Civic Intelligence

Sickle Cell Consortium Inc

EIN 47-4771677 • 501(c)3 • Cumming, GA

Profile

To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy and legislation. Nothing for us without us.

P O Box 1195Cumming, GA 30040

www.sicklecellconsortium.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

20th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

74th percentile

21%

Higher net margin than 74% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

49th percentile

$54,700

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 4.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

98th percentile

237%

Faster asset growth than 98% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

83rd percentile

50%

Faster revenue growth than 83% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets19th percentile

Assets

Up

$418,216

Up $294,004 (+237%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$418,216

Up $294,004 (+237%) from 2023

Operations
Liabilities / Revenue20th percentileNet Margin74th percentile

Revenue

Up

$1,379,541

Up $461,318 (+50%) from 2023

Expenses

Up

$1,085,537

Up $66,310 (+6.5%) from 2023

Net Income

Up

$294,004

Up $395,008 (+391%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth98th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2017: $0Liabilities 2017: $0Net Assets 2017: $14,0632017Assets 2018: $0Liabilities 2018: $0Net Assets 2018: $02018Assets 2019: $0Liabilities 2019: $0Net Assets 2019: $02019Assets 2020: $103,607Liabilities 2020: $0Net Assets 2020: $103,6072020Assets 2021: $246,797Liabilities 2021: $0Net Assets 2021: $246,7972021Assets 2022: $190,766Liabilities 2022: $0Net Assets 2022: $190,7662022Assets 2023: $124,212Liabilities 2023: $0Net Assets 2023: $124,2122023Assets 2024: $418,216Liabilities 2024: $0Net Assets 2024: $418,2162024

Highlighted filing

2024

Assets$418,216
Liabilities$0
Net Assets$418,216
Open 2024 Filing

Operations Trend

Revenue Growth83rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2017: $185,295Expenses 2017: $171,232Net Income 2017: $14,0632017Revenue 2018: $241,381Expenses 2018: $241,381Net Income 2018: $02018Revenue 2019: $325,000Expenses 2019: $325,000Net Income 2019: $02019Revenue 2020: $347,929Expenses 2020: $244,322Net Income 2020: $103,6072020Revenue 2021: $681,362Expenses 2021: $538,172Net Income 2021: $143,1902021Revenue 2022: $686,666Expenses 2022: $742,697Net Income 2022: -$56,0312022Revenue 2023: $918,223Expenses 2023: $1,019,227Net Income 2023: -$101,0042023Revenue 2024: $1,379,541Expenses 2024: $1,085,537Net Income 2024: $294,0042024

Highlighted filing

2024

Revenue$1,379,541
Expenses$1,085,537
Net Income$294,004
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$418,216
Liabilities
$0
Net assets
$418,216
Revenue
$1,379,541
Expenses
$1,085,537
Net income
$294,004
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.42$0.00$0.42$1.38$1.09$0.29
2023Detailed filing. Detailed filing data is available for this year.$0.12$0.00$0.12$0.92$1.02$0.10
2022Detailed filing. Detailed filing data is available for this year.$0.19$0.00$0.19$0.69$0.74$0.06
2021Detailed filing. Detailed filing data is available for this year.$0.25$0.00$0.25$0.68$0.54$0.14
2020Detailed filing. Detailed filing data is available for this year.$0.10$0.00$0.10$0.35$0.24$0.10
2019Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.33$0.33$0.00
2018Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.24$0.24$0.00
2017Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.01$0.19$0.17$0.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 19, 2025
Return Version
2024v5.2
Gross Receipts
$1,379,541
Mission and Program Overview

Mission

To provide sickle cell community-based organizations (CBOs) with the necessary infrastructure, support, training and resources

To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy, and legislation.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$124,212$418,216▲ $294,004
Cap Stk Tr Prin Current Funds$124,212$418,216▲ $294,004
Rtn Earn Endowment Incm Other Fnds$0$0→ $0
Total Assets$124,212$418,216▲ $294,004
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$124,212$418,216▲ $294,004
Total Liabilities and Net Assets / Fund Balance$124,212$418,216▲ $294,004
Compensation and Service Providers
Top Officer Pay49th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Lakiea BaileyExecutive DirectorFT$54,700$54,700
Doris BaileyAssociate Finance DirectorFT$31,000$31,000
Sharonda HudsonDirector of OperationsFT$25,950$25,950
Dominique GoodsonAdministrative DirectorFT$16,500$16,500
Mia RobinsonPresident of the General AssemblyPT$4,300$4,300
Raymona Holloway LawrenceDirector of ResearchPT$750$750

Board Members and Trustees

NameTitle
Eric Nti FrempongDirector of Finance

Highest Paid Contractors

ContractorServicesLocationCompensation
Major Effect Communications LLCLogistics641 GARNER CT, Desoto, TX 75154$51,500
610 Designs And CompanyConsulting1118 DAVENTRY DR, Glenn Heights, TX 75154$46,804
Sandy Mill WorksLogistics1000 NORTHSIDE DR, Atlanta, GA 30318$23,750
-Audio Visual Services150 VARSAILLES PL, Ellenwood, GA 30294$21,048
-Consulting1411 ABORVITAE AVE, Dallas, TX 75224$19,500
Revenue and Support

Revenue Composition

Contributions and Grants
$1,376,794
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$2,747
All Other Contributions
$1,351,736
Change in Net Assets
$294,004
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$903,200
Salaries, Compensation, and Employee Benefits$171,700
Grants and Similar Amounts Paid$10,637
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$777,406--$777,406
Current Officers, Directors, Trustees, and Key Employees$133,200--$133,200
Other Salaries and Wages$38,500--$38,500
Travel$22,876--$22,876
Information Technology$19,945--$19,945
All Other Expenses-$15,128-$15,128
Other Expenses$18,758$11,261-$11,261
Grants to Domestic Individuals$10,637--$10,637
Office Expenses$6,633--$6,633
Total Functional Expenses$1,057,955$27,582$0$1,085,537
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Part VI, Section A, Line 2

“The Executive Director of the organization is the Associate Finance Director s daughter.”

