Expenses 2012: $5,863,5622012Revenue 2013: $3,907,344Expenses 2013: $3,792,780Net Income 2013: $114,5642013Revenue 2014: $5,581,455Expenses 2014: $5,098,650Net Income 2014: $482,8052014Revenue 2015: $3,662,244Expenses 2015: $2,937,776Net Income 2015: $724,4682015Revenue 2016: $5,071,795Expenses 2016: $3,768,109Net Income 2016: $1,303,6862016Revenue 2017: $4,010,410Expenses 2017: $3,025,972Net Income 2017: $984,4382017Revenue 2018: $7,765,598Expenses 2018: $4,689,278Net Income 2018: $3,076,3202018Revenue 2019: $3,663,404Expenses 2019: $4,037,677Net Income 2019: -$374,2732019Revenue 2020: $4,297,708Expenses 2020: $3,522,688Net Income 2020: $775,0202020Revenue 2021: $10,070,838Expenses 2021: $3,636,660Net Income 2021: $6,434,1782021Revenue 2022: $4,579,167Expenses 2022: $5,131,704Net Income 2022: -$552,5372022Revenue 2023: $4,857,405Expenses 2023: $5,663,041Net Income 2023: -$805,6362023Revenue 2024: $6,105,104Expenses 2024: $6,205,716Net Income 2024: -$100,6122024

Highlighted filing

2024

Revenue$6,105,104
Expenses$6,205,716
Net Income-$100,612
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$32,307,875
Liabilities
$3,886,507
Net assets
$28,421,368
Revenue
$6,105,104
Expenses
$6,205,716
Net income
-$100,612
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$32.3$3.89$28.4$6.11$6.21$0.10
2023Detailed filing. Detailed filing data is available for this year.$27.0$1.42$25.6$4.86$5.66$0.81
2022Detailed filing. Detailed filing data is available for this year.$25.2$2.00$23.2$4.58$5.13$0.55
2021Detailed filing. Detailed filing data is available for this year.$28.8$1.57$27.2$10.1$3.64$6.43
2020Detailed filing. Detailed filing data is available for this year.$26.6$2.79$23.8$4.30$3.52$0.78
2019Detailed filing. Detailed filing data is available for this year.$23.3$1.19$22.1$3.66$4.04$0.37
2018Detailed filing. Detailed filing data is available for this year.$21.2$1.12$20.0$7.77$4.69$3.08
2017Detailed filing. Detailed filing data is available for this year.$22.0$1.38$20.7$4.01$3.03$0.98
2016Detailed filing. Detailed filing data is available for this year.$18.7$1.24$17.5$5.07$3.77$1.30
2015Detailed filing. Detailed filing data is available for this year.$16.4$0.55$15.9$3.66$2.94$0.72
2014Detailed filing. Detailed filing data is available for this year.$17.0$0.59$16.4$5.58$5.10$0.48
2013Detailed filing. Detailed filing data is available for this year.$17.8$1.36$16.4$3.91$3.79$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$16.2$0.76$15.4$5.86
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.2$0.86$14.4$3.78
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$15.0$0.71$14.3$4.52
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 13, 2025
Return Version
2024v5.2
Gross Receipts
$10,314,388
Mission and Program Overview

Mission

The goals of The International League Against Epilepsy are to advance and disseminate knowledge about epilepsy, promote research, education, and training, and improve services and care for patients, especially by prevention, diagnosis and treatment.

To advance and disseminate knowledge about epilepsy, promote research, education, and training, and improve services and care for patients, especially by prevention, diagnosis and treatment.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$25,428,910$27,997,574▲ $2,568,664
Prepaid Expenses and Deferred Charges$181,594$695,385▲ $513,791
Cash and Non-Interest-Bearing Accounts$359,870$645,976▲ $286,106
Accounts Receivable$13,229$455,347▲ $442,118
Land, Buildings, and Equipment, Net$11,566$9,601▼ $1,965
Savings and Temporary Cash Investments$21$21→ $0
Total Assets$27,021,568$32,307,875▲ $5,286,307
Other Assets Total$1,026,378$2,503,971▲ $1,477,593
Liabilities
Other Liabilities$1,015,800$2,842,562▲ $1,826,762
Accounts Payable and Accrued Expenses$146,551$800,481▲ $653,930
Deferred Revenue$257,769$243,464▼ $14,305
Total Liabilities$1,420,120$3,886,507▲ $2,466,387
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$25,265,533$28,160,998▲ $2,895,465
Net Assets With Donor Restrictions$335,915$260,370▼ $75,545
Total Net Assets Fund Balance$25,601,448$28,421,368▲ $2,819,920
Total Liabilities and Net Assets / Fund Balance$27,021,568$32,307,875▲ $5,286,307

