Epilepsy Foundation of America

“From october 2022 through june 2023, the organization engaged a consultant to perform the duties of interim ceo during ceo transition.”

“The form 990 was prepared by the outside accountants and an electronic copy of the draft form 990 was sent to all board members before filing.”

“The epilepsy foundation has a conflict of interest policy as part of its code of ethics that is shared with all volunteers, board members, employees, and affiliates. Board members and staff annually complete a written conflict of interest disclosure statement, which is kept on file at foundation headquarters. Foundation policy requires anyone with a conflict of interest to reveal the conflict during any discussions, decisions, or actions that take place in which a conflict may arise, and to recuse him or herself from the decision making or action item. The executive committee maintains and reviews the conflict of interest disclosure statements from board members.”

“Epilepsy foundation has a compensation committee that sets compensation for the president and ceo. The committee also reviews and approves all compensation for c-suite executives (key employees). The ceo is hired and compensation terms are set by a contract which has been developed by the compensation committee of the board and approved by the board of directors. The compensation committee is made up of epilepsy foundation officers and board members, all who are volunteers, and includes the ceo as a nonvoting member. During the process for contract determination, the ceo is recused from all meetings of the compensation committee that concern his/her contract terms. The chair of the foundation negotiates the terms of the contract with the ceo under the direction and with approval of terms established by the compensation committee of the board. In order to determine an appropriate salary and compensation, the compensation committee reviews comparable data from the washington, dc metro area for the ceo position, as well as data from the national health council on compensation of ceos for comparably sized and similarly situated nonprofit entities. Sources reviewed at last contract negotiation for the ceo included the national health council survey data, the american society of association executives survey for the washington, dc metro area, data from the american research company's general survey, and health and disease segment for all geography, for the dc metro area. Based upon this data, a salary range is determined for the ceo position. Minutes of the compensation committee deliberations and actions concerning compensation are kept at the foundation's headquarters epilepsy foundation of america 52-0856660 office. In addition, the signed contract setting salary and compensation and all terms of employment for the ceo are maintained in the foundation's headquarters. Documentation of the data sources, the comparative evaluations made, and the results of the compensation committee deliberations, and minutes of meetings during executive session are also included in these files. Annual review of ceo performance is done by the compensation committee in executive session (without the ceo being present), with a formal written review required. This performance review serves as the basis for an annual bonus for the ceo, if any, within the terms of the ceo contract.”

“The epilepsy foundation makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

“Consultants: program service expenses 3,453,053. Management and general expenses 581,842. Fundraising expenses 431,943. Total expenses 4,466,838.”

“Change in split interest 222,498.”