Civic Intelligence

Myositis Support and Understanding Association Inc

EIN 47-4570748 • 501(c)3 • Lincoln, DE

Profile

The mission of Myositis Support and Understanding Association Inc is to improve the lives of and empower those fighting myositis through education, support, awareness, advocacy, patient financial assistance and access to research.

9125 N Old State RoadLincoln, DE 19960

understandingmyositis.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

71st percentile

0.14x

Higher debt load relative to assets than 71% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

63rd percentile

0.06x

Higher debt load relative to revenue than 63% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

51st percentile

5.0%

Higher net margin than 51% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

30th percentile

-3.8%

Faster asset growth than 30% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

53rd percentile

8.4%

Faster revenue growth than 53% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets71st percentile

Assets

Down

$234,940

Down $9,327 (-3.8%) from 2023

Liabilities

Down

$32,024

Down $36,334 (-53%) from 2023

Net Assets

Up

$202,916

Up $27,007 (+15%) from 2023

Operations
Liabilities / Revenue63rd percentileNet Margin51st percentile

Revenue

Up

$536,205

Up $41,637 (+8.4%) from 2023

Expenses

Up

$509,198

Up $79,102 (+18%) from 2023

Net Income

Down

$27,007

Down $37,465 (-58%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth30th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$300K$200K$100K$0Assets 2018: $60,955Liabilities 2018: $6,0332018Assets 2019: $93,954Liabilities 2019: $02019Assets 2020: $115,401Liabilities 2020: $0Net Assets 2020: $115,4012020Assets 2021: $146,907Liabilities 2021: $0Net Assets 2021: $146,9072021Assets 2022: $111,437Liabilities 2022: $0Net Assets 2022: $111,4372022Assets 2023: $244,267Liabilities 2023: $68,358Net Assets 2023: $175,9092023Assets 2024: $234,940Liabilities 2024: $32,024Net Assets 2024: $202,9162024

Highlighted filing

2024

Assets$234,940
Liabilities$32,024
Net Assets$202,916
Open 2024 Filing

Operations Trend

Revenue Growth53rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2018: $64,884Expenses 2018: $39,144Net Income 2018: $25,7402018Revenue 2019: $100,076Expenses 2019: $61,044Net Income 2019: $39,0322019Revenue 2020: $115,106Expenses 2020: $93,659Net Income 2020: $21,4472020Revenue 2021: $163,385Expenses 2021: $131,879Net Income 2021: $31,5062021Revenue 2022: $444,144Expenses 2022: $479,614Net Income 2022: -$35,4702022Revenue 2023: $494,568Expenses 2023: $430,096Net Income 2023: $64,4722023Revenue 2024: $536,205Expenses 2024: $509,198Net Income 2024: $27,0072024

Highlighted filing

2024

Revenue$536,205
Expenses$509,198
Net Income$27,007
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$234,940
Liabilities
$32,024
Net assets
$202,916
Revenue
$536,205
Expenses
$509,198
Net income
$27,007
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.35$0.32$2.03$5.36$5.09$0.27
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.44$0.68$1.76$4.95$4.30$0.64
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.11$0.00$1.11$4.44$4.80$0.35
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.47$0.00$1.47$1.63$1.32$0.32
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.15$0.00$1.15$1.15$0.94$0.21
2019Summary only. Only limited summary data is available for this year.$0.94$0.00$1.00$0.61$0.39
2018Summary only. Only limited summary data is available for this year.$0.61$0.06$0.65$0.39$0.26
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Apr 10, 2025
Return Version
2024v5.1
Gross Receipts
$536,205
Mission and Program Overview

Mission

ThemissionofMyositisSupportandUnderstandingAssociationIncistoimprovethelivesofandempowerthosefightingmyositisthrougheducation,support,awareness,advocacy,patientfinancialassistanceandaccesstoresearch.

The mission of Myositis Support and Understanding Association, Inc is to improve the lives of and empower those fighting myositis through education, support, awareness, advocacy, patient financial assistance and access to research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$227,657$233,003▲ $5,346
Accounts Receivable$15,345--
Prepaid Expenses and Deferred Charges$1,265$1,937▲ $672
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$244,267$234,940▼ $9,327
Liabilities
Deferred Revenue$66,580$28,143▼ $38,437
Accounts Payable and Accrued Expenses$1,778$3,881▲ $2,103
Total Liabilities$68,358$32,024▼ $36,334
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$104,764$175,909▲ $71,145
Total Net Assets Fund Balance$175,909$202,916▲ $27,007
Total Liabilities and Net Assets / Fund Balance$244,267$234,940▼ $9,327
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Lynn WilsonPresident
Benita MoyersVice President/Secretary
Manuel LubinusBoard Member
Shirley SchniedersTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$528,032
Program Service Revenue
$2,590
Investment Income
$5,332
Other Revenue
$251
All Other Contributions
$468,191
Change in Net Assets
$27,007

