Robin Raina Foundation

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“OTHER PROGRAM SERVICES 4: CLOVES Syndrome Foundation is focused on improving the lives of CLOVES patients by funding Overgrowth and Vascular Anomaly research. The foundation is committed to raising public awareness and providing member support by offering educational literature and resources while also establishing support networks within the medical and overgrowth communities. CLOVES is an extremely rare progressive overgrowth disorder, affecting approximatley 100 people worldwide. The symptoms vary from mild soft-tissue tumors to Vascular Malformations encompassing the spine or internal organs. CLOVES Syndrome is s closely linked to other overgrowth disorders like M-CM (Macrocephaly-Capillary Malformation) Syndrome, Klippel-Trnaunay-Weber Syndrome, and Proteus Syndrome.This foundation was founded by Adrienne and Chris Blankenship to help improve the life of our daughter, Emaleigh, and other CLOVES patients by raising money for research of this extremely rare progressive disorder. Our foundation is committed to raising public awareness and providing member support by offering educational literature and resources while also establishing support networks within the medical and overgrowth communities..CLOVES syndrome has many symptoms and variations, the more we learn, the better the future will be for these patients, children, loved ones. This condition affects approximately 100 people worldwide.RRF donated $5,000 towards the cause of raising public awareness and providing member support by offering educational literature and resources while also establishing support networks within the medical and overgrowth communities. OTHER PROGRAM SERVICES 5: Marlowe and Jonaha Terry - Johanna and Marlow Terry are from Moulton, AL..Johanna and Marlow lost everything they owned because of the devastation caused by the tornadoes in July 2011.Johanna was preparing to leave to her native Guatemala the next day, so the family decided to go to lunch. She mentioned the hail and dark skies, which made them hurry up to get to the restaurant, but they never looked behind to see what was happening with their farm. Within minutes of leaving (probably in their rear view mirror), the tornado hit their farm, and leveled the chicken coops, destroyed their tractors, trucks, Johannas car was on top of the tractor almost 200 yards from its original parking, their windows were sucked out together with the frames, including the patio door, which opened a big enough door for the monster-storm to pull out all of their furniture and scatter it in pieces all around the house. They found pieces from 100 yards to a mile away from the house and some of it they cant even find.They certainly feel incredibly lucky to have survived. Their neighbors were not that lucky and perished in the storm, while sitting in their house.The storms subsided, but Johanna and Marlows saga was just beginning. They spent some nights in a shelter, then they found a trailer to put on the property so they stay there to prevent it from being looted, but the trailers AC unit broke. They had no insurance, and no debt, and when they applied for a grant from FEMA, they were turned down on the aforementioned grounds. So, thats when RRF heard their story and decided to reach out and help them.RRF gave them a check for $17,530.00 towards rebuilding their homes OTHER PROGRAM SERVICES 6: Dilli - Dilli is a documentary film commissioned by the RRF to raise awareness and funds for the cause of homes for the slum dwellers across the world. The film has won 23 awards in internationak film festivals as on date.Infrastructure development in any large city across the world means different things to different people today. What is perceived as infrastructure development in one persons eyes could be actually resulting in homelessness for another person. The film Dilli attempts to capture the stark comparison of the rampant progress and development of the megalopolis of Delhi vis--vis thousands who are left home”

“Unrealized loss on securities = -$8514278”