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$9,601$7,290$16,891
Other Assets Org$2,278,377--
Compensation and Service Providers
Top Officer Pay30th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Julie HallExecutive DirectorFT-$187,931$187,931
Justin HawkinsDirector of FinanceFT$147,239$7,362$154,601
Nancy VolkersCommunications OfficerFT$105,600$5,280$110,880

Board Members and Trustees

NameTitle
Jo WilmshurstChair, ILAE-Africa
John DunneChair, ILAE-Asia Oceania
Ghaieb Al JandeelChair, ILAE-Eastern Medite
Matthew WalkerChair, ILAE-Europe
Mario Arturo Alonso VanegasChair, ILAE-Latin America
Jaideep KapurChair, ILAE-North America
Samuel WiebePast President
Helen CrossPresident
Roberto CaraballoVice President
Edward H Bertram IIISecretary General
Alla GuekhtTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,147
Program Service Revenue
$3,868,923
Investment Income
$493,761
Other Revenue
$1,741,273
All Other Contributions
$1,147
Change in Net Assets
$-100,612
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,680,452
Salaries, Compensation, and Employee Benefits$1,196,581
Grants and Similar Amounts Paid$328,683
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$2,772,650$42,521-$2,815,171
Other Salaries and Wages$678,626$236,508-$915,134
Fees for Services Management-$299,429-$299,429
Foreign Grants$294,683--$294,683
Fees for Services Other$128,853$92,999-$221,852
Current Officers, Directors, Trustees, and Key Employees$49,029$138,902-$187,931
Travel$45,230$127,019-$172,249
Fees for Service Investment Mgmnt Fees-$121,945-$121,945
Fees for Services Accounting-$85,824-$85,824
Payroll Taxes-$61,566-$61,566
All Other Expenses$7,618$40,353-$47,971
Other Expenses$940$39,156-$40,096
Pension Plan Contributions-$31,437-$31,437
Grants to Domestic Orgs$28,000--$28,000
Information Technology$32,867$-7,339-$25,528
Fees for Services Legal-$24,491-$24,491
Grants to Domestic Individuals$6,000--$6,000
Depreciation Depletion-$5,720-$5,720
Insurance-$4,898-$4,898
Other Employee Benefits-$513-$513
Total Functional Expenses$4,859,454$1,346,262$0$6,205,716
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Gordon Research ConferencesEast Greenwich, RI501(c)(3)Education Grant$18,000
CURE EpilepsyChicago, IL501(c)(3)EEG machines in Ukraine$10,000

International Summary

Offices
1
Employees
14
Spending
$4,024,076

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
Yes
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeProgram ServiceMeetings and other services provided to promote the awareness of epilepsy and education of epilepsy professionals.114$3,205,987
South AmericaProgram ServiceMeetings and other services provided to promote the awareness of epilepsy and education of epilepsy professionals.00$373,130
East Asia and the PacificProgram ServiceMeetings and other services provided to promote the awareness of epilepsy and education of epilepsy professionals.00$124,019
Sub-Saharan Africa - Angola,Program ServiceMeetings and other services provided to promote the awareness of epilepsy and education of epilepsy professionals.00$103,134
South Asia - Afghanistan, Bangladesh,Program ServiceMeetings and other services provided to promote the awareness of epilepsy and education of epilepsy professionals.00$62,987
Middle East and North Africa -Program ServicesMeetings and other services provided to promote the awareness of epilepsy and education of epilepsy professionals.00$62,734
North America - Canada and Mexico, butProgram ServicesMeetings and other services provided to promote the awareness of epilepsy and education of epilepsy professionals.00$58,669
Central America & CaribbeanProgram ServiceMeetings and other services provided to promote the awareness of epilepsy and education of epilespy professionals.00$28,029
Russia & Neighboring StatesProgram ServiceMeetings and other services provided to promote the awareness of epilepsy and education of epilespy professionals.00$5,387
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to ILAE Secretariat$2,335,414
Bank Overdrafts$379,040
VAT Provision$128,108
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 6

“National chapters are members of the League, but are not considered stockholders.”

