Civic Intelligence

Cystic Fibrosis Research Institute

EIN 51-0169988 • 501(c)3 • Palo Alto, CA

Profile

To fund cystic fibrosis research, provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

1731 Embarcadero Road Suite 210Palo Alto, CA 94303

cfri.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

30th percentile

0.01x

Higher debt load relative to assets than 30% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

32nd percentile

0.01x

Higher debt load relative to revenue than 32% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

75th percentile

22%

Higher net margin than 75% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

73rd percentile

$116,238

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 5.7% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

71st percentile

13%

Faster asset growth than 71% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

30th percentile

-4.4%

Faster revenue growth than 30% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$4,205,242

Up $477,401 (+13%) from 2023

Liabilities

Up

$29,861

Up $10,053 (+51%) from 2023

Net Assets

Up

$4,175,381

Up $467,348 (+13%) from 2023

Revenue

Down

$2,055,947

Down $94,455 (-4.4%) from 2023

Expenses

Down

$1,594,228

Down $23,526 (-1.5%) from 2023

Net Income

Down

$461,719

Down $70,929 (-13%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2011: $578,266Liabilities 2011: $134,856Net Assets 2011: $443,4102011Assets 2012: $794,637Liabilities 2012: $224,909Net Assets 2012: $569,7282012Assets 2013: $848,587Liabilities 2013: $194,011Net Assets 2013: $654,5762013Assets 2014: $990,103Liabilities 2014: $163,927Net Assets 2014: $826,1762014Assets 2015: $1,302,350Liabilities 2015: $139,921Net Assets 2015: $1,162,4292015Assets 2016: $1,876,153Liabilities 2016: $115,314Net Assets 2016: $1,760,8392016Assets 2017: $2,253,741Liabilities 2017: $60,158Net Assets 2017: $2,193,5832017Assets 2018: $2,572,885Liabilities 2018: $51,755Net Assets 2018: $2,521,1302018Assets 2019: $2,678,794Liabilities 2019: $40,282Net Assets 2019: $2,638,5122019Assets 2020: $2,964,531Liabilities 2020: $91,909Net Assets 2020: $2,872,6222020Assets 2021: $3,446,356Liabilities 2021: $23,453Net Assets 2021: $3,422,9032021Assets 2022: $3,199,342Liabilities 2022: $37,586Net Assets 2022: $3,161,7562022Assets 2023: $3,727,841Liabilities 2023: $19,808Net Assets 2023: $3,708,0332023Assets 2024: $4,205,242Liabilities 2024: $29,861Net Assets 2024: $4,175,3812024

Highlighted filing

2024

Assets$4,205,242
Liabilities$29,861
Net Assets$4,175,381

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2011: $885,701Expenses 2011: $771,831Net Income 2011: $113,8702011Revenue 2012: $1,041,708Expenses 2012: $915,390Net Income 2012: $126,3182012Revenue 2013: $1,016,670Expenses 2013: $814,472Net Income 2013: $202,1982013Revenue 2014: $1,360,702Expenses 2014: $1,189,102Net Income 2014: $171,6002014Revenue 2015: $1,322,211Expenses 2015: $985,958Net Income 2015: $336,2532015Revenue 2016: $1,652,089Expenses 2016: $1,053,679Net Income 2016: $598,4102016Revenue 2017: $1,660,471Expenses 2017: $1,257,172Net Income 2017: $403,2992017Revenue 2018: $1,750,385Expenses 2018: $1,422,838Net Income 2018: $327,5472018Revenue 2019: $1,463,124Expenses 2019: $1,345,742Net Income 2019: $117,3822019Revenue 2020: $1,304,810Expenses 2020: $1,070,700Net Income 2020: $234,1102020Revenue 2021: $1,700,235Expenses 2021: $1,149,954Net Income 2021: $550,2812021Revenue 2022: $1,350,296Expenses 2022: $1,525,935Net Income 2022: -$175,6392022Revenue 2023: $2,150,402Expenses 2023: $1,617,754Net Income 2023: $532,6482023Revenue 2024: $2,055,947Expenses 2024: $1,594,228Net Income 2024: $461,7192024