Part VI, Section C, Line 19

“The organization encourages interested parties to request or inspect the books and form 990. The organization also directs all interested parties to either visit the IRS website or contact the Director of Finance with any questions.”

Filing and Contact Details

Filer

Filer Name
Sickle Cell Consortium Inc
EIN
47-4771677
Phone
7068253487
Address
P O BOX 1195, CUMMING, GA 30040

Signing Officer

Name
Lakiea Bailey
Title
Executive Director
Phone
7068253487
Signed
2025-10-19
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Lakiea Bailey
Formed
2013
Legal Domicile
Ga
Voting Board Members
7
Independent Board Members
7
Employees
0
Volunteers
21

Preparer

Firm
Frempong CPA
Address
P O BOX 801, DULUTH, GA 30096
Preparer
Eric Nti Frempong
Phone
6782300677
Supplemental Narrative

Additional Explanations

PART IX, LINE 24E

“All other expenses include postage, registration fees, podcast, subscriptions,and other professional expenses.”

Raw XML Appendix373 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt1610 DESIGNS AND COMPANY
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IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01376794
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IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0903200
IRS990/CYOtherRevenueAmt02747
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0294004
IRS990/CYSalariesCompEmpBnftPaidAmt0171700
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IRS990/Desc0The Leadership Summit is the primary meeting of the Sickle Cell Consortium (SC3). The meeting convenes SC3 partners to identify and prioritize problems, needs, and gaps in the sickle cell community and then works collectively with other partnered groups to define and execute mutually beneficial and sustainable solutions.
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IRS990/EmployeeCnt00
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IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1ASSOCIATE FINANCE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt3PRESIDENT OF THE GENERAL ASSEMBLY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR OF OPERATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR OF FINANCE
IRS990/Form990PartVIISectionAGrp/TitleTxt6ADMINISTRATIVE DIRECTOR
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IRS990/ProgSrvcAccomActy2Grp/Desc0The Annual Warriors Convention is the premier patient-powered gathering in the sickle cell community. It serves as a national platform for education, empowerment, and connection, bringing together patients, caregivers, healthcare, professionals, researchers, advocates, and industry partners from across the country.
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IRS990/ProgSrvcAccomActy3Grp/Desc0The Caregivers Summit provides a platform for caregivers to obtain support, education, encouragement, and community. It is a place for caregivers to connect and encourage one another.
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IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt00
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt01376974
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0918223
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0686666
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0681362
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0347929
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt04011154
IRS990ScheduleA/InvestmentIncomeCYPct00
IRS990ScheduleA/InvestmentIncomePYPct00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct01
IRS990ScheduleA/PublicSupportPY509Pct01
IRS990ScheduleA/PublicSupportTotal509Amt04011154
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt01376974
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0918223
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0686666
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0681362
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0347929
IRS990ScheduleA/Total509Grp/TotalAmt04011154
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt01376974
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0918223
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0686666
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0681362
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0347929
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt04011154
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0false
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0All other expenses include postage, registration fees, podcast, subscriptions,and other professional expenses.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Executive Director of the organization is the Associate Finance Director s daughter.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The organization encourages interested parties to request or inspect the books and form 990. The organization also directs all interested parties to either visit the IRS website or contact the Director of Finance with any questions.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0PART IX, LINE 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0124212
IRS990/TotalAssetsEOYAmt0418216
IRS990/TotalAssetsGrp/BOYAmt0124212
IRS990/TotalAssetsGrp/EOYAmt0418216
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt01376794
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt027582
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt01057955
IRS990/TotalFunctionalExpensesGrp/TotalAmt01085537
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0124212
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0418216
IRS990/TotalProgramServiceExpensesAmt0777407
IRS990/TotalReportableCompFromOrgAmt0133200
IRS990/TotalRevenueGrp/ExclusionAmt02747
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt01379541
IRS990/TotalVolunteersCnt021
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0124212
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0418216
IRS990/TravelGrp/ProgramServicesAmt022876
IRS990/TravelGrp/TotalAmt022876
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0P O BOX 1195
IRS990/USAddress/CityNm0CUMMING
IRS990/USAddress/StateAbbreviationCd0GA
IRS990/USAddress/ZIPCd030040
IRS990/VotingMembersGoverningBodyCnt07
IRS990/VotingMembersIndependentCnt07
IRS990/WebsiteAddressTxt0WWW.SICKLECELLCONSORTIUM.ORG
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0LAKIEA BAILEY
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0EXECUTIVE DIRECTOR
ReturnHeader/BusinessOfficerGrp/PhoneNum07068253487
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-10-19
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0SICKLE CELL CONSORTIUM INC
ReturnHeader/Filer/BusinessNameControlTxt0SICK
ReturnHeader/Filer/EIN0474771677
ReturnHeader/Filer/PhoneNum07068253487
ReturnHeader/Filer/USAddress/AddressLine1Txt0P O BOX 1195
ReturnHeader/Filer/USAddress/CityNm0CUMMING
ReturnHeader/Filer/USAddress/StateAbbreviationCd0GA
ReturnHeader/Filer/USAddress/ZIPCd030040
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0454009245
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0FREMPONG CPA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0P O BOX 801
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0DULUTH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0GA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd030096
ReturnHeader/PreparerPersonGrp/PhoneNum06782300677
ReturnHeader/PreparerPersonGrp/PreparationDt02025-10-20
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ERIC NTI FREMPONG
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02025-10-20T01:58:51-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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