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeReported AmountValuation Method
Other Non Cash Contri Table$224,021Fair Market Value (FMV)
Total Noncash Contributions$224,021-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$421,191
Grants and Similar Amounts Paid$85,507
Total Fundraising Expense$20,051
Professional Fundraising Fees$2,500
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$208,251$87,737$9,056$305,044
Grants to Domestic Individuals$65,507--$65,507
Fees for Services Legal$45,845$900-$46,745
Grants to Domestic Orgs$20,000--$20,000
Conferences and Meetings$10,216$6,151-$16,367
Information Technology$9,435$4,067$70$13,572
Travel$5,072$5,886$1,810$12,768
Office Expenses$2,350$2,499-$4,849
Fees for Services Professional Fundraising--$2,500$2,500
Occupancy$1,900--$1,900
Other Expenses$7,325$1,777$775$1,777
All Other Expenses$39$558$907$1,504
Insurance-$1,265-$1,265
Total Functional Expenses$375,940$113,207$20,051$509,198
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
BioSensics LLCNewton, MA-Monitoring Biomarker study$20,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$2,500

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Empower Walk$30,810$0$7,477$-7,477
Facebook Fundraiser$10,201$0$400$-400
Total Events$59,841$0$20,051$-20,051
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 Part VI Line 11B

“The Treasurer of the organization is responsible for reviewing the 990 form with the President and/or Board Members.”

Form 990 Part VI Line 12C

“The organization regularly and consistently monitor and enforce compliance with the policy by having all officers acknowledge, disclose if any, and sign the MSU BOD Conflict of Interest Policy annually which is kept on file.”

Form 990 Part VI Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public on its website.”

Filing and Contact Details

Filer

Filer Name
Myositis Support and Understanding Association Inc
EIN
47-4570748
Address
9125 N Old State Road, Lincoln, DE 19960

Signing Officer

Name
Shirley Schnieders
Title
Treasurer
Phone
5639207124
Signed
2025-04-10
Discuss with paid preparer
No

Organization Details

Legal Domicile
De
Voting Board Members
4
Independent Board Members
4
Employees
0

Preparer

Firm
FierceCG LLC
Address
2923 DeMooney Road, Atlanta, GA 30349
Preparer
Jennifer Muchison
Phone
6786624997
Supplemental Narrative

Additional Explanations

Form 990 Part III Line 4D

“Scholarship Awards, Revenue $1,500.00, Total Expense $2,483.00”

Raw XML AppendixShowing 400 of 525 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/DistributionAllocationsGrp/CarryoverPYNotAppliedAmt00
IRS990ScheduleA/DistributionAllocationsGrp/CYDistriAppDistributableAmt00
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IRS990ScheduleA/DistributionAllocationsGrp/ExcessDistributionCyovYr5Amt00
IRS990ScheduleA/DistributionAllocationsGrp/ExcessDistriCyovToNextYrAmt00
IRS990ScheduleA/DistributionAllocationsGrp/ExcessFromYear1Amt00
IRS990ScheduleA/DistributionAllocationsGrp/ExcessFromYear2Amt00
IRS990ScheduleA/DistributionAllocationsGrp/ExcessFromYear3Amt00
IRS990ScheduleA/DistributionAllocationsGrp/ExcessFromYear4Amt00
IRS990ScheduleA/DistributionAllocationsGrp/ExcessFromYear5Amt00
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IRS990ScheduleA/DistributionAllocationsGrp/RemainingUnderdistriPYAmt00
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IRS990ScheduleA/DistributionAllocationsGrp/UnderdistributionsAmt00
IRS990ScheduleA/DistributionsGrp/CYAdministrativeExpensePaidAmt00
IRS990ScheduleA/DistributionsGrp/CYDistriAttentiveSuprtOrgAmt00
IRS990ScheduleA/DistributionsGrp/CYDistributableAsAdjustedAmt00
IRS990ScheduleA/DistributionsGrp/CYDistributionYrRt00
IRS990ScheduleA/DistributionsGrp/CYOtherDistributionsAmt00
IRS990ScheduleA/DistributionsGrp/CYPaidAccomplishExemptPrpsAmt00
IRS990ScheduleA/DistributionsGrp/CYPdInExcessIncomeActivityAmt00
IRS990ScheduleA/DistributionsGrp/CYTotalAnnualDistributionsAmt00
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IRS990ScheduleA/DistributionsGrp/QualifiedSetAsideAmt00
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0163384
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0115106
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01730116
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IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt0176
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IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt02590
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IRS990ScheduleA/InvestmentIncomeCYPct00.00340
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IRS990ScheduleA/MinimumAssetAmountGrp/AdjustedFMVLessIndebtednessGrp/PriorYearAmt00
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IRS990ScheduleA/MinimumAssetAmountGrp/CashDeemedCharitableGrp/PriorYearAmt00
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IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0163384
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0115106
IRS990ScheduleA/Total509Grp/TotalAmt01747496
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IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01753407
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
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IRS990ScheduleG/CharitableDistributionRqrInd0false
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IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesTotalEventsAmt00
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IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt010201
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IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt020051
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt00
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0Facebook Fundraiser
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0Empower Walk
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt010201
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt00
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IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt00
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IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt014271
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt0400
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IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt03
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt0775
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt0775
IRS990ScheduleG/GamingInformationGrp/VolunteerLaborBingoInd0false
IRS990ScheduleG/GamingInformationGrp/VolunteerLaborOtherGamingInd0false
IRS990ScheduleG/GamingInformationGrp/VolunteerLaborPullTabsInd0false
IRS990ScheduleG/GamingWithNonmembersInd0false

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