Highlighted filing

2024

Revenue$2,055,947
Expenses$1,594,228
Net Income$461,719

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$4.21$0.03$4.18$2.06$1.59$0.46
2023Detailed filing. Detailed filing data is available for this year.$3.73$0.02$3.71$2.15$1.62$0.53
2022Detailed filing. Detailed filing data is available for this year.$3.20$0.04$3.16$1.35$1.53$0.18
2021Detailed filing. Detailed filing data is available for this year.$3.45$0.02$3.42$1.70$1.15$0.55
2020Detailed filing. Detailed filing data is available for this year.$2.96$0.09$2.87$1.30$1.07$0.23
2019Detailed filing. Detailed filing data is available for this year.$2.68$0.04$2.64$1.46$1.35$0.12
2018Detailed filing. Detailed filing data is available for this year.$2.57$0.05$2.52$1.75$1.42$0.33
2017Detailed filing. Detailed filing data is available for this year.$2.25$0.06$2.19$1.66$1.26$0.40
2016Detailed filing. Detailed filing data is available for this year.$1.88$0.12$1.76$1.65$1.05$0.60
2015Detailed filing. Detailed filing data is available for this year.$1.30$0.14$1.16$1.32$0.99$0.34
2014Detailed filing. Detailed filing data is available for this year.$0.99$0.16$0.83$1.36$1.19$0.17
2013Summary only. Only limited summary data is available for this year.$0.85$0.19$0.65$1.02$0.81$0.20
2012Summary only. Only limited summary data is available for this year.$0.79$0.22$0.57$1.04$0.92$0.13
2011Summary only. Only limited summary data is available for this year.$0.58$0.13$0.44$0.89$0.77$0.11
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 10, 2025
Return Version
2024v5.2
Gross Receipts
$2,056,206
Mission and Program Overview

Mission

To fund cystic fibrosis research, provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

To fund cystic fibrosis research, provide education and personal support, and to spread awareness of cystic fibrosis, a life threatening genetic disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,292,412$2,749,898▲ $457,486
Investments in Publicly Traded Securities$1,246,655$1,292,372▲ $45,717
Pledges and Grants Receivable$160,000$121,500▼ $38,500
Prepaid Expenses and Deferred Charges$21,388$34,879▲ $13,491
Land, Buildings, and Equipment, Net$2,026$1,233▼ $793
Accounts Receivable$217$217→ $0
Total Assets$3,727,841$4,205,242▲ $477,401
Other Assets Total$5,143$5,143→ $0
Liabilities
Accounts Payable and Accrued Expenses$19,808$29,861▲ $10,053
Total Liabilities$19,808$29,861▲ $10,053
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,373,804$2,750,740▲ $376,936
Net Assets With Donor Restrictions$1,334,229$1,424,641▲ $90,412
Total Net Assets Fund Balance$3,708,033$4,175,381▲ $467,348
Total Liabilities and Net Assets / Fund Balance$3,727,841$4,205,242▲ $477,401

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,233$107,553$108,786
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Siri VaethExecutive DirectorFT$116,238$116,238

Board Members and Trustees

NameTitle
Bill HultPresident
Jessica MartensVice President
Ahmet UluerBoard Member
Arek PuziaBoard Member
Doug ModlinBoard Member
Elyse Elconin GoldbergBoard Member
Francine BionBoard Member
Jean HanleyBoard Member
Julie DeschBoard Member
Richard B MossBoard Member
Rohini Thukral MckeeBoard Member
Zoe DaviesBoard Secretary
Oscar a FlamencoBoard Treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,916,352
Program Service Revenue
$13,707
Investment Income
$124,582
Other Revenue
$1,306
All Other Contributions
$1,737,203
Change in Net Assets
$461,719

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table76$29,652Fair Market Value (FMV)
Total Noncash Contributions76$29,652-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,055,947
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$15,629
Total Revenue per Audited Statements
$2,071,576
Total Revenue per Form 990
$2,055,947
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$593,795
Grants and Similar Amounts Paid$528,720
Salaries, Compensation, and Employee Benefits$471,713
Total Fundraising Expense$134,087
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$528,720--$528,720
Conferences and Meetings$274,289$290-$274,579
Other Salaries and Wages$227,777$16,695$29,992$274,464
Current Officers, Directors, Trustees, and Key Employees$96,465$7,071$12,702$116,238
Fees for Services Accounting$4,404$70,260$503$75,167
Other Employee Benefits$45,662$4,756$2,252$52,670
Occupancy$42,728$2,574$6,178$51,480
Payroll Taxes$23,268$1,765$3,308$28,341
Fees for Services Other$960$5,144$10,619$16,723
Insurance$5,020$302$726$6,048
Other Expenses$4,252$256$615$5,123
All Other Expenses$1,685$240$1,998$3,923
Depreciation Depletion$658$40$95$793
Total Functional Expenses$1,345,841$114,300$134,087$1,594,228