Form 990, Part VI, Section A, line 7A

“Changes to the constitution and by-laws have to be approved by the members. Every other year at the International congresses, proposed changes are voted on by the members at the Chapter Convention.”

Form 990, Part VI, Section A, line 7B

“The Executive Committee is elected by the chapters (members). Depending on its size, chapters have a certain number of votes during the election process.”

Form 990, Part VI, Section B, line 11B

“A copy of the 990 was provided to each member of the governing body to review before it was filed.”

Form 990, Part VI, Section B, line 12C

“All members of the Executive Committee are required to complete a conflict of interest document annually. The completed documents are reviewed to ensure there are no conflicts of interest.”

Form 990, Part VI, Section B, line 15

“Executive Director was recruited using an external and independent recruitment agency. Compensation was determined through comparative data and advice of in the external recruitment agency. Compensation is reviewed on an annual basis by the Finance Committee and Executive Committee in light of both performance and inflation. Compensation for other key employees is determined through use of comparative data including salary scales that are made available through membership of medical associations. Compensation is reviewed on an annual basis by the Finance Committee and Executive Committee in light of both performance and inflation.”

Form 990, Part VI, Section C, line 19

“Summarized financial information is included in the Association's annual report. If the governing documents, financial statements, or policies of our organization are subject to the Federal public disclosure rules (or state public disclosure rules), these documents will be made available upon request as applicable law may require. Otherwise, the governing documents, financial statements, and/or policies will be provided to the public at the discretion of management.”

Filing and Contact Details

Filer

Filer Name
International League Against Epilepsy
EIN
52-1298610
Phone
8608304787
Address
1747 Pennsylvania Avenue NW 1000, Washington, DC 20006

Signing Officer

Name
Helen Cross
Title
President
Phone
8605867566
Signed
2025-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Helen Cross
Formed
1975
Legal Domicile
Dc
Voting Board Members
11
Independent Board Members
11
Employees
8
Volunteers
0

Preparer

Firm
Kositzka Wicks and Company
Address
5270 Shawnee Road Suite 250, Alexandria, VA 22312
Preparer
Jennifer S Manster CPA
Phone
7036422700
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm3Edward H Bertram III
IRS990/Form990PartVIISectionAGrp/PersonNm4Jaideep Kapur
IRS990/Form990PartVIISectionAGrp/PersonNm5Jo Wilmshurst
IRS990/Form990PartVIISectionAGrp/PersonNm6John Dunne
IRS990/Form990PartVIISectionAGrp/PersonNm7Matthew Walker
IRS990/Form990PartVIISectionAGrp/PersonNm8Ghaieb Al Jandeel
IRS990/Form990PartVIISectionAGrp/PersonNm9Roberto Caraballo
IRS990/Form990PartVIISectionAGrp/PersonNm10Mario Arturo Alonso Vanegas
IRS990/Form990PartVIISectionAGrp/PersonNm11Julie Hall
IRS990/Form990PartVIISectionAGrp/PersonNm12Nancy Volkers
IRS990/Form990PartVIISectionAGrp/PersonNm13Justin Hawkins
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IRS990/Form990PartVIISectionAGrp/TitleTxt5Chair, ILAE-Africa
IRS990/Form990PartVIISectionAGrp/TitleTxt6Chair, ILAE-Asia Oceania
IRS990/Form990PartVIISectionAGrp/TitleTxt7Chair, ILAE-Europe
IRS990/Form990PartVIISectionAGrp/TitleTxt8Chair, ILAE-Eastern Medite
IRS990/Form990PartVIISectionAGrp/TitleTxt9Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt10Chair, ILAE-Latin America
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