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,604,228
Expenses per Audited Statements$1,594,228
Total Expenses per Form 990$1,594,228
Expenses Not Reported on Form 990$10,000
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of California IrvineIrvine, CA501 (c)3New Horizons Research Project$70,000
University of IowaIowa City, IA501 (c)3New Horizons Research Project$70,000
University of PittsburghPittsburgh, PA501 (c)3New Horizons Research Project$70,000
Yale University School of MedicineNew Haven, CT501 (c)3New Horizons Research Project$70,000
Yale University School of MedicineNew Haven, CT501 (c)3New Horizons Research Project$70,000
The Board of Trustees of the Leland Stanford Jr UniversityPalo Alto, CA501 (c)3Elizabeth Nash Memorial Post-doctoral Fellowship Program$65,000
The Board of Trustees of the Leland Stanford Jr UniversityPalo Alto, CA501 (c)3Elizabeth Nash Memorial Post-doctoral Fellowship Program$65,000
University of California Los AngelesLos Angeles, CA501 (c)3Elizabeth Nash Memorial Post-doctoral Fellowship Program$65,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$259
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$102,908-$259-
Total Events$102,908-$259$-259
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

Organization's process to review form 990 the form 990 is reviewed by the board for accuracy and completeness. All questions are resolved prior to the filing of the form 990.

Form 990, Part VI, Section B, Line 12C

Enforcement of conflicts policy a copy of the organizations conflict of interest policy is furnished to the board members annually. Board members are required to notify to the management if any conflicts exist.

Form 990, Part VI, Section B, Line 15A

Compensation process for top official exec board reviews industry compensation level to determine exec director's salary.

Form 990, Part VI, Section C, Line 19

Governing documents disclosure explanation governing documents, conflict of interest policy and financial statements are available upon request.

Filing and Contact Details

Filer

Filer Name
Cystic Fibrosis Research Institute
EIN
51-0169988
Phone
6506657576
Address
1731 EMBARCADERO ROAD SUITE 210, PALO ALTO, CA 94303

Signing Officer

Name
Bill Hult
Title
President
Phone
6506657576
Signed
2025-09-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Bill Hult
Formed
1975
Legal Domicile
CA
Voting Board Members
13
Independent Board Members
13
Employees
7
Volunteers
150

Preparer

Firm
Brymar CPA Llp
Address
17 ASPEN WAY, WATSONVILLE, CA 95076
Preparer
Sandra Martinez-bulosan
Phone
8312881720
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

The organization is exempt from federal and state income taxes under sections 501(c) (3) of the internal revenue code (irc) and 23701(d) of the california revenue and taxation code. The organization does pay unrelated business income tax on rental activities that are not related to its exempt purpose. In accordance with gaap, an organization must recognize the tax benefit associated with any tax positions taken for tax return purposes when it is more likely than not the position will be sustained. The organization does not believe there are any material uncertain tax positions. For the years ended december 31, 2024 and 2023, there were no tax related interest or penalties recorded or included in the financial statements.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt8VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13EXECUTIVE DIRECTOR
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IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
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IRS990/InsuranceGrp/ManagementAndGeneralAmt0302
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IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATIONAL AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/NoncashContributionsAmt029652
IRS990/NondeductibleContributionsInd00
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IRS990/OccupancyGrp/ManagementAndGeneralAmt02574
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IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt05143
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IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02252
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt04756
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IRS990/OtherEmployeeBenefitsGrp/TotalAmt052670
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IRS990/OtherExpensesGrp/Desc2NON-FINANCIAL EXPENSE
IRS990/OtherExpensesGrp/Desc3TELEPHONE
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IRS990/OtherExpensesGrp/FundraisingAmt117291
IRS990/OtherExpensesGrp/FundraisingAmt229652
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IRS990/OtherExpensesGrp/TotalAmt229652
IRS990/OtherExpensesGrp/TotalAmt35123
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IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0227777
IRS990/OtherSalariesAndWagesGrp/TotalAmt0274464
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03308
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01765
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IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0160000
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER SECTIONS 501(C) (3) OF THE INTERNAL REVENUE CODE (IRC) AND 23701(D) OF THE CALIFORNIA REVENUE AND TAXATION CODE. THE ORGANIZATION DOES PAY UNRELATED BUSINESS INCOME TAX ON RENTAL ACTIVITIES THAT ARE NOT RELATED TO ITS EXEMPT PURPOSE. IN ACCORDANCE WITH GAAP, AN ORGANIZATION MUST RECOGNIZE THE TAX BENEFIT ASSOCIATED WITH ANY TAX POSITIONS TAKEN FOR TAX RETURN PURPOSES WHEN IT IS MORE LIKELY THAN NOT THE POSITION WILL BE SUSTAINED. THE ORGANIZATION DOES NOT BELIEVE THERE ARE ANY MATERIAL UNCERTAIN TAX POSITIONS. FOR THE YEARS ENDED DECEMBER 31, 2024 AND 2023, THERE WERE NO TAX RELATED INTEREST OR PENALTIES RECORDED OR INCLUDED IN THE FINANCIAL STATEMENTS.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
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IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0102908
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0102908
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0259

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